Search found 130 matches

by Stainless
Sun Jul 14, 2019 4:36 pm
Forum: Prescription Medications
Topic: Methadone in Florida?
Replies: 4
Views: 81

Re: Methadone in Florida?

I'm a lifelong sufferer of severe RLS and resident of Fl. Almost every GP claims they treat RLS in their Bio but few to my experience know more than their computer tells them. DAs -> Extended release DAs -> Gabapentin -> Neupro. I looked all over the state for an expert and found a movement speciali...
by Stainless
Wed Jul 03, 2019 2:09 pm
Forum: Prescription Medications
Topic: PLMD experience?
Replies: 3
Views: 65

Re: PLMD experience?

My wife's principal complaint is my PLMD. Hard to sleep with someone with this condition but she is a great sport. My symptoms are mostly when I'm asleep but a little in the evenings. I had no idea how bad it was until I took a video even though it's been going on for over 45 years. Without Clonazep...
by Stainless
Wed Jul 03, 2019 1:50 pm
Forum: Prescription Medications
Topic: Experience with Injectafer?
Replies: 71
Views: 2537

Re: Experience with Injectafer?

Stjohn, what exactly is Injectafer? Is that a name brand of the technique? Is it an IV drip or something else? I think you said if your insurance did not cover the procedure it would cost about $2K. Was that for the series of shots, basically a year's dose? I read the study and I'm thinking of bring...
by Stainless
Sun Jun 16, 2019 5:03 pm
Forum: Prescription Medications
Topic: Dopamine question - even after all these years.
Replies: 6
Views: 139

Re: Dopamine question - even after all these years.

My doctor says she has had patients on DAs for decades for RLS. I have never met one. I know this forum caters to those seeking more help but is there anyone out there that knows one of these people successfully using DAs for decades. I tried and supplements you mention by themselves and still do wi...
by Stainless
Thu May 30, 2019 12:38 pm
Forum: Prescription Medications
Topic: Rotating Meds
Replies: 23
Views: 274

Re: Rotating Meds

Along the lines rotating meds I had an incredibly hard time getting my prescriptions filled in time for vacation. I would have run out of both clonazepam and Lyrica over two weeks. CVS (our pharmacy) at first told them I could get them on Thursday and filled the clonazepam. Because insurance covered...
by Stainless
Wed May 29, 2019 3:27 pm
Forum: Prescription Medications
Topic: Rotating Meds
Replies: 23
Views: 274

Re: Rotating Meds

I had an incredible 2 weeks in London and Portsmouth and the RLS backed off even for long jet rides. I wish I could count on a dose of vacation working and I would plan even more intense traveling. We won a cheap upgrade coming back from Virgin which was a godsend. I watched three movies and was hom...
by Stainless
Sun May 12, 2019 6:09 pm
Forum: Prescription Medications
Topic: Rotating Meds
Replies: 23
Views: 274

Re: Rotating Meds

Thx for the responses. Last few nights have been tolerable I assume because the ebb and flow of pain. Another RLS variable.

I'm on a bucket list vacation next few weeks. I'm hoping to get a reprieve from the worst of RLS as usual when traveling. Knock on wood!
by Stainless
Wed May 08, 2019 6:13 pm
Forum: Prescription Medications
Topic: Rotating Meds
Replies: 23
Views: 274

Rotating Meds

I saw a neurologist about the severity of my RLS. This is the first time I've used one beyond just a consultation. He added Lyrica to the mix of Clonazepam and Gabapentin I was already on. Worked like a champ for five weeks. Now, two months later, I'm about back where I started. My regular doctor wa...
by Stainless
Fri Apr 19, 2019 4:03 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Nonmedication strategies for RLS by Shalini Paruthi,MD
Replies: 14
Views: 539

Re: Nonmedication strategies for RLS by Shalini Paruthi,MD

I had read an article where the doctor said he had seen RLS patients who did better later in life. At 62 I'm not real encouraged from what I read above. I've been blessed with such a great life, I guess this is just a burden I have to carry.
by Stainless
Sun Apr 14, 2019 6:17 pm
Forum: Prescription Medications
Topic: B 12 levels
Replies: 15
Views: 1453

Re: B 12 levels

My doctor put me on B12 and threatened shots if it did not come up. She said it might help RLS but it didn't. I tried those gummy bear ones from CVS for 3 months and it didn't get any better. I went to methylcobalamin B12 drops I buy from Amazon for $30 for 30 mL and my number shot up to 361 pg/mL. ...
by Stainless
Fri Mar 22, 2019 5:27 pm
Forum: Prescription Medications
Topic: Gabapentin withdraw symptoms
Replies: 34
Views: 555

Re: Gabapentin withdraw symptoms

I'm on three psychotropic medications so I asked my neurologist if I could try to get off Gabapentin (which I thought was not doing much). I took a half dose and it triggered intense RLS in the middle of the night after 6 weeks of relative peace with my legs. I took the other half and got through th...
by Stainless
Mon Mar 11, 2019 11:23 am
Forum: Prescription Medications
Topic: Lyrica Cocktail
Replies: 7
Views: 177

Re: Lyrica Cocktail

Views, when the Neupro proved to be too expensive, I asked the neurologist's nurse and he said 800 mg was the max recommended. Previously I unintentionally took 2 pills a night for a week until I realized what I was doing and saw no improvement at all. The Lyrica worked in a day. I did not expect th...
by Stainless
Sun Mar 10, 2019 11:10 am
Forum: Prescription Medications
Topic: Lyrica Cocktail
Replies: 7
Views: 177

Lyrica Cocktail

I started Lyrica four weeks ago as an afterthought phone prescription because the Neupro that my neurologist prescribed cost $800 a month out of pocket. I can't even remember Lyrica ever coming up with my GPs or neurologists and had a fear of the drug from the side effects listed in their ads. This ...
by Stainless
Thu Feb 21, 2019 7:08 pm
Forum: Prescription Medications
Topic: Neupro Cost
Replies: 14
Views: 205

Re: Neupro Cost

Thx for response Oyx. 5 days in and Lyrica is working so well it is scaring the hell out of me. Ropinirole worked great for a few days and then everything went to hell. My legs have been so calm I forgot what it felt like. Virtually no pain, day and night, even after long hard elliptical sessions. U...
by Stainless
Sun Feb 17, 2019 6:48 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Dr. Gundry's supplement
Replies: 8
Views: 402

Re: Dr. Gundry's supplement

How much Kratom do you take. I tried it once (and probably still have some around) but I could not figure how to choke down several tablespoons. I even tried brownies but who can eat a big brownie every night without blowing up. And all it did was make the brownies taste bad. Good luck staying off m...

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