Search found 779 matches

by stjohnh
Sat May 25, 2019 5:22 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Medical Marijuana
Replies: 461
Views: 48255

Re: Requip & Erectile Dysfunction ???

I'm not sure whether I should post this to another thread or not but here I am. It's been nearly a year since I've posted but during that time I've finally gotten my sleep problems under control. ... Cheers! Welcome back and thanks for the report. Yup, probably better on another thread, since you d...
by stjohnh
Sat May 25, 2019 4:19 pm
Forum: Prescription Medications
Topic: Getting used to Lyrica
Replies: 4
Views: 34

Re: Getting used to Lyrica

The problem at night is that my jumpy legs break through the Lyrica and I have to get up and move about. I do feel like a zombie especially at night when I have to get up and move (climb stairs, stationary bike riding). I have no problem going to sleep or getting back to sleep, which is thanks to t...
by stjohnh
Sat May 25, 2019 1:19 pm
Forum: Prescription Medications
Topic: Getting used to Lyrica
Replies: 4
Views: 34

Re: Getting used to Lyrica

... I am so,so tired on Lyrica. I feel like I'm in a fog all the night. I have no energy to do anything on this drug and it's only been about a week and 1/2. Luckily I work from home, because I'm staying in my bathrobe until noon! I just can't get going. Will that change as I'm on it longer or is t...
by stjohnh
Sat May 25, 2019 1:08 pm
Forum: Prescription Medications
Topic: Effectiveness of Neupro patch
Replies: 6
Views: 46

Re: Effectiveness of Neupro patch

Yes, you can switch. However, in your case, if you are augmenting, the switch will be difficult, with a temporary worsening of your symptoms. For instance see this post, written this morning, by another member who switched from Neupro to Lyrica: http://bb.rls.org/viewtopic.php?f=4&t=10470&p=...
by stjohnh
Fri May 24, 2019 9:06 pm
Forum: Prescription Medications
Topic: Effectiveness of Neupro patch
Replies: 6
Views: 46

Re: Effectiveness of Neupro patch

I am curious about what others have experienced with the Neupro patch as a medication for treating RLS. ... goberland: Welcome to the RLS community. Lots of help here. First, my experience with the Neupro patch. (After the SURPRISE of sticker shock). It worked fairly well. I was only able to use it...
by stjohnh
Thu May 23, 2019 9:30 pm
Forum: Prescription Medications
Topic: Excellent article on opioids
Replies: 19
Views: 195

Re: Excellent article on opioids

... Well, I would try the kratom or mm, but I don't want a "high." .. Users on this board, me included, don't get high with kratom. Recreational users of kratom typically take much bigger doses, but apparently the "high" even then is quite mild. Unfortunately, medical marijuana,...
by stjohnh
Wed May 22, 2019 10:35 pm
Forum: Just Joined?
Topic: New here, just diagnosed but not sure it really is RLS...
Replies: 27
Views: 417

Re: New here, just diagnosed but not sure it really is RLS...

Jerry, Thanks for the update, sorry your problems are continuing. I'd push for the spine MRI. Various types of pinched nerves or spinal stenosis could be causing the thigh/calf pain. I had a spinal cyst that took 6 months to diagnose, and was misdiagnosed by 3 doctors, all supposedly experienced in ...
by stjohnh
Wed May 22, 2019 7:14 pm
Forum: Prescription Medications
Topic: Excellent article on opioids
Replies: 19
Views: 195

Re: Excellent article on opioids

... I've heard of kratom but am scared to try it. For that matter, I've heard of marijuana but am scared to try that too lol! In other words, I'm one of the least likely people on the planet to be a drug addict and/or sell drugs on street corners. Crikey! Both marijuana and kratom are legal in Cali...
by stjohnh
Tue May 21, 2019 11:24 pm
Forum: Prescription Medications
Topic: Excellent article on opioids
Replies: 19
Views: 195

Re: Excellent article on opioids

Sigh...thank you Steve, Ann, Beth. So here's what I have going: sent a request to my gp for horizant, also requested referral to a neurologist, am going to stop taking Valerian (I read some stories from people who said this and melatonin exacerbated their symptoms), am going to do some serious onli...
by stjohnh
Mon May 20, 2019 5:38 pm
Forum: Just Joined?
Topic: New Member
Replies: 4
Views: 65

Re: New Member

Welcome Doug. There are lots of helpful people here who REALLY understand how miserable this disease can be. Additionally, there are folks with lots of knowledge, experience and compassion. Your story is, unfortunately, very common. Your dose of Ropinirole is too high and you are augmenting. Augment...
by stjohnh
Sun May 19, 2019 10:15 pm
Forum: Prescription Medications
Topic: IRLS Study group and iron IVs
Replies: 13
Views: 484

Re: IRLS Study group and iron IVs

... However, I have read something (here?) pointing out the connection WHY low brain iron could cause RLS, which is not mentioned in the IRLS paper. I think because of lower dopamin production or something? Could someone please point me towards sources? :) I'm asking because I just learned that all...
by stjohnh
Sun May 19, 2019 8:42 pm
Forum: Just Joined?
Topic: Travel
Replies: 6
Views: 77

Re: Travel

Hi again, Most of us with more than mild RLS have travel problems, just as you mentioned, cars and planes are problems, expecially longer trips in the late afternoon. Travel in the morning Be the driver if by car (better than passenger) Walk around frequently Hang out with the flight attendents in t...
by stjohnh
Sun May 19, 2019 3:15 am
Forum: Augmentation
Topic: augmentation with lyrica?
Replies: 4
Views: 98

Re: augmentation with lyrica?

Hi James, Augmentation occurs often with dopamine agonists (Requip, pramipexole, Nupro). It occurs very frequently with Sinemet. It occurs rarely with Tramadol. Doesn't happen with Lyrica. Sounds like your RLS is just getting worse. Have you had your iron (ferritin) level checked? What is the number...
by stjohnh
Sat May 18, 2019 1:02 pm
Forum: General Topics: RLS/WED
Topic: Very Tired
Replies: 87
Views: 1044

Re: Very Tired

Thanks for reminding me to check. I usually do with new prescriptions. We usually go to either Safeway or Walmart. The last time I filled it, it was Walmart. At that time my insurance required it be filled there. I just checked and Safeway is cheaper now. If I get it filled again, I will switch. Yo...
by stjohnh
Sat May 18, 2019 1:15 am
Forum: General Topics: RLS/WED
Topic: Very Tired
Replies: 87
Views: 1044

Re: Very Tired

... The generic mirapex is what I have and it costs quite a bit... Generic Mirapex should be cheap. I don't take it now, but GoodRX says it is $12 at the local Safeway, $13 at Costco, for 90 tablets, 0.125mg each. (But also says same amount is $81.00 at CVS and $91.00 at Walgreens. It is shameful t...

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