Restless Legs Syndrome (RLS) Discussion Board

Presumably you have tried iron therapy - or are not suitable for it? Prior to looking at d/as I would be sure to check out EVERY other treatment first because often it seems to turn out that the people who fare least well on new treatment suggestions are those who previously augmented on a d/a. In t...

I note that you say you halved your dose of pramipexole (having increased doubled it a few months ago) in the last few weeks. Did you notice your symptoms getting worse after you reduced the pramipexole? Even if you are not augmented, reducing that drug is likely to cause problems. It seems to me, r...

Although I want to tear my hair out - or more precisely the hair of the person making the comment - when I read recommendations for 'sleep hygeine' as a management technique for rls, I have noticed that, when my symptoms are reasonably controlled, I have a window when I am most likely to get to slee...

Eliminating caffeine made no difference at all to my symptoms. I actually find that when symptoms strike in the night a cup of coffee - fully caffeinated - can sometimes help. On another rls forum there are a number of posters who have noted this. I'm not sure why this would be but wonder if it is s...

Thank you for this. My first IV iron infusion was deferred due to covid19 restrictions and I don't know when it will be rearranged. I was, however, slightly anxious about the process and it's nice to get the reassurance about it. On a different note, I was thinking of you, Jul2873, as it was thanks ...

The diet was: no gluten, no dairy, an appallingly low amount of carbohydrates all of which were vegetables, no added sugar, no refined oils, lots of coconut and avocado oil, organ meats once a week, fish three times a week (wild-caught, cold-water fish), and 9 cups of vegetables daily (3 cups each ...

I have to feel sorry for the doctors who face those thoughtlessly high expectations every day. We really have to step up and start learning about our disease, to be sure our doctors have all the information they need. This is so true but it would be easier to empathise with doctors if they sometime...

My incredibly accommodating GP has persuaded a haematologist to give me an IV infusion of iron in spite of my serum ferritin being around 40, based on the published recommendations of the IRLSSG which I drew to his attention. I am hoping to get it next month. It looks like my health insurance will c...

I find kratom great for intermittent use but care is required to ensure it is legal where you are travelling to (or that you have a very effective concealment strategy - I took a weekend break to Hungary last year and when I was unpacking on my return discovered I had unwittingly taken a supply of k...

Next week I have a GP appointment and I will ask her to help me further as I take the dosage lower. Will have with me RLS Foundation documentation regarding augmentation and withdrawal. Betty, I wonder should you also bring the most recent study which finds a link between RLS and increased suicide ...

I would be inclined to get serum ferritin levels checked prior to discontinuing pramipexole completely and if it is less than 100 (make sure that you get the actual figure - not just that you are 'normal') start a supplement. I would focus on making sure that iron levels are as high as possible. Fro...

It is like a miracle. I am delighted for you and also grateful for all the information you are posting. I am another who has found cannabis helpful for rls related insomnia and opioid induced alerting (though not so much for urge to move). I use whole plant so presume I get both THC and CBD. I am co...

.75mg - less than 1mg!!! Congratulations!!! You are doing so well. To me one of the worst things about the dopamine agonists is how they gradually, sneakily remove such control as we have over the condition. You are truly taking back control.

Hi Redshoes, It is great that you are getting relief but 0.5mg of pramipexole seems high. From memory the US dose is in aggregates of .125 (it is different here in Europe). My understanding was that the maximum dose recommended by experts for RLS was recently revised downwards and is now 0.25mg. Giv...

I watched a very interesting youtube video by one of the top researchers in Israel concerning cannabis treatment of autistic children who exhibited violent behaviour. From memory, they ran out of the strain that was having a pronounced positive effect on the behaviour of the children. They replaced ...