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by stjohnh
Mon Oct 14, 2019 5:58 pm
Forum: Just Joined?
Topic: 1st post after 24 years of RLS
Replies: 37
Views: 460

Re: 1st post after 24 years of RLS

Icantsleep wrote:
Inflammation of what ?
My gut ?


Gut more likely, but would need your whole medical history and all of your blood test results to make a better guess.
by stjohnh
Mon Oct 14, 2019 3:17 pm
Forum: Just Joined?
Topic: 1st post after 24 years of RLS
Replies: 37
Views: 460

Re: 1st post after 24 years of RLS

... I'll start with my iron (I posted this in the augmentation topics , but I'll put it here as well ) September 4th non fasting bloodwork : Ferritin 635 Normal 22 - 537 (high) September 20th fasting bloodwork : Iron 23 Normal 7 - 29 TIBC 46 Normal 45 - 77 ( on the low side ) Saturation 0.5 Normal ...
by stjohnh
Sun Oct 13, 2019 2:48 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Rate of Ferritin Decline
Replies: 57
Views: 6338

Re: Rate of Ferritin Decline

... @stjohnhh - i had my first post iv blood test results back 10 weeks post IV. Obviously I only had 1 500mg dose. frustrated and somewhat angsty with the blood test results. iron saturation is at 45% but the ferritin level was only up to 232. the sleep and symptoms have defn improved post iv iron...
by stjohnh
Sun Oct 13, 2019 2:36 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Rate of Ferritin Decline
Replies: 57
Views: 6338

Re: Rate of Ferritin Decline

... \Regarding your doctors email, and how to respond to it , he is following the guidelines strictly, and you can't really blame him for that. ... Beth, I interpret (as does my hematologist) the guidelines as: The guidelines say (bottom box of algorithm pg 39): "Consider repeat ( note no dosa...
by stjohnh
Sat Oct 12, 2019 6:03 pm
Forum: Just Joined?
Topic: 1st post after 24 years of RLS
Replies: 37
Views: 460

Re: 1st post after 24 years of RLS

Time to get a new RLS doc.
by stjohnh
Sat Oct 12, 2019 5:30 pm
Forum: Just Joined?
Topic: 1st post after 24 years of RLS
Replies: 37
Views: 460

Re: 1st post after 24 years of RLS

... He is the top sleep disorder doctor in Ottawa He worked at Mayo ... I ask questions He does not like this ... He seems aggravated when I speak (A few others have had this experience, not just me) ... He does not want to help me Top sleep doc doesn't mean he is an RLS expert. It is sad when expe...
by stjohnh
Sat Oct 12, 2019 3:04 pm
Forum: Just Joined?
Topic: 1st post after 24 years of RLS
Replies: 37
Views: 460

Re: 1st post after 24 years of RLS

Icantsleep: Wow, complicated and difficult history. I'm sorry you have had so much trouble. I think you said you had a referral to a specialty neurologist. You definitely need an RLS specialist. The correspondence of another circadian rhythm disorder (RLS is a circadian rhythm disorder), your young ...
by stjohnh
Thu Oct 10, 2019 4:55 pm
Forum: Physical Treatments
Topic: How to be a guinea pig?
Replies: 2
Views: 62

Re: How to be a guinea pig?

... I can at least get to sleep pretty consistently these days thanks to my current treatment, but the quality is still trash and I'm never not tired. ... So...I want to be a guinea pig for some novel treatment like spinal cord stimulation, transcranial magnetic stimulation, deep brain stimulation,...
by stjohnh
Tue Oct 08, 2019 2:50 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 174
Views: 4387

Re: Attempting to get off Ropinirole - again

What QyX said.
by stjohnh
Mon Oct 07, 2019 1:49 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 174
Views: 4387

Re: Attempting to get off Ropinirole - again

It's about 4 weeks since I last posted. Today I visited my new GP to discuss my last steps off my ropinerole. What a frustrating appointment. ... After I return from holiday I plan on once and for all getting off the last of the ropinerole, maybe 3 steps over 3 weeks... Seems to me that your best o...
by stjohnh
Sun Oct 06, 2019 1:43 am
Forum: Prescription Medications
Topic: Tramadol ER
Replies: 6
Views: 86

Re: Tramadol ER

Another possibility is adding a tiny dose of pramipexole to your current meds. Several people have found, me included, that after augmenting and getting off the DA for several weeks, that they can take a small dose with very good results, and no resumption of augmentation or impulse control issues.....
by stjohnh
Sat Oct 05, 2019 7:21 pm
Forum: Prescription Medications
Topic: Gabapentin: Neurotin or Horizant (gabapentin enacarbil)
Replies: 9
Views: 101

Re: Gabapentin: Neurotin or Horizant (gabapentin enacarbil)

Stainless wrote:I'm surprised that gabapentin and Lyrica are basically the same. 300 mg. did nothing to help the 2 mg. clonazepam I'm on, but 150 mg. Lyrica has considerably improved symptoms.


That probably means you do not absorb plain gabapentin well.
by stjohnh
Fri Oct 04, 2019 4:35 pm
Forum: Prescription Medications
Topic: Gabapentin: Neurotin or Horizant (gabapentin enacarbil)
Replies: 9
Views: 101

Re: Gabapentin: Neurotin or Horizant (gabapentin enacarbil)

... Do you know if when you take the medication affects absorption? I was told to take it shortly after dinner; I am taking it 30 minutes to an hour after eating, so on a pretty full stomach. Would taking it immediately after dinner, or much later In the evening make any difference? Or is the main ...
by stjohnh
Fri Oct 04, 2019 2:53 pm
Forum: Augmentation
Topic: Is Tramadol continuing my Mirapex augmentation?
Replies: 18
Views: 546

Re: Is Tramadol continuing my Mirapex augmentation?

Icantsleep wrote:So tramadol ER 100mg sure didn’t do much

Had a horrible night and worse morning ...
and I’m hesitant, take 0.625mg mirapex at around 2am


I hope this is a typo. If you take the Mirapex, likely you mean 1/2 of a 0.125mg tablet, which is 0.0625mg, not 0.625mg.
by stjohnh
Fri Oct 04, 2019 2:50 pm
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: A BIG what if
Replies: 15
Views: 535

Re: A BIG what if

Icantsleep wrote:...

What 5 strains would you get or suggest ?


When I first started using kratom, I tried several strains, didn't find much difference between them, so have stuck with Red Vein Borneo for the last few years, just because it seems to be most recommended strain among forum members.

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