Search found 466 matches

by Yankiwi
Fri Jan 22, 2021 9:27 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 298
Views: 15346

Re: Attempting to get off Ropinirole - again

That’s a real shame that you had to leave your GP of 45 years and that your new one is not clued up on treating severe RLS. Phone consults are not optimal between a doctor with a new patient. There’s no way to detect facial clues or body language. Phone consultations are usually fine between establi...
by Yankiwi
Thu Jan 14, 2021 1:46 am
Forum: General Topics: RLS
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 782
Views: 63542

Re: Riding the Big One (RLS 24/7, Hanging Ten)

"Ask Dr. Jo" is a very good on-line physical therapist. I've used her exercises for various things as well as visiting a physio in person when able.
by Yankiwi
Thu Jan 14, 2021 1:44 am
Forum: Just Joined?
Topic: New member seeking advice
Replies: 7
Views: 150

Re: New member seeking advice

I don't know if my RLS makes me wake up or if I wake up anyway and have symptome—a chicken and egg thing but every night, two, three or four times a night I wake up with painful RLS and the longer I try to fight it and stay in bed the worse it gets until I get up and take another 60mg codeine (only ...
by Yankiwi
Tue Jan 12, 2021 3:22 am
Forum: Physical Treatments
Topic: Vibrating Platform
Replies: 5
Views: 92

Re: Vibrating Platform

Next door to my business some years ago was a fraudulent exercise company (Trim and Fit) that was supposed to take inches off your body. You stood on a vibrating pad and attached straps around your hips etc. The only one who actually got any exercise benefit from that company was our receptionist wh...
by Yankiwi
Tue Jan 05, 2021 4:46 am
Forum: General Topics: RLS
Topic: Sad news - passing of Dr. Richard Allen
Replies: 5
Views: 86

Re: Sad news - passing of Dr. Richard Allen

From Dignity Memorial: Richard Putnam Allen, 82, of Arnold, Maryland, passed away on December 9, 2020 at home, with his family by his side. The son of Gretchen (Putnam) and Dean Allen, born in Waterloo, Iowa, he graduated from the Massachusetts Institute of Technology in 1961. He would often regale ...
by Yankiwi
Tue Dec 22, 2020 2:17 am
Forum: General Topics: RLS
Topic: Pain in legs and restless legs
Replies: 3
Views: 120

Re: Pain in legs and restless legs

I have painful rls but not pain at other times. Good luck figuring out your painful legs.
by Yankiwi
Mon Dec 21, 2020 1:12 am
Forum: Prescription Medications
Topic: Topical gel Diclofenac
Replies: 13
Views: 168

Re: Topical gel Diclofenac

For a while I thought Voltaren Emugel (contains Diclofenac) helped but gradually realised it didn't or no longer did. A shame because, like most of us, I am always grasping at straws to help the blasted rls.
by Yankiwi
Fri Dec 11, 2020 1:19 am
Forum: General Topics: RLS
Topic: Double Knee Replacement
Replies: 4
Views: 174

Re: Double Knee Replacement

Good luck! You can't impress the anesthesiologist enough that you are very sensitive to anesthetics.
Best wishes for a good recovery.
by Yankiwi
Sat Nov 28, 2020 11:47 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 298
Views: 15346

Re: Attempting to get off Ropinirole - again

I totally agree. We need to push for ourselves. I tell my friends they need to be aggressive when they can't get an appointment or nobody phones or mails results of tests.
by Yankiwi
Sun Nov 15, 2020 12:16 am
Forum: General Topics: RLS
Topic: Regular Sleep Schedule
Replies: 18
Views: 960

Re: Regular Sleep Schedule

Rat, I totally agree. Sleep hygiene is a joke for RLS people. We'd love it if it worked.
by Yankiwi
Sat Oct 31, 2020 12:16 am
Forum: Augmentation
Topic: Augmentation
Replies: 6
Views: 359

Re: Augmentation

Well done, Ria, I'm really happy you've taken charge of your RLS and are getting sleep. We do have to become our own experts.
I started getting it in my arms but after starting iron tablets that stopped.
by Yankiwi
Thu Oct 29, 2020 12:53 am
Forum: General Topics: RLS
Topic: When Do Symptoms Occur? And, For How Long?
Replies: 4
Views: 389

Re: When Do Symptoms Occur? And, For How Long?

I'm also a 71 year old female. My symptoms are in my calves, sometimes in the evening if I sit too long but always every 1.5 to 3 hours when I wake up. Every time. I need to stay up for at least an hour walking, stretching, rubbing, stomping etc while reading or watching Netflix on my iPad mini. Las...
by Yankiwi
Tue Oct 27, 2020 2:12 am
Forum: Everything Else...just no RLS!
Topic: Right now Oct 26 song program theme of sleep
Replies: 4
Views: 1629

Re: Right now Oct 26 song program theme of sleep

I asked them once if they could put out a podcast but they said there were too many copyright issues althought they'd like to. If they release a playlist I add it. There range is totally eclectic.
by Yankiwi
Mon Oct 26, 2020 8:23 am
Forum: General Topics: RLS
Topic: My visit with Dr. Rye
Replies: 10
Views: 842

Re: My visit with Dr. Rye

Ambien is not available in New Zealand. I've used a half tablet a few times (my sister's) on trans Pacific flights. Cliff was asleep for about seven hours and me only about three. Now that he is gone and I travel alone I don't dare take a sleeping pill on a flight by myself. Of course, no one is tra...
by Yankiwi
Sun Oct 25, 2020 11:54 pm
Forum: Everything Else...just no RLS!
Topic: Right now Oct 26 song program theme of sleep
Replies: 4
Views: 1629

Re: Right now Oct 26 song program theme of sleep

The program is called Matinee Idle idle@radionz.co.nz
If you can't listen today, they have 12 shows from 1 to 5 NZ time every year from the day after Christmas (Boxing Day).