Search found 437 matches

by legsbestill
Sun May 27, 2018 9:30 am
Forum: Prescription Medications
Topic: Is your DA causing augmentation?
Replies: 101
Views: 20350

Re: Is your DA causing augmentation?

Wow! Well done you and kudos to your GP. I really hope the infusion helps enormously. I had a similar experience with my GP except rather than listen to me/peruse my fat file he said resignedly ‘What do you want?’ And he now mostly prescribes me whatever i ask for for my rls. They are rare though - ...
by legsbestill
Sun May 27, 2018 9:22 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Allaying friends' concerns re: kratom
Replies: 2
Views: 27

Re: Allaying friends' concerns re: kratom

Holland speaks great good sense as always. I don’t want to sound too dismissive of concerns but I would also suggest that you look very carefully at any posts concerning the dangers of Kratom. What I noticed was that most people who are having a very hard time with it are on a REALLY high dose - suc...
by legsbestill
Sun May 27, 2018 9:14 am
Forum: Augmentation
Topic: Augmentation- Cold Turkey
Replies: 5
Views: 35

Re: Augmentation- Cold Turkey

I really feel your pain. Huge kudos for getting so far all on your own. I reckon Holland is right and the worst is behind you. Like many on here I have been where you are and can verify that it is one of the hardest things I have done. I did it without opioids but if I were to do it again and I coul...
by legsbestill
Sat May 26, 2018 10:37 pm
Forum: Everything Else...just no RLS/WED!
Topic: Words!
Replies: 5
Views: 47

Re: Words!

My current favourite word is effulgent. My effulgence knows no bounds when I find a good use for it - and also when my rls is controlled and I get a good night's sleep.
by legsbestill
Sat May 26, 2018 10:29 pm
Forum: Prescription Medications
Topic: Dipyridamole
Replies: 152
Views: 6438

Re: Dipyridamole

Thanks for that
by legsbestill
Fri May 25, 2018 10:18 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Choosing a dispensary
Replies: 6
Views: 70

Re: Choosing a dispensary

I have added ‘hellacious’ to mine courtesy of a post of yours on another thread!
by legsbestill
Fri May 25, 2018 8:11 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Choosing a dispensary
Replies: 6
Views: 70

Re: Choosing a dispensary

Excellent apposite quote, mudslide. Thanks :wink:
by legsbestill
Fri May 25, 2018 8:05 am
Forum: Prescription Medications
Topic: Methadone and Gabapentin no longer working well
Replies: 29
Views: 714

Re: Methadone and Gabapentin no longer working well

I have reintroduced mirapexin at the UK equivalent of .065 and it is working like a dream so far - though I am only about 3 months in. I take it 5 days out of 7 and use Kratom the other two. I don’t think my rls is anything like as severe as yours however.
by legsbestill
Fri May 25, 2018 8:01 am
Forum: Prescription Medications
Topic: Desperate
Replies: 23
Views: 187

Re: Desperate

I use Kratom to take a break from pramipexole two days a week. I also find it great for break through symptoms as my current regime is very much the bare minimum. I think it is a very handy addition to the arsenal of any rls sufferer. I have found the opposite of Ann - Kratom can make me very alert ...
by legsbestill
Fri May 25, 2018 7:36 am
Forum: Prescription Medications
Topic: Dipyridamole
Replies: 152
Views: 6438

Re: Dipyridamole

The start of the post (the whole first paragraph) is actually a quote from yawny which was meant to be in a yellow box. I will try to amend it. In fact Dipyridamole continues to work very well for me. I love it. In spite of the fact that I am having some sleep interruption at present, I am ‘myself’ ...
by legsbestill
Thu May 24, 2018 12:53 pm
Forum: Prescription Medications
Topic: Dipyridamole
Replies: 152
Views: 6438

Re: Dipyridamole

Well, I tried Dipyridamole. Not only did it not improve my symptoms but it increased my hyperawareness which made it even harder to sleep through my PLMS. That’s the opposite of what the study suggested, but I’m always in that rare group that has idiosyncratic reactions — the same thing happened to...
by legsbestill
Wed May 23, 2018 9:10 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Iron has helped
Replies: 7
Views: 122

Re: Iron has helped

That’s fantastic. It’s great to get your updates.
by legsbestill
Wed May 23, 2018 9:09 pm
Forum: Prescription Medications
Topic: Desperate
Replies: 23
Views: 187

Re: Desperate

Sorry, for ‘norco’ in my post read ‘hydrocodone’. Also keep your dose of carbidopa/levidopa to the absolute lowest you can - ideally it should not be taken along with requip as they are from the same family - dopamine agonists - and there is a significant danger of augmentation (there is a whole sec...
by legsbestill
Wed May 23, 2018 8:56 pm
Forum: Prescription Medications
Topic: Desperate
Replies: 23
Views: 187

Re: Desperate

I felt the same way as you when I first got responses in here to my initial cry for help: so grateful that there are people out there who would reach out to help so generously. It is so affirming when this condition can be so isolating. Sounds like your rls treatment journey has begun! Asking yourse...
by legsbestill
Wed May 23, 2018 10:23 am
Forum: Help for Relationships
Topic: Sleeping Arrangements
Replies: 15
Views: 1327

Re: Sleeping Arrangements

I should have said that a practical step we took was to get individual single quilts so that the constant movement doesn't result in one person getting all the duvet coverage. Since moving house we are in a much smaller bed - a regular double but the individual quilts helps to keep a personal comfor...

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