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by legsbestill
Sun Sep 23, 2018 10:22 pm
Forum: Just Joined?
Topic: An old member just returning
Replies: 5
Views: 49

Re: An old member just returning

Sorry, just saw that Steve already mentioned the a2d drugs. My bad! They seem sometimes to be slightly less effective for those who have been through dopamine agonist induced augmentation - but may be worth a try ...
by legsbestill
Sun Sep 23, 2018 10:20 pm
Forum: Just Joined?
Topic: An old member just returning
Replies: 5
Views: 49

Re: An old member just returning

The other potential treatment option is an alpha2delta ligand such as pregabalin or gabapentin. I know these are sometimes prescribed for back pain so maybe they would help with nerve damage also? I don’t know enough about them to say but they do work well for some for rls.
by legsbestill
Fri Sep 21, 2018 10:38 am
Forum: General Topics: RLS/WED
Topic: Published Research - General Sleep and RLS (WED)
Replies: 416
Views: 96528

Re: Published Research - General Sleep and RLS (WED)

Interesting that out of 16,600+ men the highest incidence of rls was 5%. I see an estimate of 10% of the population being afflicted with rls often but it does not accord with my anecdotal experience. I would say it is lower than that. I appreciate that more women than men get it but could the differ...
by legsbestill
Sat Sep 15, 2018 10:32 pm
Forum: Prescription Medications
Topic: Antipsychotics? Car accedent???
Replies: 7
Views: 117

Re: Antipsychotics? Car accedent???

There is some suggestion that the alpha-2-delta ligands work less well for those who have been through augmentation (although they do work for many). They are well worth trying however. I have seen some people report that weight lifting can be helpful for rls and many, many variations of diet recomm...
by legsbestill
Thu Sep 13, 2018 11:25 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: best iron suppliment to increase ferritin levels?
Replies: 16
Views: 607

Re: best iron suppliment to increase ferritin levels?

My GP has offered me iron injections but I asked Dr Buchfuhrer about them and he does not favour them. Can’t remember why but it sounded plausible. A member of a UK forum uses iron patches that she imports from the US and her serum ferritin has increased considerably. PatchMD is the site she buys th...
by legsbestill
Thu Sep 13, 2018 11:19 pm
Forum: Prescription Medications
Topic: Medication causing Apathy?
Replies: 30
Views: 351

Re: Medication causing Apathy?

It’s great that you are so proactive, Steve. I hope the tramadol er affords you some good sleep. It sounds like you could do with it.
by legsbestill
Tue Sep 11, 2018 7:48 pm
Forum: Prescription Medications
Topic: Medication causing Apathy?
Replies: 30
Views: 351

Re: Medication causing Apathy?

Steve, have you been taking breaks from the cannabis? I seem to recall you experienced a bad bout a year or two ago which you attributed to prolonged cannabis use. I’m sure you’ve thought of this but thought I’d mention it in case ... I hope you get to the bottom of the problem. Absence of joy - or ...
by legsbestill
Wed Aug 29, 2018 7:39 pm
Forum: Prescription Medications
Topic: dipyridamole
Replies: 15
Views: 318

Re: dipyridamole

Oh yes, I should have listed my other drugs. My regime is complicated - usually I take pramipexole (0.044mg) and pregabalin (lyrics) - gradually reducing and now down to an almost negligible 30mg. I have just finished a 3 week break from mirapexin during which I used Kratom to control my symptoms. W...
by legsbestill
Wed Aug 29, 2018 9:26 am
Forum: Prescription Medications
Topic: dipyridamole
Replies: 15
Views: 318

Re: dipyridamole

Hi srgraves01, I am one of the two dipyridamole experimenters. Although it does not eliminate symptoms, I am very glad I take dipyridamole. It helps to make the rls more bearable and definitely improves daytime well being. In the study, many of the subjects achieved complete relief using dipyridamol...
by legsbestill
Fri Aug 17, 2018 4:44 pm
Forum: Prescription Medications
Topic: Neupro
Replies: 20
Views: 624

Re: Neupro

That's affirming to hear, Ann. Most people seem to get on well with neupro. I kept thinking I must be mistaken when I found it less effective. I am currently taking a break from pramipexole - this is day 8 - and it is misery. Kratom, which used to work reasonably well, is not really dealing with the...
by legsbestill
Thu Aug 16, 2018 12:18 pm
Forum: Prescription Medications
Topic: Neupro
Replies: 20
Views: 624

Re: Neupro

I was put on neupro by my sleep consultant after withdrawing from pramipexole following augmentation. She left a gap of about three months between stopping pramipexole and starting neupro. I never found neupro to be as effective as pramipexole. I also started to augment on neupro quite quickly. I ha...
by legsbestill
Tue Aug 14, 2018 4:11 am
Forum: Prescription Medications
Topic: What med cocktail works for you??
Replies: 21
Views: 668

Re: What med cocktail works for you??

Ldn update: I wish I could say that it helps my rls but if it does it is minimal. I have read accounts by some people who found it completely resolved their symptoms but sadly that has not been the case for me. Maybe it will work that way for you - fingers crossed. I do think it helps me feel well a...
by legsbestill
Tue Aug 14, 2018 3:53 am
Forum: Physical Treatments
Topic: varicose vien removal and rls!!
Replies: 13
Views: 4105

Re: varicose vien removal and rls!!

Your story is heartbreaking. To induce false hope like that is almost criminal and surely negligent. You are definitely in for a hard time coming off the dopamine agonists without the help of an opioid BUT it will ultimately be worth it. If you are in an area where Kratom is legal it might be worth ...

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