Search found 168 matches

by Stainless
Mon Oct 19, 2020 5:34 pm
Forum: Physical Treatments
Topic: BEST MATTRESS FOR RLS
Replies: 11
Views: 540

Re: BEST MATTRESS FOR RLS

I’ve been sold on Tempur-Pedic for a long time. We have a house full now. I picked the most firm one when we finally upgraded to a king. Big mistake. Expensive to do over.
by Stainless
Mon Oct 19, 2020 5:19 pm
Forum: Prescription Medications
Topic: New Consensus Treatment Document
Replies: 6
Views: 284

Re: New Consensus Treatment Document

I never hear why hematologist are so leery of more iron. My MD says it is organ failure related but no details.
by Stainless
Sat Sep 12, 2020 3:07 pm
Forum: Prescription Medications
Topic: Lyrica 300+
Replies: 10
Views: 402

Re: Lyrica 300+

I take 150 mg about 7pm then 150 mg +2 mg clonazepam at bedtime. The goal is to get to sleep quickly. Makes RLS bearable barely. Good weeks followed by bad weeks with no apparent trigger. I have not asked about increasing dosage only because I'm running out of options. Best of Luck Wontok My neurolo...
by Stainless
Wed Aug 05, 2020 2:21 pm
Forum: Prescription Medications
Topic: Movement Disorder Specialist--Really?
Replies: 6
Views: 426

Re: Movement Disorder Specialist--Really?

I'd consider myself lucky if Gabapentin works well for you long run. I think it is about the most benign of the drugs used to treat RLS. I was on Requip XL for a year and it was a horrible, the lost year of my life. A little bit of codeine and I'm all bound up so I can't imagine what a real opiate w...
by Stainless
Sat May 30, 2020 12:54 pm
Forum: Prescription Medications
Topic: Lyrica side effects
Replies: 9
Views: 340

Re: Lyrica side effects

I'm taking 300 mg of Lyrica and 2 mg Clonazepam. I've tried just about everything else and this minimises daytime RLS, allows me to sleep with less PLMS and has minimal side effects. I would not operated heavy machinery after taking it but that goes without saying. I take 150 mg about 7 pm, another ...
by Stainless
Tue Apr 28, 2020 4:04 pm
Forum: Prescription Medications
Topic: Lyrica questions
Replies: 19
Views: 691

Re: Lyrica questions

My Neurologist bumped my Lyrica script up to 2 x 150 mg plus 2 mg Clonazepam and I'm sleeping like a baby. I take 1 cap an hour followed by Clonazepam just before bed. Daytime issues are at a minimum. I never thought I would be putting all these drugs in my body but at 63 I've decided to maximise qu...
by Stainless
Mon Apr 20, 2020 8:35 pm
Forum: Prescription Medications
Topic: IV Iron Revisited
Replies: 3
Views: 197

IV Iron Revisited

Stjohnh, I just read on another post you have achieved complete relief with IV Iron. That is amazing! You are the only person I know of that has achieved that degree of relief and did not just post their complicated supplements and life style changes that befit a monk. Some come on once and claim to...
by Stainless
Mon Apr 20, 2020 7:57 pm
Forum: Physical Treatments
Topic: Weighted Blankets
Replies: 7
Views: 2375

Re: Weighted Blankets

I would feel confined and my legs would go crazy. I know this going back 50 years when my RLS was a tiny fraction of what it is now.
by Stainless
Sat Mar 21, 2020 4:51 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Ferritin increased with oral iron, now what?
Replies: 23
Views: 1558

Re: Ferritin increased with oral iron, now what?

I would agree with QyX, you are doing great. Small dose of meds and doing the right things to keep the Monster at bay. I'm taking your iron approach and have been for over a year. I did notice when I got lax in my routine the iron dropped significantly. I have scripts to have more iron testing befor...
by Stainless
Sun Mar 08, 2020 4:13 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Vitamin B1
Replies: 8
Views: 2096

Re: Vitamin B1

I've tried the benfotiamine thiamine supplement a couple of times now without immediate relief. With all the other vitamins and drugs I take I have not found a time in my routine to stay with it. It seems a little rough on the stomach. Along the other line, I used to run and averaged 15 miles a week...
by Stainless
Sun Mar 08, 2020 3:52 pm
Forum: Physical Treatments
Topic: Nectar bed helps sleep
Replies: 3
Views: 1773

Re: Nectar bed helps sleep

We changed to Tempurpedic about a decade ago. Biggest advantage was my wife was able to live with my increasing PLMS. An improvement in both of our comfort but not RLS symptoms.
by Stainless
Tue Mar 03, 2020 4:38 pm
Forum: Prescription Medications
Topic: Gabapentin--Lyrica?
Replies: 6
Views: 817

Re: Gabapentin--Lyrica?

I've been on Pregabalin 150 mg and Clonazepam 2 mg for over a year without any significant side effects. Before the addition of Pregabalin, RLS had gotten worse and worse to the point of significant pain in my thighs and PLMS in the evening and night. Not like I don't deal with RLS on a daily basis ...
by Stainless
Sat Feb 22, 2020 3:31 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Vitamin B1
Replies: 8
Views: 2096

Re: Vitamin B1

I just popped my first benfotiamine thiamine supplement. What caught my eye was our workout routine and alcohol consumption seem to be similar (although I'm slowing down at 63) and I'm willing to invest $20 in a shot in the dark. I've tried everything else so why not. Fingers crossed. Rick
by Stainless
Tue Feb 11, 2020 2:00 pm
Forum: Physical Treatments
Topic: Iron Infusion Worked for me
Replies: 17
Views: 2545

Re: Iron Infusion Worked for me

Thanks Holland. I'm scheduled to have an iron tested next month before my doctor appointment. I'll take a closer look at the guidelines since my doctor got a resounding "not unless anaemic" response from the haematologist. My basic iron numbers have been all over the place probably because I have no...
by Stainless
Mon Feb 10, 2020 5:14 pm
Forum: Physical Treatments
Topic: Iron Infusion Worked for me
Replies: 17
Views: 2545

Re: Iron Infusion Worked for me

I'd be willing to travel to try infusion. My medical health service is useless. My neurologist has no problem prescribing benzodiazepines and pregabalin but the hematologist will not consider it unless I'm anaemic. How can that make sense. I would have no idea how to doctor shop. I'm in Florida but ...