Restless Legs Syndrome (RLS) Discussion Board

I find even something as low opioid as Hydrocodone quickly loses effectiveness quickly. I save it as my silver bullet a couple times a month at 1 am.

This doctor is a sleep specialist recommended by Mayo where he used to work. I assume he understands I'm going to continue to take Clonazepam and Pregabalin during the flight. My concern is adding Ambien to the mix for the first time when flying over The Atlantic. I've never had a bad reaction to ...

I had my follow up after my sleep study. Doc said I was kicking rapidly for long periods while asleep. Tell me something I don't know. He said I do not have sleep apnea. I'm sure I do have some on occasion (my wife has videoed it) but it is dwarfed by the RLS. He offered no solution but signed me up ...

Billfish, can you expand on what this change in treatment was. One doctor cannot solve this international nightmare. What happens when he is gone. I would drop everything and fly across the US to see hime based on the praises on this site. Is he still talking patients?

I use 5 mg Hydrocodone as my Silver Bullet about once a week. I totally agree it is short acting. I try hard not to take it before 1 or 2 am. By 4 am my RLS starts to naturally disappear so I might make it through the night. I've learned to take it, lie down and relax, trying to break that wake ...

I was surprised about the 5am wake up that no one told me before hand and concerned about driving an hour home. The strange thing is since I recovered from the assumed TIA it seems like the Cobwebs in my brain are cleared out. I'm sleeping very well, can remember things I stumbled on a few weeks ...

30 years on Clonazepam and 5 years on Pregabalin and I had my first sleep study. It's been offered since the first script and several times since but I always convinced them I've had life long RLS and there is no question to answer. It was an annoyance for almost 40 years and sleep was controlled ...

Because of what probably was a TIA Transient Ischemic Attack, I was assigned to a new neurologist. He is younger, seems very sharp and gives very blunt answers. I talked to him about becoming my RLS doctor and he seemed positive. I told him I had just seen a sleep doctor and was scheduled for a ...

A concierge doctor to me he could get me on that patch when I brought up the FDA warning about tooth decay. I was curious if a patch would have that issue. In Florida the law reads doc can prescribe Buprenorphine because o 2023 waiver to opioid prescription law but a doctor has to have an exemption ...

2 1/2 weeks ago I passed out in restaurant chair. Wife says I was not breathing and as I come to I hear a nurse who was there for dinner saying "I can't find a pulse". I stand up and feel 100%. EMS comes rushing in, we go out to porch and they do EKG, blood sugar, BP, cognitive test, etc, nothing ...

Thx for reply. I'm still on Clonazepam and Pregabalin at bedtime. Neurologist gives me Hydrocodone for 2 am when I am in pain and have no chance of falling asleep, I was using it about once a week but did 3 times this week. I took it last night and got 4 more hours of good sleep. Percussion usually ...

I'm recycling this post because well over a year later the percussion massage gun is part of my daily routine of dealing with severe RLS. Typically I use it when I get up in the middle of the night and can't get back to sleep. It works pretty well and if not I take hydrocodone acetaminophen once or ...

I would have to agree with your assessments. One article said "While Journavx did not outperform the opioid combination of hydrocodone and acetaminophen (Vicodin), it provided effective pain relief without the associated risks of opioid use." I use hydrocodone acetaminophen at 2am and it buys me 2 ...

Has anyone heard of thought about Journavx, the Non-Opioid Pain Medication just approved by the FDA? It's very expensive. Medicare should cover seeing that it eliminates Opioid question. It would have to work like a miracle to warrant the prices I saw.

debbluebird, do you take it morning and night because you have daytime symptoms?