Search found 15 matches

by Icnflms
Tue Feb 09, 2016 5:43 pm
Forum: Just Joined?
Topic: Over 40 Years of RLS
Replies: 22
Views: 2261

Re: Over 40 Years of RLS

Not sure if this qualifies as holistic, but it is non pharmaceutical. I have severe PLMD and went through years of various meds and augmentation. For 5 years now I have successfully treated my nighttime legs issues solely with a TENS Unit. I use it before bedtime as prescribed for low back pain, ha...
by Icnflms
Mon Jan 25, 2016 3:42 pm
Forum: Just Joined?
Topic: Do you suffer from severe Restless Legs Syndrome?
Replies: 10
Views: 746

Re: Do you suffer from severe Restless Legs Syndrome?

ARE YOU PREGNANT WITH RLS? You might have already seen our post above about the documentary on RLS we are making, and we are very grateful to those who have already been in touch. In addition, we are reaching out to pregnant women who have had an onset of RLS during pregnancy, but not necessarily ex...
by Icnflms
Mon Jan 25, 2016 2:41 pm
Forum: Just Joined?
Topic: Unrefreshing sleep: RLS+PLMs or depression?
Replies: 13
Views: 866

Re: Unrefreshing sleep: RLS+PLMs or depression?

Hi Beth, I've just seen this - sorry for not replying earlier. Thanks for the information, that's very useful. I've actually read quite a number of your posts and wondered whether you would be interested in speaking to us? I'm not sure what you know about us though you might have seen our post in th...
by Icnflms
Mon Jan 25, 2016 2:32 pm
Forum: Prescription Medications
Topic: Dopamine agonist withdrawal
Replies: 106
Views: 6562

Re: Dopamine agonist withdrawal

Hi LinW, I hope you don't mind me making contact with you. I don't know if you will have seen our post in the announcements on this forum, but I work for a production company in the UK called Icon Films that has been making factual content for television for 25 years. We are making a documentary abo...
by Icnflms
Mon Jan 25, 2016 2:26 pm
Forum: Prescription Medications
Topic: Relaxsis Pad
Replies: 2
Views: 562

Re: Relaxsis Pad

Hi dayandnight, I hope you don't mind me making contact with you. I don't know if you will have seen our post in the announcements on this forum, but I work for a production company in the UK called Icon Films that has been making factual content for television 25 years. We are making a documentary ...
by Icnflms
Mon Jan 25, 2016 2:17 pm
Forum: Prescription Medications
Topic: Lyrica/Hand (Finger Tremors)
Replies: 6
Views: 461

Re: Lyrica/Hand (Finger Tremors)

Hi Sojourner, I don't know if you will have seen our post in the announcements on this forum, but I work for a production company in the UK called Icon Films that has been making factual content for television 25 years. We are making a documentary about RLS/WED that aims to uncover the science so fa...
by Icnflms
Wed Jan 20, 2016 4:52 pm
Forum: Just Joined?
Topic: Do you suffer from severe Restless Legs Syndrome?
Replies: 10
Views: 746

Re: Do you suffer from severe Restless Legs Syndrome?

Hi Polar Bear, Since I've been looking on the forum I have come across and read a number of your posts and am really sorry to read of how you've suffered with RLS. As you have your own personal experiences and also a wealth of knowledge from reading and responding to others' posts on the forum, I wo...
by Icnflms
Wed Jan 20, 2016 4:42 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Medical Marijuana
Replies: 509
Views: 54126

Re: Medical Marijuana

My WED has been getting worse, over the past 45 years, and if I am "lucky" I sleep one night in three, and often only three or four hours that night... Frankly, I have thought many hundreds of times that I would rather slit my wrists open and bleed to death rather than spend yet another n...
by Icnflms
Wed Jan 20, 2016 4:35 pm
Forum: Just Joined?
Topic: Unrefreshing sleep: RLS+PLMs or depression?
Replies: 13
Views: 866

Re: Unrefreshing sleep: RLS+PLMs or depression?

Hi Tba, I hope you don't mind me contacting you, I have read some of your posts and am really sorry to read that you have suffered badly with RLS & PLMs, and in particular that at times you've resorted to self-harm. I am currently putting together a documentary about Restless Legs Syndrome for b...
by Icnflms
Wed Jan 20, 2016 4:28 pm
Forum: Physical Treatments
Topic: Transcranial magnetic stimulation--anyone know about it?
Replies: 2
Views: 2639

Re: Transcranial magnetic stimulation--anyone know about it?

Hi Needhamal, I hope you don't mind me contacting you, I have read some of your posts and am really sorry to read that you are suffering so badly with RLS and that you've had no success with the drugs you've been prescribed. I am currently putting together a documentary about Restless Legs Syndrome ...
by Icnflms
Wed Jan 20, 2016 4:21 pm
Forum: Just Joined?
Topic: Call for help
Replies: 13
Views: 1100

Re: Call for help

Hi Tammy, I hope you don't mind me contacting you, I have read call for help post and am very moved by your struggle. I am really sorry to read that you are suffering so badly with RLS and feel so desperate. I am currently putting together a documentary about Restless Legs Syndrome for broadcast in ...
by Icnflms
Tue Jan 19, 2016 10:05 pm
Forum: Just Joined?
Topic: Do you suffer from severe Restless Legs Syndrome?
Replies: 10
Views: 746

Re: Do you suffer from severe Restless Legs Syndrome?

Can you tell, what would be expected of a participant. Would they need to travel and what time would be involved. Hi Polar Bear, Thanks for enquiring. We would travel to the volunteer and we would talk to them about how RLS affects their life/symptoms. We want to illustrate how hard it is to live w...
by Icnflms
Tue Jan 19, 2016 9:10 pm
Forum: Just Joined?
Topic: Do you suffer from severe Restless Legs Syndrome?
Replies: 10
Views: 746

Re: Do you suffer from severe Restless Legs Syndrome?

Thank you! Wonderful that you are doing this. Canadians OK, too? I do hope that some of our members contact you. Hi ViewsAskew! Yes Canadians are very welcome as well - we want to get the message out about RLS to the UK and so for the right RLS sufferer we would be willing to go to them. We are loo...
by Icnflms
Mon Jan 18, 2016 3:25 pm
Forum: Physical Treatments
Topic: Where to go from here
Replies: 19
Views: 6164

Re: Where to go from here

Hi sleepnot, I hope you don't mind me contacting you but could not ignore your post. I am currently putting together a documentary about Restless legs Syndrome for broadcast in the UK. We are looking for RLS sufferers to share their story and in doing so help lift the lid on the so-called 'invisible...
by Icnflms
Mon Jan 18, 2016 3:02 pm
Forum: Just Joined?
Topic: Do you suffer from severe Restless Legs Syndrome?
Replies: 10
Views: 746

Do you suffer from severe Restless Legs Syndrome?

Volunteers Required to appear in TV documentary. We are looking for people with extreme RLS symptoms, USA or Europe based, to share their story in a new documentary aimed at lifting the lid on the so-called 'invisible illness'. If you feel your struggle can help illustrate the frustration and the mi...

Go to advanced search