Search found 119 matches

by Stainless
Mon Mar 11, 2019 11:23 am
Forum: Prescription Medications
Topic: Lyrica Cocktail
Replies: 4
Views: 68

Re: Lyrica Cocktail

Views, when the Neupro proved to be too expensive, I asked the neurologist's nurse and he said 800 mg was the max recommended. Previously I unintentionally took 2 pills a night for a week until I realized what I was doing and saw no improvement at all. The Lyrica worked in a day. I did not expect th...
by Stainless
Sun Mar 10, 2019 11:10 am
Forum: Prescription Medications
Topic: Lyrica Cocktail
Replies: 4
Views: 68

Lyrica Cocktail

I started Lyrica four weeks ago as an afterthought phone prescription because the Neupro that my neurologist prescribed cost $800 a month out of pocket. I can't even remember Lyrica ever coming up with my GPs or neurologists and had a fear of the drug from the side effects listed in their ads. This ...
by Stainless
Thu Feb 21, 2019 7:08 pm
Forum: Prescription Medications
Topic: Neupro Cost
Replies: 14
Views: 163

Re: Neupro Cost

Thx for response Oyx. 5 days in and Lyrica is working so well it is scaring the hell out of me. Ropinirole worked great for a few days and then everything went to hell. My legs have been so calm I forgot what it felt like. Virtually no pain, day and night, even after long hard elliptical sessions. U...
by Stainless
Sun Feb 17, 2019 6:48 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Dr. Gundry's supplement
Replies: 4
Views: 179

Re: Dr. Gundry's supplement

How much Kratom do you take. I tried it once (and probably still have some around) but I could not figure how to choke down several tablespoons. I even tried brownies but who can eat a big brownie every night without blowing up. And all it did was make the brownies taste bad. Good luck staying off m...
by Stainless
Sun Feb 17, 2019 1:58 pm
Forum: Prescription Medications
Topic: Neupro Cost
Replies: 14
Views: 163

Re: Neupro Cost

Thx for the reply QyX. My year of DAs started with withdrawals from clonazepam which I was on for 20 years. The freezing feet and knee caps I believe were from withdrawal and I still wrestle with that even after a year back on clonazepam. The pain in my thighs started when I was trying all the DAs. ...
by Stainless
Fri Feb 15, 2019 8:30 pm
Forum: Prescription Medications
Topic: Neupro Cost
Replies: 14
Views: 163

Re: Neupro Cost

Rustsmith, I was on Requip ER for about a year and was paying about $100 a month and thought that was outrageous. Now I am extremely cheap and I have never been on a drug that was not either generic or fully covered by insurance. I think the only way I'll try Neupro is if it goes generic. I'll be on...
by Stainless
Fri Feb 15, 2019 12:50 pm
Forum: Prescription Medications
Topic: Neupro Cost
Replies: 14
Views: 163

Re: Neupro Cost

stjohn, we did discuss iron. I was tested a few years ago and level was 265 which I understand is way high. That was before I took any supplement like I take now (Iron Bisglycinate). I doubt either my doctor or this new neurologist know much about infusions. Next meeting I'm going to bring up Cannab...
by Stainless
Wed Feb 13, 2019 2:39 pm
Forum: Prescription Medications
Topic: Neupro Cost
Replies: 14
Views: 163

Re: Neupro Cost

Thanks for replies. I knew going in it was expensive but wow! I could finance a Tesla for that much. I called the neurologist first thing this morning. I'm on meds now and my primary referred me to neurologist to try to improve situation. I take gabapentin now at bedtime with clonazepam and would be...
by Stainless
Tue Feb 12, 2019 9:13 pm
Forum: Prescription Medications
Topic: Neupro Cost
Replies: 14
Views: 163

Neupro Cost

I saw a neurologist this morning (new to me) and at the end of our meeting he prescribed Neupro. I told him I had heard it was very expensive and he was understanding, but said he had no samples so see if pharmacy would sell me 10 to see how it worked. I stopped by pharmacy and asked them to price i...
by Stainless
Fri Feb 01, 2019 3:44 pm
Forum: Physical Treatments
Topic: Is anyone having a successful 'drug free' experience?
Replies: 12
Views: 454

Re: Is anyone having a successful 'drug free' experience?

IMO do everything you can to not take these meds.
by Stainless
Tue Jan 22, 2019 7:15 pm
Forum: Prescription Medications
Topic: What DA to take
Replies: 12
Views: 314

Re: What DA to take

There was a PowerPoint on this site mostly on RLS and Opioids. I think it was a Mayo Clinic physician. He stated that they had followed every RLS patient at their facility and pramipexole had the best record for length of DA treatment without augmenting. It gave me an instant headache so I went to R...
by Stainless
Tue Jan 22, 2019 6:45 pm
Forum: Physical Treatments
Topic: Plantar Fasciitis Night Sock
Replies: 3
Views: 373

Re: Plantar Fasciitis Night Sock

You and many others pinpoint your RLS to the calf. I would have said the same thing 20 years ago but now it seems to all be in my thighs. What a strange disease.
by Stainless
Tue Jan 22, 2019 6:38 pm
Forum: Physical Treatments
Topic: Using Trail Camera to observe RLS
Replies: 8
Views: 347

Re: Using Trail Camera to observe RLS

I've been wearing the Fitbit over a month now and have yet to have a night it says I slept over 3 hours. I don't ever register any sleep until after 2 or 3 in the morning after I've been in bed for 4 or 5 hours (thinking I was sleeping). I assume it is PLMS but I always (if I get a reading at all) g...
by Stainless
Wed Dec 19, 2018 3:51 pm
Forum: Physical Treatments
Topic: Using Trail Camera to observe RLS
Replies: 8
Views: 347

Re: Using Trail Camera to observe RLS

I just invested in a Fitbit watch to try to gain more insight into sleep. I should have just borrowed my wife's a few more times. Both hers and mine only record 2 or 3 hours of sleep. 20 some minutes of REM. I go to bed at 9 and it does not think I sleep until 3. I wake at 6, I'm not tired during th...
by Stainless
Sat Dec 08, 2018 5:27 pm
Forum: Physical Treatments
Topic: Using Trail Camera to observe RLS
Replies: 8
Views: 347

Using Trail Camera to observe RLS

I did set up a Trail Camera and observed my RLS the last four nights. It is designed to come on at the first indication of movement record for a preset time and turn off. First two nights I had my wife's Fitbit on monitoring sleep but had to figure out best camera setup. They were terrible nights, I...

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