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by legsbestill
Mon Apr 23, 2018 9:52 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: CBD oil
Replies: 7
Views: 85

Re: CBD oil

Multi-tasking has its limits even for someone as able as you, Polar bear. It’s a pity that the cbd oil isn’t more effective, given that it’s actually legal. In fact, I understand there are some who gain relief using it but, as I said, I didn’t find it had any impact on my RLS.
by legsbestill
Mon Apr 23, 2018 6:31 am
Forum: General Topics: RLS/WED
Topic: What Calms You in the Night?
Replies: 8
Views: 84

Re: What Calms You in the Night?

I also use Kratom. I have a stretching routine that lasts about 20 minutes. If I’m really bad and have no other options I play chess (very badly) online. I read somewhere that a cup of coffee can settle the legs so I sometimes try that (oat milk makes a reasonable substitute for dairy). You need to ...
by legsbestill
Sun Apr 22, 2018 5:54 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: CBD oil
Replies: 7
Views: 85

Re: CBD oil

I tried it but have to say that it did nothing for my rls and I used it at quite a high strength - if didn't even serve to greatly alleviate the significant anxiety I felt at the breath-taking price I paid for the high strength stuff. Incidentally, I'm pretty sure cbd oil is legal in the UK, Polar B...
by legsbestill
Thu Apr 19, 2018 9:01 pm
Forum: Prescription Medications
Topic: gabapentin. 600mg. Tapering off
Replies: 12
Views: 143

Re: gabapentin. 600mg. Tapering off

Hi snodove, whether or not it is rls you have your symptoms sound very difficult to live with and Holland is on the button when he says that to address them you probably need to get an accurate diagnosis. As to coming off gabapentin, it would at least help you to assess whether that drug was doing a...
by legsbestill
Sun Apr 15, 2018 11:15 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Medical Marijuana
Replies: 424
Views: 32111

Re: Medical Marijuana

Is your doctor suggesting you go onto requip? That is another dopamine agonist. I would be inclined to discontinue mirapexin, preferably with the help of an opioid (as all the others have advised), and then stay away from dopamine agonists at least for a while - a minimum of 6 months. Going into req...
by legsbestill
Sat Apr 07, 2018 1:09 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 3
Views: 142

Re: Attempting to get off Ropinirole - again

It is probably worth getting off the ropinerole if only to see how bad your base line symptoms really are. How is your serum ferritin? I found getting this figure up helped with symptoms. As you don’t like Horizant, it might be better to eliminate this also. There are many on here (and elsewhere) wh...
by legsbestill
Fri Apr 06, 2018 10:34 am
Forum: Prescription Medications
Topic: Dipyridamole
Replies: 131
Views: 4426

Re: Dipyridamole

I am wondering if there is a cumulative effect with dipyridamole as it seems to be having an ever improving impact on my symptoms. Of course, it could just be one of those blips that I get when the legs are not a problem (at least I recall getting them way back in the mists of time when my rls was u...
by legsbestill
Thu Apr 05, 2018 11:20 pm
Forum: Prescription Medications
Topic: Dipyridamole
Replies: 131
Views: 4426

Re: Dipyridamole

Just a quick update: for the last four nights I have halved my dose of pramipexole. I am now taking one quarter of a 0.088 tablet (0.022). I have also reduced my dose of dipyridamole to 250 mg (from 325). I am gradually reducing pregabalin and am now taking 90mg nightly. On this regime I am getting ...
by legsbestill
Thu Apr 05, 2018 11:06 pm
Forum: General Topics: RLS/WED
Topic: Hyperarousal as symptom of rls
Replies: 3
Views: 136

Hyperarousal as symptom of rls

I see hyperarousal listed as a symptom of Rls on Johns Hopkins website and in the recent dipyridamole paper to name but two references. It is attributed to excess glutamate and is said to explain why Rls/wed sufferers are not tired during the day in spite of very disturbed nights. It is my misfortun...
by legsbestill
Fri Mar 30, 2018 3:27 am
Forum: Prescription Medications
Topic: Dipyridamole
Replies: 131
Views: 4426

Re: Dipyridamole

I have pondered further on the ‘normal’ issue and possibly exercised a complete ‘u’-turn over the last few minutes. Last night I took Kratom (although less than half the dose I would have taken pre-dipyridamole). I also had 100mg pregabalin (pre-dipyridamole I was on 200mg). I felt incredibly ‘norma...
by legsbestill
Fri Mar 30, 2018 3:05 am
Forum: Prescription Medications
Topic: Dipyridamole
Replies: 131
Views: 4426

Re: Dipyridamole

I absolutely agree with Holland that the most marked aspect of introducing dipyridamole is the return to feeling ‘normal’. It is pure wonderful. I’m not convinced that the pre-dipyridamole absence of normality was a symptom of RLS. In my case I think it was caused by the drugs I was on. I suspect th...
by legsbestill
Thu Mar 29, 2018 8:43 am
Forum: Prescription Medications
Topic: Dipyridamole
Replies: 131
Views: 4426

Re: Dipyridamole

The emoji was supposed to be only at the end. After the suggestion of adding more drugs. I really need to embrace my inability to access
these sophisticated non-verbal options and stop trying.
by legsbestill
Thu Mar 29, 2018 8:39 am
Forum: Prescription Medications
Topic: Dipyridamole
Replies: 131
Views: 4426

Re: Dipyridamole

:evil: It is very early days in this experiment. It could all go belly-up. I embarked on dipyridamole because although my system allowed me to sleep at night - intermittently, I really wasn’t functioning during the day. If you already have a reasonably satisfactory system why alter it? Sat and Sun a...
by legsbestill
Tue Mar 27, 2018 10:42 pm
Forum: Prescription Medications
Topic: Dipyridamole
Replies: 131
Views: 4426

Re: Dipyridamole

After your and my difficult early trial experience I am starting to think that perhaps the best advice for those that are interested in trying dipyridamole that are already taking medications for RLS might be to continue current medications but add dipyridamole while simultaneously slightly reducin...
by legsbestill
Tue Mar 27, 2018 6:37 am
Forum: Prescription Medications
Topic: Dipyridamole
Replies: 131
Views: 4426

Re: Dipyridamole

I am SO happy with this regime at the moment. I feel normal for the first time in years. I have been taking dipyridamole for over a month now - I will amend an earlier post that says 8 weeks - I think it was about 3 weeks at that stage - I must have been tired when I posted that. I am taking 325mg d...

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