Search found 34 matches
- Thu Nov 30, 2023 4:03 am
- Forum: Prescription Medications
- Topic: Emory not taking new pts?
- Replies: 7
- Views: 13133
Re: Emory not taking new pts?
Ed, please call the RLS Foundation at 512-366-9109 and ask to speak with Karla. Please tell her your story. She might be able to get some additional answers for you since she probably has direct phone contacts with several of the doctors rather than having to go through the normal patient contact p...
- Tue Nov 28, 2023 10:25 pm
- Forum: Prescription Medications
- Topic: Emory not taking new pts?
- Replies: 7
- Views: 13133
Re: Emory not taking new pts?
The situation there is far beyond not taking new patients (and, as best I can tell, they are.) I'm still seeking clarification (which has NOT been easy) and I intend to make a comprehensive post about what's recently been going on at Emory Sleep Center. As a 5+ year patient being treated for severe ...
- Tue Apr 11, 2023 5:09 am
- Forum: Prescription Medications
- Topic: What Comes After Methadone?
- Replies: 23
- Views: 19059
Re: What Comes After Methadone?
I had the same issue with methadone (after about a decade of highly effective use of oxycodone, it's efficacy diminished quickly, and subsequently went to methadone.) Knocked out my severe RLS, but I felt absolutely awful...sluggish, nauseous, cranky and mildly depressed 24/7. Went to buprenorphine...
- Tue Apr 11, 2023 5:04 am
- Forum: Prescription Medications
- Topic: What Comes After Methadone?
- Replies: 23
- Views: 19059
Re: What Comes After Methadone?
I had the same issue with methadone (after about a decade of highly effective use of oxycodone, it's efficacy diminished quickly, and subsequently went to methadone.) Knocked out my severe RLS, but I felt absolutely awful...sluggish, nauseous, cranky and mildly depressed 24/7. Went to buprenorphine ...
- Tue Apr 11, 2023 3:47 am
- Forum: Prescription Medications
- Topic: Doses for Buprenorphine
- Replies: 14
- Views: 12727
Re: Doses for Buprenorphine
I take 2mg sublingual tablet 2x daily, one late AM and one before bedtime, and have for about three years now. It controls my severe refractory RLS wonderfully, and with a very low side effect profile and thus far zero loss of efficacy. I've had absolutely no insomnia from it, indeed if anything the...
- Wed Jun 29, 2022 8:46 pm
- Forum: Prescription Medications
- Topic: Has anyone tried buprenorphine?
- Replies: 54
- Views: 11268
Re: Has anyone tried buprenorphine?
I skip the long story of my RLS and it's treatment (which began with official diagnosis in 2008 in Los Angeles, where I'm from.) After a dreadful couple of years in South Florida in terms of RLS care (I feel for you if trying to find it, in my experience it's simply non-existent) I moved to Atlanta ...
- Thu May 06, 2021 7:42 pm
- Forum: Prescription Medications
- Topic: Emory Healthcare in Atlanta - Anyone Use?
- Replies: 15
- Views: 7039
Re: Emory Healthcare in Atlanta - Anyone Use?
Yes, I have been seeing Dr. Rye there for 3 1/2 years and I cannot speak more highly of him, and the staff. It's not hyperbole to say he quite likely saved my life, I arrived in such a terrible state. He's a rare combination of brilliant and warm, has a deep commitment to the understanding of RLS, a...
- Wed Feb 20, 2019 5:54 pm
- Forum: Prescription Medications
- Topic: Methadone to Buprenorphine
- Replies: 4
- Views: 701
Re: Methadone to Buprenorphine
Thank you both for your replies. I’ve yet to start it as I’m fighting what looks to be a losing battle with my insurance co. even with a thorough prior authorization from my Dr. They claim the ‘only’ approved use is ‘opioid dependence’ which I’m fairly sure per what my Dr told me, is inaccurate. I’m...
- Mon Feb 18, 2019 7:18 pm
- Forum: Prescription Medications
- Topic: Methadone to Buprenorphine
- Replies: 4
- Views: 701
Methadone to Buprenorphine
Hi all - I currently take 15 mg/day methadone (5 mg 3x) it has been absolutely amazing on my RLS, it’s effectively eliminated it, 24/7 (I’d previous taken oxycodone for the prior 13 years since official diagnosis/treatment, and switched about 3 months ago seeking a longer duration drug due to develo...
- Mon Feb 18, 2019 6:50 pm
- Forum: Prescription Medications
- Topic: US Public Comment on Opioids
- Replies: 8
- Views: 1082
Re: US Public Comment on Opioids
Thanks for the reminder, going to do this today. This is very important, and it’s key that we be clear that we’re utilizing opioids in a different manner altogether than the chronic pain community, at generally far lower doses, and that tolerance and misuse issues appear to be far less common among ...
- Thu Jan 03, 2019 12:16 am
- Forum: Prescription Medications
- Topic: Opiates and Non-Texas Prescribers
- Replies: 10
- Views: 1226
Re: Opiates and Non-Texas Prescribers
Our country has lost its mind on this issue. This is NOT ACCEPTABLE. What can be done, I don’t know, but something must be. The government, either at the local level or federal, simply does not have the right to screw with people’s health like this. The ‘opioid crisis’ is essentially a heroin (which...
- Fri Nov 16, 2018 5:20 pm
- Forum: Prescription Medications
- Topic: Methadone And Insomnia
- Replies: 3
- Views: 696
Re: Methadone And Insomnia
Interesting thanks. I’ll give that a try. I can already tell the long half life is a huge advantage and if I can get that RLS coverage into the night without the buzzing brain that will be ideal.
Cheers
Cheers
- Fri Nov 16, 2018 8:42 am
- Forum: Prescription Medications
- Topic: Methadone And Insomnia
- Replies: 3
- Views: 696
Methadone And Insomnia
After having been on short acting oxycodone for over ten years, I started to get daytime symptoms and middle of the night breakthrough symptoms, and was getting to a dosage level I wasn’t comfortable with (40 mg day) and wanted to give a try with methadone, as it seems to work so well for so many an...
- Thu Nov 15, 2018 12:36 am
- Forum: Augmentation
- Topic: DA’s - If Augmentation from one, from all?
- Replies: 3
- Views: 7889
DA’s - If Augmentation from one, from all?
Hi all- I have augmented severely - SEVERLEY - on Sinemet in the past. I tried it again recently and the augmentation effect almost felt instantaneous. Never EVER again. Would I be likely to augment on pranipexole? And would it be as immediate as it is now with the Sinemet? In other words, once augm...
- Wed Aug 01, 2018 7:54 pm
- Forum: Prescription Medications
- Topic: Earlier Onset While Driving Requiring Early Oxycodone Dosage
- Replies: 10
- Views: 2187
Re: Earlier Onset While Driving Requiring Early Oxycodone Dosage
I realize I never followed up on this. In the end we added a small afternoon dosage to deal with the earlier/while driving issues. I discussed both methadone, and ER oxy. I didn’t realize but they consider methadone the ‘big gun’ to utilize if other opioids aren’t working, as it’s so potent apparent...