Search found 34 matches

by EdSoFlo
Thu Nov 30, 2023 4:03 am
Forum: Prescription Medications
Topic: Emory not taking new pts?
Replies: 7
Views: 5691

Re: Emory not taking new pts?

Ed, please call the RLS Foundation at 512-366-9109 and ask to speak with Karla. Please tell her your story. She might be able to get some additional answers for you since she probably has direct phone contacts with several of the doctors rather than having to go through the normal patient contact p...
by EdSoFlo
Tue Nov 28, 2023 10:25 pm
Forum: Prescription Medications
Topic: Emory not taking new pts?
Replies: 7
Views: 5691

Re: Emory not taking new pts?

The situation there is far beyond not taking new patients (and, as best I can tell, they are.) I'm still seeking clarification (which has NOT been easy) and I intend to make a comprehensive post about what's recently been going on at Emory Sleep Center. As a 5+ year patient being treated for severe ...
by EdSoFlo
Tue Apr 11, 2023 5:09 am
Forum: Prescription Medications
Topic: What Comes After Methadone?
Replies: 23
Views: 12867

Re: What Comes After Methadone?

I had the same issue with methadone (after about a decade of highly effective use of oxycodone, it's efficacy diminished quickly, and subsequently went to methadone.) Knocked out my severe RLS, but I felt absolutely awful...sluggish, nauseous, cranky and mildly depressed 24/7. Went to buprenorphine...
by EdSoFlo
Tue Apr 11, 2023 5:04 am
Forum: Prescription Medications
Topic: What Comes After Methadone?
Replies: 23
Views: 12867

Re: What Comes After Methadone?

I had the same issue with methadone (after about a decade of highly effective use of oxycodone, it's efficacy diminished quickly, and subsequently went to methadone.) Knocked out my severe RLS, but I felt absolutely awful...sluggish, nauseous, cranky and mildly depressed 24/7. Went to buprenorphine ...
by EdSoFlo
Tue Apr 11, 2023 3:47 am
Forum: Prescription Medications
Topic: Doses for Buprenorphine
Replies: 14
Views: 8299

Re: Doses for Buprenorphine

I take 2mg sublingual tablet 2x daily, one late AM and one before bedtime, and have for about three years now. It controls my severe refractory RLS wonderfully, and with a very low side effect profile and thus far zero loss of efficacy. I've had absolutely no insomnia from it, indeed if anything the...
by EdSoFlo
Wed Jun 29, 2022 8:46 pm
Forum: Prescription Medications
Topic: Has anyone tried buprenorphine?
Replies: 54
Views: 10788

Re: Has anyone tried buprenorphine?

I skip the long story of my RLS and it's treatment (which began with official diagnosis in 2008 in Los Angeles, where I'm from.) After a dreadful couple of years in South Florida in terms of RLS care (I feel for you if trying to find it, in my experience it's simply non-existent) I moved to Atlanta ...
by EdSoFlo
Thu May 06, 2021 7:42 pm
Forum: Prescription Medications
Topic: Emory Healthcare in Atlanta - Anyone Use?
Replies: 15
Views: 6640

Re: Emory Healthcare in Atlanta - Anyone Use?

Yes, I have been seeing Dr. Rye there for 3 1/2 years and I cannot speak more highly of him, and the staff. It's not hyperbole to say he quite likely saved my life, I arrived in such a terrible state. He's a rare combination of brilliant and warm, has a deep commitment to the understanding of RLS, a...
by EdSoFlo
Wed Feb 20, 2019 5:54 pm
Forum: Prescription Medications
Topic: Methadone to Buprenorphine
Replies: 4
Views: 608

Re: Methadone to Buprenorphine

Thank you both for your replies. I’ve yet to start it as I’m fighting what looks to be a losing battle with my insurance co. even with a thorough prior authorization from my Dr. They claim the ‘only’ approved use is ‘opioid dependence’ which I’m fairly sure per what my Dr told me, is inaccurate. I’m...
by EdSoFlo
Mon Feb 18, 2019 7:18 pm
Forum: Prescription Medications
Topic: Methadone to Buprenorphine
Replies: 4
Views: 608

Methadone to Buprenorphine

Hi all - I currently take 15 mg/day methadone (5 mg 3x) it has been absolutely amazing on my RLS, it’s effectively eliminated it, 24/7 (I’d previous taken oxycodone for the prior 13 years since official diagnosis/treatment, and switched about 3 months ago seeking a longer duration drug due to develo...
by EdSoFlo
Mon Feb 18, 2019 6:50 pm
Forum: Prescription Medications
Topic: US Public Comment on Opioids
Replies: 8
Views: 928

Re: US Public Comment on Opioids

Thanks for the reminder, going to do this today. This is very important, and it’s key that we be clear that we’re utilizing opioids in a different manner altogether than the chronic pain community, at generally far lower doses, and that tolerance and misuse issues appear to be far less common among ...
by EdSoFlo
Thu Jan 03, 2019 12:16 am
Forum: Prescription Medications
Topic: Opiates and Non-Texas Prescribers
Replies: 10
Views: 1055

Re: Opiates and Non-Texas Prescribers

Our country has lost its mind on this issue. This is NOT ACCEPTABLE. What can be done, I don’t know, but something must be. The government, either at the local level or federal, simply does not have the right to screw with people’s health like this. The ‘opioid crisis’ is essentially a heroin (which...
by EdSoFlo
Fri Nov 16, 2018 5:20 pm
Forum: Prescription Medications
Topic: Methadone And Insomnia
Replies: 3
Views: 550

Re: Methadone And Insomnia

Interesting thanks. I’ll give that a try. I can already tell the long half life is a huge advantage and if I can get that RLS coverage into the night without the buzzing brain that will be ideal.
Cheers
by EdSoFlo
Fri Nov 16, 2018 8:42 am
Forum: Prescription Medications
Topic: Methadone And Insomnia
Replies: 3
Views: 550

Methadone And Insomnia

After having been on short acting oxycodone for over ten years, I started to get daytime symptoms and middle of the night breakthrough symptoms, and was getting to a dosage level I wasn’t comfortable with (40 mg day) and wanted to give a try with methadone, as it seems to work so well for so many an...
by EdSoFlo
Thu Nov 15, 2018 12:36 am
Forum: Augmentation
Topic: DA’s - If Augmentation from one, from all?
Replies: 3
Views: 7448

DA’s - If Augmentation from one, from all?

Hi all- I have augmented severely - SEVERLEY - on Sinemet in the past. I tried it again recently and the augmentation effect almost felt instantaneous. Never EVER again. Would I be likely to augment on pranipexole? And would it be as immediate as it is now with the Sinemet? In other words, once augm...
by EdSoFlo
Wed Aug 01, 2018 7:54 pm
Forum: Prescription Medications
Topic: Earlier Onset While Driving Requiring Early Oxycodone Dosage
Replies: 10
Views: 1777

Re: Earlier Onset While Driving Requiring Early Oxycodone Dosage

I realize I never followed up on this. In the end we added a small afternoon dosage to deal with the earlier/while driving issues. I discussed both methadone, and ER oxy. I didn’t realize but they consider methadone the ‘big gun’ to utilize if other opioids aren’t working, as it’s so potent apparent...