Search found 389 matches

by Yankiwi
Sun Nov 10, 2019 8:03 am
Forum: General Topics: RLS/WED
Topic: Interesting sleep podcast
Replies: 1
Views: 29

Interesting sleep podcast

This podcast has nothing per se to do with RLS but I found it very interesting especially the part about how some parts of our brain can be asleep while other parts are awake and how being sleep deprived is more dangerous than being drunk. The podcast is well annotated. I've listened to and enjoyed ...
by Yankiwi
Fri Nov 08, 2019 3:03 am
Forum: General Topics: RLS/WED
Topic: RLS through the night
Replies: 7
Views: 65

Re: RLS through the night

Betty, your poem is absolutely wonderful, really captures the reality of sleeplessness due to RLS. It should be published in Nightwalkers.
by Yankiwi
Tue Oct 08, 2019 2:42 am
Forum: General Topics: RLS/WED
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 725
Views: 51408

Re: Riding the Big One (RLS 24/7, Hanging Ten)

I wouldn't wish RLS on anyone, but luckily for me, half of my family also has it so they are sympathetic.

Best wishes for a better future, EeFall
by Yankiwi
Thu Jul 25, 2019 1:10 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Poll: Oral iron and ferritin levels
Replies: 12
Views: 353

Re: Poll: Oral iron and ferritin levels

Thanks, brain iron is a difficult concept. Reducing inflammation is important for so many things.
by Yankiwi
Tue Jul 23, 2019 6:20 am
Forum: Just Joined?
Topic: Aussie looking for good specialists in Australia
Replies: 7
Views: 200

Re: Aussie looking for good specialists in Australia

Good luck. There aren't any in New Zealand but GPs listen and have a lot of leeway on prescribing.
by Yankiwi
Thu Jun 27, 2019 4:39 am
Forum: General Topics: RLS/WED
Topic: RLS in Public
Replies: 2
Views: 130

Re: RLS in Public

Excuse me, I have RLS and have the need to stand up and stretch.

I've said almost the exact same thing. People are usually sympathetic or know someone else with it. It's better to stand up than continue to writhe.
by Yankiwi
Tue Jun 25, 2019 3:12 am
Forum: Prescription Medications
Topic: B 12 levels
Replies: 15
Views: 1568

Re: B 12 levels

My ropinerole tablets are pentgon shaped and easy to cut, close to in half.

Beth, try the B12 again but wait at least a month before you decide if it is helping or not.
by Yankiwi
Sat Jun 22, 2019 11:18 pm
Forum: Prescription Medications
Topic: B 12 levels
Replies: 15
Views: 1568

Re: B 12 levels

It's been about three months since I started taking vitamin B12 and I'm pretty sure it's helping as it is the only change to my daily regimen which is .25mg ropinerole divided into two and taken approximately two hours and 1.5 hours before bed, 60mg codeine an hour before bed, an iron tablet with vi...
by Yankiwi
Wed Jun 19, 2019 10:34 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Nonmedication strategies for RLS by Shalini Paruthi,MD
Replies: 14
Views: 737

Re: Nonmedication strategies for RLS by Shalini Paruthi,MD

Biogel works for me (usually), I haven't heard of Theragesic but your routine sounds familiar.
by Yankiwi
Sun Jun 09, 2019 2:38 am
Forum: Just Joined?
Topic: New Member
Replies: 12
Views: 360

Re: New Member

It's best to feel the symptoms at times, even daily, as long as they don't interfere with sleep. People tend to find that complete control of symptoms leads rapidly to a worsening of the condition and need for a dose increase, whereas stopping short of complete control is a situation that can be ma...
by Yankiwi
Sun Jun 09, 2019 2:34 am
Forum: Physical Treatments
Topic: Take Lavander Massage Oil to Your Masseuse
Replies: 4
Views: 501

Re: Take Lavander Massage Oil to Your Masseuse

There's an interesting podcast called Science Vs. An episode from September 21 2018 called "Essential Oils: Science or Snake Oil" researches studies on essential oils and basically says that even though they might work (a little) on mice, they don't work on humans. Listen to it and form yo...
by Yankiwi
Thu Jun 06, 2019 12:02 am
Forum: Prescription Medications
Topic: Yoga Helping me so far
Replies: 6
Views: 150

Re: Yoga Helping me so far

Sometimes if my calves are really killing me in the night I will do a downward dog for 10 breaths and then a hover for 10 breaths. (They kill me several times every night but sometimes I'm too lazy for this.) That helps but I still need to stay up for about an hour.
by Yankiwi
Wed Jun 05, 2019 8:43 am
Forum: General Topics: RLS/WED
Topic: Symptoms worse by season
Replies: 17
Views: 2165

Re: Symptoms worse by season

By all means, visit New Zealand! January is a great time, February is even better because school holidays are over so it isn't quite so crowded. I've lived here for 33 years and haven't noticed any difference while travelling between the hemispheres. I seem to sleep better in winter although I'm not...
by Yankiwi
Thu May 30, 2019 4:15 am
Forum: Physical Treatments
Topic: Craniosacral therapy
Replies: 3
Views: 220

Re: Craniosacral therapy

I agree, if it helped, go for it but in my opinion cranial sacral therapy is complete quackery. My husband had two or three sessions and the therapist did things like run her hands slowly from head to toe about four inches above his body saying things like "I can sense that your liver is hot&qu...
by Yankiwi
Wed May 29, 2019 4:42 am
Forum: General Topics: RLS/WED
Topic: What Calms You in the Night?
Replies: 39
Views: 3225

Re: What Calms You in the Night?

Many years ago when a tooth flared up on a Sunday night and I needed an emergency root canal filling I stayed up almost all night ironing and cleaning. The pain was still there but working frantically took my mind off of it. Luckily my dentist took me first thing on Monday.

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