Search found 13 matches

by achoden
Thu Dec 04, 2014 9:56 pm
Forum: Just Joined?
Topic: Need help getting treatment
Replies: 32
Views: 3329

Re: Need help getting treatment

RlS diagnosis update. Met with a new sleep doctor; this time a neurologist. He confirmed that I do not have RLS or PLMD. He was unable to give me a diagnosis because he wants to do a sleep study that includes tests that the other sleep study did not and he wants me to have lab tests, x-rays and a MR...
by achoden
Fri Nov 21, 2014 7:51 pm
Forum: Just Joined?
Topic: Need help getting treatment
Replies: 32
Views: 3329

Re: Need help getting treatment

How are things, have you seen the psychiatrist? Did he have anything to suggest regarding the lack of refreshing sleep? Yes, I saw the psychiatrist and he recommended that I take a low dosage of a mood stabilizer to help with the anxiety symptoms caused by lack of sleep until I can see the sleep do...
by achoden
Wed Nov 19, 2014 5:59 pm
Forum: Just Joined?
Topic: Need help getting treatment
Replies: 32
Views: 3329

Re: Need help getting treatment

How are things, have you seen the psychiatrist? Did he have anything to suggest regarding the lack of refreshing sleep? Yes, I saw the psychiatrist and he recommended that I take a low dosage of a mood stabilizer to help with the anxiety symptoms caused by lack of sleep until I can see the sleep do...
by achoden
Mon Nov 17, 2014 6:04 pm
Forum: Just Joined?
Topic: Need help getting treatment
Replies: 32
Views: 3329

Re: Need help getting treatment

What you're experiencing seems identical to the hyperalertness that afflicts many (all?) WEDers (certainly me). This wide-awakeness beats the snot out of sleeping pills, and wakes me up even when the WED itself (the urge to move) is silent, multiple times nightly for no apparent reason. Do you feel...
by achoden
Sat Nov 15, 2014 2:07 pm
Forum: Just Joined?
Topic: Need help getting treatment
Replies: 32
Views: 3329

Re: Need help getting treatment

When you are tired or sleepy or after you try to fall asleep, do you feel an urge to move? Some people would describe it as an anxiety in the body - but you feel you MUST get up and move - walk, run, ride a bike, do yoga - anything! No, I don't. I'm not aware of my legs moving when I sleep. I wake ...
by achoden
Sat Nov 15, 2014 1:48 pm
Forum: Just Joined?
Topic: Need help getting treatment
Replies: 32
Views: 3329

Re: Need help getting treatment

It's actually probably the lack of sleep that is affecting your mood, not the movement problem itself. (Although it is true as Ann says that a lot of WEDers have anxiety and depression that does not appear to be caused by the WED, but travels with it somehow. But you implied that your mood was OK b...
by achoden
Fri Nov 14, 2014 10:57 pm
Forum: Just Joined?
Topic: Need help getting treatment
Replies: 32
Views: 3329

Re: Need help getting treatment

I'm still not sure what my disorder is. All I know is that I don't have a lot of the symptoms that are described for RLS (the sensations in the legs for example. When I first started taking it, I didn't see any difference in my sleep. Still had the same symptoms I had before. What kind of sleep dist...
by achoden
Fri Nov 14, 2014 2:22 pm
Forum: Just Joined?
Topic: Need help getting treatment
Replies: 32
Views: 3329

Re: Need help getting treatment

Thanks for the support. Took .25 mg pramipexole 2 hours before bedtime (9:30) last night after being off the drug for a week. Wanted to see if symptoms improved, stayed the same, or got worse. In short, I ended up having a bad night, waking up and getting out of bed to use the bathroom three times. ...
by achoden
Thu Nov 13, 2014 2:08 pm
Forum: Just Joined?
Topic: Need help getting treatment
Replies: 32
Views: 3329

Re: Need help getting treatment

I will try a small dosage of pramipexole and see if that helps. Thanks for the advice and information. I have a appointment with my psychiatrist next week who knows about my condition and may be able to refer me to another sleep specialist for consultation. I'm very disappointed with my GP. Although...
by achoden
Wed Nov 12, 2014 6:59 pm
Forum: Just Joined?
Topic: Need help getting treatment
Replies: 32
Views: 3329

Re: Need help getting treatment

Yes, I was wondering why I had been diagnosed with RLS since I didn't have a lot of the symptoms I had read about. I had a sleep study in September and that was the diagnosis. They took a video of me sleeping in addition to all the monitoring that was being done electronically. Looks like the docto...
by achoden
Sun Nov 09, 2014 5:45 pm
Forum: Just Joined?
Topic: Need help getting treatment
Replies: 32
Views: 3329

Re: Need help getting treatment

Yes, I was wondering why I had been diagnosed with RLS since I didn't have a lot of the symptoms I had read about. I had a sleep study in September and that was the diagnosis. They took a video of me sleeping in addition to all the monitoring that was being done electronically. Looks like the doctor...
by achoden
Sat Nov 08, 2014 10:53 pm
Forum: Just Joined?
Topic: Need help getting treatment
Replies: 32
Views: 3329

Re: Need help getting treatment

Thank you for your reply. I will try to answer your questions the best I can. >Were you instructed first to see if the .25mg helped, or .5mg helped before going to the .75mg. I ask because 1mg is now considered to be a max daily dose. Yes. >However, the end result is that you didn't get any relief f...
by achoden
Sat Nov 08, 2014 3:50 pm
Forum: Just Joined?
Topic: Need help getting treatment
Replies: 32
Views: 3329

Need help getting treatment

I am a 65 year old woman who was diagnosed with RLS in September after taking part in a sleep study at a Kansas City hospital. The doctor prescribed PRAMIPEXOLE, starting with 0.25 MG titrated to 0.75 MG TABLET over one month. I did not get any relief from the medication and wake up several times du...