Restless Legs Syndrome (RLS) Discussion Board

My incredibly accommodating GP has persuaded a haematologist to give me an IV infusion of iron in spite of my serum ferritin being around 40, based on the published recommendations of the IRLSSG which I drew to his attention. I am hoping to get it next month. It looks like my health insurance will c...

I find kratom great for intermittent use but care is required to ensure it is legal where you are travelling to (or that you have a very effective concealment strategy - I took a weekend break to Hungary last year and when I was unpacking on my return discovered I had unwittingly taken a supply of k...

Next week I have a GP appointment and I will ask her to help me further as I take the dosage lower. Will have with me RLS Foundation documentation regarding augmentation and withdrawal. Betty, I wonder should you also bring the most recent study which finds a link between RLS and increased suicide ...

I would be inclined to get serum ferritin levels checked prior to discontinuing pramipexole completely and if it is less than 100 (make sure that you get the actual figure - not just that you are 'normal') start a supplement. I would focus on making sure that iron levels are as high as possible. Fro...

It is like a miracle. I am delighted for you and also grateful for all the information you are posting. I am another who has found cannabis helpful for rls related insomnia and opioid induced alerting (though not so much for urge to move). I use whole plant so presume I get both THC and CBD. I am co...

.75mg - less than 1mg!!! Congratulations!!! You are doing so well. To me one of the worst things about the dopamine agonists is how they gradually, sneakily remove such control as we have over the condition. You are truly taking back control.

Hi Redshoes, It is great that you are getting relief but 0.5mg of pramipexole seems high. From memory the US dose is in aggregates of .125 (it is different here in Europe). My understanding was that the maximum dose recommended by experts for RLS was recently revised downwards and is now 0.25mg. Giv...

I watched a very interesting youtube video by one of the top researchers in Israel concerning cannabis treatment of autistic children who exhibited violent behaviour. From memory, they ran out of the strain that was having a pronounced positive effect on the behaviour of the children. They replaced ...

Hi Betty, I am in RoI where the consumption of kratom is illegal. I order it from kraatje.eu which is based in the Netherlands. They send it labelled 'colouring powder' (ie a clothes dye) which, as I understand it, is not illegal, although it is clear from their website that it is anticipated that t...

It was aipulu.

Please cut yourself some slack. It is clear from your post that you would work if you possibly could. I too wonder constantly how people with rls manage a normal working life. My decisions regarding my career are blighted by it. I thoroughly agree with Steve, you need - and deserve - extra help at t...

Betty, I tried to phrase my post to take account of the chance that symptoms will not recover to the extent one might hope for. A majority of people seem to revert to night time only symptoms once a d/a is discontinued. However there is presumably a less good prognosis if you had 24/7 before ever em...

Betty, I haven't been on here in a while and just read back through your recent posts. I can't believe how well you've done - what a fantastic reduction. I see your struggles with deciding which doses to reduce and also notice you saying that you have stayed a long time on 1.25mg. However it has onl...

In relation to oral iron, I have tried various supplements but never managed to get my serum ferritin to 100. In the last few months I started eating liver every second day. At first it was a process of attrition but I am getting used to it now and have a nice recipe. Chicken liver is the least unpa...

It did nothing for my rls and was VERY expensive. I think it might have helped slightly with anxiety but not enough (if at all) to justify the cost. I have read of people who got almost full relief with it however so it's probably worth trying.