Restless Legs Syndrome (RLS) Discussion Board

I have been to San Diego (La Jolla) to see my RLS doctor, Dr. Poceta. My daughter and I flew down on Thursday the 24th and flew back to northern Idaho the same day. I wouldn't recommend this! I had a very rewarding appointment. Since I last posted I have gone back on 1mg Neupro patch. It is working....

Thanks for the encouragement! It has been tough with setbacks now & then. Tonight has been particularly rough with hip pain accompanying the dancing legs. My appointment can't get here fast enough!

I want to share something I learned today about a loving personthat meant a lot to me in my younger years. Growing up my best friend lived next door and our moms were best friends too. We would freely go from one house to another that's how close we were. As we became adults, I moved away and we bec...

Beth I was wondering the same thing. I have scheduled an appointment for September 24. I will be able to get an early morning flight and go to my appointment the same day. Meanwhile I will just have to get along to best I can with hot baths and lots of pacing.

I felt I had to share my good visit to my dentist today. I have been going to this office for about 5 years. I have gotten to know the staff well and really like them. In the past year I have had the same hygienist/assistant work on me and she understands restless legs! She has them too but not as s...

The battle continues. I am down to using the Neupro Patch maybe once a week and that is 1/2 patch or .5mg. I only use it if I am at the breaking point. I have restless legs throughout the night and several times a day. Still on oxycodone. I will be making an appointment to fly down to see my RLS spe...

I just read through these tips and plan to try the ones I haven't used before. I too have cereal and coffee if I get up and it does help. My cereal of choice is Honey Nut Cheerios:) I take hot baths but I'm going to try to cold method too. My favorite brain distraction is crossword puzzles. I keep a...

I heard from my RLS doctor's nurse. She told me what I have read on here that there will be 3-4 weeks of hell coming off of a dopamine agonist. When this time is up I may need to fly down to see the doctor so they can evaluate how I am without a DA. )ne of our sons lives there and it will be great t...

I heard from my primary care doctor's office today and was told my Ferritin level is 113. I have a call into Dr. Poceta's nurse and expect to hear within a day or two. My RLS has been relentless in the last 24 hours. I didn't replace my last bit of patch. I have had maybe an hour's worth of sleep. I...

I'm almost off the Neupro Patch. I had my Ferritin level tested last week and waiting for the results. I'll then contact my doctor to see where we go from there.

I really appreciate the info. I'll see what Dr. Poceta suggests and go from there. The combining of meds looks like a good option. I would have loved to have gone to the fall event to see people I met in La Jolla. It's good to have faces to go with names. I'll let you know what comes of my med dilem...

I am currently coming off of the Neupro Patch having been on it for about 2 1/2 years. My reasons for getting off are, Expense ( I'm in the Medicare "donut hole"), the itching at the site of the patch and I believe I have been experiencing augmentation. I have gone from 2mg down to .5mg. I am also o...

This was my impression also. Another sign was that the gal my friend had me listen to as she gave her testimony lumped RLS in with a myriad of other aches and pains. Red flag! she claimed to have RLS at one time and it went completely away with just a few treatments. Aargh! I'm used to people sharin...

Thanks badnights! I appreciate the speedy answer. My friend was really putting on the pressure even to the point of making an appointment for me. I felt as though I was being hounded by an over enthusiastic car salesman. No put down on car salespeople, I known some very helpful ones:)The sentence yo...

Hi RLS Friends, I have been absent for quite awhile but I am back and so happy to be here. I had a conversation with a person whom I could call a friend but not close. she called me all excited about a treatment from Germany called the Healy Device. she was sure this would be the cure for my restles...