Restless Legs Syndrome (RLS) Discussion Board

Dr. Buchfuhrer also sees patients at the Stanford Sleep center in Redwood City, if you live in northern California.

Likely your RLS was controlled mostly by the Keppra with some boost from the gabapentin. Anticonvulsants can help control RLS symptoms, but experience is limited. Several uses of this forum have had quite good results with some anticonvulsants, but they are people with severe RLS and usually have be...

I mostly agree with Ann, except I wouldn't go back to Dr. G. He is clearly so full of himself he can't relate to patients, even though his advice sounded sort of OK (not good, but OK). It is difficult for many to get the opioids and/or good advice about opioids. I have been blessed not to have to ta...

Oozz, RLS actually has two main symptom groups, urge-to-move (restless legs) and sleep disorder. They appear to be mediated by different pathways (dopaminergic and glutamaturgic). In the mild phases of RLS the urge to move is the only apparent problem, and controlling urge-to-move usually results in...

I agree with QxY. You are augmenting on Mirapex, meaning that you need to get off it, a difficult problem in itself. Additionally, kratom is very likely to help. Medical marijuana may help sleep once you get the urge to move under control. Order some kratom today, with rush delivery, you should be a...

I see - the sources I used said (or the way I took notes from them said) that iron/TIBC is transferrin sat and that iron/transferrin is transferrin index. But anyway I know now that your 33% was measuring the same thing as my 44 and 52%. I fasted for over 12 hours and stopped oral iron for 3 days b...

Holland, what do you mean by iron saturation? I think I have a handle on transferrin saturation, TIBC & UIBC, iron concentration, & transferrin index, but I thought iron sat was just another term for transferrin sat. What was your sat. when your ferritin was 452? Beth, iron sat=iron/TIBC (Where TIB...

Well, I just had the first of my 3rd set of IV Injectafer Iron infusions, 2nd of the set is next week. Injectafer is given as two infusions, one week apart. RLS symptoms are coming back, but still mild. Interestingly, my ferritin a week or so ago was 452, I was afraid the hematologist would cancel m...

Wow, Thanks for the very interesting and well researched discussion. It will be interesting to see how much future research supports this idea.

Welcome to the group Squirmy. Generally 100% cotton pills less than cotton/polyester blends or 100% polyester.

Although disappointing that the success rate of iron is not very high. This seems counterintuitive if BID is indeed at the root. The reason for the less than 100% response to IV Iron is unknown. The most evidence points to the problem causing low brain iron is inadequate iron transport across the b...

Bill, The usual for IV iron is to continue regular meds, get IV iron, then a few weeks later, attempt to get off other RLS meds. That is what happened to me, I have had two rounds of IV Iron, and am about due for my next one. The IV iron allows me to be off other RLS meds for a while. I am currently...

can someone point me in a direction to pursue after I get off the med and return to my baseline rls? It appears that iron might be of benefit? What tests should I ask my doctor for to get a good idea on iron/ferritin? RLS is caused by BID (Brain Iron Deficiency). Many people with RLS can have their...

Well, my neurologist has me on Gabapentin in two divided doses in the evening, and the sleep doctor put me on an iron supplement, because my ferritin was low. Welcome bklyn62. RLS is caused by BID (Brain Iron Deficiency). Many people with RLS can have their symptoms markedly reduced or even elimina...

Well, I live in California, and recreational has only been legal a few months. I got medical marijuana here several years ago, on the basis of RLS and insomnia. However, California's medical marijuana law was very vague about the requirements and LOTS of people without significant medical problems g...