Search found 142 matches

by Icantsleep
Sun Jan 05, 2020 4:04 am
Forum: Just Joined?
Topic: 1st post after 24 years of RLS
Replies: 84
Views: 2275

Re: 1st post after 24 years of RLS

Got my CPAP today

Lots to learn and lots to get used to ....
by Icantsleep
Fri Jan 03, 2020 7:26 am
Forum: Augmentation
Topic: Using Neupro 3 months AFTER mirapex augmentation
Replies: 20
Views: 973

Re: Using Neupro 3 months AFTER mirapex augmentation

How did your appointment go? Xmas, xmas holidays for others and a one year old who continues to battle pnemonia has kept me from doing much The appointment itself wasnt very inspiring One right direction is I'm being fitted for a CPAP in about 36 hours . Other than that , I have very little support...
by Icantsleep
Fri Jan 03, 2020 6:05 am
Forum: Prescription Medications
Topic: How to tolerate ADVERSE effects of tramadol
Replies: 7
Views: 149

Re: How to tolerate ADVERSE effects of tramadol

Also look into Tapentadol, it is similar to Tramadol but still different enough that it might fix your RLS but not cause the problems you are currently having with Tramadol. Tapentadol is a moderate potent opioid, right in the middle between Tramadol and Morphine. You should look into this. Maybe i...
by Icantsleep
Fri Dec 20, 2019 2:50 am
Forum: Augmentation
Topic: Using Neupro 3 months AFTER mirapex augmentation
Replies: 20
Views: 973

Re: Using Neupro 3 months AFTER mirapex augmentation

Havent updated this in a bit I got really sick again , so no vaping THC for the last 9 days .... but I dont attribute my worsening rls to just this Each night I seem to have more mild to moderate rls than the previous night 0.0625mg of mirapex worked like a charm for 3 days. 3 weeks later I am eithe...
by Icantsleep
Tue Dec 17, 2019 2:05 pm
Forum: Prescription Medications
Topic: How to tolerate ADVERSE effects of tramadol
Replies: 7
Views: 149

Re: How to tolerate ADVERSE effects of tramadol

Good luck to you! You really need to see a specialist because in your case a number of different complicated symptoms intersect. Whatever is going on with your breathing needs to be carefully investigated and treated. It is very uncommon and even a bit bizarre that you react so bad to even really r...
by Icantsleep
Mon Dec 16, 2019 9:12 pm
Forum: Prescription Medications
Topic: How to tolerate ADVERSE effects of tramadol
Replies: 7
Views: 149

Re: How to tolerate ADVERSE effects of tramadol

Wish I had some knowledge - unfortunately not. Because of chronic appendicitis that no one identified until it had started leaking, I had a long surgery in which lost some bits of my gastro system. Since then, some things just plain bother me. Transit time can literally be 30 minutes between ingest...
by Icantsleep
Mon Dec 16, 2019 5:37 pm
Forum: Prescription Medications
Topic: How to tolerate ADVERSE effects of tramadol
Replies: 7
Views: 149

Re: How to tolerate ADVERSE effects of tramadol

.... I suppose if I coat the med any further , I run the risk of not getting the proper dose.

I clearly need off tramadol but I need to find something to cover rebound then replace it

Looking to get a cpap to help me breathe as well before even taking a moderate codeine dose etc ...
by Icantsleep
Mon Dec 16, 2019 1:51 am
Forum: Prescription Medications
Topic: How to tolerate ADVERSE effects of tramadol
Replies: 7
Views: 149

How to tolerate ADVERSE effects of tramadol

So I'm still stuck on a tiny dose of 25mg of tramadol at bedtime (and sometimes an overnight booster dose of 12.5mg, which is actually tolerated even less) I literally went back on mirapex 0.0625MG AFTER I augmented 4 months ago because 75-100mg of tramadol was making me very ill . I realize a whole...
by Icantsleep
Thu Dec 12, 2019 9:25 pm
Forum: Just Joined?
Topic: 1st post after 24 years of RLS
Replies: 84
Views: 2275

Re: 1st post after 24 years of RLS

My Mirapex dose is 0.25mg and I augmented first on mirapex, then on Neupro and went back on Mirapex because I was about to do an interstate move, so I had to wait until I got in with a new doctor before starting opioids. As for clonazepam, I take a 1mg Quick Dissolving Tablet and learned that I hav...
by Icantsleep
Wed Dec 11, 2019 8:27 pm
Forum: Just Joined?
Topic: 1st post after 24 years of RLS
Replies: 84
Views: 2275

Re: 1st post after 24 years of RLS

I also have UARS and have used an auto CPAP for it for years even though my AHI has always been below 10. However, not that I am on an opioid, my neurologist keeps asking me if I am continuing to use my CPAP and if I am checking the results each day. I reassure her that I do. I don't know how much ...
by Icantsleep
Tue Dec 10, 2019 7:32 pm
Forum: Just Joined?
Topic: 1st post after 24 years of RLS
Replies: 84
Views: 2275

Re: 1st post after 24 years of RLS

So I'm at about day 10 of resuming mirapex AFTER I augmented and withdrew from it 3 months ago I've got it down to : Codeine 7.5mg 430pm 2 draws strong sativa 730pm Mirapex 0.0625mg 9pm Tramadol 25mg 930pm (THIS GIVES ME PROBLEMS) Clonazepam 0.375mg 10pm 3 draws strong indica 1005pm Attempt sleep 10...
by Icantsleep
Fri Dec 06, 2019 3:17 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 215
Views: 6770

Re: Attempting to get off Ropinirole - again

Marie - I think you are such a nice sweet person that they may be taking advantage of you. Do you have someone who can some with you? I have gone with my best friend as an advocate, and for my mother. Sometimes someone else who will be a bit more forceful can do what we cannot. I agree with this Br...
by Icantsleep
Thu Dec 05, 2019 9:09 pm
Forum: Augmentation
Topic: Using Neupro 3 months AFTER mirapex augmentation
Replies: 20
Views: 973

Re: Using Neupro 3 months AFTER mirapex augmentation

I had mild rls in my left hip at 2am that woke me up . I got back to sleep 60 minutes later after some half asleep stretching and .375mg clonazepam and strong indica. (I took the other .375mg earlier at lights out) ... I also had mild rls disturb me this afternoon as I lay with my sick daughter I ha...
by Icantsleep
Wed Dec 04, 2019 10:31 pm
Forum: Augmentation
Topic: Using Neupro 3 months AFTER mirapex augmentation
Replies: 20
Views: 973

Re: Using Neupro 3 months AFTER mirapex augmentation

So I did the same thing last night pretty much , except I took clonazepam later I attribute my 3am rls to this It was mild but woke me up and kept me up for maybe 30 minutes I took no other medication and fell back asleep No waking up in a panic , but when I woke up again at 530am , I was a bit upse...
by Icantsleep
Tue Dec 03, 2019 6:34 pm
Forum: General Topics: RLS/WED
Topic: Circadian rhythm disorders ... Who's got one ???
Replies: 13
Views: 277

Re: Circadian rhythm disorders ... Who's got one ???

I dont mean to nag , but are you able to keep a 24 hour pattern with the aid of this regime? No worries :) Yes, I am. There are some nights where I sleep late, but they have been more sparse. On most nights I get up around 6:30am to 7am and I go to sleep between 11pm and midnight. I forgot to add t...

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