Search found 463 matches

by legsbestill
Tue Aug 14, 2018 4:11 am
Forum: Prescription Medications
Topic: What med cocktail works for you??
Replies: 21
Views: 292

Re: What med cocktail works for you??

Ldn update: I wish I could say that it helps my rls but if it does it is minimal. I have read accounts by some people who found it completely resolved their symptoms but sadly that has not been the case for me. Maybe it will work that way for you - fingers crossed. I do think it helps me feel well a...
by legsbestill
Tue Aug 14, 2018 3:53 am
Forum: Physical Treatments
Topic: varicose vien removal and rls!!
Replies: 11
Views: 3708

Re: varicose vien removal and rls!!

Your story is heartbreaking. To induce false hope like that is almost criminal and surely negligent. You are definitely in for a hard time coming off the dopamine agonists without the help of an opioid BUT it will ultimately be worth it. If you are in an area where Kratom is legal it might be worth ...
by legsbestill
Tue Aug 14, 2018 3:39 am
Forum: Prescription Medications
Topic: New on Requip - question
Replies: 4
Views: 66

Re: New on Requip - question

I wish I had known what I now do when I first started taking a dopamine agonist (in my case mirapexin but from same family as your requip). I would say it is important not to ‘chase’ the symptoms with the drug. If you find that the dose of requip that currently works for you becomes inadequate, titr...
by legsbestill
Sun Aug 05, 2018 7:39 am
Forum: General Topics: RLS/WED
Topic: Sleeping position relating to RLS symptoms
Replies: 6
Views: 135

Re: Sleeping position relating to RLS symptoms

I find sleeping on my back optimal for rls symptom reduction. If I lie on my sides it can induce an attack. Lying on my front is occasionally helpful during an attack but I rarely choose to sleep that way. Unfortunately sleeping on my back exacerbates my snoring and, according to my sleep study, my ...
by legsbestill
Sat Jul 21, 2018 8:50 am
Forum: General Topics: RLS/WED
Topic: The lighter side of WED/RLS
Replies: 7
Views: 597

Re: The lighter side of WED/RLS

Yes; I became extremely limber during my pramipexole withdrawal as I was doing a yoga routine 3 or 4 times a night.
by legsbestill
Tue Jul 17, 2018 5:37 pm
Forum: Prescription Medications
Topic: Dipyridamole and cannabis interaction
Replies: 5
Views: 185

Re: Dipyridamole and cannabis interaction

:) Thank you, PB. It is partly courtesy of one W. Shakespeare so can't take too much credit.
by legsbestill
Fri Jul 13, 2018 11:59 pm
Forum: Prescription Medications
Topic: Dipyridamole and cannabis interaction
Replies: 5
Views: 185

Re: Dipyridamole and cannabis interaction

Thanks so much for that, Holland. I knew you were taking both and was particularly interested to hear your view, especially in light of your background. I am not a worrier by nature but I try to avoid an overly cavalier attitude. My GP is so accommodating that I am pretty much self-medicating, a sit...
by legsbestill
Fri Jul 13, 2018 2:54 pm
Forum: Prescription Medications
Topic: Dipyridamole and cannabis interaction
Replies: 5
Views: 185

Dipyridamole and cannabis interaction

As regulars will know I have introduced dipyridamole to my regime (currently 100mg daily) and while it doesn't knock symptoms out completely it is helpful in that it eliminates the creepy crawley sensation. It also helps a lot with daytime sleepiness and general malaise and I have felt immeasurably ...
by legsbestill
Sat Jul 07, 2018 4:00 am
Forum: Prescription Medications
Topic: Earlier Onset While Driving Requiring Early Oxycodone Dosage
Replies: 10
Views: 298

Re: Earlier Onset While Driving Requiring Early Oxycodone Dosage

The stress of the driving could itself be exacerbating the rls if I understand your message to be that the hours of driving have recently increased. I took er oxycodone (OxyContin) for awhile. I had to take 30mg in the evening for my symptoms when I was using it alone and I definitely had withdrawal...
by legsbestill
Thu Jul 05, 2018 9:57 pm
Forum: Prescription Medications
Topic: Augmentation or opioid withdrawal?
Replies: 8
Views: 260

Re: Augmentation or opioid withdrawal?

There is a lot of hearsay out there to suggest that kratom can be very helpful when withdrawing from an opioid.
by legsbestill
Wed Jul 04, 2018 11:31 am
Forum: Prescription Medications
Topic: Augmentation or opioid withdrawal?
Replies: 8
Views: 260

Re: Augmentation or opioid withdrawal?

I find of the (many) miseries of rls is the endless uncertainties it throws up. Maybe you would be right to take the plunge and stop the 5mg as you are going to be miserable whether you do that now or wait for current symptoms to settle down. On the other hand would you make the whole business much ...
by legsbestill
Tue Jul 03, 2018 10:16 pm
Forum: Prescription Medications
Topic: Augmentation or opioid withdrawal?
Replies: 8
Views: 260

Re: Augmentation or opioid withdrawal?

It may be worth stopping at 5mg of methadone for a while to allow those symptoms to settle down before reducing further (if you decide they are withdrawals). I hope they don’t trouble you for too long. With OxyContin, I found withdrawals lasted about 6 weeks. Of course if it is actually augmented rl...
by legsbestill
Tue Jul 03, 2018 10:38 am
Forum: Prescription Medications
Topic: Augmentation or opioid withdrawal?
Replies: 8
Views: 260

Re: Augmentation or opioid withdrawal?

I haven’t withdrawn from methadone but have from a high dose of OxyContin and I found the symptoms very close to those of augmented rls. One difference for me was that withdrawal symptoms presented more randomly through the day and at night. They weren’t identical (to rls) but only very subtly diffe...
by legsbestill
Thu Jun 28, 2018 9:03 pm
Forum: Augmentation
Topic: Exchange mild discomfort now for longer time to reach augmentation?
Replies: 3
Views: 213

Re: Exchange mild discomfort now for longer time to reach augmentation?

I agree entirely with Holland. It is possible that ultimately one’s current regime will be less successful but by using a multi-faceted (multi-drug) approach, there are likely to be options when that happens eg increase one drug while decreasing another or taking a drug holiday from one while using ...
by legsbestill
Thu Jun 28, 2018 8:48 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Changing my diet may have solved my RLS
Replies: 33
Views: 2863

Re: Changing my diet may have solved my RLS

Conversely, I feel that taking iron every second day has helped increase my levels more consistently than taking it every day. It is difficult to tell for sure however.

Go to advanced search