Search found 479 matches

by Yankiwi
Wed Apr 14, 2021 6:08 am
Forum: Prescription Medications
Topic: Tramadol Experience
Replies: 6
Views: 102

Re: Tramadol Experience

I took 100mg slow release Tramadol at bed time for years. About a year ago I had acute kidney failure due to a botched prescription. The kidney failure came on slowly and I was not aware of it, then quickly as too much calcium built up in my bloodstream. By the time I knew what was happening I was l...
by Yankiwi
Mon Apr 05, 2021 2:35 am
Forum: General Topics: RLS
Topic: How many hours do you sleep?
Replies: 16
Views: 217

Re: How many hours do you sleep?

For years I got only around four hours of sleep, broken sleep to boot. That is not enough. I had big red circles under my eyes during that time. After starting to take iron tablets I was able to get about six hours, sometimes seven each night. Of course, to get that much meant devoting 10 or more ho...
by Yankiwi
Sun Apr 04, 2021 1:19 am
Forum: Just Joined?
Topic: RLS and the COVID Vaccine
Replies: 7
Views: 262

Re: RLS and the COVID Vaccine

At the roll out rate in New Zealand it will take years before we are all vaccinated. Yes, we're safe now but the economy will still be in the dumps when the rest of the world is recovering.
by Yankiwi
Fri Apr 02, 2021 11:24 pm
Forum: General Topics: RLS
Topic: How many hours do you sleep?
Replies: 16
Views: 217

Re: How many hours do you sleep?

Sometimes it's my RLS that wakes me up, other times it's just random. Upon my first wake up it's as if my brain says "that was a nice nap". I try not to nap during the day or if I do to keep it short. The Sleep Book: How to Sleep Well Every Night · By: Dr. Guy Meadows I found this book very interest...
by Yankiwi
Fri Apr 02, 2021 8:01 am
Forum: General Topics: RLS
Topic: How many hours do you sleep?
Replies: 16
Views: 217

Re: How many hours do you sleep?

I get between five and seven, usually in three or four segments over nine or ten hours from going to bed to getting up.
When I'm lucky I'm only awake a third of the night. On a bad night it can be half.
by Yankiwi
Wed Mar 31, 2021 10:06 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Stressless Chairs
Replies: 12
Views: 473

Re: Stressless Chairs

I keep a journal on my phone every night (10.30 went to bed; 12.30 woke up, 1.45 went back to sleep etc) and then put a month at a time on my computer. At my regular doctor's appointment a few times a year I give herthe current month's printout which she scans and puts into my records. She says it i...
by Yankiwi
Tue Mar 30, 2021 5:25 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Stressless Chairs
Replies: 12
Views: 473

Re: Stressless Chairs

As far as RLS, anytime I relax there is a chance it will kick off symptoms. But what am I to do, jumping jacks all evening? That's funny (not symptoms while relaxing). I pretty much do jumping jacks all evening until I start on my meds. I can't sit down to relax in the evening and can spend very li...
by Yankiwi
Sun Mar 28, 2021 7:25 am
Forum: Just Joined?
Topic: going "cold turkey"
Replies: 35
Views: 1397

Re: going "cold turkey"

Wow, that's really terrible. Glad you had the wherewithal to phone a friend to drive you to the ER and are now safely home.
by Yankiwi
Fri Mar 19, 2021 1:33 am
Forum: Prescription Medications
Topic: MCV and MCHC levels
Replies: 5
Views: 182

Re: MCV and MCHC levels

Several years ago my GP told me to take liquid vitamin B as it absorbs better (according to him). Some brands taste awful but Better You B12 Boost oral spray is pretty good. It's a British brand.
by Yankiwi
Mon Feb 22, 2021 1:06 am
Forum: General Topics: RLS
Topic: Feb 21: Patron saint of insomniacs!
Replies: 1
Views: 138

Re: Feb 21: Patron saint of insomniacs!

Thanks, I've made a note of St. Peter Damian. Back in 2014 I posted about who I thought could be a patron saint for RLS people. After looking on line I found the perfect saint for us. Saint Bartholomew the Apostle He's the patron saint against neurological disease and against twitching. He was flaye...
by Yankiwi
Sun Feb 14, 2021 5:55 am
Forum: General Topics: RLS
Topic: Pharmacists and Opioids
Replies: 9
Views: 189

Re: Pharmacists and Opioids

And if the other country has socialised medicine you would likely come against other road blocks. No system is perfect.
Also, at least in New Zealand you need to be under a certain age and retirement age isn't it.
by Yankiwi
Sat Feb 13, 2021 7:02 am
Forum: General Topics: RLS
Topic: Covid vac/RLS
Replies: 10
Views: 327

Re: Covid vac/RLS

The side effects of the second vax are supposed to be worse but it shows it's working.
For excellent information on vaccines, ZDoggMD (Dr Zubin Damania) has an excellent series of podcasts where he interviews experts in related fields.
by Yankiwi
Sat Feb 13, 2021 7:00 am
Forum: General Topics: RLS
Topic: Pharmacists and Opioids
Replies: 9
Views: 189

Re: Pharmacists and Opioids

That is so bad—punishing you for having a condition that can be controlled with medication they don't like!
by Yankiwi
Fri Jan 22, 2021 9:27 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 302
Views: 16699

Re: Attempting to get off Ropinirole - again

That’s a real shame that you had to leave your GP of 45 years and that your new one is not clued up on treating severe RLS. Phone consults are not optimal between a doctor with a new patient. There’s no way to detect facial clues or body language. Phone consultations are usually fine between establi...
by Yankiwi
Thu Jan 14, 2021 1:46 am
Forum: General Topics: RLS
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 787
Views: 65718

Re: Riding the Big One (RLS 24/7, Hanging Ten)

"Ask Dr. Jo" is a very good on-line physical therapist. I've used her exercises for various things as well as visiting a physio in person when able.