Restless Legs Syndrome (RLS) Discussion Board

I’ve experienced RLS since I was about 9 years old although I can’t say I knew it was a thing - I thought jet was just a strange quirk or my personality. .... Have I missed anything? Anyone have any ideas I could try or a doctor they could recommend ?! Thanks for listening, Jr Welcome Jr to the RLS...

I took Lipitor briefly about 10 years ago. Didn't make RLS worse, but caused MARKED increase in night leg cramps. Extremely painful. Stopped the drug after a few days.

Hello, I've just joined the group because I'm planning to do research for my husband who has horrid RLS. I hate to see such a wonderful man suffer so, and his RLS just keeps getting worse. Welcome walkerwear. You came to the right place. I don't know about Mayo, but you didn't mention IV Iron treat...

... @stjohn - do you worry about the long term side effects of repeated IV iron?... Well, I believe (but am not sure) that it would take many IV Iron infusions to cause organ damage. Hemochromatosis is the most common manifestation of iron induced organ damage, and those people almost always have a...

Icantsleep wrote:Experiencing EXTREME rls since bedtime 3 hours ago.
...
Taken a bit over a gram of kratom
...

I cant wait until I can take more of something

Gotta figure out the rls part
Probably take more codeine
Yup just took 15mg (wish I knew I could take more)

1g kratom is still a small dose.

So ... a bit of an update The whole addiction/severe withdrawal (and even extreme numbness) all seemed to be attributed to the ER/XR variety of tramadol ... I am going to skip my evening dose and rely on THC until my usual 50mg bedtime dose ... then if I have a problem overnight into the morning, I...

Folks, I'm very very interested in this discussion about ferritin levels. I'm confused though about the talk of iron "infusions" vs simply taking iron oral supplements. Why are folks having to do these infusions? ... Ferritin is a test that is used by doctors to determine the iron status ...

... I "suggested" to my neuro to email one of the authors and he did! He emailed Dr Richard Allen who reverted very quickly apparently - in a nutshell, in whatever email correspondence they had, my neuro is now convinced that he should have given me 1000 mg (he clarified the guidelines.. ...

I just posted my IV iron injection additional effects in the Injectafer thread. Click here if you want to see them.
viewtopic.php?f=4&t=10227&p=100359#p100359

I haven't had anything but good results from my IV Iron. I am now at 3 months after my second set. I have continued to have improvements, after the resolution of urge to move, since then. Some related to RLS, some not at all. I suspect the genes causing BID (Brain Iron Deficiency) affect iron metabo...

Hi. I started taking Ropinirole in January of 2015 after it was prescribed to me after I took a sleep study. A Dr. Goza out of Little Rock, Ar. prescribed it. I was taking 2 mg and after my RLS became worse and more frequent, I went to a neurologist and he tried to wean me off of it, but I still ta...

Iron 145 TIBC 273 Iron sat 50 Ferritin 149 The updated guidance sent in the first message above recommended IV iron only if ferritin <100,... If I was sure I had RLS it might be worth trying anyway, but I'm not even sure of that so I doubt a Dr would go for it. Yup, you don't qualify under the guid...

RLSLES wrote:Thanks again for all the responses....

FYI, my iron and ferritin results came back normal to high so not something that would trigger either oral or IV iron treatment.

What were the actual numbers? "normal" to "high" still may mean you should get iron treatment.

A few months ago my neurologist increased my Gabapentin from 600 mg to 1100 mg daily. At the same time I had just finished five injections of iron sucrose. Since then, I have been having problems with insomnia on top of being up with RLS. It is not uncommon for me to be awake until 3 am or 4 am. .....

Yay!!