Restless Legs Syndrome (RLS) Discussion Board

First time. My second dose is tomorrow. I saw a RLS specialist in Denver, Dr. Duntley. He prescribed the iron infusion (I've taken oral iron for 4 months with no effect). I'm able to receive the infusions in Colorado Springs through an affiliated hospital. And incredibly my insurance is covering the...

Thank you Holland. There are mixed dosing messages indeed.

Any thoughts on this matter?

What is recommended dose for Injectafer iron infusions? Is it 2x500ml a week apart or 2x750ml a week apart? I've read both recommendation on this discussion board. Last night was my first infusion. The nurse saw the doctor's order for 500ml and questioned that dose, thinking it should be 750ml. She ...

I'm in the same situation as the OP, but having augmented on Neupro instead of requip. My infusion duo starts August 9th. I also currently take 600mg of gabapentin. When I start to wean off of my 6mg Neupro (perhaps 4 weeks after my 2nd infusion), should I increase my gabapentin concurrently? Michael

Yippee! I'm scheduled for two rounds of Injectafer iron infusions August 9 & 16. And apparently the infusions are covered through my medical insurance (I'll be checking this next week). Surprised and amazed. I now hope I'm in the 50% of the population that responds positively to the infusions.

Wow! I tried 5mg of THC edibles right before bedtime last night. Once I got past my leg jerking and fell asleep, I don't think I woke or even moved for 7 hours. Amazing. That never happens. So sweet!!!

Lack of exercise may be what's keeping me constipated from the iron, and why I'm not realizing it until 4 months after starting iron. I had hand and foot surgeries three weeks ago, and I'm non-weight bearing for seven weeks. Both hands are compromised as well as my left foot since I had thumb surger...

BTW - I take Feosol as my ferrous sulfate supplement. Are there oral iron supplements that do NOT cause constipation?

Michael

Now I seem to have a new problem - constipation. I've been on ferrous sulfate (325mg) for 4 months now. Could I just now be getting constipated because of it? Until now, I have very regular bowel movements. All I eat are fruits, vegetables, and lean meats. I drink plenty of water. I know opioids giv...

Thanks again Holland.

My new neurologist suggested my neck pain (stenosis and lots of degeneration, though cannot yet pinpoint the source of the pain) may contribute to the RLS - seems contradictory to what you're saying with common peripheral neuropathies.

Michael

Another perplexing issue for me is inflammation and ferrous blood concentration. From what I've read the more inflammation one has ferrous levels rise. This makes me wonder if my "natural" ferrous levels are very low. The last measured ferrous was 87. However, this was measured hours after eating br...

Holland,

Thank you for the thorough explanation.

Is iron infusion the first-line treatment for RLS? I ask because I'm trying to justify the cost if my insurance doesn't cover the expense (likely).

Michael

I'm trying to get my head around the mechanism for iron infusions and why they work. Basically, iron absorption from the gut is body regulated, so ingested iron is limited with its absorption into the blood. Conversely, iron infusions add iron directly to the blood stream, and the hope is that with ...

I've been reading several posts. I'm wondering if it's worth exploring THC and Kratom rather than the prescription meds. I live in Colorado so cannabis is legal. I usually head down the standard pathway (I've never used cannabis) for meds, etc., but I sometimes wonder if these natural meds are less ...