Search found 119 matches

by 2BassetMom
Mon Jun 18, 2018 5:46 am
Forum: General Topics: RLS/WED
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 703
Views: 42270

Re: Riding the Big One (RLS 24/7, Hanging Ten)

I'm so sorry that this awful syndrome has affected your life in such a traumatic way. It is a disastrous syndrome. We can't fully explain how it feels or how it impacts our lives. I have one suggestion and you may have already tried it but here goes. Talk to a licensed psychologist or counselor. We ...
by 2BassetMom
Wed May 30, 2018 3:38 pm
Forum: General Topics: RLS/WED
Topic: Does altitude have anything to do with RLS?
Replies: 9
Views: 681

Re: Does altitude have anything to do with RLS?

Thanks. We’re taking 3 days to travel back up to Idaho & we’ll be dropping in altitude every day. I’m hoping for relief.
by 2BassetMom
Wed May 30, 2018 3:24 pm
Forum: Prescription Medications
Topic: Is your DA causing augmentation?
Replies: 121
Views: 21753

Re: Is your DA causing augmentation?

Bronwen, I’m in the midst of a bad episode of rls in my shoulder & legs & your post brought a smile to my face. I love what you said about being told of the numerous home remedies that would cause our symptoms to disappear. I have friends insisting that essential oils or magnetic blankets ar...
by 2BassetMom
Wed May 30, 2018 2:47 pm
Forum: General Topics: RLS/WED
Topic: Does altitude have anything to do with RLS?
Replies: 9
Views: 681

Re: Does altitude have anything to do with RLS?

I’m visiting family in Leadville CO Altitude 10,200’My restless legs are ramped up! Hands, shoulders & legs. I’m under some stress as my cat back home escaped the house & fell into the river. It’s not been good. We leave fot home on Saturday and will go back fown to 2800’. Just wondering if ...
by 2BassetMom
Thu May 17, 2018 4:20 am
Forum: Prescription Medications
Topic: Prescription Refills
Replies: 26
Views: 999

Re: Prescription Refills

I think you may have something there, I've been asking myself that very thing. Sometimes when I wake up it is just that-waking up and then in a few minutes the rls kicks in. I'll mention this to my pain management doctor's PA She is really helping me. She just ok'd my getting my OxyContin a day earl...
by 2BassetMom
Thu May 10, 2018 3:37 pm
Forum: Everything Else...just no RLS/WED!
Topic: Exercise
Replies: 5
Views: 337

Re: Exercise

While on your recumbent bike do you read or watch tv? I've been thinking of getting an exercise bike for the night time episodes of rls.
by 2BassetMom
Mon May 07, 2018 5:46 pm
Forum: General Topics: RLS/WED
Topic: Over-the-counter sleep aids
Replies: 4
Views: 237

Re: Over-the-counter sleep aids

I find that sleep aid medication of any kind makes my rls much worse. Sorry. It's so hard when we can't get enough sleep. I try all the usual methods: baths, music, and such but it usually is up to the whims of the rls.
by 2BassetMom
Mon May 07, 2018 6:26 am
Forum: Prescription Medications
Topic: Prescription Refills
Replies: 26
Views: 999

Re: Prescription Refills

I have found there is not much improvement since I am taking the ER OxyContin at night and the oxycodone during the day. I have a good night without any rls and then the next night I'm waking up 2-3 times a night. There is improvement during the day. I am paying attention to what I eat and my activi...
by 2BassetMom
Thu May 03, 2018 9:50 am
Forum: Prescription Medications
Topic: Prescription Refills
Replies: 26
Views: 999

Re: Prescription Refills

Good news: my PA is working with me to tweak the opioids to where I get some relief. She has listened and I am so grateful. Dr. Poceta at Scripps suggested an ER OxyContin at bedtime and a dose of oxycodone mid day. So far all I have been prescribed is the bedtime dose of 15mg OxyContin and that bar...
by 2BassetMom
Fri Apr 27, 2018 4:23 am
Forum: Prescription Medications
Topic: Prescription Refills
Replies: 26
Views: 999

Re: Prescription Refills

Restless shoulder is awful! The only thing that can help is heat. It is the creepiest feeling. I sent off a carefully worded message to my PA tonight. Hopefully she will read it in the morning.
by 2BassetMom
Thu Apr 26, 2018 5:37 pm
Forum: Prescription Medications
Topic: Prescription Refills
Replies: 26
Views: 999

Re: Prescription Refills

I've almost come up with a message that might work. Meanwhile in reading the notes that Dr. Poceta sent home with me from Scripps, I found that I can message him through a patient portal. I don't know how I overlooked this, maybe sleep deprivation? So if I don't get any further help from my PA I wil...
by 2BassetMom
Thu Apr 26, 2018 12:07 pm
Forum: Prescription Medications
Topic: Prescription Refills
Replies: 26
Views: 999

Re: Prescription Refills

My PA prescribed OxyContin CR 15mg, I tablet at bedtime. The first night I took it I didn't fall asleep until after 1:00am and that was after dealing with restless legs off and on during the evening. I woke several times with rls finally rising at 5:30 to get ready to go to my regular Tues/Wed Bible...
by 2BassetMom
Tue Apr 24, 2018 10:05 am
Forum: General Topics: RLS/WED
Topic: What Calms You in the Night?
Replies: 23
Views: 657

Re: What Calms You in the Night?

All good ideas, thanks! I like the idea of tea with milk. I tolerate caffeine in small amounts so black tea would do. I had thought of coconut milk and will give that a try.
by 2BassetMom
Sun Apr 22, 2018 2:37 pm
Forum: General Topics: RLS/WED
Topic: What Calms You in the Night?
Replies: 23
Views: 657

What Calms You in the Night?

i’m finding thst my old stand-by for calm when I get up at night now not such a good thing. My comfort drink at least once a night, has been hot chocolate made with whole milk & Hershey’s Syrup. Decadent, I know! I think I may be having issues with Dairy. So I need some ideas to replace my hot c...
by 2BassetMom
Sun Apr 22, 2018 9:27 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Calm Legs
Replies: 4
Views: 339

Re: Calm Legs

I'll try Calm Legs if I can find it. I was hoping to just pick some up but the 3 stores I checked in were out. My local pharmacy can probably order it in. (yes, Yawny, I we have 2 basset hounds, Maggie & Matilda. The funniest dogs ever!)

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