Search found 513 matches

by legsbestill
Fri Apr 19, 2019 11:53 pm
Forum: Physical Treatments
Topic: Vick's!!! <3 <3 <3
Replies: 11
Views: 418

Re: Vick's!!! <3 <3 <3

I read a post on healthunlocked recently of someone who found that menthol crystals mixed into an acqueous cream and applied to the legs helped their RLS a lot. In the hope-springs-eternal mode, my amazon order of menthol crystals is winging its way to me as I type. I applied Vicks to the soles of m...
by legsbestill
Fri Apr 19, 2019 11:39 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Wahls diet for WED? Trying it.
Replies: 83
Views: 19898

Re: Wahls diet for WED? Trying it.

So sorry to read of your worsened symptoms, Beth. I hope it turns out to be stress related for which at least there is an obvious (if not always easily achievable) solution. Also watch out for sleep deprivation - I think this can exacerbate RLS symptoms (in a cruel irony and easier to identify than ...
by legsbestill
Sat Mar 30, 2019 12:15 pm
Forum: Augmentation
Topic: Can I get augmentation using Mirapex twice a week?
Replies: 5
Views: 188

Re: Can I get augmentation using Mirapex twice a week?

I returned to pramipexole (mirapex) 18 months after withdrawing from a very high dose following augmentation. I stick to 0.088mg per day. At first I used it only 5 out of 7 days but now I take it every day and I take breaks every so often (one is due shortly which I am dreading). I supplement it wit...
by legsbestill
Sat Mar 30, 2019 11:39 am
Forum: Prescription Medications
Topic: Cannabis
Replies: 53
Views: 1100

Re: Cannabis

Hi QyX, There are a couple of strains mentioned in the incredibly long thread about cannabis started by NatWest. She mentions medical mass and also sensi star. I have also heard strawberry cough recommended. I am still searching for a strain that helps my RLS but haven't managed to source any of the...
by legsbestill
Sat Mar 30, 2019 11:36 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Nonmedication strategies for RLS by Shalini Paruthi,MD
Replies: 7
Views: 360

Re: Nonmedication strategies for RLS by Shalini Paruthi,MD

I suspect that what Dr. Paruthi is referencing is that, in a most cruel irony, lack of sleep actually exacerbates RLS. I have seen this referred to elsewhere also and it is certainly my experience. After I withdrew from pramipexole following augmentation, I went into a spiral of no sleep and terribl...
by legsbestill
Sat Mar 30, 2019 11:20 am
Forum: Just Joined?
Topic: Relaxis
Replies: 5
Views: 126

Re: Relaxis

I have a relaxis pad. The results are very mixed and I would say probably not worth the money. It works well for my symptoms if I go to bed during the day and the legs start but at night time it rarely has a positive effect and sometimes it actually makes the legs worse. It is sort of soothing thoug...
by legsbestill
Sun Mar 10, 2019 10:29 am
Forum: Prescription Medications
Topic: Cortisone Injection
Replies: 4
Views: 100

Re: Cortisone Injection

I think I read a post somewhere by a man who used an anal suppository of lidocaine each evening and it helped his rls a lot. I haven't tried it ... yet - things are relatively controlled at the moment and it would require a certain level of discomfort to hoist me over the disinclination to take medi...
by legsbestill
Sat Mar 02, 2019 4:03 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 77
Views: 2278

Re: Attempting to get off Ropinirole - again

Polar Bear, I think you should feel very proud of yourself for biting the bullet and going for it. You have achieved an amazing reduction in a relatively short period of time. Even though the withdrawal is so hard, the sense of taking back control from the drugs is an enormous compensation. Having b...
by legsbestill
Mon Feb 11, 2019 9:12 pm
Forum: Augmentation
Topic: Vibration helped me through the drug holiday
Replies: 5
Views: 428

Re: Vibration helped me through the drug holiday

Sounds like an amazing trip. I have a relaxis pad. For some unfathomable reason it works on my rls if I go for a nap during the day but not at night. In fact, sometimes at night time I think it actually aggravates my rls. I do find it soothing sometimes to run it if I wake up in the middle of the ni...
by legsbestill
Mon Feb 11, 2019 9:05 pm
Forum: Help for Relationships
Topic: What Relationships?
Replies: 38
Views: 3895

Re: What Relationships?

Red wine is an invariable trigger with me. I hardly ever drink it any more as it always causes a bad night.
by legsbestill
Mon Feb 11, 2019 8:58 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 77
Views: 2278

Re: Attempting to get off Ropinirole - again

Sorry to hear about your bad nights, Betty, but very glad to read that you have virtually halved your dose of ropinerole. That is amazing. Go you!
by legsbestill
Fri Feb 01, 2019 9:55 am
Forum: Prescription Medications
Topic: Experience with Injectafer?
Replies: 46
Views: 1992

Re: Experience with Injectafer?

That is wonderful news, Holland. Am absolutely delighted for you. It makes me feel more positive about my own situation as I am pretty convinced my rls responds to improved iron levels. It looks like I would have to travel to another country to get an Injectafer transfusion but would be worth it. I ...
by legsbestill
Fri Feb 01, 2019 9:51 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Iron Patches
Replies: 14
Views: 2027

Re: Iron Patches

I got my serum ferritin results last week and my iron had remained pretty much level. It was 66 and the last test (just before I started the iron patches) was also in the mid 60s - of course I have misplaced the note I made of the result. I am disappointed but at least it hadn't gone down. I am pret...
by legsbestill
Fri Feb 01, 2019 9:46 am
Forum: Prescription Medications
Topic: Cannabis
Replies: 53
Views: 1100

Re: Cannabis

Can you say what strain of cannabis you are taking, QyX? I looked at the tedtalk you linked and one thing that leaped out was the effect of the slight change in strain on the autistic kids - one strain worked like a miracle and a different one made no impact at all. None of the four strains of canna...
by legsbestill
Thu Jan 24, 2019 1:47 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Iron Patches
Replies: 14
Views: 2027

Re: Iron Patches

I have been using patches for about 2 months and just yesterday went for a serum ferritin test. It was 68 before I started so will be interested to see what it is now. I get the results next week and will post then.

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