Search found 855 matches

by stjohnh
Thu Jul 18, 2019 9:32 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Rate of Ferritin Decline
Replies: 36
Views: 5816

Re: Rate of Ferritin Decline

fuz_mind wrote:...
im apparently the first person to ever receive iv iron for rls......and the sleep specialist in my country ...

i give up...


Any possibility of going to another country to get treated?
by stjohnh
Thu Jul 18, 2019 9:28 pm
Forum: Prescription Medications
Topic: myoclonus
Replies: 5
Views: 36

Re: myoclonus

My occasional jerks didn't seem to change with pramipexole.
by stjohnh
Thu Jul 18, 2019 9:14 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: New Kratom User - when to take
Replies: 18
Views: 317

Re: New Kratom User - when to take

Yes, you can increase the dose. Main side effect is constipation. You shouldn't feel "high" with the usual doses. When I was taking it, I only felt a mild relaxing effect. I wouldn't go above 4 grams (about 12 capsules 00). Are you using kratom alone, or in combination with other RLS treat...
by stjohnh
Thu Jul 18, 2019 3:26 pm
Forum: General Topics: RLS/WED
Topic: scary night time experience
Replies: 5
Views: 106

Re: scary night time experience

badnights wrote:...

I think that's what happened to you - your sleeping meds might be too strong relative to how well your WED/RLS symptoms are being treated.


That's what I think too.
by stjohnh
Thu Jul 18, 2019 3:22 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Rate of Ferritin Decline
Replies: 36
Views: 5816

Re: Rate of Ferritin Decline

Sending a copy of an article to a doctor is not the best way to get the doctor's attention. Much better for you to take a copy of the article when you go for an appointment, with the section of the algorithm on repeat IV iron highlighted. That is the last grey box on page 39. Point out that the algo...
by stjohnh
Wed Jul 17, 2019 6:53 pm
Forum: Prescription Medications
Topic: Getting rid of PPIs (acid blockers)
Replies: 3
Views: 38

Re: Getting rid of PPIs (acid blockers)

Wow, I didn't realize mercury testing was so complicated.
by stjohnh
Wed Jul 17, 2019 2:22 pm
Forum: Prescription Medications
Topic: Getting rid of PPIs (acid blockers)
Replies: 3
Views: 38

Re: Getting rid of PPIs (acid blockers)

Interesting story and I'm glad you got off the PPIs. I did have mercury exposure in my teens, but have never had my level checked. I may ask my doctor to do so next visit.
by stjohnh
Wed Jul 17, 2019 2:15 pm
Forum: General Topics: RLS/WED
Topic: Can some one help me please?
Replies: 16
Views: 157

Re: Can some one help me please?

After a week with horrible symptoms, I broke down and took 900 mg of gabapentin. Is anyone on that dose or higher? I’ve had RLS for 20 years and have gone through all the typical meds. I’ve augmented on all of them . Two nights ago it also affected my arms so I was desperate. First, to answer your ...
by stjohnh
Tue Jul 16, 2019 7:57 pm
Forum: General Topics: RLS/WED
Topic: BID theory and ferritin levels
Replies: 7
Views: 117

Re: BID theory and ferritin levels

Fuz, see my comment in the "rate of ferritin decline thread." http://bb.rls.org/viewtopic.php?f=20&t=9913&p=99112#p99112
by stjohnh
Tue Jul 16, 2019 7:53 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Rate of Ferritin Decline
Replies: 36
Views: 5816

Re: Rate of Ferritin Decline

back to square 1 with symptoms flaring ferritin down to 114; iron saturation 20% same conversation with my neuro about my ferritin >100 even though i pointed out that I couldnt have predicted my blood test results no Iv iron again; ropinirole is at the highest of 1.5mg dose i give up on iron treatm...
by stjohnh
Mon Jul 15, 2019 9:14 pm
Forum: General Topics: RLS/WED
Topic: Published Research - General Sleep and RLS (WED)
Replies: 470
Views: 111946

Re: Published Research - General Sleep and RLS (WED)

... Current thinking is that ALL RLS patients, with the exception of chronic renal failure patients on dialysis, have BID. Can we be sure? There are a few cases of "miracle healings" that don't fit the profile of usual RLS patients very well - it could be that there is another small subgr...
by stjohnh
Mon Jul 15, 2019 1:16 pm
Forum: General Topics: RLS/WED
Topic: Published Research - General Sleep and RLS (WED)
Replies: 470
Views: 111946

Re: Published Research - General Sleep and RLS (WED)

... Personally I find it very convincing that the majority of RLS patients suffers from BID. Of course, the interesting question is "why", and if there is a uniform mechanism or if there can be many different reasons leading to the same symptoms. And another question is whether there are ...
by stjohnh
Mon Jul 15, 2019 1:00 pm
Forum: Prescription Medications
Topic: Iron Dextran IV
Replies: 2
Views: 45

Re: Iron Dextran IV

You do not need to stop the oral iron before IV iron is given.
by stjohnh
Mon Jul 15, 2019 12:48 pm
Forum: Physical Treatments
Topic: Weight loss
Replies: 5
Views: 57

Re: Weight loss

I don't know. I do know that weight gain does NOT stop it. LOL.
by stjohnh
Mon Jul 15, 2019 1:32 am
Forum: Physical Treatments
Topic: RLS or Inelastic Tendon Syndrome?
Replies: 8
Views: 99

Re: RLS or Inelastic Tendon Syndrome?

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