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by legsbestill
Tue Jul 17, 2018 5:37 pm
Forum: Prescription Medications
Topic: Dipyridamole and cannabis interaction
Replies: 5
Views: 74

Re: Dipyridamole and cannabis interaction

:) Thank you, PB. It is partly courtesy of one W. Shakespeare so can't take too much credit.
by legsbestill
Fri Jul 13, 2018 11:59 pm
Forum: Prescription Medications
Topic: Dipyridamole and cannabis interaction
Replies: 5
Views: 74

Re: Dipyridamole and cannabis interaction

Thanks so much for that, Holland. I knew you were taking both and was particularly interested to hear your view, especially in light of your background. I am not a worrier by nature but I try to avoid an overly cavalier attitude. My GP is so accommodating that I am pretty much self-medicating, a sit...
by legsbestill
Fri Jul 13, 2018 2:54 pm
Forum: Prescription Medications
Topic: Dipyridamole and cannabis interaction
Replies: 5
Views: 74

Dipyridamole and cannabis interaction

As regulars will know I have introduced dipyridamole to my regime (currently 100mg daily) and while it doesn't knock symptoms out completely it is helpful in that it eliminates the creepy crawley sensation. It also helps a lot with daytime sleepiness and general malaise and I have felt immeasurably ...
by legsbestill
Sat Jul 07, 2018 4:00 am
Forum: Prescription Medications
Topic: Earlier Onset While Driving Requiring Early Oxycodone Dosage
Replies: 8
Views: 142

Re: Earlier Onset While Driving Requiring Early Oxycodone Dosage

The stress of the driving could itself be exacerbating the rls if I understand your message to be that the hours of driving have recently increased. I took er oxycodone (OxyContin) for awhile. I had to take 30mg in the evening for my symptoms when I was using it alone and I definitely had withdrawal...
by legsbestill
Thu Jul 05, 2018 9:57 pm
Forum: Prescription Medications
Topic: Augmentation or opioid withdrawal?
Replies: 8
Views: 163

Re: Augmentation or opioid withdrawal?

There is a lot of hearsay out there to suggest that kratom can be very helpful when withdrawing from an opioid.
by legsbestill
Wed Jul 04, 2018 11:31 am
Forum: Prescription Medications
Topic: Augmentation or opioid withdrawal?
Replies: 8
Views: 163

Re: Augmentation or opioid withdrawal?

I find of the (many) miseries of rls is the endless uncertainties it throws up. Maybe you would be right to take the plunge and stop the 5mg as you are going to be miserable whether you do that now or wait for current symptoms to settle down. On the other hand would you make the whole business much ...
by legsbestill
Tue Jul 03, 2018 10:16 pm
Forum: Prescription Medications
Topic: Augmentation or opioid withdrawal?
Replies: 8
Views: 163

Re: Augmentation or opioid withdrawal?

It may be worth stopping at 5mg of methadone for a while to allow those symptoms to settle down before reducing further (if you decide they are withdrawals). I hope they don’t trouble you for too long. With OxyContin, I found withdrawals lasted about 6 weeks. Of course if it is actually augmented rl...
by legsbestill
Tue Jul 03, 2018 10:38 am
Forum: Prescription Medications
Topic: Augmentation or opioid withdrawal?
Replies: 8
Views: 163

Re: Augmentation or opioid withdrawal?

I haven’t withdrawn from methadone but have from a high dose of OxyContin and I found the symptoms very close to those of augmented rls. One difference for me was that withdrawal symptoms presented more randomly through the day and at night. They weren’t identical (to rls) but only very subtly diffe...
by legsbestill
Thu Jun 28, 2018 9:03 pm
Forum: Augmentation
Topic: Exchange mild discomfort now for longer time to reach augmentation?
Replies: 3
Views: 135

Re: Exchange mild discomfort now for longer time to reach augmentation?

I agree entirely with Holland. It is possible that ultimately one’s current regime will be less successful but by using a multi-faceted (multi-drug) approach, there are likely to be options when that happens eg increase one drug while decreasing another or taking a drug holiday from one while using ...
by legsbestill
Thu Jun 28, 2018 8:48 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Changing my diet may have solved my RLS
Replies: 32
Views: 2482

Re: Changing my diet may have solved my RLS

Conversely, I feel that taking iron every second day has helped increase my levels more consistently than taking it every day. It is difficult to tell for sure however.
by legsbestill
Thu Jun 28, 2018 8:44 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Kratom berry compote
Replies: 26
Views: 2927

Re: Kratom berry compote

Wow. I found the opposite. It worked well for the urge to move symptoms but it kept me awake. I hope it continues to work well for you.
by legsbestill
Wed Jun 27, 2018 7:17 am
Forum: General Topics: RLS/WED
Topic: RLS Foundation hosting a Patient Symposium
Replies: 4
Views: 235

Re: RLS Foundation hosting a Patient Symposium

2bassetmom, your daughter should get her serum ferritin checked. If it is low it may be contributing to her rls onset.
by legsbestill
Tue Jun 26, 2018 9:39 pm
Forum: Prescription Medications
Topic: What med cocktail works for you??
Replies: 13
Views: 147

Re: What med cocktail works for you??

I continue to find it helpful to read of other peoples regimes and totally understand why you ask. I have experimented with a number of different options since I came off pramipexole two years ago after augmenting. My rls definitely responds better to a cocktail of meds at a low dose. I currently ta...
by legsbestill
Tue Jun 26, 2018 9:18 pm
Forum: Prescription Medications
Topic: Meds, ferritin, supplements, mthfr, etc
Replies: 5
Views: 157

Re: Meds, ferritin, supplements, mthfr, etc

You are probably already aware but amitryptiline exacerbates rls in most sufferers (not that I’m suggesting you discontinue it without discussing with your medical advisers. Steve and Holland have said everything I would have otherwise. In fact, there is a good chance you won’t get better advice eve...
by legsbestill
Tue Jun 26, 2018 9:12 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: CBD oil
Replies: 18
Views: 807

Re: CBD oil

I have seen reports from rls sufferers on other forums (fora for the purists) saying that cbd helped a lot but given how expensive it is it’s difficult to recemmend it very highly.

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