Search found 1017 matches

by stjohnh
Sun Jan 26, 2020 3:33 pm
Forum: Prescription Medications
Topic: Requip to Horizant and dizziness
Replies: 12
Views: 79

Re: Requip to Horizant and dizziness

... has there been good studies on the efficacy of Horizant vs Requip for severe RLS? I will try research this tomorrow. . I'm not sure about studies of Horizant vs Requip in severe RLS. I suspect there are studies for mild RLS. My statement is made on the basis of reading perhaps 100,000 posts on ...
by stjohnh
Sun Jan 26, 2020 4:23 am
Forum: Prescription Medications
Topic: Requip to Horizant and dizziness
Replies: 12
Views: 79

Re: Requip to Horizant and dizziness

Brendan, I'm glad you found us. Sounds like you have a fair handle on what's happening to you. Severe RLS with augmentation. Those of us who have been through it know what torture it is. Using Horizant would be in line with standard augmentation options. However, Horizant is almost never a strong en...
by stjohnh
Sat Jan 25, 2020 6:52 pm
Forum: Prescription Medications
Topic: Experience with Injectafer?
Replies: 87
Views: 4114

Re: Experience with Injectafer?

Holland, you say you take Kratom 720mg at 8pm and then again during the night. ... Im interested that you do so well on only 1.5 grams... Well, remember that nearly all my RLS symptoms are controlled with the IV Iron infusions. Also, I seem a little more sensitive to most drugs than average, mostly...
by stjohnh
Sat Jan 25, 2020 2:44 pm
Forum: Prescription Medications
Topic: Experience with Injectafer?
Replies: 87
Views: 4114

Re: Experience with Injectafer?

Holland, what are you taking for WED now? I am sure you have it written here somewhere, apologies for asking. Are you still taking dipyridamole? Nothing for urge to move. Urge to move is almost non-existent. I had been occasionally using THC for sleep, but after reading the last article on opioid f...
by stjohnh
Sat Jan 25, 2020 1:03 am
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: dialysis triggers WED/RLS
Replies: 1
Views: 49

Re: dialysis triggers WED/RLS

Not much discussion in the article, but every little bit of information helps scientists get closer to the causes and treatment possibilities.
by stjohnh
Wed Jan 22, 2020 9:08 pm
Forum: Prescription Medications
Topic: What's Worked for Me
Replies: 3
Views: 41

Re: What's Worked for Me

Welcom dwhite00. I'm glad you found us. Sounds like you are doing well. I hope it continues. You didn't say what your current dose of pramipexole is, but likely you are above the max current recommended dose, which is much lower than the FDA approved doses. This means that you are likely to develop ...
by stjohnh
Wed Jan 22, 2020 3:07 pm
Forum: Prescription Medications
Topic: Experience with Injectafer?
Replies: 87
Views: 4114

Re: Experience with Injectafer?

Good news update: I saw my doc a few days ago for BP check. Got lab done at same time. Ferritin 477, Transferrin Sat=42%. This is 26 weeks after my second set of Injectafer infusions. My ferritin was 260 at 22 weeks after my first set, and at that time was having recurrence of urge to move symptoms,...
by stjohnh
Sat Jan 18, 2020 10:08 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Cold medicine
Replies: 7
Views: 129

Re: Cold medicine

Most of the "nighttime" cold meds have diphenhydramine (Benadryl) in them. Avoid them like the plague.
by stjohnh
Sat Jan 18, 2020 2:51 pm
Forum: Augmentation
Topic: Augmentation tied to stroke ?
Replies: 24
Views: 463

Re: Augmentation tied to stroke ?

...he felt the patch was better. It is ordered and should be here next week.... Now to see if the medicine works, Be aware that Neupro patches are expensive. Not only that, 30-40% of people can't use them because of the severe rashes that are common. Additionally, augmentation occurs as well. For t...
by stjohnh
Thu Jan 09, 2020 5:17 pm
Forum: Prescription Medications
Topic: Gabapentin not working so good
Replies: 18
Views: 216

Re: Gabapentin not working so good

Hi Wendykat, glad you found us. I hope you find what you are looking for. We have lots of knowledgeable, compassionate, empathetic people here. Let us know if you have problems.
by stjohnh
Tue Jan 07, 2020 9:47 pm
Forum: Prescription Medications
Topic: Gabapentin not working so good
Replies: 18
Views: 216

Re: Gabapentin not working so good

The official dosing for ropinirole and pramipexole (Requip and Mirapex) are way too high and lead to frequent augmentation. RLS experts keep the doses of these dopamine agonists as low as possible to prevent this (and the other serious side effects).
by stjohnh
Tue Jan 07, 2020 3:10 pm
Forum: Prescription Medications
Topic: Gabapentin not working so good
Replies: 18
Views: 216

Re: Gabapentin not working so good

Yup, ropinirole is the generic name for Requip. Maybe your doc just forgot that you had tried it before, or perhaps he feels the combination would be better than either alone, which it is. Either way, I would start with a smaller dose (1/2 tablet) for at least a few days.
by stjohnh
Tue Jan 07, 2020 3:05 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Potassium
Replies: 7
Views: 160

Re: Potassium

meghcelmayster, Welcome to the RLS community. Thanks for the information. Others have tried potassium without much improvement. I'm happy you are better and hope it continues. If your symptoms return, be sure and post information here, likely someone here will have helpful suggestions.
by stjohnh
Mon Jan 06, 2020 4:06 pm
Forum: Physical Treatments
Topic: Iron Infusion Worked for me
Replies: 8
Views: 406

Re: Iron Infusion Worked for me

Studies have shown that doctors are most influenced by their experience, INITIAL training and one-on-one discussions with other doctors. Newer scientific evidence is lower down on the list. Most doctors have had no experience with IV Iron for RLS, their initial training was very likely "iron is...
by stjohnh
Sun Jan 05, 2020 9:01 pm
Forum: Just Joined?
Topic: Thank you for letting me join!
Replies: 18
Views: 213

Re: Thank you for letting me join!

One thing to bear in mind, the doses of opioids used for RLS are generally quite a bit less than the doses used for pain, and side effects are less as well (usually).

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