Search found 174 matches

by Stainless
Mon Feb 08, 2021 6:12 pm
Forum: Prescription Medications
Topic: Clonazepam and Doctors
Replies: 5
Views: 226

Re: Clonazepam and Doctors

Our stories are so very similar. I lived with RLS maybe forever, Jr. High at least. I first heard of RLS in the 80s. In my late 30s I asked a doctor about it & he put me on Clonazepam. Still had to deal with late afternoon & evening Jimmy legs but slept well. Still had a lot of nighttime leg movemen...
by Stainless
Wed Jan 27, 2021 3:17 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: What's the deal with magnesium?
Replies: 8
Views: 795

Re: What's the deal with magnesium?

I have been taking magnesium for 8 years in the form of a product Calm. This has peen at the persistence of my wife mixing us up a glass just before bed. No miracle cure for RLS but no complaints. Keeps you regular if you're old like me.
by Stainless
Tue Jan 12, 2021 4:11 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Medical Marijuana in non-recreational US states
Replies: 12
Views: 1222

Re: Medical Marijuana in non-recreational US states

In Fl you don't need to see a doctor "certified to dispense MJ" once a year. It's every three months but can't be the same visit as one covered by insurance. So that's 8 times a year. I would gladly pay a doc once a year. And no, I don't want to be breaking the law or buy from an unknown source. Hop...
by Stainless
Sun Jan 10, 2021 2:15 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: A few questions about iron tablets
Replies: 18
Views: 849

Re: A few questions about iron tablets

I thought we were supposed to take iron with vitamin C on an empty stomach. I researched that and it is understood to be no less 2 hours after a meal and no more than 1 hour before. I find oral iron helps but is no cure. My providers hematologist says no IV unless I am anemic. My numbers are way up ...
by Stainless
Sun Jan 10, 2021 2:02 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Medical Marijuana in non-recreational US states
Replies: 12
Views: 1222

Re: Medical Marijuana in non-recreational US states

Florida’s laws are a joke. My neurologist told me he was getting into the marijuana business. He said since I had skin cancer before he could treat me for RLS. I see him now four times a year just to get Clonazepam. For MJ I would have to see him 8 (cash for 4). Then whatever they charge for the pro...
by Stainless
Sun Jan 10, 2021 1:41 pm
Forum: Physical Treatments
Topic: PA’s Diagnosis
Replies: 3
Views: 182

PA’s Diagnosis

Every other time I go to Neurologist I see his PA. Both have heavy accents so communication is not great. Not surprising since a third of US docs are foreign born. Anyways the PA tells me my pain that I take Lyrica for is the deterioration of the muscle in my thighs from repeated jerking day and esp...
by Stainless
Mon Oct 19, 2020 5:34 pm
Forum: Physical Treatments
Topic: BEST MATTRESS FOR RLS
Replies: 11
Views: 666

Re: BEST MATTRESS FOR RLS

I’ve been sold on Tempur-Pedic for a long time. We have a house full now. I picked the most firm one when we finally upgraded to a king. Big mistake. Expensive to do over.
by Stainless
Mon Oct 19, 2020 5:19 pm
Forum: Prescription Medications
Topic: New Consensus Treatment Document
Replies: 6
Views: 396

Re: New Consensus Treatment Document

I never hear why hematologist are so leery of more iron. My MD says it is organ failure related but no details.
by Stainless
Sat Sep 12, 2020 3:07 pm
Forum: Prescription Medications
Topic: Lyrica 300+
Replies: 10
Views: 506

Re: Lyrica 300+

I take 150 mg about 7pm then 150 mg +2 mg clonazepam at bedtime. The goal is to get to sleep quickly. Makes RLS bearable barely. Good weeks followed by bad weeks with no apparent trigger. I have not asked about increasing dosage only because I'm running out of options. Best of Luck Wontok My neurolo...
by Stainless
Wed Aug 05, 2020 2:21 pm
Forum: Prescription Medications
Topic: Movement Disorder Specialist--Really?
Replies: 6
Views: 504

Re: Movement Disorder Specialist--Really?

I'd consider myself lucky if Gabapentin works well for you long run. I think it is about the most benign of the drugs used to treat RLS. I was on Requip XL for a year and it was a horrible, the lost year of my life. A little bit of codeine and I'm all bound up so I can't imagine what a real opiate w...
by Stainless
Sat May 30, 2020 12:54 pm
Forum: Prescription Medications
Topic: Lyrica side effects
Replies: 9
Views: 393

Re: Lyrica side effects

I'm taking 300 mg of Lyrica and 2 mg Clonazepam. I've tried just about everything else and this minimises daytime RLS, allows me to sleep with less PLMS and has minimal side effects. I would not operated heavy machinery after taking it but that goes without saying. I take 150 mg about 7 pm, another ...
by Stainless
Tue Apr 28, 2020 4:04 pm
Forum: Prescription Medications
Topic: Lyrica questions
Replies: 19
Views: 738

Re: Lyrica questions

My Neurologist bumped my Lyrica script up to 2 x 150 mg plus 2 mg Clonazepam and I'm sleeping like a baby. I take 1 cap an hour followed by Clonazepam just before bed. Daytime issues are at a minimum. I never thought I would be putting all these drugs in my body but at 63 I've decided to maximise qu...
by Stainless
Mon Apr 20, 2020 8:35 pm
Forum: Prescription Medications
Topic: IV Iron Revisited
Replies: 3
Views: 214

IV Iron Revisited

Stjohnh, I just read on another post you have achieved complete relief with IV Iron. That is amazing! You are the only person I know of that has achieved that degree of relief and did not just post their complicated supplements and life style changes that befit a monk. Some come on once and claim to...
by Stainless
Mon Apr 20, 2020 7:57 pm
Forum: Physical Treatments
Topic: Weighted Blankets
Replies: 7
Views: 2483

Re: Weighted Blankets

I would feel confined and my legs would go crazy. I know this going back 50 years when my RLS was a tiny fraction of what it is now.
by Stainless
Sat Mar 21, 2020 4:51 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Ferritin increased with oral iron, now what?
Replies: 23
Views: 1758

Re: Ferritin increased with oral iron, now what?

I would agree with QyX, you are doing great. Small dose of meds and doing the right things to keep the Monster at bay. I'm taking your iron approach and have been for over a year. I did notice when I got lax in my routine the iron dropped significantly. I have scripts to have more iron testing befor...