Restless Legs Syndrome (RLS) Discussion Board

I noticed from one of your prior posts that you are being treated by Dr. Rye. What does he say about the Sinemet? I also assume he has discussed IV Iron with you. IV Iron was elevated to first line therapy in the recommendation paper published last year by the International Restless Legs Study group...

Kratom mostly functions like a mild opioid. In that way it is unlikely to help much for a person already on methadone. That said, the ground Kratom Leaf has many psychoactive compounds and it is conceivable that it could help somebody with restless leg syndrome already on methadone get sleep. My per...

paigey118, You certainly have a complex set of problems, and as Steve mentioned, the low ferritin and Cymbalta are problems that should be addressed. The way you wrote your summary seems to indicate that you take the Cymbalta for the diabetic neuropathy. Is that why you take it or is it for depressi...

Well, I am getting the second, even though I felt badly the day after. Shingles is very common and very nasty. I too think it is worth the day of feeling badly.

I am waiting for a vaccine - Shingrix - to be delivered to the doctor's office. Ann, Be sure you don't have plans for the day after your Shingrix shot. They have a VERY high rate of flu-like symptoms (headache, tiredness, muscle aches and fever). Shingrix is actually 2 injections months apart. Ther...

I had shoulder surgery a couple of years ago, before the hysteria of opiods kicked in. They gave me plenty of oxycodone so I didn't have a problem. Of course the shoulder problem didn't keep me from walking, but my RLS was wonderfully controlled for a few weeks. I now take pramipexole (Mirapex) 0.06...

Hi, and this is a GREAT place to vent. I'm sorry you are having troubles, but you should know that you are on what is now considered an excessive dose of Requip (even though the FDA considers it acceptable). There is a good chance you are augmenting. That is a problem that occurs in many that take R...

I am really sorry you are having to go through this.

Yup. The manufacturer does have a savings program. But it has to be used only for treatment of iron deficiency anemia which I definitely do not have.

I've just started using GoodRx. The dipyridamole I take for RLS was $80 for 90 tablets using my "insurance" plan, which didn't cover it at all, even though generic, because RLS is not an approved indication. GoodRX has it for $32, same Costco pharmacy. Unfortunately it looks like it won't ...

Hi Xwelcome, This is the place to come for helpful advice, lots of smart people and lots of experience with different meds. Steve sounds about right to me, the first question to answer is if you are augmenting. See your doctor. Also if you have not had your ferritin checked, be sure to ask for that ...

A friend of mine got his son on SSDI, but as others have said, long and difficult process. After it was finally approved, my friend said the thing that helped the most was getting an attorney that handles these cases frequently.

EeFall, First, it sounds like you are depressed. If you are contemplating suicide, you need to talk to your doctor today. If you are depressed, but not suicidal, you still need to talk to your doctor. On the meds: I don't recall if you have had an IV Iron infusion. If not, you should. The Internatio...

Hi James, Yup, it’s time to try a dopamine agonist like pramipexole. Be sure and start at the lowest dose possible and don’t increase the dose unless absolutely necessary. Echo: find out the ferritin number. Should be a minimum of 75. Also, intravenous iron therapy is coming up as an important treat...

Hama90, welcome do the RLS community. There is lots of good information here and lots of folks that know lots about RLS. It’s not clear to me from your post that you have RLS. What time do the symptoms usually start? Does the feeling go away immediately when you get up and walk around? Do they come ...