Search found 426 matches

by legsbestill
Wed May 23, 2018 9:10 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Iron has helped
Replies: 4
Views: 76

Re: Iron has helped

That’s fantastic. It’s great to get your updates.
by legsbestill
Wed May 23, 2018 9:09 pm
Forum: Prescription Medications
Topic: Desperate
Replies: 17
Views: 100

Re: Desperate

Sorry, for ‘norco’ in my post read ‘hydrocodone’. Also keep your dose of carbidopa/levidopa to the absolute lowest you can - ideally it should not be taken along with requip as they are from the same family - dopamine agonists - and there is a significant danger of augmentation (there is a whole sec...
by legsbestill
Wed May 23, 2018 8:56 pm
Forum: Prescription Medications
Topic: Desperate
Replies: 17
Views: 100

Re: Desperate

I felt the same way as you when I first got responses in here to my initial cry for help: so grateful that there are people out there who would reach out to help so generously. It is so affirming when this condition can be so isolating. Sounds like your rls treatment journey has begun! Asking yourse...
by legsbestill
Wed May 23, 2018 10:23 am
Forum: Help for Relationships
Topic: Sleeping Arrangements
Replies: 15
Views: 1286

Re: Sleeping Arrangements

I should have said that a practical step we took was to get individual single quilts so that the constant movement doesn't result in one person getting all the duvet coverage. Since moving house we are in a much smaller bed - a regular double but the individual quilts helps to keep a personal comfor...
by legsbestill
Wed May 23, 2018 10:09 am
Forum: Prescription Medications
Topic: Desperate
Replies: 17
Views: 100

Re: Desperate

I suspect that many with really bad RLS have felt as desperate as you describe at some stage/many stages. Like the others I feel I have made my peace with it - at least up to a point. It has definitely helped me to regard it as a journey. I would like to emphasise what others have said: in general R...
by legsbestill
Sun May 20, 2018 8:31 pm
Forum: Prescription Medications
Topic: Uh-oh... methadone hassles?
Replies: 25
Views: 252

Re: Uh-oh... methadone hassles?

Hi mudslide, I also use Kratom as part of my system to manage my rls. I find it very effective for my rls. I have read about it being stimulating at low doses and more soporific at higher doses. I found Kratom to have an alerting effect at times and I did try increasing the dose to get to the point ...
by legsbestill
Sun May 20, 2018 2:29 am
Forum: Prescription Medications
Topic: Has anyone used Lyrica for RLS
Replies: 3
Views: 67

Re: Has anyone used Lyrica for RLS

It does have some side effects, the most immediate being weight gain. It can also cause gloominess. At higher doses i got patches of inflammation on my skin. It makes me a bit dizzy and also quite tired. I sometimes get a weird sense of weakness in one of my legs when on a higher dose also.
by legsbestill
Sun May 20, 2018 2:25 am
Forum: Prescription Medications
Topic: Has anyone used Lyrica for RLS
Replies: 3
Views: 67

Re: Has anyone used Lyrica for RLS

Yes; it is reasonably effective for rls. Especially for those who have not previously augmented on the dopamine agonist family of drugs. It often works well on its own but it can be particularly effective in conjunction with other drugs. I take a low dose of it in conjunction with a tiny dose of pra...
by legsbestill
Mon May 14, 2018 3:41 pm
Forum: Prescription Medications
Topic: Uh-oh... methadone hassles?
Replies: 25
Views: 252

Re: Uh-oh... methadone hassles?

Plus one for the kratom suggestion. It is a fantastic as-and-when remedy and seems to support most other treatments well.
by legsbestill
Sun May 13, 2018 9:16 pm
Forum: General Topics: RLS/WED
Topic: Refractory RLS
Replies: 8
Views: 136

Re: Refractory RLS

Just a couple more points: I would not expect Horizant to make much impact on his symptoms at this stage. It is worth continuing to take it for when his augmented symptoms settle down as it can take a while to kick in. My instinct would be the same as Ann’s: that it might be worth moving towards dis...
by legsbestill
Sun May 13, 2018 9:05 pm
Forum: General Topics: RLS/WED
Topic: Refractory RLS
Replies: 8
Views: 136

Re: Refractory RLS

Over two months after I took my last pramipexole tablet I was still experiencing severe rls all night and got at most a few hours sleep each week. At that stage my GP prescribed OxyContin. I needed 30mg to get relief - 20mg did not help much. I started to recover once I started taking OxyContin at 3...
by legsbestill
Sat May 12, 2018 10:29 am
Forum: Augmentation
Topic: "drug holiday" from Mirapex
Replies: 14
Views: 359

Re: "drug holiday" from Mirapex

You haven’t said what dose of mirapexin you were actually on. In your shoes, I would be very slow to return to a dopamine agonist at this stage. Although the nausea may not be caused by the withdrawal, another symptom you describe - the legs going into spasm - almost certainly is. You have gone thro...
by legsbestill
Wed May 09, 2018 10:35 pm
Forum: Augmentation
Topic: "drug holiday" from Mirapex
Replies: 14
Views: 359

Re: "drug holiday" from Mirapex

I didn’t experience nausea - just violently increased rls symptoms so that it wasn’t possible to lie in bed at all. Try ginger for nausea - I take chrystalised ginger. It works well. It took a long time for my symptoms to settle down after I stopped mirapexin. Starting OxyContin and getting my iron ...
by legsbestill
Wed May 09, 2018 10:27 pm
Forum: Prescription Medications
Topic: Airsickness meds?
Replies: 13
Views: 185

Re: Airsickness meds?

I was going to suggest ginger - Chrystalised ginger is what I use. Ginger has been found to be very effective in studies - as effective as some pharmaceutical options. There are also wrist bands that apply pressure to a particular point on your wrist which is supposed to help with nausea. I used the...
by legsbestill
Wed May 09, 2018 10:22 pm
Forum: General Topics: RLS/WED
Topic: Orthofix fusing machine
Replies: 6
Views: 142

Re: Orthofix fusing machine

Poor you; that sounds miserable. When you say ‘all the drugs for rls’ could you specify which drugs? Have you tried opioids such as tramadol and OxyContin? There are numerous suggestions of dietary changes out there which some people find very helpful - fodmap, anti-inflammatory, veganism, gluten fr...

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