Search found 13 matches

by Midnightmarathon
Fri Aug 16, 2019 4:13 am
Forum: Just Joined?
Topic: Finding a doctor who can prescribe Opiates
Replies: 8
Views: 173

Re: Finding a doctor who can prescribe Opiates

Thank you Steve! this is a big help!
by Midnightmarathon
Thu Aug 15, 2019 6:10 pm
Forum: Just Joined?
Topic: Finding a doctor who can prescribe Opiates
Replies: 8
Views: 173

Re: Finding a doctor who can prescribe Opiates

I did get an appointment with a doctor at Columbia Presbyterian in NYC but they can't see me until 10/29 and they wouldn't tell me if they perscrible opiates or not. Said I had to come for a consult to find out.
by Midnightmarathon
Thu Aug 15, 2019 6:08 pm
Forum: Just Joined?
Topic: Finding a doctor who can prescribe Opiates
Replies: 8
Views: 173

Re: Finding a doctor who can prescribe Opiates

Thank you Ann. Unfortunately, moving is not an option for me since I am a single mother of an autistic young man and a daughter who also has significant issues and is no where near able to support herself. I am trying to get my son placed in group housing but it is a long and difficult process, even...
by Midnightmarathon
Thu Aug 15, 2019 2:03 am
Forum: Just Joined?
Topic: Finding a doctor who can prescribe Opiates
Replies: 8
Views: 173

Finding a doctor who can prescribe Opiates

Hi, I have been traveling over 300 miles to Baltimore for the past 3 years to receive treatment at John Hopkins. This was supposedly one to the 6 best centers for RLS treatment in the country. When I was first seen there, I was told I needed to go on Methadone due to the severity of my RLS. I was re...
by Midnightmarathon
Fri Oct 21, 2016 9:29 pm
Forum: Just Joined?
Topic: New here...PLMD...struggling
Replies: 13
Views: 1881

Re: New here...PLMD...struggling

I'm new here as well, but I also suffer from extreme PLM which have gotten to the point of as often as 3x/minute. You have had the some of the same people respond to you that I have had - are these guys/ladies the best or what? For what it is worth, I have found gabapentin to be a very helpful adjuc...
by Midnightmarathon
Fri Oct 21, 2016 7:13 pm
Forum: Prescription Medications
Topic: Started Methadone
Replies: 13
Views: 1895

Re: Started Methadone

Debbluebird, Thank you for your response. It sounds like Steve, you also, have suffered horribly with this thing. I tell people that sometimes I feel like Linda blair! Were you ever able to work again? I have so much going on with my health right now, I can't imagine even looking for a job much less...
by Midnightmarathon
Fri Oct 21, 2016 5:30 pm
Forum: Prescription Medications
Topic: Started Methadone
Replies: 13
Views: 1895

Re: Started Methadone

Steve, Wow, I am so sorry you went through that and also grateful that you stuck around!!! I too was getting to the point of suicide this summer. This monster pushes us right to the edge of that cliff doesn't he? Anyway, I also am in a much better place now. I take it you are in a state where you ca...
by Midnightmarathon
Thu Oct 20, 2016 7:20 pm
Forum: Prescription Medications
Topic: Started Methadone
Replies: 13
Views: 1895

Re: Started Methadone

Thanks Ann & Steve, Thanks for your feedback! I am learning so much here. I guess I will stick with the 5mg for now and deal with the bad nights. I wake up pretty much every night with "the jerks" but mostly I am able to get back to sleep. It's just that intial falling to sleep that is...
by Midnightmarathon
Thu Oct 20, 2016 1:25 pm
Forum: Prescription Medications
Topic: Started Methadone
Replies: 13
Views: 1895

Started Methadone

Hi, I’ve been meaning to write for many weeks now, but it just feels like I am on a roller coaster that I can’t seem to get off. In the past 2 months I have been put on continued disability due to the severity of the RLS/PLMS, lost my job due to this (and I am a single mom with 2 kids with disabilit...
by Midnightmarathon
Mon Sep 19, 2016 10:09 pm
Forum: Just Joined?
Topic: Hi, new here
Replies: 21
Views: 2835

Re: Hi, new here

To Steve and anyone else who has managed to get treated with opiods, It seems to be the opinion of many if not all of you that I am at the point where I need opiates to control the monster? NOW the question, how the heck to you find a doctor to prescrible them? I went to for a 3rd opinion today and ...
by Midnightmarathon
Wed Sep 14, 2016 3:58 pm
Forum: Just Joined?
Topic: Hi, new here
Replies: 21
Views: 2835

Re: Hi, new here

Thanks all AGAIN for the great advice! John Hopkins here I come! Does anyone know if Yale has a no opoids policy as well. I could go there instead. I have an appt at JH for January. Another question, when you come off of Dopamine drugs how long do you recommend staying off of them? Seems like the mi...
by Midnightmarathon
Mon Sep 12, 2016 10:13 pm
Forum: Just Joined?
Topic: Hi, new here
Replies: 21
Views: 2835

Re: Hi, new here

Hi all, sorry for delayed thanks but I know you understand when I tell you I was busy trying out for part in "the walking dead". Figured I'd be a shoein as no makeup required. Anyhow, thank you all sooo much for you support and even more so for the valuable information! Wow, I had no idea ...
by Midnightmarathon
Wed Sep 07, 2016 12:16 am
Forum: Just Joined?
Topic: Hi, new here
Replies: 21
Views: 2835

Hi, new here

Hello all, I am brand new here and thought I would introduce myself. I apologize that this will be long, but there’s a lot to say. I have had RLS/PLMD for at about 30 years and over the last decade it has become very severe progressing to the point that sometimes I am getting as many as 3 or 4 PLM a...

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