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by Stainless
Sat Jun 24, 2017 3:42 pm
Forum: Prescription Medications
Topic: Gabapentin vs Horizant
Replies: 22
Views: 1227

Re: Gabapentin vs Horizant

I was surprised my last gabapentin prescription was in 800 mg. tablets. Kind of a horse pill but seems to work the same as two capsules. I agree about taking either 30 minutes before bed.
by Stainless
Sun Jun 04, 2017 1:16 pm
Forum: Prescription Medications
Topic: Is anyone else still on clonazepam?
Replies: 17
Views: 585

Re: Is anyone else still on clonazepam?

Badnights you are right, not phantom pain as I have all my limbs. I was trying to describe a pain without an obvious cause other than rls. Luckily I retired before this phase of the disease started so the impact on my life is less. Up until a few years ago it was just a strong urge to move my legs a...
by Stainless
Sun May 28, 2017 6:07 pm
Forum: Prescription Medications
Topic: Is anyone else still on clonazepam?
Replies: 17
Views: 585

Re: Is anyone else still on clonazepam?

I just saw my doctor after trying different doses of gabapentin with 1 1/2 mg. clonazepam. My RLS is manageable and I'm sleeping through the night but have shooting pains in the thighs from early evening through the night. I'm up to 800 mg. gabapentin. Like RLS pain varies each night. Each increase ...
by Stainless
Mon May 22, 2017 7:36 pm
Forum: Physical Treatments
Topic: My new Relaxis
Replies: 65
Views: 3257

Re: My new Relaxis

Is there anyone out there with severe RLS that does not think they would have PLMS without or in my case with even with medication. I don't see the difference except some have not been through a sleep study.
by Stainless
Fri Apr 14, 2017 1:29 pm
Forum: Prescription Medications
Topic: Is anyone else still on clonazepam?
Replies: 17
Views: 585

Re: Is anyone else still on clonazepam?

I agree with most everything in the posts. I just never had side effects from clonazepam and only quit because of a possible link to Alzheimer's found in a large Canadian study. The study has been questioned by a U of Washington study that found no link. I had more side effects from gabapentin but t...
by Stainless
Tue Apr 11, 2017 3:00 pm
Forum: Prescription Medications
Topic: Is anyone else still on clonazepam?
Replies: 17
Views: 585

Is anyone else still on clonazepam?

I'm just curious because I see it mentioned so seldom on the forum. I actually see it much more in relation to RLS on a benzodiazepine forum where everyone is struggling to get off. I was on up to 3 mg. once a day for 20 years, came off it for a year using gabapentin to try the DAs. After giving up ...
by Stainless
Wed Mar 22, 2017 1:49 pm
Forum: Physical Treatments
Topic: RLS and Increasing Circulation in Legs
Replies: 19
Views: 1444

Re: RLS and Increasing Circulation in Legs

I don't know how and doubt you can direct oxygen to a specific area but high oxygen can do amazing things to bring back damaged tissue. The best example is burn patients. And it does not hurt the rest of your body (probably helps) as long as you take into account oxygen toxicity which only occurs ab...
by Stainless
Sun Mar 19, 2017 4:40 pm
Forum: Prescription Medications
Topic: Requip & Erectile Dysfunction ???
Replies: 207
Views: 4579

Re: Requip & Erectile Dysfunction ???

I'm 15 years younger but it did the opposite to me for the year I was on ropinirole. I figured it was the dopamine. When I quit it took a few months for my sex drive to fully return, which was a big relief.
by Stainless
Sun Mar 19, 2017 4:24 pm
Forum: Physical Treatments
Topic: RLS and Increasing Circulation in Legs
Replies: 19
Views: 1444

Re: RLS and Increasing Circulation in Legs

I don't know what levels they use in hospitals. I think in absolute pressure so we are already at 1 ata. I worked in the diving industry and a typical bends treatment would be 60 feet of seawater (3 ata) breathing 30 minutes of oxygen followed by 15 minutes air repeated however long the doctor said....
by Stainless
Thu Mar 16, 2017 7:28 pm
Forum: Physical Treatments
Topic: RLS and Increasing Circulation in Legs
Replies: 19
Views: 1444

Re: RLS and Increasing Circulation in Legs

Someone talked about the tiny bit lower pressure in an airliner triggering RLS (lower oxygen). I know getting on a plane always triggers mine but I never thought that could be the cause. I always chocked it up to being in a constrained position.
by Stainless
Thu Mar 16, 2017 7:19 pm
Forum: Physical Treatments
Topic: RLS and Increasing Circulation in Legs
Replies: 19
Views: 1444

Re: RLS and Increasing Circulation in Legs

Pushing oxygen is exactly what hospital based chambers are for, improving circulation for issues like burns, cancer, etc. I'm no doctor but would think RLS would be little lower oxygen delivery, not a significant reduction that would cause tissue damage. If you just to breath pure oxygen long enough...
by Stainless
Wed Mar 15, 2017 3:38 pm
Forum: Physical Treatments
Topic: RLS and Increasing Circulation in Legs
Replies: 19
Views: 1444

Re: RLS and Increasing Circulation in Legs

I never get RLS when I am distracted so it is hard to tell what might work. I bought a $3000 massage chair because it made my RLS go away when I was suffering while walking through a mall. Great chair but did not continue to help RLS. Hypoxia in muscles should be easy to test in hyperbaric chambers....
by Stainless
Sun Feb 26, 2017 2:28 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Restiffic
Replies: 4
Views: 480

Re: Restiffic

It seems to me that these researchers found what may help a significant number of RLS sufferers, so they did not publish their research for a number of years, pursued FDA approval and then offered their product at an exorbitant price. They shared nothing I know of with organizations like rls.org. Se...
by Stainless
Mon Feb 13, 2017 3:51 pm
Forum: Just Joined?
Topic: First post. Questions: RLS & Sports Recovery, Naps, Etc.
Replies: 12
Views: 834

Re: First post. Questions: RLS & Sports Recovery, Naps, Etc.

I'm surprised that someone with significant untreated RLS can nap. That would set mine off even under heavy medication. Even under medication the first 15 minutes I lay down at night intensifies the RLS, then I pass out. I jogged and or worked out about the last 30 years and for some time did long d...
by Stainless
Thu Feb 02, 2017 8:47 pm
Forum: Prescription Medications
Topic: Effectiveness of Gabapentin/Neurontin Over Time
Replies: 22
Views: 1175

Re: Effectiveness of Gabapentin/Neurontin Over Time

That is just malpractice to stop supplying a benzo like that. Very serious for someone unprepared. They are even cheap here in US. Probably why supplier is holding back, not enough mark up.

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