Restless Legs Syndrome (RLS) Discussion Board

.75mg - less than 1mg!!! Congratulations!!! You are doing so well. To me one of the worst things about the dopamine agonists is how they gradually, sneakily remove such control as we have over the condition. You are truly taking back control.

Hi Redshoes, It is great that you are getting relief but 0.5mg of pramipexole seems high. From memory the US dose is in aggregates of .125 (it is different here in Europe). My understanding was that the maximum dose recommended by experts for RLS was recently revised downwards and is now 0.25mg. Giv...

I watched a very interesting youtube video by one of the top researchers in Israel concerning cannabis treatment of autistic children who exhibited violent behaviour. From memory, they ran out of the strain that was having a pronounced positive effect on the behaviour of the children. They replaced ...

Hi Betty, I am in RoI where the consumption of kratom is illegal. I order it from kraatje.eu which is based in the Netherlands. They send it labelled 'colouring powder' (ie a clothes dye) which, as I understand it, is not illegal, although it is clear from their website that it is anticipated that t...

It was aipulu.

Please cut yourself some slack. It is clear from your post that you would work if you possibly could. I too wonder constantly how people with rls manage a normal working life. My decisions regarding my career are blighted by it. I thoroughly agree with Steve, you need - and deserve - extra help at t...

Betty, I tried to phrase my post to take account of the chance that symptoms will not recover to the extent one might hope for. A majority of people seem to revert to night time only symptoms once a d/a is discontinued. However there is presumably a less good prognosis if you had 24/7 before ever em...

Betty, I haven't been on here in a while and just read back through your recent posts. I can't believe how well you've done - what a fantastic reduction. I see your struggles with deciding which doses to reduce and also notice you saying that you have stayed a long time on 1.25mg. However it has onl...

In relation to oral iron, I have tried various supplements but never managed to get my serum ferritin to 100. In the last few months I started eating liver every second day. At first it was a process of attrition but I am getting used to it now and have a nice recipe. Chicken liver is the least unpa...

It did nothing for my rls and was VERY expensive. I think it might have helped slightly with anxiety but not enough (if at all) to justify the cost. I have read of people who got almost full relief with it however so it's probably worth trying.

In relation to op's original point, I understand that gabapentin can take several weeks to take effect so it might be worth sticking with it for a while though the restless arms thing sounds pretty miserable. In relation to leggo's taper - I had the same experience. If I went fast when coming off pr...

There was an interesting post by someone about two or three years ago (I temporarily forget his username - 'aipulo' or something like that) who was prescribed naltrexone - full dose, from memory it was 25mg - to assist with weight loss. I think the idea was that it would reduce the pleasure he deriv...

Well, I was surprised to feel more normal with the dipyridamole, I really didn't realize how "not normal" I felt before the dipyridamole. I guess the not normal feelings crept into how I felt slowly over years, so I didn't realize that my "not normal" feelings were more than jus...

For me anything stretching the hamstrings seems to have an immediate negative impact but over a longer period (the ensuing 60 minutes or so) it seems to be beneficial. Side bends are definitely soothing to my rls.

Yes; that’s it exactly and it is amazing. I’ve almost forgotten what the creepy crawleys feel like. Rls is a LOT more bearable but (never one to by-pass an opportunity to moan) does still keep me awake all night if I don’t treat it - and sometimes even when I do.