Search found 424 matches

by Yankiwi
Wed May 27, 2020 12:27 am
Forum: Just Joined?
Topic: Sheets
Replies: 3
Views: 23

Re: Sheets

Watch for sales and get the highest 100% cotton thread count you can afford. My sheets feel satin-y.
by Yankiwi
Tue May 26, 2020 2:26 am
Forum: Everything Else...just no RLS!
Topic: Apology for being offline for so long
Replies: 4
Views: 142

Re: Apology for being offline for so long

Thanks Steve, I know this can be extremely tricky and frustrating. Good to be back on the discussion board, out of sight is not out of mind with RLS.
by Yankiwi
Mon May 18, 2020 1:09 am
Forum: General Topics: RLS
Topic: Regular Sleep Schedule
Replies: 11
Views: 121

Re: Regular Sleep Schedule

When I wake up after about 90 minutes/2hours I have painful symptoms every time, or nearly every time. That means I have to get up for at least an hour, often two hours until it is "safe" for me to get back into bed. Repeat, repeat, repeat. From going to bed to getting up I often dedicate 10 hours (...
by Yankiwi
Mon May 18, 2020 1:04 am
Forum: General Topics: RLS
Topic: YouTube RLS videos
Replies: 4
Views: 65

Re: YouTube RLS videos

Unless a doctor is really switched on treating RLS patients or has it herself they would be surprised which is why it is so hard to deal with some doctors.
by Yankiwi
Sat May 16, 2020 11:16 pm
Forum: General Topics: RLS
Topic: YouTube RLS videos
Replies: 4
Views: 65

Re: YouTube RLS videos

No end in sight for me. There's no kratom or marijuana in New Zealand, I'm afraid of gabapentin and increasing my ropinerole from .25. I do take two 60mg codeines (one around 1:30am) which keeps the pain down but doesn't help the insomnia. I did discover really boring podcasts meant to bore the list...
by Yankiwi
Sat May 16, 2020 8:22 am
Forum: General Topics: RLS
Topic: YouTube RLS videos
Replies: 4
Views: 65

YouTube RLS videos

Last night around 4:00am on my third time up I started YouTube. Up popped a few RLS videos of the hundreds that are on YouTube. Most are quackary or so basic they are of no use. One was an interview from four years ago of Dr. B. on Relaxis Pads. They aren't available in New Zealand but I wouldn't ho...
by Yankiwi
Sat May 16, 2020 8:10 am
Forum: General Topics: RLS
Topic: Webinar no Audio - Why is my RLS Better but my Sleep is Not?
Replies: 6
Views: 192

Re: Webinar no Audio - Why is my RLS Better but my Sleep is Not?

Thanks. Before I signed in it wasn't showing but as soon as I put my name and password in it did. Wasn't all that helpful but I'll ask for a prescription for melatonin at my next GP visit. (Prescription in New Zealand) I did like the Reality Check drawing on p 27. Page 42 was unreadable.
by Yankiwi
Sat May 16, 2020 1:22 am
Forum: General Topics: RLS
Topic: Webinar no Audio - Why is my RLS Better but my Sleep is Not?
Replies: 6
Views: 192

Re: Webinar no Audio - Why is my RLS Better but my Sleep is Not?

What's happened to this webinar? I can't find it on rls.org and would really like to listen to it.
by Yankiwi
Fri May 08, 2020 12:19 am
Forum: General Topics: RLS
Topic: Q: Historic prevalence of RLS
Replies: 4
Views: 119

Re: Q: Historic prevalence of RLS

Wow, RLS on both sides of your family! That's awful. Mine is only on my father's side, most of my nine siblings have it to one degree or other and some cousins.
by Yankiwi
Wed May 06, 2020 9:36 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Is it worth scrapping ever tiny bit of caffiene?
Replies: 9
Views: 190

Re: Is it worth scrapping ever tiny bit of caffiene?

I stopped coffee except decaf decades ago. Luckily chocolate seems to make no difference even after a large dose of a "death by chocolate" type dessert.
by Yankiwi
Tue Apr 28, 2020 12:52 am
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 243
Views: 9971

Re: Attempting to get off Ropinirole - again

Driving while being seriously sleep deprived is more dangerous than driving drunk. I'm glad you decided not to.
by Yankiwi
Mon Apr 27, 2020 12:06 am
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 243
Views: 9971

Re: Attempting to get off Ropinirole - again

Betty, your car has gone out in sympathy with you and your flat battery. One and three-quarter hours of sleep is hell.
by Yankiwi
Thu Apr 23, 2020 11:12 pm
Forum: Prescription Medications
Topic: Infusion #3
Replies: 33
Views: 2419

Re: Infusion #3

I haven't had an infusion but my iron is coming up with my iron prescription. Some must be getting through to my brain because my symptoms are not as bad but still regular through the night. I must have late onset (around menopause) but it is hereditary. My dad had a bad case, most of my nine siblin...
by Yankiwi
Thu Apr 23, 2020 11:08 pm
Forum: Everything Else...just no RLS!
Topic: Stay Safe!
Replies: 32
Views: 1202

Re: Stay Safe!

I really miss my friends. Phone calls, Zoom and Facetime are not the same.
by Yankiwi
Wed Apr 22, 2020 4:03 am
Forum: Everything Else...just no RLS!
Topic: Stay Safe!
Replies: 32
Views: 1202

Re: Stay Safe!

Today is day 28 of New Zealand's lockdown. Only supermarkets, pharmacies and gas stations are open. It's very strict. Only New Zealand citizens and permanent residents are allowed to come in to the country and then they must stay in a hotel room (paid for by the taxpayers) for two weeks. Five of the...