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by legsbestill
Fri Jun 14, 2019 8:50 am
Forum: Prescription Medications
Topic: Yoga Helping me so far
Replies: 6
Views: 76

Re: Yoga Helping me so far

For me anything stretching the hamstrings seems to have an immediate negative impact but over a longer period (the ensuing 60 minutes or so) it seems to be beneficial. Side bends are definitely soothing to my rls.
by legsbestill
Fri Jun 14, 2019 8:42 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Wahls diet for WED? Trying it.
Replies: 93
Views: 20562

Re: Wahls diet for WED? Trying it.

Yes; that’s it exactly and it is amazing. I’ve almost forgotten what the creepy crawleys feel like. Rls is a LOT more bearable but (never one to by-pass an opportunity to moan) does still keep me awake all night if I don’t treat it - and sometimes even when I do.
by legsbestill
Sun Jun 09, 2019 3:28 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Wahls diet for WED? Trying it.
Replies: 93
Views: 20562

Re: Wahls diet for WED? Trying it.

Yes, with his encouragement, I too added back in a tiny dose of pramipexole. I now only require the pramipexole to manage my rls - as I say, I discontinued the dipyridamole a while ago. I take breaks from the pramipexole from time to time in hope of deferring augmentation. I use Kratom when on a bre...
by legsbestill
Sun Jun 09, 2019 3:18 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: New Kratom User - when to take
Replies: 15
Views: 191

Re: New Kratom User - when to take

Just in relation to your original question, I would start with half teaspoon of Kratom dissolved in grapefruit juice. If that is not effective within about an hour you could try taking an additional half teaspoon. For me, it requires about one and a half teaspoons to address my symptoms effectively ...
by legsbestill
Mon Jun 03, 2019 2:52 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Wahls diet for WED? Trying it.
Replies: 93
Views: 20562

Re: Wahls diet for WED? Trying it.

I tried dipyridamole. I have augmented and withdrew from a high dose of pramipexole about two years prior to commencing dipyridamole. I didn’t notice dipyridamole causing any worsening of my symptoms but Holland did report a temporary worsening about 30 minutes after taking the dipyridamole. From me...
by legsbestill
Mon Jun 03, 2019 2:29 pm
Forum: Prescription Medications
Topic: Cannabis
Replies: 56
Views: 1245

Re: Cannabis

From research on the Internet (so it must be true), the properties of cannabis can vary significantly depending on when it is harvested. The trichomes (tiny little protrusions growing out of bud and leaf which give the plant it’s frosty appearance) turn from clear to milky and then to amber as the p...
by legsbestill
Mon Jun 03, 2019 2:11 pm
Forum: General Topics: RLS/WED
Topic: sleep deprivation
Replies: 12
Views: 260

Re: sleep deprivation

I found adding dipyridamole to my combination of meds had a very beneficial impact on my general sense of well-being and of feeling rested and ‘myself’ during the day. This has persisted even though I discontinued dipyridamole after about 10 months. In general I would observe though that rls is a ve...
by legsbestill
Mon Jun 03, 2019 1:30 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: New Kratom User - when to take
Replies: 15
Views: 191

Re: New Kratom User - when to take

It does require some trial and error as it’s obviously optimal to take the minimum dose. It can be quite individual also. I would start low - one tablet about 30 mins before bed - and gradually work up. With rls it is better to address symptoms before they emerge. So once you know the dose that work...
by legsbestill
Mon Jun 03, 2019 12:53 pm
Forum: Just Joined?
Topic: advice please
Replies: 5
Views: 96

Re: advice please

In addition to sometimes taking a while to kick in 50mg of pregabalin is a relatively low dose. 150mg is not unusual. I would second getting serum ferritin test and commencing supplementation if it is less than 100 (make sure to get the actual figure - not just that you are ‘normal’).
by legsbestill
Fri Apr 19, 2019 11:53 pm
Forum: Physical Treatments
Topic: Vick's!!! <3 <3 <3
Replies: 11
Views: 473

Re: Vick's!!! <3 <3 <3

I read a post on healthunlocked recently of someone who found that menthol crystals mixed into an acqueous cream and applied to the legs helped their RLS a lot. In the hope-springs-eternal mode, my amazon order of menthol crystals is winging its way to me as I type. I applied Vicks to the soles of m...
by legsbestill
Fri Apr 19, 2019 11:39 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Wahls diet for WED? Trying it.
Replies: 93
Views: 20562

Re: Wahls diet for WED? Trying it.

So sorry to read of your worsened symptoms, Beth. I hope it turns out to be stress related for which at least there is an obvious (if not always easily achievable) solution. Also watch out for sleep deprivation - I think this can exacerbate RLS symptoms (in a cruel irony and easier to identify than ...
by legsbestill
Sat Mar 30, 2019 12:15 pm
Forum: Augmentation
Topic: Can I get augmentation using Mirapex twice a week?
Replies: 5
Views: 207

Re: Can I get augmentation using Mirapex twice a week?

I returned to pramipexole (mirapex) 18 months after withdrawing from a very high dose following augmentation. I stick to 0.088mg per day. At first I used it only 5 out of 7 days but now I take it every day and I take breaks every so often (one is due shortly which I am dreading). I supplement it wit...
by legsbestill
Sat Mar 30, 2019 11:39 am
Forum: Prescription Medications
Topic: Cannabis
Replies: 56
Views: 1245

Re: Cannabis

Hi QyX, There are a couple of strains mentioned in the incredibly long thread about cannabis started by NatWest. She mentions medical mass and also sensi star. I have also heard strawberry cough recommended. I am still searching for a strain that helps my RLS but haven't managed to source any of the...
by legsbestill
Sat Mar 30, 2019 11:36 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Nonmedication strategies for RLS by Shalini Paruthi,MD
Replies: 7
Views: 414

Re: Nonmedication strategies for RLS by Shalini Paruthi,MD

I suspect that what Dr. Paruthi is referencing is that, in a most cruel irony, lack of sleep actually exacerbates RLS. I have seen this referred to elsewhere also and it is certainly my experience. After I withdrew from pramipexole following augmentation, I went into a spiral of no sleep and terribl...
by legsbestill
Sat Mar 30, 2019 11:20 am
Forum: Just Joined?
Topic: Relaxis
Replies: 5
Views: 138

Re: Relaxis

I have a relaxis pad. The results are very mixed and I would say probably not worth the money. It works well for my symptoms if I go to bed during the day and the legs start but at night time it rarely has a positive effect and sometimes it actually makes the legs worse. It is sort of soothing thoug...

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