Search found 918 matches

by stjohnh
Fri Sep 20, 2019 4:39 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Increasing REM sleep
Replies: 15
Views: 130

Re: Increasing REM sleep

Ahh, thanks for the correction Ann.
by stjohnh
Fri Sep 20, 2019 4:09 pm
Forum: Prescription Medications
Topic: Question (Pramipexole/Mirapex)
Replies: 4
Views: 53

Re: Question (Pramipexole/Mirapex)

Leo, good question. The half-life of a drug is the time it takes for the concentration in the blood to decrease by 50%. It is NOT 1/2 of the time that the drug has an effect. Dopamine agonists like pramipexole, stimulate the dopamine receptors, and they become less responsive over time, and indeed i...
by stjohnh
Fri Sep 20, 2019 4:03 pm
Forum: Prescription Medications
Topic: Side Effect? A warm, dull, heavy feeling in calves at night
Replies: 3
Views: 37

Re: Side Effect? A warm, dull, heavy feeling in calves at night

Been on ropinirole for 18 months (1 mg), which has nearly eliminated the “restless” feeling in my legs. But in the past month or so, when I wake up in the night or when i rise in the morning, I often but not always have a different feeling in my calves. ... I'm not sure what this feeling is, but yo...
by stjohnh
Fri Sep 20, 2019 3:50 pm
Forum: Prescription Medications
Topic: Burning in arms and legs in early morning
Replies: 9
Views: 52

Re: Burning in arms and legs in early morning

I have been through many medications and have been on methadone for 2.5 years. I am now having burning and aching in my upper arms and thighs, starting around 3am...Laura Laura, I don't have an answer to the question of the aching, but it does look like, from you old posts, that you have not had IV...
by stjohnh
Thu Sep 19, 2019 10:18 pm
Forum: General Topics: RLS/WED
Topic: Esophageal Spasm and RLS
Replies: 13
Views: 243

Re: Esophageal Spasm and RLS

Well, I am even more convinced that my esophageal spasm pains in the center of my chest are related to iron levels. I had my first set of IV Iron infusions in Dec 2018. About 2 months later I noticed pains were much less frequent, less severe, and resolved more quickly than previously. Additionally,...
by stjohnh
Thu Sep 19, 2019 10:07 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Increasing REM sleep
Replies: 15
Views: 130

Re: Increasing REM sleep

Rustsmith wrote:As an update to my post on Sept 15 that had to do with REM-Sleep Behavior Disorder (RBD),...


Steve, I hadn't heard of RBD, but reading the Wikipedia article on it, sounds pretty bad. I hope you don't have it.

Blessings,
Holland
by stjohnh
Thu Sep 19, 2019 10:05 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Increasing REM sleep
Replies: 15
Views: 130

Re: Increasing REM sleep

For most people with RLS the primary sleep phase reduced is deep sleep. Unfortunately, this is also the sleep phase that is hardest to accurately measure outside of a sleep study with eeg monitoring. Qyx: why do you say that REM sleep is not that important? Look at what I wrote, I didn't say anythi...
by stjohnh
Mon Sep 16, 2019 3:53 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Increasing REM sleep
Replies: 15
Views: 130

Re: Increasing REM sleep

For most people with RLS the primary sleep phase reduced is deep sleep. Unfortunately, this is also the sleep phase that is hardest to accurately measure outside of a sleep study with eeg monitoring.
by stjohnh
Sun Sep 15, 2019 10:28 pm
Forum: Prescription Medications
Topic: I'm finally getting an infusion
Replies: 15
Views: 117

Re: I'm finally getting an infusion

Beth, having your blood tests done before coming to the US would speed things along. Additionally you could send the test results to the hematologist before you came to be sure the hematologist wouldn't balk at whatever the test results showed. I believe most hematologists don't keep Injectafer, and...
by stjohnh
Sun Sep 15, 2019 10:09 pm
Forum: Prescription Medications
Topic: Clarify IV Iron recommendation please
Replies: 3
Views: 27

Re: Clarify IV Iron recommendation please

Unfortunately, the standard test for blood iron, the ferritin test, is a really poor test for several reasons. One of which you have noted. The result of a ferritin test will go up if a person has more iron in their blood (which does not correlate well with brain iron). The normal ferritin level var...
by stjohnh
Sun Sep 15, 2019 2:22 am
Forum: Just Joined?
Topic: New to RLS forum
Replies: 14
Views: 180

Re: New to RLS forum

Hello Slanecd, Welcome to the RLS community. This is the place to find comfort, advice, and knowledge. People here get it when you want to complain about how RLS is ruining your life. RLS is caused by BID (Brain Iron Deficiency). Many people with RLS can have their symptoms markedly reduced or even ...
by stjohnh
Sat Sep 14, 2019 9:25 pm
Forum: Physical Treatments
Topic: Any luck with a sleep study?
Replies: 23
Views: 1098

Re: Any luck with a sleep study?

Welcome MonkNYC to the RLS community. It sounds like you don't have RLS but only PLMS (periodic leg movements of sleep). It is closely related to RLS and mostly the treatment is the same. RLS is caused by BID (Brain Iron Deficiency). Many people with RLS can have their symptoms markedly reduced or e...
by stjohnh
Sat Sep 14, 2019 3:06 pm
Forum: Prescription Medications
Topic: I'm finally getting an infusion
Replies: 15
Views: 117

Re: I'm finally getting an infusion

[list=][/list] Thanks, guys. My thoughts on the expense are that hopefully my doctors in Canada will see the benefit, see that Dr B will confidently prescribe the iron, and this will cause them to decide to prescribe it themselves. If they do, I have at least a chance that my insurance will pay a po...
by stjohnh
Thu Sep 12, 2019 8:45 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 143
Views: 3947

Re: Attempting to get off Ropinirole - again

She then advised me that I needed to be on the highest dosage of Ropinirole before anyone could prescribe Opiates? I had been on the highest for a long long time and I am now down to 4 or 5 per day In any event I am shocked This is all becoming even more frusterating :( I am not in the market for i...
by stjohnh
Thu Sep 12, 2019 8:34 pm
Forum: Prescription Medications
Topic: I'm finally getting an infusion
Replies: 15
Views: 117

Re: I'm finally getting an infusion

Yay Beth!!!

My Injectafer bill was $2250 EACH for the two infusions. Happily I only had to pay $137 out of pocket (hallelujah).

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