Search found 23 matches

by EdSoFlo
Fri Nov 16, 2018 5:20 pm
Forum: Prescription Medications
Topic: Methadone And Insomnia
Replies: 3
Views: 64

Re: Methadone And Insomnia

Interesting thanks. I’ll give that a try. I can already tell the long half life is a huge advantage and if I can get that RLS coverage into the night without the buzzing brain that will be ideal.
Cheers
by EdSoFlo
Fri Nov 16, 2018 8:42 am
Forum: Prescription Medications
Topic: Methadone And Insomnia
Replies: 3
Views: 64

Methadone And Insomnia

After having been on short acting oxycodone for over ten years, I started to get daytime symptoms and middle of the night breakthrough symptoms, and was getting to a dosage level I wasn’t comfortable with (40 mg day) and wanted to give a try with methadone, as it seems to work so well for so many an...
by EdSoFlo
Thu Nov 15, 2018 12:36 am
Forum: Augmentation
Topic: DA’s - If Augmentation from one, from all?
Replies: 3
Views: 362

DA’s - If Augmentation from one, from all?

Hi all- I have augmented severely - SEVERLEY - on Sinemet in the past. I tried it again recently and the augmentation effect almost felt instantaneous. Never EVER again. Would I be likely to augment on pranipexole? And would it be as immediate as it is now with the Sinemet? In other words, once augm...
by EdSoFlo
Wed Aug 01, 2018 7:54 pm
Forum: Prescription Medications
Topic: Earlier Onset While Driving Requiring Early Oxycodone Dosage
Replies: 10
Views: 797

Re: Earlier Onset While Driving Requiring Early Oxycodone Dosage

I realize I never followed up on this. In the end we added a small afternoon dosage to deal with the earlier/while driving issues. I discussed both methadone, and ER oxy. I didn’t realize but they consider methadone the ‘big gun’ to utilize if other opioids aren’t working, as it’s so potent apparent...
by EdSoFlo
Sat Jul 07, 2018 9:34 pm
Forum: Prescription Medications
Topic: Earlier Onset While Driving Requiring Early Oxycodone Dosage
Replies: 10
Views: 797

Re: Earlier Onset While Driving Requiring Early Oxycodone Dosage

EdSoFlo, I find your post really interesting as I take an OxyContin CR 15mg at bedtime and 1 oxycodone 7.5 at midday. This barely takes care of the rls. I usually take the night time dose around 8pm and wake up twice during the night. 4:30am is when I awaken with severe rls in my legs and hip pain....
by EdSoFlo
Sat Jul 07, 2018 9:23 pm
Forum: Prescription Medications
Topic: Earlier Onset While Driving Requiring Early Oxycodone Dosage
Replies: 10
Views: 797

Re: Earlier Onset While Driving Requiring Early Oxycodone Dosage

Good luck. And, yes, you are very lucky! Dr Rye has always been one of my favorite RLS docs (of those I have met through the Foundation). As someone who has used methadone for about 12 or 13 years, I have long wished for a combo approach. A small amount of methadone for what it does, and a small am...
by EdSoFlo
Sat Jul 07, 2018 11:10 am
Forum: Prescription Medications
Topic: Earlier Onset While Driving Requiring Early Oxycodone Dosage
Replies: 10
Views: 797

Re: Earlier Onset While Driving Requiring Early Oxycodone Dosage

Much thanks to you both. I’m actually (since November last year) in the happy position of being treated by Dr Rye at the Emory Sleep Center and I feel we have a free and open line of communication and he’s fully versed and supportive of opioids usage when indicated. Trust me with my last Dr in Flori...
by EdSoFlo
Fri Jul 06, 2018 11:47 am
Forum: Prescription Medications
Topic: Earlier Onset While Driving Requiring Early Oxycodone Dosage
Replies: 10
Views: 797

Earlier Onset While Driving Requiring Early Oxycodone Dosage

Hi all - A few months back I began to experience a mid-afternoon onset of symptoms while driving in traffic, and pretty severe ones at that. As in, literally wanting to get out of the car and start running down the shoulder! I take (and have for going on a decade) 10-20 mg oxycodone IR per night, on...
by EdSoFlo
Sun Jun 24, 2018 1:21 am
Forum: General Topics: RLS/WED
Topic: Next Foundation Webinar - Opioid Advocacy
Replies: 22
Views: 2573

Re: Next Foundation Webinar - Opioid Advocacy

I wrote and submitted my letter to my Congressman, and in the course of that interacted a bit with Peter Herzog via email and he is a great and very talented man, we’re fortunate to have him and his lobbying firm on our team. I have a couple thoughts, one, I think it’s very important to expand these...
by EdSoFlo
Sun Jun 24, 2018 1:02 am
Forum: General Topics: RLS/WED
Topic: Who is your favorite doctor?
Replies: 115
Views: 39065

Re: Who is your favorite doctor?

Hi all - I started treatment with Dr David Rye at the Emory Sleep Center upon moving to the Atlanta area (it took quite a bit of time to get in, the man is super busy) and I can honestly say it’s been life changing. I had a good doctor in Los Angeles when originally diagnosed, then two fairly bad on...
by EdSoFlo
Sun Jan 07, 2018 2:24 am
Forum: Prescription Medications
Topic: Starting At Emory
Replies: 13
Views: 1040

Re: Starting At Emory

It's wonderful that your treatment is going so well. I have only heard of Dr Rye but would believe that you will not be disappointed. Isn't it a shame that you went through such a bad time when you first moved to South Florida. Most of us have attended doctors who proclaim to treat RLS only to find...
by EdSoFlo
Fri Dec 22, 2017 3:41 pm
Forum: Prescription Medications
Topic: Starting At Emory
Replies: 13
Views: 1040

Re: Starting At Emory

Welcome to the discussion board. I don't have anything to add about Dr Rye other than that I understand that one of the requirements to become a Foundation Quality Care Clinic is that they must be willing to use opioids to treat RLS in those of us who have experienced augmentation. I share your opi...
by EdSoFlo
Fri Dec 22, 2017 3:31 pm
Forum: Prescription Medications
Topic: Starting At Emory
Replies: 13
Views: 1040

Re: Starting At Emory

Welcome to the board. And thank you for sharing your story. I hope that Dr Rye doesn't disappoint. He has RLS and I would see him if I lived anywhere close to him. Do you mind sharing the name of the Dr you saw in Santa Monica? I moved to So Cal recently. I see Dr. B now, but he is in his mid-60s a...
by EdSoFlo
Fri Dec 22, 2017 4:13 am
Forum: Prescription Medications
Topic: Starting At Emory
Replies: 13
Views: 1040

Starting At Emory

Hi all - Just a brief background. I've had pretty severe RLS my entire life. As a young kid I remember describing it to a doctor as 'crazy legs'. I was officially diagnosed about 11 years ago at a very good sleep disorder clinic in Santa Monica CA, at age 38. Started with the usual DA's, didn't work...
by EdSoFlo
Thu Dec 21, 2017 1:49 pm
Forum: Prescription Medications
Topic: Pending Opioid Withdrawal?
Replies: 13
Views: 1054

Re: Pending Opioid Withdrawal?

I massaged my PA that I had so many pills left and that I was ready for my next prescription. This was on Monday. I have one pill to get me through the night and tomorrow until she might electronically send it to my pharmacy. Hopefully she is acting on this. Last refill, I had to re-message and rem...

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