Restless Legs Syndrome (RLS) Discussion Board

Thanks to both of you, that's very helpful. I might ask my doctor to do a serum iron panel test. Maybe I'm one of the lucky ones who can benefit from some kind of iron supplementation. If you have RLS, you almost certainly have low brain iron (BID, Brain Iron Deficiency). The blood test for iron is...

I don't think iron decifiency fully explains all cases, or wouldn't red meat / iron supplements be a reliable cure? ... Would you mind explaining a bit why external dopamine sources (such as heroine or prescription drugs) can give rise to RLS, but an internal source can't? Iron supplements and red ...

My wife has restless legs caused by anti-psychotics. .... Her Olanzapine was then tapered slowly to 10mg & the Clonazepam was tapered to 1.5 mg per day. Her problems are totally gone now. ... Tom, thanks for the follow-up. It is great to hear your wife's suffering has improved. Have the medicat...

jej345: Welcome to the RLS community, you will find lots of helful, compassionate infromation from folks who really understand how dreadful this disease can be. I think this is the most unusual first post I have seen from a new member. Congratulations. :D ... Why is orgasm never discussed as a treat...

Well, the problem with gabapentin is that different people metabolize gabapentin much faster or slower than others. Most drugs have a fairly predictable metabolism rate. Not so with gabapentin. I am very sensitive to it. 150 mg for me is a tolerable dose, 300 mg turns me into a zombie. There are fol...

I'm back again as well, due to augmentation. Last time i reduced my pramipaxle to .5 mg, after an agonizing period of tapering. Each drop in dose resulted in horrible symptoms. Finally i gave up and stayed in my new low dose. Lately I've been having symptom breakthrough. Then, two nights ago, i ina...

I haven't had gabapentin withdrawal symptoms (that I know of).

Paulande, Welcome to the RLS community. You will find lots of helpful, empathetic people here who truly understand how life-altering this miserable disease can be. I'm a 71 yo guy who first had RLS symptoms in my 30s and started needing medication in my 60s. I, too have an understanding doc who will...

I am sensitive to gabapentin, but it clearly helped me sleep. I took 100mg 90 min before bed (along w other meds for RLS) and another 50 mg when I got up to pee about 2-3 hrs after bedtime. Worked better than taking full dose before bed.

Stainless wrote:I started Lyrica four weeks ago ...

This has been the best four weeks for my rls in decades. No daytime rls, only a little an hour before bedtime and fairly minimal side effects...

Yay!!

Brynmr, I hope this isn't a trend as well. I found that if I miss the usual timing of my meds, that it does indeed take much more to control the worsening of RLS symptoms than if I get my meds at the usual time.

I did have my ferritin tested I cannot find the sheet which explains the outcome However she did say it was Good Marie, RLS is due to low brain iron (Brain Iron Deficiency, BID). There is a protective barrier between the brain and the blood called the Blood Brain Barrier. It's purpose is to keep ba...

Marie, Ropinirole at 2mg a day is a very high dose. Current recommendations are that for RLS the max is only 0.5mg. Also, don't take the Levodopa/Carbidopa, bad news in this situation. You say you are doing ok, but that is hard to believe on only 2.5 hours sleep a night. While it is true that some p...

Well, I had a spinal cyst pressing on one of my spinal nerves causing awful leg pain. I was on opioids for several months while a series of doctors misdiagnosed my condition. The opioids worked well on my RLS (not so well on my leg pain), so my RLS did not bother me during that time. As part of atte...

I'm so sorry Deb.