Search found 442 matches

by legsbestill
Mon Jun 18, 2018 9:12 pm
Forum: Just Joined?
Topic: Hello from Schräg
Replies: 5
Views: 85

Re: Hello from Schräg

Hi Brian, your poem struck a cord and I love the bye-line ‘a real thing you don’t want’. When I was withdrawing from mirapexin (a dopamine agonist like your neupro) my sleep consultant was adamant that I reduce gradually but like Holland says it did prolong the agony. Having said that some people ha...
by legsbestill
Sun Jun 03, 2018 11:26 pm
Forum: General Topics: RLS/WED
Topic: What Calms You in the Night?
Replies: 23
Views: 699

Re: What Calms You in the Night?

We made something very similar when I was a child only we used tinned mandarin oranges and we arranged the biscuits in a circle, put some mandarins and juice on each, then whipped cream then two more layers of biscuit fruit and cream. It was always delicious - much nicer than the sum of its parts. W...
by legsbestill
Tue May 29, 2018 8:24 am
Forum: Just Joined?
Topic: Introducing myself
Replies: 17
Views: 476

Re: Introducing myself

Hi Jim, Good luck with your taper. In the meantime, given that you are on such a high dose of pramipexole you should look out of sudden onset sleep which can be very dangerous especially when driving. You will be amazed at how much more yourself you feel when you get off pramipexole. It is hard - ve...
by legsbestill
Tue May 29, 2018 8:21 am
Forum: Just Joined?
Topic: Introducing myself
Replies: 17
Views: 476

Re: Introducing myself

Hi Kathryn, Thank you for your intriguing remedy. I tried drinking lots of water for a while and it may have helped marginally with symptoms but I found the need to be constantly close to a bathroom quite difficult. I have never tried using water to alleviate symptoms once they come on. But do you n...
by legsbestill
Mon May 28, 2018 7:44 am
Forum: Augmentation
Topic: Augmentation- Cold Turkey
Replies: 16
Views: 488

Re: Augmentation- Cold Turkey

Belsheart, it is difficult to know what to say. Holland has given all the advice I would but just wanted to wish you all the best. I got off mirapexin without opioids. It is hard but I have no regrets. I felt so much better once I got the drug out of my symptom. In your shoes I would give Kratom a t...
by legsbestill
Sun May 27, 2018 9:30 am
Forum: Prescription Medications
Topic: Is your DA causing augmentation?
Replies: 121
Views: 21876

Re: Is your DA causing augmentation?

Wow! Well done you and kudos to your GP. I really hope the infusion helps enormously. I had a similar experience with my GP except rather than listen to me/peruse my fat file he said resignedly ‘What do you want?’ And he now mostly prescribes me whatever i ask for for my rls. They are rare though - ...
by legsbestill
Sun May 27, 2018 9:22 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Allaying friends' concerns re: kratom
Replies: 4
Views: 389

Re: Allaying friends' concerns re: kratom

Holland speaks great good sense as always. I don’t want to sound too dismissive of concerns but I would also suggest that you look very carefully at any posts concerning the dangers of Kratom. What I noticed was that most people who are having a very hard time with it are on a REALLY high dose - suc...
by legsbestill
Sun May 27, 2018 9:14 am
Forum: Augmentation
Topic: Augmentation- Cold Turkey
Replies: 16
Views: 488

Re: Augmentation- Cold Turkey

I really feel your pain. Huge kudos for getting so far all on your own. I reckon Holland is right and the worst is behind you. Like many on here I have been where you are and can verify that it is one of the hardest things I have done. I did it without opioids but if I were to do it again and I coul...
by legsbestill
Sat May 26, 2018 10:37 pm
Forum: Everything Else...just no RLS/WED!
Topic: Words!
Replies: 8
Views: 191

Re: Words!

My current favourite word is effulgent. My effulgence knows no bounds when I find a good use for it - and also when my rls is controlled and I get a good night's sleep.
by legsbestill
Sat May 26, 2018 10:29 pm
Forum: Prescription Medications
Topic: Dipyridamole
Replies: 153
Views: 7305

Re: Dipyridamole

Thanks for that
by legsbestill
Fri May 25, 2018 10:18 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Choosing a dispensary
Replies: 6
Views: 172

Re: Choosing a dispensary

I have added ‘hellacious’ to mine courtesy of a post of yours on another thread!
by legsbestill
Fri May 25, 2018 8:11 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Choosing a dispensary
Replies: 6
Views: 172

Re: Choosing a dispensary

Excellent apposite quote, mudslide. Thanks :wink:
by legsbestill
Fri May 25, 2018 8:05 am
Forum: Prescription Medications
Topic: Methadone and Gabapentin no longer working well
Replies: 39
Views: 1146

Re: Methadone and Gabapentin no longer working well

I have reintroduced mirapexin at the UK equivalent of .065 and it is working like a dream so far - though I am only about 3 months in. I take it 5 days out of 7 and use Kratom the other two. I don’t think my rls is anything like as severe as yours however.
by legsbestill
Fri May 25, 2018 8:01 am
Forum: Prescription Medications
Topic: Desperate
Replies: 27
Views: 410

Re: Desperate

I use Kratom to take a break from pramipexole two days a week. I also find it great for break through symptoms as my current regime is very much the bare minimum. I think it is a very handy addition to the arsenal of any rls sufferer. I have found the opposite of Ann - Kratom can make me very alert ...
by legsbestill
Fri May 25, 2018 7:36 am
Forum: Prescription Medications
Topic: Dipyridamole
Replies: 153
Views: 7305

Re: Dipyridamole

The start of the post (the whole first paragraph) is actually a quote from yawny which was meant to be in a yellow box. I will try to amend it. In fact Dipyridamole continues to work very well for me. I love it. In spite of the fact that I am having some sleep interruption at present, I am ‘myself’ ...

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