Search found 576 matches

by stjohnh
Thu Nov 15, 2018 3:33 pm
Forum: Augmentation
Topic: DA’s - If Augmentation from one, from all?
Replies: 2
Views: 105

Re: DA’s - If Augmentation from one, from all?

I noticed from one of your prior posts that you are being treated by Dr. Rye. What does he say about the Sinemet? I also assume he has discussed IV Iron with you. IV Iron was elevated to first line therapy in the recommendation paper published last year by the International Restless Legs Study group...
by stjohnh
Sat Nov 10, 2018 8:53 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Kratom and insomnia
Replies: 7
Views: 116

Re: Kratom and insomnia

Kratom mostly functions like a mild opioid. In that way it is unlikely to help much for a person already on methadone. That said, the ground Kratom Leaf has many psychoactive compounds and it is conceivable that it could help somebody with restless leg syndrome already on methadone get sleep. My per...
by stjohnh
Mon Nov 05, 2018 6:40 pm
Forum: Just Joined?
Topic: New member :)
Replies: 11
Views: 454

Re: New member :)

paigey118, You certainly have a complex set of problems, and as Steve mentioned, the low ferritin and Cymbalta are problems that should be addressed. The way you wrote your summary seems to indicate that you take the Cymbalta for the diabetic neuropathy. Is that why you take it or is it for depressi...
by stjohnh
Mon Nov 05, 2018 2:34 pm
Forum: General Topics: RLS/WED
Topic: Social Security - US
Replies: 36
Views: 1919

Re: Social Security - US

Well, I am getting the second, even though I felt badly the day after. Shingles is very common and very nasty. I too think it is worth the day of feeling badly.
by stjohnh
Sat Nov 03, 2018 11:28 pm
Forum: General Topics: RLS/WED
Topic: Social Security - US
Replies: 36
Views: 1919

Re: Social Security - US

I am waiting for a vaccine - Shingrix - to be delivered to the doctor's office. Ann, Be sure you don't have plans for the day after your Shingrix shot. They have a VERY high rate of flu-like symptoms (headache, tiredness, muscle aches and fever). Shingrix is actually 2 injections months apart. Ther...
by stjohnh
Sun Oct 28, 2018 2:54 pm
Forum: General Topics: RLS/WED
Topic: total knee replacement
Replies: 5
Views: 186

Re: total knee replacement

I had shoulder surgery a couple of years ago, before the hysteria of opiods kicked in. They gave me plenty of oxycodone so I didn't have a problem. Of course the shoulder problem didn't keep me from walking, but my RLS was wonderfully controlled for a few weeks. I now take pramipexole (Mirapex) 0.06...
by stjohnh
Wed Oct 24, 2018 1:33 pm
Forum: General Topics: RLS/WED
Topic: Just Need to Vent
Replies: 5
Views: 203

Re: Just Need to Vent

Hi, and this is a GREAT place to vent. I'm sorry you are having troubles, but you should know that you are on what is now considered an excessive dose of Requip (even though the FDA considers it acceptable). There is a good chance you are augmenting. That is a problem that occurs in many that take R...
by stjohnh
Mon Oct 22, 2018 5:21 pm
Forum: Prescription Medications
Topic: My pharma diary
Replies: 147
Views: 20580

Re: My pharma diary

I am really sorry you are having to go through this.
by stjohnh
Sun Oct 21, 2018 11:36 pm
Forum: Prescription Medications
Topic: Prescription Savings $$$
Replies: 5
Views: 227

Re: Prescription Savings $$$

Yup. The manufacturer does have a savings program. But it has to be used only for treatment of iron deficiency anemia which I definitely do not have.
by stjohnh
Sun Oct 21, 2018 10:44 pm
Forum: Prescription Medications
Topic: Prescription Savings $$$
Replies: 5
Views: 227

Re: Prescription Savings $$$

I've just started using GoodRx. The dipyridamole I take for RLS was $80 for 90 tablets using my "insurance" plan, which didn't cover it at all, even though generic, because RLS is not an approved indication. GoodRX has it for $32, same Costco pharmacy. Unfortunately it looks like it won't ...
by stjohnh
Tue Oct 16, 2018 8:33 pm
Forum: General Topics: RLS/WED
Topic: Help Please
Replies: 15
Views: 1331

Re: Help Please

Hi Xwelcome, This is the place to come for helpful advice, lots of smart people and lots of experience with different meds. Steve sounds about right to me, the first question to answer is if you are augmenting. See your doctor. Also if you have not had your ferritin checked, be sure to ask for that ...
by stjohnh
Fri Oct 12, 2018 1:49 pm
Forum: General Topics: RLS/WED
Topic: Social Security - US
Replies: 36
Views: 1919

Re: Social Security - US

A friend of mine got his son on SSDI, but as others have said, long and difficult process. After it was finally approved, my friend said the thing that helped the most was getting an attorney that handles these cases frequently.
by stjohnh
Tue Oct 09, 2018 7:01 pm
Forum: Help for Relationships
Topic: For Anyone Who Thinks RLS is a Joke
Replies: 15
Views: 1075

Re: For Anyone Who Thinks RLS is a Joke

EeFall, First, it sounds like you are depressed. If you are contemplating suicide, you need to talk to your doctor today. If you are depressed, but not suicidal, you still need to talk to your doctor. On the meds: I don't recall if you have had an IV Iron infusion. If not, you should. The Internatio...
by stjohnh
Tue Oct 09, 2018 6:01 pm
Forum: Just Joined?
Topic: Lifetime RLS/WED here to say hi!
Replies: 14
Views: 518

Re: Lifetime RLS/WED here to say hi!

Hi James, Yup, it’s time to try a dopamine agonist like pramipexole. Be sure and start at the lowest dose possible and don’t increase the dose unless absolutely necessary. Echo: find out the ferritin number. Should be a minimum of 75. Also, intravenous iron therapy is coming up as an important treat...
by stjohnh
Mon Oct 01, 2018 1:23 pm
Forum: Just Joined?
Topic: Canceled flight and feeling overhelmed
Replies: 4
Views: 352

Re: Canceled flight and feeling overhelmed

Hama90, welcome do the RLS community. There is lots of good information here and lots of folks that know lots about RLS. It’s not clear to me from your post that you have RLS. What time do the symptoms usually start? Does the feeling go away immediately when you get up and walk around? Do they come ...

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