Search found 157 matches

by 2BassetMom
Mon Oct 08, 2018 4:15 am
Forum: General Topics: RLS/WED
Topic: refractory rls and psoriasis relationship
Replies: 7
Views: 145

Re: refractory rls and psoriasis relationship

I have plaque psoriasis on my scalp. I've had it for about 10 years. It absolutely can drive me crazy along with not being able to wear dark shirts.
by 2BassetMom
Mon Oct 08, 2018 4:09 am
Forum: Physical Treatments
Topic: Oils
Replies: 3
Views: 156

Re: Oils

I have tired several oils using a diffuser. They smell nice but I haven't seen any effect on my RLS. I have a sweet daughter-in-law who is quite knowledgeable on this subject and she has tried several combinations to no avail. The best I can say is that I found them to be comforting.
by 2BassetMom
Sat Oct 06, 2018 8:19 am
Forum: General Topics: RLS/WED
Topic: RLS Patient Symposium
Replies: 20
Views: 299

Re: RLS Patient Symposium

I was without a stash until recently. I am on oxycodone 7.5/3.25 that I take midday. I found that I often was taking it also at 4:00am because of pain and rls. My PA prescribed enough for me to take 2 a day if needed so now I am building up a small stash. I feel better having that. I helped me throu...
by 2BassetMom
Thu Oct 04, 2018 9:04 pm
Forum: General Topics: RLS/WED
Topic: RLS Patient Symposium
Replies: 20
Views: 299

Re: RLS Patient Symposium

Ann, My daughter along with my husband make it possible for me to lead an active life. She is very special indeed!
by 2BassetMom
Thu Oct 04, 2018 8:55 pm
Forum: General Topics: RLS/WED
Topic: Back Surgery and RLS plus spasms
Replies: 26
Views: 357

Re: Back Surgery and RLS plus spasms

I hope this surgery is successful and the recovery is not as difficult as you anticipate. As for the spinal problems connected to RLS: I have had a bulging disk in my L4&5. I originally went to pain management for this but RLS developed also. My neurosurgeon says that their is a connection betwe...
by 2BassetMom
Thu Oct 04, 2018 8:46 pm
Forum: General Topics: RLS/WED
Topic: RLS and Alcohol remedies....?
Replies: 5
Views: 156

Re: RLS and Alcohol remedies....?

I will have a very small amount of red wine at dinner. This happens maybe once a month. I don't notice any change in my symptoms. Occasionally, when I am having a very bad night I will have a "wee dram" of good single malt scotch with a bit of water. I don't know what it does for my physic...
by 2BassetMom
Thu Oct 04, 2018 8:38 pm
Forum: General Topics: RLS/WED
Topic: RLS Patient Symposium
Replies: 20
Views: 299

Re: RLS Patient Symposium

I was at the symposium also and had my daughter take notes. As soon as she types them up I'll be able to add to this conversation. One item I found disturbing also is #5. I was surprised that these experts didn't have much input on the suicide issue. If they could read the stories on this forum and ...
by 2BassetMom
Sat Sep 08, 2018 6:59 pm
Forum: General Topics: RLS/WED
Topic: How long have you had RLS/WED
Replies: 8
Views: 260

Re: How long have you had RLS/WED

I had RLS intermittently from around 40 years of age. Usually I would get it on long flights. I didn't know there was a name for this. My mom had it in her later years and took Xanax for it. About 3 years ago I started having a problem with pain in my left knee. I was on hydrocodone for that but it ...
by 2BassetMom
Thu Aug 30, 2018 6:19 am
Forum: General Topics: RLS/WED
Topic: Need Sleep
Replies: 16
Views: 662

Re: Need Sleep

I'll discuss that with this doctor.
I was able to get a sleep study next Wednesday.
by 2BassetMom
Wed Aug 29, 2018 7:51 am
Forum: General Topics: RLS/WED
Topic: Need Sleep
Replies: 16
Views: 662

Re: Need Sleep

The sleep doctor knows RLS very well. I was so pleased with his knowledge. I don't have slight sleep apnea, actually it is severe at different times during the early morning hours. He is concerned and will do a sleep study with a c-pap machine in the lab. We talked about medications and he understan...
by 2BassetMom
Tue Aug 28, 2018 6:50 pm
Forum: General Topics: RLS/WED
Topic: Need Sleep
Replies: 16
Views: 662

Re: Need Sleep

Today I finally have an appointment with a sleep doctor. There is only one in our area and it has taken since April to get in with him. I hope he has some suggestions as to how to get more sleep. I have slight sleep apnea so he will be addressing that. I'm hoping he is familiar with RLS!
by 2BassetMom
Sat Aug 25, 2018 11:32 am
Forum: General Topics: RLS/WED
Topic: RLS Foundation hosting a Patient Symposium
Replies: 32
Views: 1387

Re: RLS Foundation hosting a Patient Symposium

I probably wouldn't be going but for the fact that I needed to see Dr. Poceta for a follow-up appointment at this time. When I saw the symposium was at the same time I decided to take advantage of the opportunity. Plus we will get to spend time with one of our 4 sons and his family who live in San D...
by 2BassetMom
Fri Aug 24, 2018 5:38 am
Forum: General Topics: RLS/WED
Topic: RLS Foundation hosting a Patient Symposium
Replies: 32
Views: 1387

Re: RLS Foundation hosting a Patient Symposium

I am excited to be going. Can you imagine the hotel at night where some will be staying? Lights going off and on, people walking the hallways. We have to keep a sense of humor here. I'm sure it is expected that there will be a lot of walking and standing in the back during the lectures. But, these a...
by 2BassetMom
Wed Aug 15, 2018 9:34 am
Forum: Everything Else...just no RLS/WED!
Topic: weather
Replies: 15
Views: 1593

Re: weather

Steve, My mom instilled in her children a love for Scotland. My husband and I have been 3 times and would love to go back. I had such a feeling of coming home when I first stepped off of the plane. My grandfather was born in the area between Glasgow and Edinburgh, Blackball. His last name was Frickl...
by 2BassetMom
Tue Aug 14, 2018 8:19 pm
Forum: Everything Else...just no RLS/WED!
Topic: weather
Replies: 15
Views: 1593

Re: weather

Betty, I clicked on both links. WOW! thanks for sharing those. Yes it is interesting where a chat about weather can lead. That's one of the things that makes this group special. We are so sleep deprived we will follow any rabbit trail. We are going back up in temps and probably will stay there until...

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