Search found 27 matches

by EdSoFlo
Wed Feb 20, 2019 5:54 pm
Forum: Prescription Medications
Topic: Methadone to Buprenorphine
Replies: 4
Views: 98

Re: Methadone to Buprenorphine

Thank you both for your replies. I’ve yet to start it as I’m fighting what looks to be a losing battle with my insurance co. even with a thorough prior authorization from my Dr. They claim the ‘only’ approved use is ‘opioid dependence’ which I’m fairly sure per what my Dr told me, is inaccurate. I’m...
by EdSoFlo
Mon Feb 18, 2019 7:18 pm
Forum: Prescription Medications
Topic: Methadone to Buprenorphine
Replies: 4
Views: 98

Methadone to Buprenorphine

Hi all - I currently take 15 mg/day methadone (5 mg 3x) it has been absolutely amazing on my RLS, it’s effectively eliminated it, 24/7 (I’d previous taken oxycodone for the prior 13 years since official diagnosis/treatment, and switched about 3 months ago seeking a longer duration drug due to develo...
by EdSoFlo
Mon Feb 18, 2019 6:50 pm
Forum: Prescription Medications
Topic: US Public Comment on Opioids
Replies: 8
Views: 294

Re: US Public Comment on Opioids

Thanks for the reminder, going to do this today. This is very important, and it’s key that we be clear that we’re utilizing opioids in a different manner altogether than the chronic pain community, at generally far lower doses, and that tolerance and misuse issues appear to be far less common among ...
by EdSoFlo
Thu Jan 03, 2019 12:16 am
Forum: Prescription Medications
Topic: Opiates and Non-Texas Prescribers
Replies: 10
Views: 215

Re: Opiates and Non-Texas Prescribers

Our country has lost its mind on this issue. This is NOT ACCEPTABLE. What can be done, I don’t know, but something must be. The government, either at the local level or federal, simply does not have the right to screw with people’s health like this. The ‘opioid crisis’ is essentially a heroin (which...
by EdSoFlo
Fri Nov 16, 2018 5:20 pm
Forum: Prescription Medications
Topic: Methadone And Insomnia
Replies: 3
Views: 113

Re: Methadone And Insomnia

Interesting thanks. I’ll give that a try. I can already tell the long half life is a huge advantage and if I can get that RLS coverage into the night without the buzzing brain that will be ideal.
Cheers
by EdSoFlo
Fri Nov 16, 2018 8:42 am
Forum: Prescription Medications
Topic: Methadone And Insomnia
Replies: 3
Views: 113

Methadone And Insomnia

After having been on short acting oxycodone for over ten years, I started to get daytime symptoms and middle of the night breakthrough symptoms, and was getting to a dosage level I wasn’t comfortable with (40 mg day) and wanted to give a try with methadone, as it seems to work so well for so many an...
by EdSoFlo
Thu Nov 15, 2018 12:36 am
Forum: Augmentation
Topic: DA’s - If Augmentation from one, from all?
Replies: 3
Views: 1143

DA’s - If Augmentation from one, from all?

Hi all- I have augmented severely - SEVERLEY - on Sinemet in the past. I tried it again recently and the augmentation effect almost felt instantaneous. Never EVER again. Would I be likely to augment on pranipexole? And would it be as immediate as it is now with the Sinemet? In other words, once augm...
by EdSoFlo
Wed Aug 01, 2018 7:54 pm
Forum: Prescription Medications
Topic: Earlier Onset While Driving Requiring Early Oxycodone Dosage
Replies: 10
Views: 887

Re: Earlier Onset While Driving Requiring Early Oxycodone Dosage

I realize I never followed up on this. In the end we added a small afternoon dosage to deal with the earlier/while driving issues. I discussed both methadone, and ER oxy. I didn’t realize but they consider methadone the ‘big gun’ to utilize if other opioids aren’t working, as it’s so potent apparent...
by EdSoFlo
Sat Jul 07, 2018 9:34 pm
Forum: Prescription Medications
Topic: Earlier Onset While Driving Requiring Early Oxycodone Dosage
Replies: 10
Views: 887

Re: Earlier Onset While Driving Requiring Early Oxycodone Dosage

EdSoFlo, I find your post really interesting as I take an OxyContin CR 15mg at bedtime and 1 oxycodone 7.5 at midday. This barely takes care of the rls. I usually take the night time dose around 8pm and wake up twice during the night. 4:30am is when I awaken with severe rls in my legs and hip pain....
by EdSoFlo
Sat Jul 07, 2018 9:23 pm
Forum: Prescription Medications
Topic: Earlier Onset While Driving Requiring Early Oxycodone Dosage
Replies: 10
Views: 887

Re: Earlier Onset While Driving Requiring Early Oxycodone Dosage

Good luck. And, yes, you are very lucky! Dr Rye has always been one of my favorite RLS docs (of those I have met through the Foundation). As someone who has used methadone for about 12 or 13 years, I have long wished for a combo approach. A small amount of methadone for what it does, and a small am...
by EdSoFlo
Sat Jul 07, 2018 11:10 am
Forum: Prescription Medications
Topic: Earlier Onset While Driving Requiring Early Oxycodone Dosage
Replies: 10
Views: 887

Re: Earlier Onset While Driving Requiring Early Oxycodone Dosage

Much thanks to you both. I’m actually (since November last year) in the happy position of being treated by Dr Rye at the Emory Sleep Center and I feel we have a free and open line of communication and he’s fully versed and supportive of opioids usage when indicated. Trust me with my last Dr in Flori...
by EdSoFlo
Fri Jul 06, 2018 11:47 am
Forum: Prescription Medications
Topic: Earlier Onset While Driving Requiring Early Oxycodone Dosage
Replies: 10
Views: 887

Earlier Onset While Driving Requiring Early Oxycodone Dosage

Hi all - A few months back I began to experience a mid-afternoon onset of symptoms while driving in traffic, and pretty severe ones at that. As in, literally wanting to get out of the car and start running down the shoulder! I take (and have for going on a decade) 10-20 mg oxycodone IR per night, on...
by EdSoFlo
Sun Jun 24, 2018 1:21 am
Forum: General Topics: RLS/WED
Topic: Next Foundation Webinar - Opioid Advocacy
Replies: 22
Views: 2753

Re: Next Foundation Webinar - Opioid Advocacy

I wrote and submitted my letter to my Congressman, and in the course of that interacted a bit with Peter Herzog via email and he is a great and very talented man, we’re fortunate to have him and his lobbying firm on our team. I have a couple thoughts, one, I think it’s very important to expand these...
by EdSoFlo
Sun Jun 24, 2018 1:02 am
Forum: General Topics: RLS/WED
Topic: Who is your favorite doctor?
Replies: 115
Views: 40566

Re: Who is your favorite doctor?

Hi all - I started treatment with Dr David Rye at the Emory Sleep Center upon moving to the Atlanta area (it took quite a bit of time to get in, the man is super busy) and I can honestly say it’s been life changing. I had a good doctor in Los Angeles when originally diagnosed, then two fairly bad on...
by EdSoFlo
Sun Jan 07, 2018 2:24 am
Forum: Prescription Medications
Topic: Starting At Emory
Replies: 13
Views: 1107

Re: Starting At Emory

It's wonderful that your treatment is going so well. I have only heard of Dr Rye but would believe that you will not be disappointed. Isn't it a shame that you went through such a bad time when you first moved to South Florida. Most of us have attended doctors who proclaim to treat RLS only to find...

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