Search found 526 matches

by stjohnh
Mon Jun 18, 2018 11:04 pm
Forum: Just Joined?
Topic: Hello from Schräg
Replies: 5
Views: 65

Re: Hello from Schräg

When I was withdrawing from mirapexin (a dopamine agonist like your neupro) my sleep consultant was adamant that I reduce gradually but like Holland says it did prolong the agony. Having said that some people have posted about dopamine agonist withdrawal syndrome which apparently can result from st...
by stjohnh
Sun Jun 17, 2018 3:09 pm
Forum: General Topics: RLS/WED
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 703
Views: 42292

Re: Riding the Big One (RLS 24/7, Hanging Ten)

I created this thread 4 years ago and I have reallly crashed and burned this time. ...It never gets better. Dang it I can never win, I feel so terrible. ... Kick me while I’m down son and and stab me in the heart, good lord this just isn’t fair at all. Not a happy Father’s Day ever again. EeFall, y...
by stjohnh
Sun Jun 17, 2018 3:01 pm
Forum: Prescription Medications
Topic: Gabapentin Side Effect
Replies: 7
Views: 521

Re: Gabapentin Side Effect

Veldon, some people are very sensitive to gabapentin and require much lower doses than usual. I take 100mg at 7:30pm and 50mg at 11. Any more and I feel like you do. It may be worthwhile to continue it at a much lower dose.
by stjohnh
Sun Jun 17, 2018 1:16 pm
Forum: Just Joined?
Topic: Hello from Schräg
Replies: 5
Views: 65

Re: Hello from Schräg

Brian, welcome to the RLS Foundation community. Sounds like you've already looked around on the board some and so you have probably found out that there are lots of folks that have had somewhat similar problems to yours, although I don't remember anyone with Huntington's disease. To answer your ques...
by stjohnh
Sat Jun 16, 2018 12:45 am
Forum: Prescription Medications
Topic: Desperate
Replies: 27
Views: 397

Re: Desperate

Yay !!
by stjohnh
Sat Jun 09, 2018 12:28 am
Forum: Prescription Medications
Topic: Methadone was working, now it's not
Replies: 5
Views: 94

Re: Methadone was working, now it's not

Your next day sleepiness may have several causes, but the simplest to deal with is due to gabapentin. If caused by that, just reducing the dose may help. It is an odd medicine in that the effective dose varies wildly from person to person. I take 100mg at 7:30pm and 50mg at 11. Anything higher and I...
by stjohnh
Sat Jun 09, 2018 12:12 am
Forum: Just Joined?
Topic: Hello from Kentucky
Replies: 8
Views: 140

Re: Hello from Kentucky

Hi SleepyJudy, welcome !!! It sounds like you have relatively mild RLS. This means that you may be a good candidate for gabapentin or its relatives, Lyrica or Horizant. They don't cause augmentation. Be sure to get your ferritin checked if you haven't already. The dopamine agonists are indeed used t...
by stjohnh
Wed May 30, 2018 7:01 pm
Forum: Prescription Medications
Topic: Has anyone used Lyrica for RLS
Replies: 7
Views: 221

Re: Has anyone used Lyrica for RLS

drFred wrote:... I also have RLS for the past year or so (or possibly neuropathy?)....


it sounds like it's not entirely clear that you have RLS. Certainly if you don't have RLS, that would explain why the medications that you have tried in the past have not worked. What are your symptoms that suggest RLS?
by stjohnh
Wed May 30, 2018 3:26 pm
Forum: General Topics: RLS/WED
Topic: Does altitude have anything to do with RLS?
Replies: 9
Views: 683

Re: Does altitude have anything to do with RLS?

Yes and yes. Countries where lots of people live at higher altitudes have higher prevalence of RLS.
by stjohnh
Mon May 28, 2018 6:05 pm
Forum: Prescription Medications
Topic: Is your DA causing augmentation?
Replies: 121
Views: 21780

Re: Is your DA causing augmentation?

Bronwen wrote:Financing an expensive med will be beyond me...


Bronwen, I had forgotten you were in South Africa. Prices of medications are frequently much different in other countries than in the United States. If Horizant turns out to be expensive, I'd switch to gabapentin as it is very inexpensive.
by stjohnh
Mon May 28, 2018 3:08 pm
Forum: Prescription Medications
Topic: Is your DA causing augmentation?
Replies: 121
Views: 21780

Re: Is your DA causing augmentation?

Bronwen, I think it is customary here to use the person's first name if they sign their posts with their first name. The username, the one in the upper left-hand corner, like Bronwen for you, is used if the person making the post doesn't indicate their real name. I personally like using people's rea...
by stjohnh
Sun May 27, 2018 6:29 pm
Forum: Prescription Medications
Topic: Is your DA causing augmentation?
Replies: 121
Views: 21780

Re: Is your DA causing augmentation?

Bronwen, Try 25mg gabapentin plus 5mg THC as edible marijuana at 8pm. Four hours later take 1/2 of those doses. If no better sleep, the next night take 50mg gabapentin + 10 mg THC for 8pm dose. Four hours later take 25/5. Use caution as the stoned feeling and sleepiness May impair your balance. Be s...
by stjohnh
Sun May 27, 2018 2:08 pm
Forum: Prescription Medications
Topic: Is your DA causing augmentation?
Replies: 121
Views: 21780

Re: Is your DA causing augmentation?

...Then I can devote my time to learning to sleep again. Few people seem to mention insomnia as a primary side-effect of pramipexole, although it is mentioned over and over in the package insert. RLS Insomnia + DA Insomnia = Misery Bronwen, unfortunately the insomnia problems that people with RLS h...
by stjohnh
Sun May 27, 2018 1:52 pm
Forum: Augmentation
Topic: Augmentation- Cold Turkey
Replies: 16
Views: 467

Re: Augmentation- Cold Turkey

I am on day 3 of tapering off of mirapex. I'm down to half a pill at night. Doctor started me on lyrica. Can't take opiods due to need for oxygen at night and opoid use could be a respiratory suppressant. Allergy to tramadol. This is rough, but I'm determined to get off. I'm concerned about taking ...

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