Search found 356 matches

by legsbestill
Sun Jan 21, 2018 1:25 pm
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 305
Views: 15677

Re: What Severe RLS is Like

Eefall, your experience on Dec 11th is almost certainly benign paroxysmal positional vertigo. It is a fairly common condition and is caused by tiny crystals moving around in the inner ear. It is characteristic that you would experience it turning onto one side rather than the other. I get it from ti...
by legsbestill
Sun Jan 21, 2018 1:03 pm
Forum: Help for Relationships
Topic: Sleeping Arrangements
Replies: 7
Views: 98

Re: Sleeping Arrangements

My husband also insists I do not disturb him but it is sometimes easier to be on my own when the legs are bad. I do find his constant assurances reassuring and am more likely to stay in the bed with him because of them so I would second the others who said to keep telling him you like to have him th...
by legsbestill
Sun Jan 21, 2018 12:56 pm
Forum: Augmentation
Topic: going from ropinerole to gabapentin
Replies: 6
Views: 108

Re: going from ropinerole to gabapentin

Badnights is spot on. Expect nothing of yourself. Once the process is over you will know that you could endure torture if you had to. That said, I brought boxes of stuff into my bedroom and set up a sorting post with a camping table and sorted through loads of rubbish that had accumulated in the hou...
by legsbestill
Sun Jan 21, 2018 12:42 pm
Forum: General Topics: RLS/WED
Topic: Hoping for a better night
Replies: 10
Views: 92

Re: Hoping for a better night

For me, wine is an invariable trigger ...
by legsbestill
Sun Jan 21, 2018 12:36 pm
Forum: General Topics: RLS/WED
Topic: Evaluating my cognition over time.
Replies: 4
Views: 56

Re: Evaluating my cognition over time.

It's a great idea to measure yourself over time. You must be very pleased to see the number going up. I do sudoku and killer puzzles as well as other number puzzles and crosswords but I do them on paper to avoid having the blue (allegedly melatonin destroying) light. I play chess online but I lose s...
by legsbestill
Sun Jan 21, 2018 12:21 pm
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Pregnancy and RLS
Replies: 5
Views: 6969

Re: Pregnancy and RLS

I took folic acid religiously through my pregnancies but I was still afflicted with rls in each. It resolved once the baby was born in each pregnancy except the last and I am still suffering from that after 15 years. I sometimes wonder if it was because I became very ill with double pneumonia, a col...
by legsbestill
Tue Dec 19, 2017 12:53 am
Forum: Prescription Medications
Topic: Two very different doctors' visits
Replies: 53
Views: 1139

Re: Two very different doctors' visits

I used OxyContin (extended release version of oxycodone). I’m not sure whether the strength per mg is the same. 5mg did not come close to dealing with symptoms. I found it needed 30mg daily - all in the evening - to quiet symptoms effectively. Unfortunately at this dose, one tends to experience with...
by legsbestill
Sat Nov 04, 2017 2:22 pm
Forum: Augmentation
Topic: Augmentation - Delaying the Inevitable?
Replies: 20
Views: 2921

Re: Augmentation - Delaying the Inevitable?

I am using neupro at the moment. It is working well to still the legs. Normally I take myself off it after 6 weeeks or so to avoid augmentation and use Kratom for a few weeks instead. Kratom works reasonably well but it only lasts about 4 hours so have to take a second dose in middle of night. This ...
by legsbestill
Tue Sep 26, 2017 9:18 pm
Forum: Just Joined?
Topic: Hello - I am new to the site. Horizant Question
Replies: 11
Views: 456

Re: Hello - I am new to the site. Horizant Question

Worst enemies may not be bad enough to have rls wished on them but there are some medical professionals out there who might benefit from a temporary insight into the tortures of it ...
by legsbestill
Tue Sep 26, 2017 9:10 pm
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 305
Views: 15677

Re: What Severe RLS is Like

Creating a garden is a wonderful thing and you should feel proud of that. Put in a fruit tree and 2 or 3 fruit bushes and you will have joy every harvest. I find audiobooks are helpful to distract me from those awful bleak thoughts when they strike. I have also heard that an ibuprofen pill can be he...
by legsbestill
Tue Sep 26, 2017 9:01 pm
Forum: Everything Else...just no RLS/WED!
Topic: Vulnerable
Replies: 48
Views: 2045

Re: Vulnerable

Hopefully the prednisone will make you feel more cheerful, leggo. Though it's unlikely to help with sleep ... In addition to the thyme tea you could look at tulsi tea which is widely used in India to relieve bronchial constriction and I think has some actual positive research behind it. Be kind to y...
by legsbestill
Tue Sep 26, 2017 8:46 pm
Forum: General Topics: RLS/WED
Topic: reflections on a bad trip to the RLS specialist
Replies: 22
Views: 906

Re: reflections on a bad trip to the RLS specialist

Wow that's a LOT cheaper than the one I was taking. It was a brand called Charlottes web cbd. I used the top strength version which was 'everyday advanced' and apparently provided 50mg/ml cbd extract. I think that meant 50mg per serving. It was taken sub-lingually using a dropper. I was assured it w...
by legsbestill
Tue Sep 26, 2017 1:52 am
Forum: General Topics: RLS/WED
Topic: reflections on a bad trip to the RLS specialist
Replies: 22
Views: 906

Re: reflections on a bad trip to the RLS specialist

Betty, I don't know much about naltrexone and how it works and was really just passing on what I read of Aipulu's experience. However, Naltrexone at higher doses (as Aipulu recommends) - ie not LDN - is typically used to help addicts to reduce or quit opioid drugs (as well as other addictions). The ...
by legsbestill
Sun Sep 24, 2017 11:30 pm
Forum: Just Joined?
Topic: Hello - I am new to the site. Horizant Question
Replies: 11
Views: 456

Re: Hello - I am new to the site. Horizant Question

I cannot add usefully to what Steve and Beth have said but just wanted to let you know that you have my respect and admiration for educating yourself about what needs to be done for your RLS. Very best of luck with the next step.
by legsbestill
Sun Sep 24, 2017 11:21 pm
Forum: Prescription Medications
Topic: Worried about taking medication for RLS
Replies: 49
Views: 3634

Re: Worried about taking medication for RLS

So sorry you are having to go through this misery. Am blown away by your strength and resilience in resisting the urging of TWO neurologists to increase your dose. You are absolutely correct to do so. Increasing the dose will definitely lead to worse, more protracted suffering down the line. I would...

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