Search found 16 matches

by suttmes69xx
Tue Aug 06, 2019 10:12 pm
Forum: General Topics: RLS/WED
Topic: My RLS nightmare after surgery
Replies: 10
Views: 623

Re: My RLS nightmare after surgery

Thanks Steve
by suttmes69xx
Tue Aug 06, 2019 6:19 pm
Forum: General Topics: RLS/WED
Topic: My RLS nightmare after surgery
Replies: 10
Views: 623

Re: My RLS nightmare after surgery

Thanks. I am a member of RLS Foundation. Is the pamphlet you are talking about Surgery and RLS? I didn't see where it specifically mentioned dipenhydramine ..
by suttmes69xx
Fri Aug 02, 2019 10:24 pm
Forum: General Topics: RLS/WED
Topic: My RLS nightmare after surgery
Replies: 10
Views: 623

Re: My RLS nightmare after surgery

I thought that I had my RLS under control. After taking oral iron for some time to raise my Ferritin level, my RLS was much better. That is until I recently went into the hospital for an endoscopy procedure. I was not allowed to take my PD medications before the procedure. When I woke up, my RLs was...
by suttmes69xx
Tue Apr 16, 2019 1:25 am
Forum: General Topics: RLS/WED
Topic: Foundation Webinar on Co-morbid conditions
Replies: 17
Views: 257

Re: Foundation Webinar on Co-morbid conditions

Thanks to all. While searchng for more information, I found 2 helpful videos when asking " is there a link between iron levels and RLS?" The videos are by Dr. Richard Allen who apparently works with Dr. Earely out of John Hopkins. His work seems to indicate that there is valuable informati...
by suttmes69xx
Mon Apr 15, 2019 8:39 pm
Forum: General Topics: RLS/WED
Topic: Foundation Webinar on Co-morbid conditions
Replies: 17
Views: 257

Re: Foundation Webinar on Co-morbid conditions

Thanks for your reply. But I am confused. If what you say is true, why does the Paper put out by RLS.Org -Understanding Iron & Restless Leg Symdrome- (along with so many other articles talking about relationship between RLS and low brain Ferritin ) stress the importance of testing blood iron. I ...
by suttmes69xx
Mon Apr 15, 2019 3:48 pm
Forum: General Topics: RLS/WED
Topic: Foundation Webinar on Co-morbid conditions
Replies: 17
Views: 257

Re: Foundation Webinar on Co-morbid conditions

I agree that this was a really informative webinar. However, I am a little confused. It is my understanding that most RLS patients have low Ferritin levels in the brain. I have heard discussion that our Ferritin levels should be over 100. But Dr. Ondo said that Ferritin levels can be artificially el...
by suttmes69xx
Sun Sep 16, 2018 8:38 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: best iron suppliment to increase ferritin levels?
Replies: 17
Views: 1566

Re: best iron suppliment to increase ferritin levels?

I had to stop taking iron for now as my lower intestines just couldn't handle it. Like you said, yawny, I was doing fine and then suddenly I really felt sick. I'm trying to get everything back to normal and then will try again. My challenge is that I take Sinemt for my PD and it also upsets my stoma...
by suttmes69xx
Sun Sep 16, 2018 8:16 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Changing my diet may have solved my RLS
Replies: 36
Views: 6044

Re: Changing my diet may have solved my RLS

Interesting. I find that if I eat too much red meat for dinner, it really sets off my RLS at bedtime. That makes no sense to me at all.
by suttmes69xx
Sun Sep 09, 2018 6:57 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: best iron suppliment to increase ferritin levels?
Replies: 17
Views: 1566

Re: best iron suppliment to increase ferritin levels?

What digestive enzymes do you take? I had to stop iron for now as it was causing problems with lower intestines.
by suttmes69xx
Mon Aug 06, 2018 11:16 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: best iron suppliment to increase ferritin levels?
Replies: 17
Views: 1566

Re: best iron suppliment to increase ferritin levels?

thanks for the reply. But how is it possible to take iron 3 x a day on empty stomach. My research showed you should take it 2 hours after eating and not eat for 2 more hours.,
by suttmes69xx
Mon Aug 06, 2018 9:22 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: best iron suppliment to increase ferritin levels?
Replies: 17
Views: 1566

best iron suppliment to increase ferritin levels?

Even though I have been taking iron supplements for 2 months, my ferritin has fallen from 65.1 to 62.1. I am taking Solgar Gentle Iron (iron bisglycinate) 50 mg every other day. Even though it is gentle on my stomach, not increasing my GERD or constipation, it does not seem to improve my ferritin le...
by suttmes69xx
Sun Jul 01, 2018 6:16 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Changing my diet may have solved my RLS
Replies: 36
Views: 6044

Re: Changing my diet may have solved my RLS

Thanks so much for clarifying that, Rustsmith. I wonder why my PC insists that the best way to absorb the most iron is to take it every other day. Are their different expert opinions on this?
by suttmes69xx
Sun Jul 01, 2018 5:08 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Changing my diet may have solved my RLS
Replies: 36
Views: 6044

Re: Changing my diet may have solved my RLS

Badnights, I'm a little confused. If iron isn't absorbed unless your blood levels are low, how does taking iron everey day help?
by suttmes69xx
Thu Jun 28, 2018 12:15 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Changing my diet may have solved my RLS
Replies: 36
Views: 6044

Re: Changing my diet may have solved my RLS

Thanks for the replies. I am aware of the augmentation issues related to Sinemt. Unfortunately, I need to take Sinemt in order to function, so have no choice in the matter. I did listen to the Webinar on iron and RLS, but just didn't remember the comment about taking the iron every other day. I do t...
by suttmes69xx
Wed Jun 27, 2018 8:23 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Changing my diet may have solved my RLS
Replies: 36
Views: 6044

Re: Changing my diet may have solved my RLS

I have both RLS and Parkinson ’s disease. I try to eat a healthy diet and cut down on carbs. My problem is that eating protein reduces the absorption of my Sinemet (dopamine). Because of my current schedule it is not always possible to avoid taking Sinemet around meal time, so I end up eating carbs,...

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