Restless Legs Syndrome (RLS) Discussion Board

fuz_mind wrote:...
im apparently the first person to ever receive iv iron for rls......and the sleep specialist in my country ...

i give up...

Any possibility of going to another country to get treated?

My occasional jerks didn't seem to change with pramipexole.

Yes, you can increase the dose. Main side effect is constipation. You shouldn't feel "high" with the usual doses. When I was taking it, I only felt a mild relaxing effect. I wouldn't go above 4 grams (about 12 capsules 00). Are you using kratom alone, or in combination with other RLS treat...

badnights wrote:...

I think that's what happened to you - your sleeping meds might be too strong relative to how well your WED/RLS symptoms are being treated.

That's what I think too.

Sending a copy of an article to a doctor is not the best way to get the doctor's attention. Much better for you to take a copy of the article when you go for an appointment, with the section of the algorithm on repeat IV iron highlighted. That is the last grey box on page 39. Point out that the algo...

Wow, I didn't realize mercury testing was so complicated.

Interesting story and I'm glad you got off the PPIs. I did have mercury exposure in my teens, but have never had my level checked. I may ask my doctor to do so next visit.

After a week with horrible symptoms, I broke down and took 900 mg of gabapentin. Is anyone on that dose or higher? I’ve had RLS for 20 years and have gone through all the typical meds. I’ve augmented on all of them . Two nights ago it also affected my arms so I was desperate. First, to answer your ...

Fuz, see my comment in the "rate of ferritin decline thread." http://bb.rls.org/viewtopic.php?f=20&t=9913&p=99112#p99112

back to square 1 with symptoms flaring ferritin down to 114; iron saturation 20% same conversation with my neuro about my ferritin >100 even though i pointed out that I couldnt have predicted my blood test results no Iv iron again; ropinirole is at the highest of 1.5mg dose i give up on iron treatm...

... Current thinking is that ALL RLS patients, with the exception of chronic renal failure patients on dialysis, have BID. Can we be sure? There are a few cases of "miracle healings" that don't fit the profile of usual RLS patients very well - it could be that there is another small subgr...

... Personally I find it very convincing that the majority of RLS patients suffers from BID. Of course, the interesting question is "why", and if there is a uniform mechanism or if there can be many different reasons leading to the same symptoms. And another question is whether there are ...

You do not need to stop the oral iron before IV iron is given.

I don't know. I do know that weight gain does NOT stop it. LOL.

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