Search found 81 matches

by Stainless
Wed Oct 18, 2017 10:21 pm
Forum: Just Joined?
Topic: Vacation and RLS
Replies: 11
Views: 293

Re: Vacation and RLS

First, everyone with RLS seems to be different. That said distraction works wonders with me and I am a 50 year victim with serious symptoms. Just a night out on the town will give me a reprieve at least until I get home. A vacation works even better. I'm retired so I should have no stress, in fact v...
by Stainless
Sat Oct 07, 2017 1:50 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Kratom berry compote
Replies: 18
Views: 566

Re: Kratom berry compote

I tried Kratom in brownies. I used a much higher dose than 1/2 teaspoon, choked down the brownies for a week but could not feel any effects. Just yesterday my wife pulled out the other half of what I bought more than a year ago and asked me what to do with it. I'm glad some get relief using it but n...
by Stainless
Mon Sep 18, 2017 4:53 pm
Forum: Prescription Medications
Topic: lorazepam and RLS
Replies: 11
Views: 396

Re: lorazepam and RLS

Everything they say about dependency and quitting benzodiazepines is more than true. I've been on clonazepam for over 20 years for RLS. I would try a more holistic approach to anxiety like joining a gym, eat healthy, don't sweat the small stuff. If you need help sleeping try gabapentin. If you have ...
by Stainless
Sat Jul 29, 2017 1:24 pm
Forum: Prescription Medications
Topic: Worried about taking medication for RLS
Replies: 49
Views: 2893

Re: Worried about taking medication for RLS

And I think you mean ropinirole. It controlled my rls to sleep but turned my world upside down. I kept having to go to a higher dose and then extended release. My first night on it was perfect but that didn't last long. Maybe your bad night was quitting gabapentin quickly. I have quit with no effect...
by Stainless
Sat Jul 29, 2017 1:10 pm
Forum: Prescription Medications
Topic: Worried about taking medication for RLS
Replies: 49
Views: 2893

Re: Worried about taking medication for RLS

reliefs#1, I totally agree with your hesitation to take your mother off a benzo. I don't know lorazepam but I came off clonazepam at 58, just retired and was in excellent health and conditioning. It was the worst year of my life. A year later I went back on it to get back my quality of life. I made ...
by Stainless
Wed Jul 26, 2017 7:51 pm
Forum: Prescription Medications
Topic: Worried about taking medication for RLS
Replies: 49
Views: 2893

Re: Worried about taking medication for RLS

The test for dementia comes from a big Canadian study; Benzodiazepine use and risk of Alzheimer’s disease. You can read it at http://www.bmj.com/content/349/bmj.g5205 It is a study of records of patients as opposed to following patients. The question they did not answer is whether it is the medicati...
by Stainless
Mon Jul 24, 2017 3:20 pm
Forum: Prescription Medications
Topic: Worried about taking medication for RLS
Replies: 49
Views: 2893

Re: Worried about taking medication for RLS

Reliefis#1, We have very similar histories. I took .5 mg. clonazepam for about 10 years, I mg. for 5, 2 mg. for 5 and had just been raised to 3 mg. I thought it just helped me sleep but I later found it also helped control the disease and had no side effects. I asked my new doctor about the Alzheime...
by Stainless
Sun Jul 02, 2017 1:46 pm
Forum: Prescription Medications
Topic: Is anyone else still on clonazepam?
Replies: 42
Views: 2908

Re: Is anyone else still on clonazepam?

So Fuz, your rls was bad, you took clonazepam for a while, things got better and you got off it? What do you do now for relief? Leggo, I would explore all other avenues before your body gets too dependent on clonazepam. Then taper off very slowly. I swore I would never go back after what it took to ...
by Stainless
Sat Jun 24, 2017 3:42 pm
Forum: Prescription Medications
Topic: Gabapentin vs Horizant
Replies: 29
Views: 2703

Re: Gabapentin vs Horizant

I was surprised my last gabapentin prescription was in 800 mg. tablets. Kind of a horse pill but seems to work the same as two capsules. I agree about taking either 30 minutes before bed.
by Stainless
Sun Jun 04, 2017 1:16 pm
Forum: Prescription Medications
Topic: Is anyone else still on clonazepam?
Replies: 42
Views: 2908

Re: Is anyone else still on clonazepam?

Badnights you are right, not phantom pain as I have all my limbs. I was trying to describe a pain without an obvious cause other than rls. Luckily I retired before this phase of the disease started so the impact on my life is less. Up until a few years ago it was just a strong urge to move my legs a...
by Stainless
Sun May 28, 2017 6:07 pm
Forum: Prescription Medications
Topic: Is anyone else still on clonazepam?
Replies: 42
Views: 2908

Re: Is anyone else still on clonazepam?

I just saw my doctor after trying different doses of gabapentin with 1 1/2 mg. clonazepam. My RLS is manageable and I'm sleeping through the night but have shooting pains in the thighs from early evening through the night. I'm up to 800 mg. gabapentin. Like RLS pain varies each night. Each increase ...
by Stainless
Mon May 22, 2017 7:36 pm
Forum: Physical Treatments
Topic: My new Relaxis
Replies: 65
Views: 7268

Re: My new Relaxis

Is there anyone out there with severe RLS that does not think they would have PLMS without or in my case with even with medication. I don't see the difference except some have not been through a sleep study.
by Stainless
Fri Apr 14, 2017 1:29 pm
Forum: Prescription Medications
Topic: Is anyone else still on clonazepam?
Replies: 42
Views: 2908

Re: Is anyone else still on clonazepam?

I agree with most everything in the posts. I just never had side effects from clonazepam and only quit because of a possible link to Alzheimer's found in a large Canadian study. The study has been questioned by a U of Washington study that found no link. I had more side effects from gabapentin but t...
by Stainless
Tue Apr 11, 2017 3:00 pm
Forum: Prescription Medications
Topic: Is anyone else still on clonazepam?
Replies: 42
Views: 2908

Is anyone else still on clonazepam?

I'm just curious because I see it mentioned so seldom on the forum. I actually see it much more in relation to RLS on a benzodiazepine forum where everyone is struggling to get off. I was on up to 3 mg. once a day for 20 years, came off it for a year using gabapentin to try the DAs. After giving up ...
by Stainless
Wed Mar 22, 2017 1:49 pm
Forum: Physical Treatments
Topic: RLS and Increasing Circulation in Legs
Replies: 27
Views: 3157

Re: RLS and Increasing Circulation in Legs

I don't know how and doubt you can direct oxygen to a specific area but high oxygen can do amazing things to bring back damaged tissue. The best example is burn patients. And it does not hurt the rest of your body (probably helps) as long as you take into account oxygen toxicity which only occurs ab...

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