Search found 336 matches

by legsbestill
Wed Sep 20, 2017 4:35 am
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 232
Views: 10188

Re: What Severe RLS is Like

Kratom can be very helpful that way.
by legsbestill
Wed Sep 20, 2017 4:32 am
Forum: General Topics: RLS/WED
Topic: Hyper Alertness
Replies: 8
Views: 19

Re: Hyper Alertness

I use cannabis (as an edible) in an attempt to overcome this problem. It is not always successful. A small dose of pregabalin sometimes helps. Nothing is fool proof though -sadly.
by legsbestill
Wed Sep 13, 2017 8:41 am
Forum: Everything Else...just no RLS/WED!
Topic: Vulnerable
Replies: 21
Views: 124

Re: Vulnerable

Wow; you certainly put my travails into perspective. No wonder you are feeling miserable. That is a LOT to cope and some of it sounds like it will only be resolved with the passage of time which is disempowering. I can absolutely relate to your problems with your mother. I also asked my mother to st...
by legsbestill
Fri Aug 25, 2017 9:46 pm
Forum: Prescription Medications
Topic: Keeping your prescriptions safe
Replies: 11
Views: 246

Re: Keeping your prescriptions safe

That is exceptionally helpful, Yawny. Thank you.
by legsbestill
Fri Aug 25, 2017 10:49 am
Forum: General Topics: RLS/WED
Topic: The joy of relief
Replies: 3
Views: 119

The joy of relief

Am in a changeover period between neupro and Kratom. Applied the last half patch of neupro two days ago (it stopped being effective worryingly quickly this time - even at 2mg). It's always a tricky time and the legs were really bad last night even after my usual dose of Kratom. At 1.30 am I took a t...
by legsbestill
Fri Aug 25, 2017 10:39 am
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 232
Views: 10188

Re: What Severe RLS is Like

I feel your pain, Deb. I have had a period of that hyper-alertness recently. Nothing like so bad as being awake with RLS but normal life is ... difficult/impossible due to the exhaustion. I hope it settles down for you soon.
by legsbestill
Fri Aug 25, 2017 10:35 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Wild lettuce?
Replies: 11
Views: 318

Re: Wild lettuce?

Please keep posting about this. I love hearing about possible new sources of relief. I definitely prefer false dawns to hopeless nights! Every so often the dawn blossoms into a beautiful morning of RLS alleviation!
by legsbestill
Fri Aug 25, 2017 10:25 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Medical Marijuana
Replies: 388
Views: 19214

Re: Medical Marijuana

Beth!!! If I see further (which I'm not claiming I do, but for the purposes of the quote I'll say it ...), it is because I am standing on the shoulders of giants - such as yourself, Ann, Betty, Steve, Holland, Peggy and all the others who so kindly give their time and RLS-sapped energy to guide and ...
by legsbestill
Mon Aug 21, 2017 8:08 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Medical Marijuana
Replies: 388
Views: 19214

Re: Medical Marijuana

Thanks, NatWest, I often think of you when I am researching about growing the cannabis. It would be so optimal to find a strain that actually helps the RLS - at present it is only effective for insomnia. I can purchase CBD as an oil here in Ireland and have taken it in the past with my dose of oral ...
by legsbestill
Mon Aug 21, 2017 7:55 pm
Forum: Prescription Medications
Topic: Worried about taking medication for RLS
Replies: 38
Views: 1110

Re: Worried about taking medication for RLS

My instinct if rls is getting worse due to augmentation is to reduce the dopamine agonist. Are you taking oral iron? Raising serum ferritin levels can help a lot although it is not a short term solution. Have you tried kratom? It can be very effective against RLS and can be used as-and-when rather t...
by legsbestill
Mon Aug 21, 2017 6:07 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Krantom newbie questions
Replies: 2
Views: 179

Re: Krantom newbie questions

I too find that the effect is similar what ever strain I use. I tend to use red vein borneo because that's what most people on here recommend.
by legsbestill
Mon Aug 21, 2017 5:56 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Medical Marijuana
Replies: 388
Views: 19214

Re: Medical Marijuana

I am definitely going to try black coffee. I had given it up completely in the hope that not having caffeine would help with symptoms but it doesn't seem to have made any difference and much vaunted improvement in caffeine spiked highs and lows also failed to materialise in any meaningful way so I w...
by legsbestill
Mon Aug 21, 2017 5:37 pm
Forum: General Topics: RLS/WED
Topic: Two hours of sleep
Replies: 141
Views: 5603

Re: Two hours of sleep

There is a webinar on the foundation website about physical devices. My memory is that it says that in studies the restiffics wraps were found to be about the most effective physical treatment for RLS symptoms. Conversely, the relaxis was not found to be effective (though, strangely, it was found to...
by legsbestill
Mon Aug 21, 2017 5:29 pm
Forum: General Topics: RLS/WED
Topic: Bad night last night...
Replies: 6
Views: 169

Re: Bad night last night...

I find kratom fantastic also. If it worked for you it might enable you to build up a little stash of the opiates by using the kratom as an alternative for a while. I would second everything badnights says. She is very wise.
by legsbestill
Mon Aug 21, 2017 5:24 pm
Forum: Prescription Medications
Topic: Keeping your prescriptions safe
Replies: 11
Views: 246

Re: Keeping your prescriptions safe

I have quite a lot of oxycontin left over from when I gradually reduced my dose last winter. I wasn't ready to get rid of it for a long time - I had such a hard time getting it in the first place but for now I don't seem to need it and it is counter-indicated by my central sleep apnea. I found it wh...

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