Search found 114 matches

by Stainless
Fri Feb 15, 2019 8:30 pm
Forum: Prescription Medications
Topic: Neupro Cost
Replies: 10
Views: 65

Re: Neupro Cost

Rustsmith, I was on Requip ER for about a year and was paying about $100 a month and thought that was outrageous. Now I am extremely cheap and I have never been on a drug that was not either generic or fully covered by insurance. I think the only way I'll try Neupro is if it goes generic. I'll be on...
by Stainless
Fri Feb 15, 2019 12:50 pm
Forum: Prescription Medications
Topic: Neupro Cost
Replies: 10
Views: 65

Re: Neupro Cost

stjohn, we did discuss iron. I was tested a few years ago and level was 265 which I understand is way high. That was before I took any supplement like I take now (Iron Bisglycinate). I doubt either my doctor or this new neurologist know much about infusions. Next meeting I'm going to bring up Cannab...
by Stainless
Wed Feb 13, 2019 2:39 pm
Forum: Prescription Medications
Topic: Neupro Cost
Replies: 10
Views: 65

Re: Neupro Cost

Thanks for replies. I knew going in it was expensive but wow! I could finance a Tesla for that much. I called the neurologist first thing this morning. I'm on meds now and my primary referred me to neurologist to try to improve situation. I take gabapentin now at bedtime with clonazepam and would be...
by Stainless
Tue Feb 12, 2019 9:13 pm
Forum: Prescription Medications
Topic: Neupro Cost
Replies: 10
Views: 65

Neupro Cost

I saw a neurologist this morning (new to me) and at the end of our meeting he prescribed Neupro. I told him I had heard it was very expensive and he was understanding, but said he had no samples so see if pharmacy would sell me 10 to see how it worked. I stopped by pharmacy and asked them to price i...
by Stainless
Fri Feb 01, 2019 3:44 pm
Forum: Physical Treatments
Topic: Is anyone having a successful 'drug free' experience?
Replies: 11
Views: 308

Re: Is anyone having a successful 'drug free' experience?

IMO do everything you can to not take these meds.
by Stainless
Tue Jan 22, 2019 7:15 pm
Forum: Prescription Medications
Topic: What DA to take
Replies: 12
Views: 293

Re: What DA to take

There was a PowerPoint on this site mostly on RLS and Opioids. I think it was a Mayo Clinic physician. He stated that they had followed every RLS patient at their facility and pramipexole had the best record for length of DA treatment without augmenting. It gave me an instant headache so I went to R...
by Stainless
Tue Jan 22, 2019 6:45 pm
Forum: Physical Treatments
Topic: Plantar Fasciitis Night Sock
Replies: 3
Views: 347

Re: Plantar Fasciitis Night Sock

You and many others pinpoint your RLS to the calf. I would have said the same thing 20 years ago but now it seems to all be in my thighs. What a strange disease.
by Stainless
Tue Jan 22, 2019 6:38 pm
Forum: Physical Treatments
Topic: Using Trail Camera to observe RLS
Replies: 8
Views: 314

Re: Using Trail Camera to observe RLS

I've been wearing the Fitbit over a month now and have yet to have a night it says I slept over 3 hours. I don't ever register any sleep until after 2 or 3 in the morning after I've been in bed for 4 or 5 hours (thinking I was sleeping). I assume it is PLMS but I always (if I get a reading at all) g...
by Stainless
Wed Dec 19, 2018 3:51 pm
Forum: Physical Treatments
Topic: Using Trail Camera to observe RLS
Replies: 8
Views: 314

Re: Using Trail Camera to observe RLS

I just invested in a Fitbit watch to try to gain more insight into sleep. I should have just borrowed my wife's a few more times. Both hers and mine only record 2 or 3 hours of sleep. 20 some minutes of REM. I go to bed at 9 and it does not think I sleep until 3. I wake at 6, I'm not tired during th...
by Stainless
Sat Dec 08, 2018 5:27 pm
Forum: Physical Treatments
Topic: Using Trail Camera to observe RLS
Replies: 8
Views: 314

Using Trail Camera to observe RLS

I did set up a Trail Camera and observed my RLS the last four nights. It is designed to come on at the first indication of movement record for a preset time and turn off. First two nights I had my wife's Fitbit on monitoring sleep but had to figure out best camera setup. They were terrible nights, I...
by Stainless
Tue Dec 04, 2018 6:00 pm
Forum: Physical Treatments
Topic: Any luck with a sleep study?
Replies: 20
Views: 697

Re: Any luck with a sleep study?

I've been on clonazepam for over 20 years. I read I should get off that benzo so after six months of reducing 2.5 mg dose I got off using Gabapentin. My RLS (thigh pain and probably PLMS) went 24/7. I tried the DAs and long lasting DAs and after a short good time, things just got worse with signific...
by Stainless
Sun Dec 02, 2018 1:37 pm
Forum: Physical Treatments
Topic: Any luck with a sleep study?
Replies: 20
Views: 697

Re: Any luck with a sleep study?

I've found that distraction is the only thing that can eliminate RLS for days or even up to a week. A vacation sometimes works but not always. I was just up helping family with hurricane damage and I hardly had a twinge for nearly a week. The week before it was bad as it gets and I actually through ...
by Stainless
Fri Nov 30, 2018 8:59 pm
Forum: Physical Treatments
Topic: Any luck with a sleep study?
Replies: 20
Views: 697

Re: Any luck with a sleep study?

I just bought a Trail Camera that turns on by sensing motion. It has LED infrared lights and only cost about $60. I doubt the doctors will be interested but I've always wondered what goes on after I go to sleep. I think I'll put a sheet of cardboard in front until I'm feeling like I might fall aslee...
by Stainless
Fri Nov 30, 2018 8:45 pm
Forum: Prescription Medications
Topic: Experience with Injectafer?
Replies: 38
Views: 1694

Re: Experience with Injectafer?

Stjohn. Are you talking about people who have an iron deficiency when you say recommending Injectafer for all but the mildest RLS patients...and 25% will have complete remission …

I'm a sufferer "with RLS who had a ferritin over 90."

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