Restless Legs Syndrome (RLS) Discussion Board

So my doctor wants me to determine if I can have this device shipped to Canada .
The trials seemed very promising and they've sure got a slick website that seems to make alot of big life changing claims, but the price and availability still seem to be an issue .

Has this device made any progress ...

Well ..... it's sure been a while

Basically what happened is I continued to wean off of Clonazepam while making no other medication change.

MY RLS WAS 98% GONE FOR 3-4 MONTHS .
I thought I had found the source of my rls , and that I was "cured"

I slightly upped my Codeine dose late/November ...

So still dragging myself through life
Some days better than others

Still committed to gettimg off of Clonazepam.
Got it down to about 0.07mg nightly.
Decided to switch to a liquid(syrup) form which caused a significant problem when mixed with my Codeine.
For whatever reason I'd feel nothing ...

Is anyone else even taking this for RLS ??
I may be more inclined to take it if I heard another success story .
I'm a bit deterred otherwise I wish. I just convinced my doctor to prescribe it, then the pharmacy got back to her and told her my insurance doesn't cover it. So she said forget it. I ...

So I'm going to revive this topic

I've finally started a mere 25mg dipyridamole nightly for 4 nights now
Even at this very low dose I've noticed a moderate improvement of RLS onset symptoms in that they occur later and less severe, and a slight improvement in the length of duration of rebound ...

Has your doctor said you could try codeine contin? I wonder if a more potent opioid wouldn't be better, like hydromorph contin?


I've had a filled Rx for a while
I tried it once and it certainly stopped the RLS at the time.
It seemed a bit too heavily sedating and most concerning it lasted ...

Alright.... so ....

Once I stopped Neupro patch my symptoms completely left my right side and BOTH my arms .
I then seemed to have increased symptoms in my left trunk
This went away by resting in zero gravity ,which was something the sales guy told me would happen if I bought my tempurpedic smart ...

I was augmenting (again) for sure , for like the 7th time on a DA .
Symptoms in both legs and both ARMS simultaneously.
.... what puzzles me is why I was able to go so long before this occurred.
I suppose it took a return of "normal" symptoms before the augmentation symptoms presented themselves ...

I've had RLS for 26 years
I've been on Clonazepam for nearly 28 years and it is the ONLY medication ive never stopped using.
Recently I reduced my dose and my RLS symptoms were significantly reduced
This was consistent for months until about a month ago when my RLS returned (mostly due to DA ...

Hi again everyone
Been a while

I wish I could say I've been gone for 6 months because my symptoms disappeared but not quite the case.
Taking care of 2 kids under 6, with one of them having very special needs is so consuming I really don't have time for myself
However ....
The whole music thing ...

This is definitely a positive step in the right direction for treating extremely severe refractory cases of RLS .

One of the things that many of us have used when our RLS is out of control has been "distraction". The usual list includes things like crosswords, Suduko, a very good novel or movie, etc. Something that keeps the brain engaged.

So it sounds like music is able to do this for you. I tried it a ...

ViewsAskew wrote: Wed Aug 18, 2021 10:40 pm We definitely know that emotion is tied to neurotransmitters. Glad you had at least a temporary reprieve.

Oops

Should be spelt FRISSON

Moderator EDIT Aug 23: Fixed spelling

At the risk of triple posting this , I felt this needed it's own thread

I was about to commence Buprenorphine, but wanted to delay it for multiple reasons

I discovered that FRISSION caused by listening to emotion provoking music , although briefly, made RLS go from treatment refractory to almost ...

So unfair that it won't last

How do I make last ????

1. Keep the dose as low as possible
- by letting a few symptoms still appear
- by adding a low dose of pregabalin or gabapentin, or a very low dose of an opioid

2. Keep your iron stores up.

3. Cultivate a positive outlook. I know it's ...