Search found 910 matches

by stjohnh
Sun Sep 15, 2019 10:28 pm
Forum: Prescription Medications
Topic: I'm finally getting an infusion
Replies: 14
Views: 82

Re: I'm finally getting an infusion

Beth, having your blood tests done before coming to the US would speed things along. Additionally you could send the test results to the hematologist before you came to be sure the hematologist wouldn't balk at whatever the test results showed. I believe most hematologists don't keep Injectafer, and...
by stjohnh
Sun Sep 15, 2019 10:09 pm
Forum: Prescription Medications
Topic: Clarify IV Iron recommendation please
Replies: 3
Views: 14

Re: Clarify IV Iron recommendation please

Unfortunately, the standard test for blood iron, the ferritin test, is a really poor test for several reasons. One of which you have noted. The result of a ferritin test will go up if a person has more iron in their blood (which does not correlate well with brain iron). The normal ferritin level var...
by stjohnh
Sun Sep 15, 2019 2:22 am
Forum: Just Joined?
Topic: New to RLS forum
Replies: 14
Views: 163

Re: New to RLS forum

Hello Slanecd, Welcome to the RLS community. This is the place to find comfort, advice, and knowledge. People here get it when you want to complain about how RLS is ruining your life. RLS is caused by BID (Brain Iron Deficiency). Many people with RLS can have their symptoms markedly reduced or even ...
by stjohnh
Sat Sep 14, 2019 9:25 pm
Forum: Physical Treatments
Topic: Any luck with a sleep study?
Replies: 23
Views: 1039

Re: Any luck with a sleep study?

Welcome MonkNYC to the RLS community. It sounds like you don't have RLS but only PLMS (periodic leg movements of sleep). It is closely related to RLS and mostly the treatment is the same. RLS is caused by BID (Brain Iron Deficiency). Many people with RLS can have their symptoms markedly reduced or e...
by stjohnh
Sat Sep 14, 2019 3:06 pm
Forum: Prescription Medications
Topic: I'm finally getting an infusion
Replies: 14
Views: 82

Re: I'm finally getting an infusion

[list=][/list] Thanks, guys. My thoughts on the expense are that hopefully my doctors in Canada will see the benefit, see that Dr B will confidently prescribe the iron, and this will cause them to decide to prescribe it themselves. If they do, I have at least a chance that my insurance will pay a po...
by stjohnh
Thu Sep 12, 2019 8:45 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 143
Views: 3912

Re: Attempting to get off Ropinirole - again

She then advised me that I needed to be on the highest dosage of Ropinirole before anyone could prescribe Opiates? I had been on the highest for a long long time and I am now down to 4 or 5 per day In any event I am shocked This is all becoming even more frusterating :( I am not in the market for i...
by stjohnh
Thu Sep 12, 2019 8:34 pm
Forum: Prescription Medications
Topic: I'm finally getting an infusion
Replies: 14
Views: 82

Re: I'm finally getting an infusion

Yay Beth!!!

My Injectafer bill was $2250 EACH for the two infusions. Happily I only had to pay $137 out of pocket (hallelujah).
by stjohnh
Wed Sep 11, 2019 7:45 pm
Forum: Prescription Medications
Topic: Infusion #3
Replies: 20
Views: 302

Re: Infusion #3

... In answer to your last question, the best approach to use for presenting this to your own doctor depends upon your doctor's personality as well as the relationship that the two of you have. If (s)he is the sort who readily accepts new information, simply hand him/her a copy of the IRLSSG docume...
by stjohnh
Wed Sep 11, 2019 4:23 am
Forum: Prescription Medications
Topic: Infusion #3
Replies: 20
Views: 302

Re: Infusion #3

Due to my total lack of medical background, I have only the vaguest idea why slow release iron products will increase the amount of iron that can be taken up by the body during the infusion process, or why slow-release is safer than the faster release formulations. ... I think the idea is that due ...
by stjohnh
Sun Sep 08, 2019 1:57 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Referral to medical marijuana dispensary experts
Replies: 24
Views: 224

Re: Referral to medical marijuana dispensary experts

... I can't continue medical school for almost 2 1/2 years now... I would have 3 1/2 of 6 1/2 years left if I would be healthy enough to continue I am aware that I am a really bad case ... but it mainly the insomnia, the pain, the restlessness in the body and the legs is very well under control ......
by stjohnh
Sat Sep 07, 2019 5:47 pm
Forum: Prescription Medications
Topic: Excellent article on opioids
Replies: 47
Views: 939

Re: Excellent article on opioids

Hi Mercy, welcome to the RLS community. You will find lots of helpful people here, folks who "get it" when we ***** and moan about how awful RLS is. Anyway, I'm not sure what your question is. If it is where to buy kratom, one sourch is https://www.phytoextractum.com/buy-red-vein-borneo-kr...
by stjohnh
Sat Sep 07, 2019 5:40 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Referral to medical marijuana dispensary experts
Replies: 24
Views: 224

Re: Referral to medical marijuana dispensary experts

QyX. I'm so sorry. I think you have the most severe RLS of anyone who posts on this forum. I can't imagine how you got through medical school. Are you finished, in residency program? How long to go before you practice as an independent doctor?
by stjohnh
Fri Sep 06, 2019 1:49 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Referral to medical marijuana dispensary experts
Replies: 24
Views: 224

Re: Referral to medical marijuana dispensary experts

... a) I have a horrible overhang since I added the CBD b) it takes a few hours after I vaped until I can finally sleep. At first I have some weird sedative, stoned high feeling were I am just very stoned and can't do much. Then this feeling progresses up to a point where I suddenly feel very tired...
by stjohnh
Thu Sep 05, 2019 2:05 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 143
Views: 3912

Re: Attempting to get off Ropinirole - again

Polar Bear wrote:...
It appears to work well though not so much for sleep...


That is my experience w kratom as well, good for urge to move, not so much for sleep. THC (cannabis) seems to be the best for sleep.
by stjohnh
Thu Sep 05, 2019 1:21 am
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 143
Views: 3912

Re: Attempting to get off Ropinirole - again

Polar Bear wrote:Holland, that’s great to know. Up to two teasp is ok.
If that is 2 teasp as a single dosage, how often could that be done in a day/24 hours. Just for future reference.


I wouldn't go above 3 times daily at that dose.

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