Search found 121 matches

by Stainless
Sun Apr 14, 2019 6:17 pm
Forum: Prescription Medications
Topic: B 12 levels
Replies: 7
Views: 1285

Re: B 12 levels

My doctor put me on B12 and threatened shots if it did not come up. She said it might help RLS but it didn't. I tried those gummy bear ones from CVS for 3 months and it didn't get any better. I went to methylcobalamin B12 drops I buy from Amazon for $30 for 30 mL and my number shot up to 361 pg/mL. ...
by Stainless
Fri Mar 22, 2019 5:27 pm
Forum: Prescription Medications
Topic: Gabapentin withdraw symptoms
Replies: 20
Views: 225

Re: Gabapentin withdraw symptoms

I'm on three psychotropic medications so I asked my neurologist if I could try to get off Gabapentin (which I thought was not doing much). I took a half dose and it triggered intense RLS in the middle of the night after 6 weeks of relative peace with my legs. I took the other half and got through th...
by Stainless
Mon Mar 11, 2019 11:23 am
Forum: Prescription Medications
Topic: Lyrica Cocktail
Replies: 4
Views: 87

Re: Lyrica Cocktail

Views, when the Neupro proved to be too expensive, I asked the neurologist's nurse and he said 800 mg was the max recommended. Previously I unintentionally took 2 pills a night for a week until I realized what I was doing and saw no improvement at all. The Lyrica worked in a day. I did not expect th...
by Stainless
Sun Mar 10, 2019 11:10 am
Forum: Prescription Medications
Topic: Lyrica Cocktail
Replies: 4
Views: 87

Lyrica Cocktail

I started Lyrica four weeks ago as an afterthought phone prescription because the Neupro that my neurologist prescribed cost $800 a month out of pocket. I can't even remember Lyrica ever coming up with my GPs or neurologists and had a fear of the drug from the side effects listed in their ads. This ...
by Stainless
Thu Feb 21, 2019 7:08 pm
Forum: Prescription Medications
Topic: Neupro Cost
Replies: 14
Views: 172

Re: Neupro Cost

Thx for response Oyx. 5 days in and Lyrica is working so well it is scaring the hell out of me. Ropinirole worked great for a few days and then everything went to hell. My legs have been so calm I forgot what it felt like. Virtually no pain, day and night, even after long hard elliptical sessions. U...
by Stainless
Sun Feb 17, 2019 6:48 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Dr. Gundry's supplement
Replies: 4
Views: 199

Re: Dr. Gundry's supplement

How much Kratom do you take. I tried it once (and probably still have some around) but I could not figure how to choke down several tablespoons. I even tried brownies but who can eat a big brownie every night without blowing up. And all it did was make the brownies taste bad. Good luck staying off m...
by Stainless
Sun Feb 17, 2019 1:58 pm
Forum: Prescription Medications
Topic: Neupro Cost
Replies: 14
Views: 172

Re: Neupro Cost

Thx for the reply QyX. My year of DAs started with withdrawals from clonazepam which I was on for 20 years. The freezing feet and knee caps I believe were from withdrawal and I still wrestle with that even after a year back on clonazepam. The pain in my thighs started when I was trying all the DAs. ...
by Stainless
Fri Feb 15, 2019 8:30 pm
Forum: Prescription Medications
Topic: Neupro Cost
Replies: 14
Views: 172

Re: Neupro Cost

Rustsmith, I was on Requip ER for about a year and was paying about $100 a month and thought that was outrageous. Now I am extremely cheap and I have never been on a drug that was not either generic or fully covered by insurance. I think the only way I'll try Neupro is if it goes generic. I'll be on...
by Stainless
Fri Feb 15, 2019 12:50 pm
Forum: Prescription Medications
Topic: Neupro Cost
Replies: 14
Views: 172

Re: Neupro Cost

stjohn, we did discuss iron. I was tested a few years ago and level was 265 which I understand is way high. That was before I took any supplement like I take now (Iron Bisglycinate). I doubt either my doctor or this new neurologist know much about infusions. Next meeting I'm going to bring up Cannab...
by Stainless
Wed Feb 13, 2019 2:39 pm
Forum: Prescription Medications
Topic: Neupro Cost
Replies: 14
Views: 172

Re: Neupro Cost

Thanks for replies. I knew going in it was expensive but wow! I could finance a Tesla for that much. I called the neurologist first thing this morning. I'm on meds now and my primary referred me to neurologist to try to improve situation. I take gabapentin now at bedtime with clonazepam and would be...
by Stainless
Tue Feb 12, 2019 9:13 pm
Forum: Prescription Medications
Topic: Neupro Cost
Replies: 14
Views: 172

Neupro Cost

I saw a neurologist this morning (new to me) and at the end of our meeting he prescribed Neupro. I told him I had heard it was very expensive and he was understanding, but said he had no samples so see if pharmacy would sell me 10 to see how it worked. I stopped by pharmacy and asked them to price i...
by Stainless
Fri Feb 01, 2019 3:44 pm
Forum: Physical Treatments
Topic: Is anyone having a successful 'drug free' experience?
Replies: 12
Views: 476

Re: Is anyone having a successful 'drug free' experience?

IMO do everything you can to not take these meds.
by Stainless
Tue Jan 22, 2019 7:15 pm
Forum: Prescription Medications
Topic: What DA to take
Replies: 12
Views: 320

Re: What DA to take

There was a PowerPoint on this site mostly on RLS and Opioids. I think it was a Mayo Clinic physician. He stated that they had followed every RLS patient at their facility and pramipexole had the best record for length of DA treatment without augmenting. It gave me an instant headache so I went to R...
by Stainless
Tue Jan 22, 2019 6:45 pm
Forum: Physical Treatments
Topic: Plantar Fasciitis Night Sock
Replies: 3
Views: 378

Re: Plantar Fasciitis Night Sock

You and many others pinpoint your RLS to the calf. I would have said the same thing 20 years ago but now it seems to all be in my thighs. What a strange disease.
by Stainless
Tue Jan 22, 2019 6:38 pm
Forum: Physical Treatments
Topic: Using Trail Camera to observe RLS
Replies: 8
Views: 349

Re: Using Trail Camera to observe RLS

I've been wearing the Fitbit over a month now and have yet to have a night it says I slept over 3 hours. I don't ever register any sleep until after 2 or 3 in the morning after I've been in bed for 4 or 5 hours (thinking I was sleeping). I assume it is PLMS but I always (if I get a reading at all) g...

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