Search found 20 matches

by AnnaM
Fri Dec 12, 2014 9:47 am
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Child with RLS/PLMD
Replies: 45
Views: 14862

Re: Child with RLS/PLMD

Ferritin of 50 and greater is acceptable for children only. The minimal level increases with age. I found this on the webnair "Children with RLS".
by AnnaM
Sun Dec 07, 2014 12:35 am
Forum: General Topics: RLS/WED
Topic: What has thisDiscussionBoard meant to you?
Replies: 16
Views: 2090

Re: What has thisDiscussionBoard meant to you?

I haven't ventured beyond my own topic until now. I am new to WED and this site. Recently joined out of desperation to find help for my 8 yo son who has severe RLS/PLMD. This site and discussion board has been a life line. I have found so much information through this site's webnair and discussion b...
by AnnaM
Wed Dec 03, 2014 9:43 am
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Child with RLS/PLMD
Replies: 45
Views: 14862

Re: Child with RLS/PLMD

Now that we are back on the school schedule, he has been going to sleep easier. We started his Neurontin at 5:30 with a hopeful bedtime at 8pm.
by AnnaM
Wed Dec 03, 2014 9:40 am
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Child with RLS/PLMD
Replies: 45
Views: 14862

Re: Child with RLS/PLMD

I need to go back and look at the powerpoint from the webnair. I believe 40 was low normal for children and 50 acceptable.
by AnnaM
Mon Dec 01, 2014 5:32 pm
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Child with RLS/PLMD
Replies: 45
Views: 14862

Re: Child with RLS/PLMD

AnnaM what have your son's doctors said about his ferritin level? You mentioned that he takes a multi-vitamin with iron in it, but for many of us, that's nowhere near enough. I know that my symptoms worsen if I forget my iron pills, even if only for a couple of days, and I take two pills of 325 mg ...
by AnnaM
Wed Nov 26, 2014 10:12 pm
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Child with RLS/PLMD
Replies: 45
Views: 14862

Re: Child with RLS/PLMD

WOW! Got an e-mail from my son's teacher stating he noticed a big change and is more attentive. It's amazing how different he is with real sleep.
by AnnaM
Wed Nov 26, 2014 2:43 am
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Child with RLS/PLMD
Replies: 45
Views: 14862

Re: Child with RLS/PLMD

My son is experiencing some slight nausea around 330pm to 4pm. Is this a side effect of the Neurontin. He says he's a little car sick after I pick him up from school. Doesn't seem to last long. Will this resolve after he's been on the Neurontin?
by AnnaM
Sun Nov 23, 2014 5:49 pm
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Child with RLS/PLMD
Replies: 45
Views: 14862

Re: Child with RLS/PLMD

Each night has been wonderful since starting the Neurotin, it has been over a week. We have noticed a reduction of symptoms during the day as well. My son is happy and full of life again, however I fear this will all go away and it's too good to be true.
by AnnaM
Tue Nov 18, 2014 4:21 pm
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Child with RLS/PLMD
Replies: 45
Views: 14862

Re: Child with RLS/PLMD

Thank you for the information on Neurotin. I am blessed to have found this site. This has been the most helpful information I have found in years.
by AnnaM
Tue Nov 18, 2014 5:46 am
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Child with RLS/PLMD
Replies: 45
Views: 14862

Re: Child with RLS/PLMD

Learned a few things today. The 2 recommended MD's who specialized in RLS at John Hopkins treat only adults. I was referred by them to a MD in Nashville TN. I think however after reading expert advice through medical journals and webnair we are on the right track. My question at this point is....can...
by AnnaM
Sun Nov 16, 2014 5:21 pm
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Child with RLS/PLMD
Replies: 45
Views: 14862

Re: Child with RLS/PLMD

Hoping the Neurotin is going to be a long term treatment. Last night, another good night with only a brief 5 minute episode. I need to get this boy back to his own room at night. Maybe we can start to have "normal" nights without playing musical beds for the whole family. Looking to make a...
by AnnaM
Sat Nov 15, 2014 12:53 pm
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Child with RLS/PLMD
Replies: 45
Views: 14862

Re: Child with RLS/PLMD

After starting the Neurotin last night, we had the most wonderful peaceful nights. Watching him sleep peacefully was a beautiful moment.
by AnnaM
Sat Nov 15, 2014 4:23 am
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Child with RLS/PLMD
Replies: 45
Views: 14862

Re: Child with RLS/PLMD

I rec'd a reply from Dr Buchfuhrer. He gave me a contact at John Hopkins. I will be giving him a call next week. Thank you again
by AnnaM
Sat Nov 15, 2014 12:38 am
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Child with RLS/PLMD
Replies: 45
Views: 14862

Re: Child with RLS/PLMD

Thank you so much for your reply. This is what I need to know. We gave it to him at 6:30 to make sure he would not have an allergic reaction but I will definitely extend that to bedtime now. Thanks you so much
by AnnaM
Sat Nov 15, 2014 12:14 am
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Child with RLS/PLMD
Replies: 45
Views: 14862

Re: Child with RLS/PLMD

This is so helpful and I appreciate the time you took to give me this information. I will try to connect with each of these individuals today.

Go to advanced search