Search found 97 matches

by Stainless
Tue Sep 25, 2018 6:49 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Methylcobalamin b12 drops
Replies: 3
Views: 663

Re: Methylcobalamin b12 drops

I've been taking b12 in this form for over a month now. My legs have been calmer in the afternoon and evening than they have been for years. When I lay down to sleep any calming effect is hit or miss though. Once asleep, I'm sleeping through the night, waking up once or twice and quickly getting bac...
by Stainless
Wed Aug 22, 2018 3:45 pm
Forum: Prescription Medications
Topic: Neupro
Replies: 20
Views: 1051

Re: Neupro

An iron level of 10 sounds incredibly low (I have no medical background). Mine was several hundred. I think over 75 is considered right for rls (I think??) It would be great to identify the cause and treat that instead of getting mixed up with the dopamine agonists.
by Stainless
Wed Aug 22, 2018 3:33 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Methylcobalamin b12 drops
Replies: 3
Views: 663

Methylcobalamin b12 drops

My doctor told me to start taking vitamin b12 3 months ago so I started taking those gummy bear cyanocobalamin b12 supplements with no noticeable change. She told me to increase my dosage and I told he I already had. Doctor said maybe we will put you on b12 shots and it might even help your rls. Sho...
by Stainless
Tue Aug 21, 2018 2:10 pm
Forum: Physical Treatments
Topic: Training Brain to Release Dopamine earlier
Replies: 11
Views: 1430

Re: Training Brain to Release Dopamine earlier

So I asked my doctor about using Advil PM and she said the active ingredient for PM was just Benadryl. I was surprised because the only time I took Benadryl by itself I had horrible rls. She said it was considered so safe they give it to children to get them to sleep. PM works so well for me, maybe ...
by Stainless
Fri Jul 20, 2018 2:10 pm
Forum: Physical Treatments
Topic: Training Brain to Release Dopamine earlier
Replies: 11
Views: 1430

Re: Training Brain to Release Dopamine earlier

Rustsmith, I agree Benedryl is a trigger for me. The first doctor I asked about RLS suggested I try it and my RLS was as bad as it had ever been that night. I haven't taken it since. But I use Advil PM about one a week and sleep much better. I don't use it more often because of fear of long term use...
by Stainless
Fri Jul 20, 2018 2:00 pm
Forum: Prescription Medications
Topic: no prescription for ropinirol
Replies: 6
Views: 654

Re: no prescription for ropinirol

Find a new GP. You can't hardly find one that does not list RLS as a specialty they treat. That does not mean they know much about it but provide basic care like Ropinirole, Mirapex, Gabapentin. I did not do well on Ropinirole or its extended release, extended price tag cousin, but if you are doing ...
by Stainless
Tue Jul 03, 2018 3:35 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Potassium Citrate
Replies: 43
Views: 5925

Re: Potassium Citrate

Isn't the real question the risk of trying 10mEq Potassium Citrate. What are the side effects and interaction with other drugs we are taking. What I saw on the web did not look so benign. And what is the cost of a prescription? I would try anything if those two risks were low.
by Stainless
Tue Jun 26, 2018 4:07 pm
Forum: Physical Treatments
Topic: RLS and Increasing Circulation in Legs
Replies: 32
Views: 7901

Re: RLS and Increasing Circulation in Legs

I recently met with a doctor who has hereditary rls like I do. He told me to wear compression socks on airline flights. Our conversation never got around to hypoxia. The hour went fast and he insisted on spending time talking about issues I was obviously familiar with from this site. My local doctor...
by Stainless
Fri Jun 22, 2018 3:26 pm
Forum: Physical Treatments
Topic: Hot Tub?
Replies: 16
Views: 1871

Re: Hot Tub?

I ordered a floating gage from Amazon. I don't think my hot water heater can put get hot enough to be dangerous, but I'm curious. I'm putting off hot tub decision for a year. I might do an addition in next few years and put small one inside house.
by Stainless
Sun Jun 17, 2018 6:20 pm
Forum: Physical Treatments
Topic: Hot Tub?
Replies: 16
Views: 1871

Re: Hot Tub?

I was disappointed with use of hot tub and sauna for relieving of my rls. while at the Canyon Ranch Spa. I even used a cold tub (50 deg. F) and had an awesome massage. It all felt wonderful but every night I wrestled with rls. A 105 deg. F hot tub is not nearly as hot as I get my bath. I need measur...
by Stainless
Mon Jun 04, 2018 7:24 pm
Forum: Physical Treatments
Topic: Hot Tub?
Replies: 16
Views: 1871

Re: Hot Tub?

I agree Badnights. I only need a foot of water. Sometimes I worry about scalding myself but it shocks the hell out of the rls.
by Stainless
Wed May 30, 2018 5:28 pm
Forum: Physical Treatments
Topic: Hot Tub?
Replies: 16
Views: 1871

Re: Hot Tub?

I'll have a chance to try an infrared sauna at a Spa we are visiting in a few weeks. We are going to Canyon Ranch in Arizona. I'm also going to meet with their Johns Hopkins' trained sleep disorder doctor. I don't expect a big breakthrough but it will be interesting to talk. My regular doctor just w...
by Stainless
Fri May 25, 2018 3:12 pm
Forum: Physical Treatments
Topic: Hot Tub?
Replies: 16
Views: 1871

Hot Tub?

The one thing that always works, at least for the moment, is a hot bath. I live in Florida and have been considering a one person hot tub so I have jets powerful enough for some therapeutic relief as well as the heat without installing a 220 volt system which is very impactable for me. One person tu...
by Stainless
Fri May 25, 2018 2:52 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Iron has helped
Replies: 11
Views: 1107

Re: Iron has helped

Best of luck! Hope it is your solution. I've been taking Easy Iron (Ferris Pyrophosphate) even though I don't have a low level with no perceivable effect. I noticed the Slow Iron you are on has three times the elemental iron as iron sulfate (and probably Pyrophosphate). Does anyone have an opinion a...
by Stainless
Tue Apr 10, 2018 4:45 pm
Forum: Prescription Medications
Topic: Requip and Sleep Quality
Replies: 11
Views: 1049

Re: Requip and Sleep Quality

If you can get by on such a low dose of Requip,maybe you should try just Gabapentin and maybe avoid DA problems.

Go to advanced search