Search found 539 matches

by legsbestill
Wed Oct 02, 2019 10:01 pm
Forum: Prescription Medications
Topic: Medication for irregular use
Replies: 6
Views: 168

Re: Medication for irregular use

I find kratom great for intermittent use but care is required to ensure it is legal where you are travelling to (or that you have a very effective concealment strategy - I took a weekend break to Hungary last year and when I was unpacking on my return discovered I had unwittingly taken a supply of k...
by legsbestill
Wed Oct 02, 2019 9:56 pm
Forum: Prescription Medications
Topic: Getting off Pramipexole
Replies: 12
Views: 260

Re: Getting off Pramipexole

Next week I have a GP appointment and I will ask her to help me further as I take the dosage lower. Will have with me RLS Foundation documentation regarding augmentation and withdrawal. Betty, I wonder should you also bring the most recent study which finds a link between RLS and increased suicide ...
by legsbestill
Mon Sep 30, 2019 2:55 pm
Forum: Prescription Medications
Topic: Getting off Pramipexole
Replies: 12
Views: 260

Re: Getting off Pramipexole

I would be inclined to get serum ferritin levels checked prior to discontinuing pramipexole completely and if it is less than 100 (make sure that you get the actual figure - not just that you are 'normal') start a supplement. I would focus on making sure that iron levels are as high as possible. Fro...
by legsbestill
Tue Sep 24, 2019 4:47 pm
Forum: Prescription Medications
Topic: Cannabis
Replies: 90
Views: 2421

Re: Cannabis

It is like a miracle. I am delighted for you and also grateful for all the information you are posting. I am another who has found cannabis helpful for rls related insomnia and opioid induced alerting (though not so much for urge to move). I use whole plant so presume I get both THC and CBD. I am co...
by legsbestill
Sat Aug 31, 2019 6:59 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 174
Views: 4387

Re: Attempting to get off Ropinirole - again

.75mg - less than 1mg!!! Congratulations!!! You are doing so well. To me one of the worst things about the dopamine agonists is how they gradually, sneakily remove such control as we have over the condition. You are truly taking back control.
by legsbestill
Sat Aug 31, 2019 6:51 pm
Forum: Prescription Medications
Topic: Effectiveness of Neupro patch
Replies: 15
Views: 285

Re: Effectiveness of Neupro patch

Hi Redshoes, It is great that you are getting relief but 0.5mg of pramipexole seems high. From memory the US dose is in aggregates of .125 (it is different here in Europe). My understanding was that the maximum dose recommended by experts for RLS was recently revised downwards and is now 0.25mg. Giv...
by legsbestill
Wed Aug 28, 2019 1:02 pm
Forum: Prescription Medications
Topic: Cannabis
Replies: 90
Views: 2421

Re: Cannabis

I watched a very interesting youtube video by one of the top researchers in Israel concerning cannabis treatment of autistic children who exhibited violent behaviour. From memory, they ran out of the strain that was having a pronounced positive effect on the behaviour of the children. They replaced ...
by legsbestill
Wed Aug 28, 2019 12:54 pm
Forum: Prescription Medications
Topic: Excellent article on opioids
Replies: 47
Views: 1002

Re: Excellent article on opioids

Hi Betty, I am in RoI where the consumption of kratom is illegal. I order it from kraatje.eu which is based in the Netherlands. They send it labelled 'colouring powder' (ie a clothes dye) which, as I understand it, is not illegal, although it is clear from their website that it is anticipated that t...
by legsbestill
Fri Aug 16, 2019 7:41 am
Forum: Prescription Medications
Topic: Naltrexone for RLS?
Replies: 8
Views: 218

Re: Naltrexone for RLS?

It was aipulu.
by legsbestill
Fri Aug 16, 2019 1:06 am
Forum: Just Joined?
Topic: How do you hold down a job?
Replies: 12
Views: 337

Re: How do you hold down a job?

Please cut yourself some slack. It is clear from your post that you would work if you possibly could. I too wonder constantly how people with rls manage a normal working life. My decisions regarding my career are blighted by it. I thoroughly agree with Steve, you need - and deserve - extra help at t...
by legsbestill
Fri Aug 16, 2019 12:55 am
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 174
Views: 4387

Re: Attempting to get off Ropinirole - again

Betty, I tried to phrase my post to take account of the chance that symptoms will not recover to the extent one might hope for. A majority of people seem to revert to night time only symptoms once a d/a is discontinued. However there is presumably a less good prognosis if you had 24/7 before ever em...
by legsbestill
Wed Aug 14, 2019 8:54 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 174
Views: 4387

Re: Attempting to get off Ropinirole - again

Betty, I haven't been on here in a while and just read back through your recent posts. I can't believe how well you've done - what a fantastic reduction. I see your struggles with deciding which doses to reduce and also notice you saying that you have stayed a long time on 1.25mg. However it has onl...
by legsbestill
Wed Aug 14, 2019 8:25 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: What kind of Oral Iron?
Replies: 7
Views: 197

Re: What kind of Oral Iron?

In relation to oral iron, I have tried various supplements but never managed to get my serum ferritin to 100. In the last few months I started eating liver every second day. At first it was a process of attrition but I am getting used to it now and have a nice recipe. Chicken liver is the least unpa...
by legsbestill
Wed Aug 14, 2019 8:15 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: CBD oil
Replies: 5
Views: 188

Re: CBD oil

It did nothing for my rls and was VERY expensive. I think it might have helped slightly with anxiety but not enough (if at all) to justify the cost. I have read of people who got almost full relief with it however so it's probably worth trying.
by legsbestill
Wed Aug 14, 2019 8:14 pm
Forum: Prescription Medications
Topic: Started gabapenten - no relief
Replies: 25
Views: 463

Re: Started gabapenten - no relief

In relation to op's original point, I understand that gabapentin can take several weeks to take effect so it might be worth sticking with it for a while though the restless arms thing sounds pretty miserable. In relation to leggo's taper - I had the same experience. If I went fast when coming off pr...

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