Search found 44 matches

by lhoff12085
Tue Sep 24, 2019 12:25 am
Forum: Prescription Medications
Topic: Burning in arms and legs in early morning
Replies: 13
Views: 165

Re: Burning in arms and legs in early morning

You’re amazing! I so appreciate all the information. I’m relieved that I have more options than I realized. I’m not sure if the Horizant is working - I still have the burning/aching but it’s not as severe - so I may try doubling the dose to see if that helps I feel a difference. I don’t know much ab...
by lhoff12085
Mon Sep 23, 2019 10:09 pm
Forum: Prescription Medications
Topic: Burning in arms and legs in early morning
Replies: 13
Views: 165

Re: Burning in arms and legs in early morning

So sorry - I forgot to tell you my dosage. I'm on 5mg methadone in the morning and at night. I take 600mg of Horizant at night (~5). My doctor said he could prescribe a higher level of methadone but that there was a limit. Not sure what that means since he said this when I first went on it. BTW I'm ...
by lhoff12085
Mon Sep 23, 2019 9:19 pm
Forum: Prescription Medications
Topic: Burning in arms and legs in early morning
Replies: 13
Views: 165

Re: Burning in arms and legs in early morning

Thanks so much! I was wondering if I could take different opioids i.e. if that was something that RLS drs prescribe. If I understand (b) correctly, that's what you're doing? And thanks for the info on Lyrica. I have no experience w that. I just don't want to take anything that creates augmentation. ...
by lhoff12085
Sat Sep 21, 2019 8:26 pm
Forum: Prescription Medications
Topic: Burning in arms and legs in early morning
Replies: 13
Views: 165

Re: Burning in arms and legs in early morning

I'm taking Horizant again which (just looked) is prescribed for neuropathy. Maybe Lyrica is better or would work better on me anyway. I don't have any numbness or tingling. I've always have "pain", severe achiness the whole time w my RLS but this seems either more severe or slightly differ...
by lhoff12085
Sat Sep 21, 2019 7:21 pm
Forum: Prescription Medications
Topic: Burning in arms and legs in early morning
Replies: 13
Views: 165

Re: Burning in arms and legs in early morning

Well it's always worthwhile to look into. Thanks for the tip. I see my doctor in November and will talk to him about it.
by lhoff12085
Fri Sep 20, 2019 8:44 pm
Forum: Prescription Medications
Topic: Burning in arms and legs in early morning
Replies: 13
Views: 165

Re: Burning in arms and legs in early morning

I've only heard of neuropathy related to feet. Thanks for the thought - I will pursue that. Is there a relationship to RLS?
by lhoff12085
Fri Sep 20, 2019 8:18 pm
Forum: Prescription Medications
Topic: Burning in arms and legs in early morning
Replies: 13
Views: 165

Re: Burning in arms and legs in early morning

Thanks Holland. I will talk to my dr about it. He's a sleep specialist so hopefully he's read about IV iron. I'm pretty discouraged. I appreciate your quick response. Laura
by lhoff12085
Fri Sep 20, 2019 2:42 pm
Forum: Prescription Medications
Topic: Burning in arms and legs in early morning
Replies: 13
Views: 165

Burning in arms and legs in early morning

I have been through many medications and have been on methadone for 2.5 years. I am now having burning and aching in my upper arms and thighs, starting around 3am. My history is that my medication loses effectiveness after ~2 years. I've already been on ropinirole, then Horizant, now methadone. I ha...
by lhoff12085
Fri Sep 20, 2019 2:29 pm
Forum: Prescription Medications
Topic: Side Effect? A warm, dull, heavy feeling in calves at night
Replies: 3
Views: 72

Re: Side Effect? A warm, dull, heavy feeling in calves at night

You may be finding that the ropinirole is no longer as effective. I'm just about to post my own issue. I find that w/in 2 years, my medications are not nearly as effective so I have to switch. I started on ropinirole, then changed to Horizant, and now am on methadone. I'm now having symptoms of burn...
by lhoff12085
Sat Mar 10, 2018 11:09 pm
Forum: Prescription Medications
Topic: Opioid Study at Massachussets General
Replies: 11
Views: 1866

Re: Opioid Study at Massachussets General

I'm having my interview on March 15th....
by lhoff12085
Sat Mar 10, 2018 9:54 pm
Forum: General Topics: RLS/WED
Topic: War on Pain Pills
Replies: 9
Views: 984

Re: War on Pain Pills

Steve, Just saw the video w you noted in the March eFriends! I figured out that you were the person who helped me so much when I was taking Horizant and visiting CO. I see you now may have found a dr where you live. Please keep us posted on that. So the last time we "spoke", I was taking H...
by lhoff12085
Mon Jul 17, 2017 12:54 pm
Forum: Prescription Medications
Topic: Gabapentin vs Horizant
Replies: 29
Views: 3911

Re: Gabapentin vs Horizant

Sounds like it was quite a search to find your doctor and to sort out your medications. It amazes me when I read the news on all these dr's prescribing opiods, I'm thinking, "Where are they?" The people who need them, can't get them, and the people who abuse them, get all they want.
by lhoff12085
Sat Jul 15, 2017 6:33 pm
Forum: Prescription Medications
Topic: Gabapentin vs Horizant
Replies: 29
Views: 3911

Re: Gabapentin vs Horizant

Steve, That's helpful. I'm very hesitant to travel international bc of having problems. Last year when I went to Denver for 3 nights I had big problems w PLM each night - and I'd switched taking my meds on Denver time. This time I did more what you suggest and at least didn't have the night problems...
by lhoff12085
Sat Jul 15, 2017 4:35 pm
Forum: Prescription Medications
Topic: Gabapentin vs Horizant
Replies: 29
Views: 3911

Elevation and time change

Steve, Thanks for your advice on buying marijuana and taking cash. I'm back from my trip. I had a terrible time adjusting to the time change (2 hours) and/or the elevation. Took me 6 days to feel normal. I tried marijuana and found it did help me sleep but did not help w my RLS or switch my body clo...
by lhoff12085
Wed Jun 28, 2017 9:22 pm
Forum: Prescription Medications
Topic: Gabapentin vs Horizant
Replies: 29
Views: 3911

Re: Gabapentin vs Horizant

As you might have noticed from my into on the right of these columns, I live in CO. I am about 100 miles south of Denver and 500 ft lower. We moved here about a year ago partially so that my wife and I would both have access to medical marijuana. I honestly cannot say whether the elevation change f...

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