Search found 505 matches

by legsbestill
Mon Feb 11, 2019 9:12 pm
Forum: Augmentation
Topic: Vibration helped me through the drug holiday
Replies: 4
Views: 130

Re: Vibration helped me through the drug holiday

Sounds like an amazing trip. I have a relaxis pad. For some unfathomable reason it works on my rls if I go for a nap during the day but not at night. In fact, sometimes at night time I think it actually aggravates my rls. I do find it soothing sometimes to run it if I wake up in the middle of the ni...
by legsbestill
Mon Feb 11, 2019 9:05 pm
Forum: Help for Relationships
Topic: What Relationships?
Replies: 38
Views: 3745

Re: What Relationships?

Red wine is an invariable trigger with me. I hardly ever drink it any more as it always causes a bad night.
by legsbestill
Mon Feb 11, 2019 8:58 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 55
Views: 1817

Re: Attempting to get off Ropinirole - again

Sorry to hear about your bad nights, Betty, but very glad to read that you have virtually halved your dose of ropinerole. That is amazing. Go you!
by legsbestill
Fri Feb 01, 2019 9:55 am
Forum: Prescription Medications
Topic: Experience with Injectafer?
Replies: 38
Views: 1694

Re: Experience with Injectafer?

That is wonderful news, Holland. Am absolutely delighted for you. It makes me feel more positive about my own situation as I am pretty convinced my rls responds to improved iron levels. It looks like I would have to travel to another country to get an Injectafer transfusion but would be worth it. I ...
by legsbestill
Fri Feb 01, 2019 9:51 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Iron Patches
Replies: 14
Views: 1915

Re: Iron Patches

I got my serum ferritin results last week and my iron had remained pretty much level. It was 66 and the last test (just before I started the iron patches) was also in the mid 60s - of course I have misplaced the note I made of the result. I am disappointed but at least it hadn't gone down. I am pret...
by legsbestill
Fri Feb 01, 2019 9:46 am
Forum: Prescription Medications
Topic: Cannabis
Replies: 30
Views: 567

Re: Cannabis

Can you say what strain of cannabis you are taking, QyX? I looked at the tedtalk you linked and one thing that leaped out was the effect of the slight change in strain on the autistic kids - one strain worked like a miracle and a different one made no impact at all. None of the four strains of canna...
by legsbestill
Thu Jan 24, 2019 1:47 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Iron Patches
Replies: 14
Views: 1915

Re: Iron Patches

I have been using patches for about 2 months and just yesterday went for a serum ferritin test. It was 68 before I started so will be interested to see what it is now. I get the results next week and will post then.
by legsbestill
Mon Jan 21, 2019 10:29 pm
Forum: Physical Treatments
Topic: Cold Turkey Blues
Replies: 11
Views: 191

Re: Cold Turkey Blues

Overall feeling much better... feeling more like myself? That is exactly how I felt when I finally eliminated pramipexole. Could not believe just what an effect it had had on my personality until I was off it. Well done. It is truly torture getting off it ... but so worth it. Things can only get be...
by legsbestill
Mon Jan 21, 2019 10:24 pm
Forum: Prescription Medications
Topic: Experience with Injectafer?
Replies: 38
Views: 1694

Re: Experience with Injectafer?

Holland, I hope things have settled down and you have returned to 'normal' you. I suspect that Beth may be correct that aggravating the hip may have irritated your rls. It could also be the reduction/elimination of kratom. I definitely find an appreciable - though not excruciating - increase in my r...
by legsbestill
Wed Jan 16, 2019 12:53 pm
Forum: Help for Relationships
Topic: Update, Funny but True
Replies: 10
Views: 422

Re: Update, Funny but True

Yes; I have had the same experience. If I had to work I could keep going and get through surprisingly technical stuff even with virtually no sleep night after night. Just occasionally it would catch up with me, however, and I did have the humiliating experience of falling asleep in a small meeting r...
by legsbestill
Mon Jan 14, 2019 12:00 pm
Forum: Just Joined?
Topic: New to this group
Replies: 12
Views: 336

Re: New to this group

Please tell us what iron supplement you were taking. I would love to get my serum ferritin to over 100.
by legsbestill
Fri Jan 11, 2019 12:17 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Proferrin/Iron Heme Polypeptide Tablet
Replies: 18
Views: 358

Re: Proferrin/Iron Heme Polypeptide Tablet

Unlike you, Beth, I have the sort of mundane mind that will accept instructions from the side of a packet. I hadn’t even considered what dose to take and have now ordered (at a fairly hefty price tag - though cheap at the price - how often have I used that justification? - if it helps resolve the le...
by legsbestill
Tue Jan 08, 2019 7:16 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 55
Views: 1817

Re: Attempting to get off Ropinirole - again

My sleep consultant had me on pregabalin when I was withdrawing from pramipexole but unfortunately it did nothing for my symptoms at the time. She totally ignored my plight when I was without sleep for nearly 3 months after coming off pramipexole even though I contacted her several times. I now wish...
by legsbestill
Tue Jan 08, 2019 7:10 pm
Forum: Prescription Medications
Topic: What DA to take
Replies: 12
Views: 293

Re: What DA to take

Good luck Julie. I think it was your posts that first introduced me to kratom - I had never heard of it before and it has been a life saver for me over the last two and a half years. I don't rely on it solely but I don't know what I would do without it either. Thank you for your informative and enco...
by legsbestill
Tue Jan 08, 2019 5:44 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 55
Views: 1817

Re: Attempting to get off Ropinirole - again

Yes, cold turkey from 3.5mg sounds pretty severe. He does have a lot of experience getting people off d/as but I presume he always gives them opioids to assist. Your experience of reducing from 5 to 3.5 without dreadful symptoms mirrors my own in the early stages of withdrawing from pramipexole but ...

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