Search found 498 matches

by legsbestill
Mon Jan 21, 2019 10:29 pm
Forum: Physical Treatments
Topic: Cold Turkey Blues
Replies: 11
Views: 119

Re: Cold Turkey Blues

Overall feeling much better... feeling more like myself? That is exactly how I felt when I finally eliminated pramipexole. Could not believe just what an effect it had had on my personality until I was off it. Well done. It is truly torture getting off it ... but so worth it. Things can only get be...
by legsbestill
Mon Jan 21, 2019 10:24 pm
Forum: Prescription Medications
Topic: Experience with Injectafer?
Replies: 34
Views: 1452

Re: Experience with Injectafer?

Holland, I hope things have settled down and you have returned to 'normal' you. I suspect that Beth may be correct that aggravating the hip may have irritated your rls. It could also be the reduction/elimination of kratom. I definitely find an appreciable - though not excruciating - increase in my r...
by legsbestill
Wed Jan 16, 2019 12:53 pm
Forum: Help for Relationships
Topic: Update, Funny but True
Replies: 10
Views: 357

Re: Update, Funny but True

Yes; I have had the same experience. If I had to work I could keep going and get through surprisingly technical stuff even with virtually no sleep night after night. Just occasionally it would catch up with me, however, and I did have the humiliating experience of falling asleep in a small meeting r...
by legsbestill
Mon Jan 14, 2019 12:00 pm
Forum: Just Joined?
Topic: New to this group
Replies: 11
Views: 275

Re: New to this group

Please tell us what iron supplement you were taking. I would love to get my serum ferritin to over 100.
by legsbestill
Fri Jan 11, 2019 12:17 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Proferrin/Iron Heme Polypeptide Tablet
Replies: 9
Views: 204

Re: Proferrin/Iron Heme Polypeptide Tablet

Unlike you, Beth, I have the sort of mundane mind that will accept instructions from the side of a packet. I hadn’t even considered what dose to take and have now ordered (at a fairly hefty price tag - though cheap at the price - how often have I used that justification? - if it helps resolve the le...
by legsbestill
Tue Jan 08, 2019 7:16 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 42
Views: 1458

Re: Attempting to get off Ropinirole - again

My sleep consultant had me on pregabalin when I was withdrawing from pramipexole but unfortunately it did nothing for my symptoms at the time. She totally ignored my plight when I was without sleep for nearly 3 months after coming off pramipexole even though I contacted her several times. I now wish...
by legsbestill
Tue Jan 08, 2019 7:10 pm
Forum: Prescription Medications
Topic: What DA to take
Replies: 12
Views: 227

Re: What DA to take

Good luck Julie. I think it was your posts that first introduced me to kratom - I had never heard of it before and it has been a life saver for me over the last two and a half years. I don't rely on it solely but I don't know what I would do without it either. Thank you for your informative and enco...
by legsbestill
Tue Jan 08, 2019 5:44 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 42
Views: 1458

Re: Attempting to get off Ropinirole - again

Yes, cold turkey from 3.5mg sounds pretty severe. He does have a lot of experience getting people off d/as but I presume he always gives them opioids to assist. Your experience of reducing from 5 to 3.5 without dreadful symptoms mirrors my own in the early stages of withdrawing from pramipexole but ...
by legsbestill
Tue Jan 08, 2019 5:35 pm
Forum: Prescription Medications
Topic: What DA to take
Replies: 12
Views: 227

Re: What DA to take

If you have to discontinue kratom it might be worth starting to reduce now as there may be a slight withdrawal issue, especially as you have been taking it for so long. Your rls might be slightly exacerbated during the withdrawal process. I would have thought a dopamine agonist for a few weeks would...
by legsbestill
Tue Jan 08, 2019 5:22 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Iron supplementation & Constipation
Replies: 21
Views: 465

Re: Iron supplementation & Constipation

What iron supplementation are you taking? I have heard that iron bisglycinate (aka 'gentle iron') is less severe from a constipation point of view. Never heard of that perineum pressing solution before - it's inspired - so obvious - like slicing bread before selling it - obvious and yet elusive unti...
by legsbestill
Tue Jan 08, 2019 5:16 pm
Forum: Prescription Medications
Topic: Experience with Injectafer?
Replies: 34
Views: 1452

Re: Experience with Injectafer?

That is AMAZING news, Holland. It has made my day to read this. I found that there is a slight withdrawal process with kratom - even when dose is quite low - predominantly flu-like symptoms, a low mood, perhaps some elevated anxiety and some increased rls - but usually it doesn't last too long with ...
by legsbestill
Mon Jan 07, 2019 5:01 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 42
Views: 1458

Re: Attempting to get off Ropinirole - again

Betty, I would definitely email Dr. Buchfuhrer and outline all the drugs you are taking and the plan of your GP. I don't know for sure but I would have thought that pregabalin will not provide adequate cover while you are withdrawing from ropinerole, even if you take long breaks at each stage of the...
by legsbestill
Sat Jan 05, 2019 7:02 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Proferrin/Iron Heme Polypeptide Tablet
Replies: 9
Views: 204

Re: Proferrin/Iron Heme Polypeptide Tablet

https://juniperpublishers.com/jgwh/pdf/ ... 555822.pdf
This also suggests it is a useful alternative to iv iron. I think I will order some.
by legsbestill
Mon Dec 31, 2018 6:18 pm
Forum: Just Joined?
Topic: introducing myself. very much in crisis
Replies: 7
Views: 214

Re: introducing myself. very much in crisis

I had this exact problem and it resolved completely the day after I took the last mirapexin. 0.5mg is a high dose of mirapexin - twice the current recommended upper limit for rls as I understand it. You will likely need opioids to help withdraw from the drug and will need to be strategic as to how t...
by legsbestill
Sun Dec 30, 2018 11:20 am
Forum: General Topics: RLS/WED
Topic: RLS and Adrenaline - it's an ill wind ...
Replies: 4
Views: 162

RLS and Adrenaline - it's an ill wind ...

I am going through a difficult relationship breakdown which is throwing up all sorts of very worrisome issues. This has caused me to experience pronounced fight or flight symptoms on a more or less daily basis over the last 3 or 4 months. These often occur most significantly in the evening as time z...

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