Search found 1152 matches
- Thu Jan 14, 2021 2:05 am
- Forum: Just Joined?
- Topic: New member seeking advice
- Replies: 7
- Views: 136
Re: New member seeking advice
Betty's comment about urge-to-move is important, and yes, if you have RLS, when the urge-to-move makes it's appearance, it is an IRRESISTABLE urge-to-move. It cannot be willed away, and the only relief comes from getting up and moving your feet, and relief comes QUICKLY, like a couple of seconds... ...
- Wed Jan 13, 2021 2:02 pm
- Forum: Just Joined?
- Topic: going "cold turkey"
- Replies: 22
- Views: 499
Re: going "cold turkey"
Your ferritin puts you out of the IV Iron infusion guidelines. This doesn't mean IV Iron wouldn't help, just that it is unlikely you can find a doc that will prescribe IV iron for fear of iron toxicity. Ferritin is a moderately good test for BLOOD iron, but a poor test for total body iron, and a wor...
- Wed Jan 13, 2021 1:46 pm
- Forum: Just Joined?
- Topic: New member seeking advice
- Replies: 7
- Views: 136
Re: New member seeking advice
Welcome domestictraveler, Sorry you are having troubles, and I hope we can help. Firstly, RLS is orinarily at its worst about the time you get into bed. It does not cause you to wake up after going to sleep (mostly). It ordinarily does not cause pain. It oridinarily gets better, not worse as the nig...
- Tue Jan 12, 2021 1:57 am
- Forum: Physical Treatments
- Topic: Vibrating Platform
- Replies: 5
- Views: 90
Re: Vibrating Platform
I haven't, but it reminds me of the Relaxis pad, a vibrating pad that actually got FDA approval for treatment of RLS. Unfortunately it also was expensive, and Medcare and insurance companies would not cover it. Several of our forum members purchased one, and, as I recall, it provided a little relief...
- Mon Jan 11, 2021 1:56 pm
- Forum: Non-prescription Medicines, Supplements, Diet
- Topic: Medical Marijuana in non-recreational US states
- Replies: 12
- Views: 975
Re: Medical Marijuana in non-recreational US states
Same for me in California, cheaper and more convenient to buy "recreational" and pay the tax than to have to go see the "pot doc" yearly and get the medical certificate. Even cheaper is to ask my daughter to get it from her dealer, but I would rather pay the extra amount to have "California state ce...
- Tue Jan 05, 2021 1:06 am
- Forum: Just Joined?
- Topic: Augmented
- Replies: 3
- Views: 90
Re: Augmented
Steve gave it to you straight. Unfortunately, without opioids, getting off the pramipexole is an awful experience. I, and many others here, have done it. The good news is that once you are off the pramipexole, your RLS may be easier to control with lower doses of drugs. Unfortunately, however, there...
- Wed Dec 30, 2020 7:43 pm
- Forum: Prescription Medications
- Topic: Iron IV Treatments
- Replies: 3
- Views: 69
Re: new member - transitioning from ropinirole to gabapentin
I am an MD but not a neurologist nor a specialist in restless legs syndrome (RLS). I am on this forum trying to see if I can find help for a former patient of mine who has RLS. In my wish to help him I have read over 100 papers on RLS and been in contact with some of the major MDs (Chris Earley) in...
- Tue Dec 29, 2020 10:20 pm
- Forum: Prescription Medications
- Topic: RLS and New Drug Development
- Replies: 5
- Views: 84
Re: RLS and New Drug Development
Well, just because we have not heard of new drug development doesn't mean it is not happening. With the prevalence of RLS being fairly high, the number of potential patients a new drug would help is large. I suspect several pharmaceutical companies are working on new drugs. I think the biggest curre...
- Fri Dec 25, 2020 3:23 am
- Forum: Prescription Medications
- Topic: Marijuana use
- Replies: 3
- Views: 86
Re: Marijuana use
Lots of folks here use marijuana (THC). BUT, most find it helps sleep, but isn't particularly helpful for urge-to-move (jumpy legs). I now get IV iron infusions which helps the urge-to-move tremendously, and insomnia somewhat. Anyway, When I was taking other meds for RLS (pramipexole and gabapentin ...
- Sun Dec 13, 2020 12:52 pm
- Forum: Just Joined?
- Topic: withdrawal from ropinirole
- Replies: 13
- Views: 164
Re: withdrawal from ropinirole
There are some people who can get off the dopamine agonist (ropinirole in this case) by very slow gradual taper like you are proposing. For some reason that is not what usually happens. As far as the torture of cold turkey, Steve has painted a grim, but unfortunately, all to real scene. I did it, bu...
- Thu Dec 10, 2020 1:19 pm
- Forum: Just Joined?
- Topic: going "cold turkey"
- Replies: 22
- Views: 499
Re: going "cold turkey"
Augmentation results in symptoms of "very severe" RLS.
- Thu Dec 10, 2020 1:15 pm
- Forum: Augmentation
- Topic: RLS in Parkinson's patients
- Replies: 6
- Views: 235
Re: RLS in Parkinson's patients
I don't know specifically about levodopa in patients with both parkinsons and RLS, but in RLS patients, levodopa causes augmentation VERY quickly, and is generally considered a no-no for daily RLS treatment. It is occasionally used for RLS as a supplemental or emergency treatment in special situatio...
- Tue Dec 01, 2020 11:29 pm
- Forum: Just Joined?
- Topic: going "cold turkey"
- Replies: 22
- Views: 499
Re: going "cold turkey"
Steve sounds about right to me, switching to opioids now will make your upcoming surgeries much easier to deal with. Hospital nurses are far more likely to continue opioids for a patient who had been on them regularly. Persuading a nurse to give you opioids in your preop NPO phase because "I have re...
- Tue Dec 01, 2020 7:30 pm
- Forum: Non-prescription Medicines, Supplements, Diet
- Topic: Medical Marijuana in non-recreational US states
- Replies: 12
- Views: 975
Re: Medical Marijuana in non-recreational US states
I live in California, so can get either recreational or medical. Medical requires reauthorization every year, with a visit to the pot doctor, about $60 per year minimum. I found that while the taxes are high on recreational, the tax for the amount I use is less than $60/year, and if I use recreation...
- Tue Nov 24, 2020 9:56 pm
- Forum: Augmentation
- Topic: trying no medication at all
- Replies: 3
- Views: 126
Re: trying no medication at all
There are a variety of physical treatments that have had some, but inconsistent, positive effects reported by members of this forum. Hot water, cold water, compression stockings, massage, vibrating machines, etc. Do a search or browse the Physical Treatments section of this forum. I think the Relaxi...