Search found 317 matches

by stjohnh
Mon Sep 18, 2017 1:59 pm
Forum: Prescription Medications
Topic: lorazepam and RLS
Replies: 9
Views: 48

Re: lorazepam and RLS

Peanut, Clonazepam is the only benzodiazepine that users here on the RLS Forum say seems to help RLS. Unfortunately it is fairly addictive and quite difficult to get off of and many people don't want to use it because of that. Clonazepam is in a special class even though it is a benzodiazepine becau...
by stjohnh
Tue Sep 12, 2017 1:43 pm
Forum: Augmentation
Topic: Getting off of Requip due to augmentation
Replies: 17
Views: 150

Re: Getting off of Requip due to augmentation

Don't completely rule out using a low dose of a dopamine Agonist in the future. A number of folks here have found they are able to get by with lower dose opioid along with low-dose dopamine Agonist, reducing the dose of opioid and opiate side effects in the process.
by stjohnh
Mon Sep 04, 2017 2:13 pm
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 232
Views: 10189

Re: What Severe RLS is Like

I spent several months about a year ago investigating different ways of monitoring sleep and coordinating the results of various sleep monitoring devices with how I felt the next day. I also I checked into sleep physiology a fair amount. I found that while I got a reasonable number of hours of sleep...
by stjohnh
Sat Sep 02, 2017 5:07 pm
Forum: Prescription Medications
Topic: drug holiday
Replies: 9
Views: 171

Re: drug holiday

Use kratom (or an opioid if you have it) with cannabis and gabapentin (or Lyrica). If you mean no drugs at all, be prepared for a week you will remember for the rest of your life, no sleep at all for a day or 2, then an hour or so per night, gradually improving.
by stjohnh
Fri Sep 01, 2017 2:37 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Cannibis Dosage and Timing
Replies: 10
Views: 189

Re: Cannibis Dosage and Timing

My usage and expierence wiith MM is almost identical to Steve's, with the exception of the depression problem at higher doses. I've never used more than 20mg THC per day. My experience with marijuana dispensaries is that the "use high CBD for sleep" recommendation is nearly universal. This...
by stjohnh
Thu Aug 24, 2017 4:56 pm
Forum: Just Joined?
Topic: Introduction
Replies: 8
Views: 154

Re: Introduction

Hi Karine, welcome to the RLS community. You will find lots of help and support here. I'll very briefly touch on the high points of what I would suggest and I'm not sure how much is possible in Europe, but this is what I'd recommend in the United States. First I would make sure to get my ferritin ch...
by stjohnh
Wed Aug 23, 2017 1:53 pm
Forum: Just Joined?
Topic: Hello! I'm new here!
Replies: 3
Views: 141

Re: Hello! I'm new here!

I keep asking God for healing but I have a feeling that the healing will have to take place in a less than miraculous way. SuzeLeslie, Welcome to the RLS Community. You will find lots of help and support here. I would take seriously Steve's comments, he is very well informed. Your comment about God...
by stjohnh
Sat Aug 19, 2017 2:57 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Rate of Ferritin Decline
Replies: 20
Views: 1181

Re: Rate of Ferritin Decline

Well, for most people getting their iron level up with oral iron is at least a time-consuming and sometimes difficult due to stomach problems. Most people on these boards that want to have an IV iron Infusion have difficulty persuading their doctor to do it. Seeing as how your doctor seems agreeable...
by stjohnh
Fri Aug 18, 2017 3:44 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Rate of Ferritin Decline
Replies: 20
Views: 1181

Re: Rate of Ferritin Decline

Hmmm... by usual measures your iron saturation is low. This indicates that while your ferritin ordinarily would be considered okay, it is likely artificially elevated. Likely that means that your ferritin is definitely on the low side for somebody with RLS. If you haven't had any iron infusions, per...
by stjohnh
Wed Aug 16, 2017 2:24 pm
Forum: Augmentation
Topic: What To Do?
Replies: 29
Views: 1350

Re: What To Do?

timphillips, exactly what are you taking now and what symptoms do you have now? How long does it take to fall asleep? How is sleep after you fall asleep? How many hours? How much urge to move (jumpy legs) do you have?
by stjohnh
Tue Aug 15, 2017 1:51 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Krantom newbie questions
Replies: 2
Views: 179

Re: Krantom newbie questions

The kind of Kratom I use and most commonly mentioned on this board is red vein Borneo. However, there are people that use other strains and my personal experience trying a little bit of other strains is that they all work about the same for me. It is effective no matter what time a person takes it. ...
by stjohnh
Tue Aug 15, 2017 1:33 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Sourcing kratom- organic if possible / how to dose
Replies: 14
Views: 1163

Re: Sourcing kratom- organic if possible / how to dose

For most people kratom lasts only a few hours. I take 700mg at 7:30pm (along with mirapex, Gabapentin, and THC), go to sleep about 9-9:30, then 350mg at 11:30pm. When I used kratom alone I took about 2 grams, repeated about every 3-4 hours. It works somewhat like opiates and can substitute for opiat...
by stjohnh
Sat Aug 12, 2017 2:19 pm
Forum: Just Joined?
Topic: RLS only in feet?
Replies: 13
Views: 334

Re: RLS only in feet?

The ferritin is the primary test. The other 4 are used only to rule out a falsely elevated ferritin. In other words, if your ferritin is already low, the other tests don't add anything at all. If your ferritin is over a hundred or so, and you have some other problem causing an acute phase reaction, ...
by stjohnh
Mon Aug 07, 2017 6:09 pm
Forum: Prescription Medications
Topic: RLS symptoms and Opioid withdrawal
Replies: 16
Views: 454

Re: RLS symptoms and Opioid withdrawal

Sounds like reasonable reasons for getting off the lortab. And yes, marijuana does help lots of folks with sleeping.
by stjohnh
Mon Aug 07, 2017 1:00 pm
Forum: Prescription Medications
Topic: RLS symptoms and Opioid withdrawal
Replies: 16
Views: 454

Re: RLS symptoms and Opioid withdrawal

Hi everyone, I have been managing my RLS for many years with a standard 7.5-325 lortab. I am considering trying CBD marijuana as an alternative to the lortab. (pot is legal in my state) My concern now is that someone told me that opioid withdrawal includes symptoms like RLS. Even when I am a bit la...

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