Search found 113 matches

by Madmom02
Thu Jun 15, 2017 4:40 am
Forum: Prescription Medications
Topic: Med resistant RLS
Replies: 21
Views: 3073

Re: Med resistant RLS

My version of RLS is also painful, now. Pain Management wouldn't do a thing for me for the RLS but a sleep clinic doc did.
by Madmom02
Sun Mar 19, 2017 8:50 pm
Forum: Prescription Medications
Topic: Does anyone successfully use ONLY an anti-convulsant?
Replies: 57
Views: 11010

Re: Does anyone successfully use ONLY an anti-convulsant?

Badnights, I took only gabapentin for years and it was effective. IIRC (& my dates may be different than what I've posted before because I've done some record checking and memory mining recently), I started it in 1995 after I had augmented on sinemet. I took 100mg whenever the RLS kicked in, whi...
by Madmom02
Sun Mar 19, 2017 7:49 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Vitamin D to reduce RLS
Replies: 9
Views: 2389

Re: Vitamin D to reduce RLS

I've been taking 4000 IUs Vit D3 for almost nine months - no effect on the RLS but I think the depression has improved and I have slightly more energy. Of course, I've also lost 40+ lbs and substantially improved my diet (more veg and fruit, more complex carbs, more fatty fish, almost no "proce...
by Madmom02
Mon Feb 13, 2017 7:56 pm
Forum: Everything Else...just no RLS/WED!
Topic: Whacha readin?
Replies: 73
Views: 12572

Re: Whacha readin?

Reading "The Life at the Dakota" (Stephen Birmingham) and had to share this:
"...another advised guests at a dinner party against “shaking with your feet the chair of a neighbor”—an activity whose purpose is hard to imagine."

I think we can imagine the purpose, yeah?
by Madmom02
Tue Feb 07, 2017 8:17 pm
Forum: General Topics: RLS/WED
Topic: Who is your favorite doctor?
Replies: 115
Views: 37254

Re: Who is your favorite doctor?

Thanks for the info! I'm going to pass it on to the neuro I saw - I don't know if she'll be interested but there are two other neurologists at the Sleep Clinic who might be.
by Madmom02
Mon Feb 06, 2017 10:33 pm
Forum: General Topics: RLS/WED
Topic: Who is your favorite doctor?
Replies: 115
Views: 37254

Re: Who is your favorite doctor?

Ann or anyone,
Who initiates the action to become a RLS QCC?
Thanks,
Madmom
by Madmom02
Fri Feb 03, 2017 4:11 am
Forum: Prescription Medications
Topic: Effectiveness of Gabapentin/Neurontin Over Time
Replies: 22
Views: 2133

Re: Effectiveness of Gabapentin/Neurontin Over Time

Yah for the rx victory, for standing up for yourself with the Practice, and the pink hair. Persistence, strength, and humor win again - as do you!
by Madmom02
Thu Feb 02, 2017 12:35 pm
Forum: Prescription Medications
Topic: Ropinerole withdrawal, oxycodone, & LDN
Replies: 53
Views: 4919

Re: Ropinerole withdrawal, oxycodone, & LDN

I hadn't yet taken the oxycodone when the RLS kicked in. But, I'd taken my usual early evening dose, which should have still been working. I ended up needing a full 10mg (took 5mg, waited half an hour and, when the bugs didn't get any gentler, I took the other half) to avoid chopping my legs off. I ...
by Madmom02
Thu Feb 02, 2017 4:44 am
Forum: Prescription Medications
Topic: Ropinerole withdrawal, oxycodone, & LDN
Replies: 53
Views: 4919

Re: Ropinerole withdrawal, oxycodone, & LDN

Took .125 pramipexole last night about three hours before bedtime. I took 2.5mg oxycodone at bedtime (just to stave off any withdrawal - I've noticed if I skip a dose I have non-stop sneezing attacks and a bit of anxiety and figure since I've mostly been on it for years now at varying doses my body ...
by Madmom02
Thu Feb 02, 2017 4:24 am
Forum: Prescription Medications
Topic: Effectiveness of Gabapentin/Neurontin Over Time
Replies: 22
Views: 2133

Re: Effectiveness of Gabapentin/Neurontin Over Time

Oh, Polar Bear, I hope it all works out for you. I've got my fingers crossed for you. I was on gabapentin for years and it stopped working. My neuro put me on .5mg clonazepam. Over the years, he increased the dose to 3mg and wouldn't go higher when it stopped working. Because it wasn't working, I di...
by Madmom02
Tue Jan 31, 2017 10:25 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Hypersensitivity to Caffeine
Replies: 11
Views: 2568

Re: Hypersensitivity to Caffeine

There is a lot of caffeine in chocolate and most sodas. :(
by Madmom02
Tue Jan 31, 2017 9:52 pm
Forum: Prescription Medications
Topic: Ropinerole withdrawal, oxycodone, & LDN
Replies: 53
Views: 4919

Re: Ropinerole withdrawal, oxycodone, & LDN

Great info on iron, Ann. Called to schedule my test. If I take the pramipexole do I not take the oxycodone that whole day (I take a total of 30mg over a 24 hour period)? Or just skip the bed-time dose? Will I experience withdrawal because I've been taking oxycodone nightly for well over a year (5mg ...
by Madmom02
Tue Jan 31, 2017 8:54 pm
Forum: Prescription Medications
Topic: Trials and tribulations with opioids
Replies: 61
Views: 6272

Re: Trials and tribulations with opioids

Dgarmaise, I pm'd you with my Madison, WI RLS doctor info. Also, I have nausea from gastroparesis from multiple sclerosis and ginger is the most effective treatment I've found. Ginger tea (real ginger root, nothing else) works well but I also have pure ginger root capsules (no fillers or binders) of...
by Madmom02
Fri Jan 27, 2017 4:35 pm
Forum: Prescription Medications
Topic: Ropinerole withdrawal, oxycodone, & LDN
Replies: 53
Views: 4919

Re: Ropinerole withdrawal, oxycodone, & LDN

Thanks for the input re pregabalin, methadone, and pramipexole. I think I'm going to try the pramipexole tonight. I'm a bit concerned about the oxycodone amounts I'm thinking I need. Last night was slightly better but I took a crazy cocktail of 5mg oxy, 1mg clonazepam, .25 trazadone, and 10mg baclof...
by Madmom02
Fri Jan 27, 2017 2:42 am
Forum: Prescription Medications
Topic: Ropinerole withdrawal, oxycodone, & LDN
Replies: 53
Views: 4919

Re: Ropinerole withdrawal, oxycodone, & LDN

I have RLS all day. I'm pretty immobile from the MS (balance and a dead right leg). I was taking 5mg oxycodone for my back pain and it used to stop the RLS. Through the taper off the ropinirole, it sometimes was still enough until about midway through. Then I had to take 10mg. And, it was liveable. ...

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