Search found 17 matches

by cfkid
Mon Apr 16, 2018 11:36 pm
Forum: Prescription Medications
Topic: Gabapentin Side Effect
Replies: 9
Views: 2292

Gabapentin Side Effect

All, I could use some help. I've been on 600 MG of gabapentin and 30mg of temazepam for about a year or so. I have RLS and PLMD, but my RLS is much less of a problem than my PLMD. Over about the last 3 months, I've had some pain in my throat. It feels like my adam's apple is hitting something all th...
by cfkid
Sat Apr 29, 2017 12:26 pm
Forum: Prescription Medications
Topic: RLS, Fatigue, and Klonopin
Replies: 37
Views: 5194

Re: RLS, Fatigue, and Klonopin

Well, I thought I'd provide an update. I've been on temazepam and gabapentin for 4 days or so. The first night I slept like a rock, I woke up 7 minutes before my alarm went off, but don't remember moving all night. I was a bit tangled in my cpap, so I had to move. Usually I wake a few times and roll...
by cfkid
Thu Apr 27, 2017 12:09 am
Forum: Prescription Medications
Topic: RLS, Fatigue, and Klonopin
Replies: 37
Views: 5194

Re: RLS, Fatigue, and Klonopin

Sounds like you hit the jackpot, a doctor who understands RLS, listens to her patients and encourages her patients to become knowledgeable about their condition rather than feeling defensive about your knowledge and wants you to ask questions so that you can become more informed. I really hope that...
by cfkid
Wed Apr 26, 2017 9:59 pm
Forum: Prescription Medications
Topic: RLS, Fatigue, and Klonopin
Replies: 37
Views: 5194

Re: RLS, Fatigue, and Klonopin

Yikes - doc leaving, huh? That sounds like it could be a good thing in the long run. Well, it's interesting you say that. My jaw hit the floor when I met with my new doc today. I go through what's been going on, the fatigue, the kicking at night, blah, blah, blah. She says, "Well, I can certai...
by cfkid
Wed Apr 26, 2017 10:30 am
Forum: Prescription Medications
Topic: RLS, Fatigue, and Klonopin
Replies: 37
Views: 5194

Re: RLS, Fatigue, and Klonopin

So, I've been on Neupro for 3 full days now, starting the 4th today. I've had a constant headache and more fatigue on the patch. The fatigue is much different than what I had on the klonopin alone. I can see where those side effects could dissipate over a few weeks. But I'm also irritable/angry all...
by cfkid
Sat Apr 22, 2017 12:01 pm
Forum: Prescription Medications
Topic: RLS, Fatigue, and Klonopin
Replies: 37
Views: 5194

Re: RLS, Fatigue, and Klonopin

So, I've been on Neupro for 3 full days now, starting the 4th today. I've had a constant headache and more fatigue on the patch. The fatigue is much different than what I had on the klonopin alone. I can see where those side effects could dissipate over a few weeks. But I'm also irritable/angry all...
by cfkid
Fri Apr 21, 2017 11:25 am
Forum: Prescription Medications
Topic: RLS, Fatigue, and Klonopin
Replies: 37
Views: 5194

Re: RLS, Fatigue, and Klonopin

So, I've been on Neupro for 3 full days now, starting the 4th today. I've had a constant headache and more fatigue on the patch. The fatigue is much different than what I had on the klonopin alone. I can see where those side effects could dissipate over a few weeks. But I'm also irritable/angry all ...
by cfkid
Fri Apr 21, 2017 11:21 am
Forum: Prescription Medications
Topic: RLS, Fatigue, and Klonopin
Replies: 37
Views: 5194

Re: RLS, Fatigue, and Klonopin

Have you ever had a sweat chloride test? Mark, thanks for the response. I too have a anecdotal family history of RLS or PLMD. As for CF, the specialists decided not to do the sweat test. Another long story, but in a study of hyponatremia in marathoners about a decade ago, I was one of only two part...
by cfkid
Thu Apr 20, 2017 3:41 pm
Forum: Prescription Medications
Topic: RLS, Fatigue, and Klonopin
Replies: 37
Views: 5194

Re: RLS, Fatigue, and Klonopin

We do plan to get me off the klonopin. Luckily I'm only on .5mg at night, so it should be fairly easy to get off of them. I know it will be a long taper, but I can certainly do that. I did start Neupro yesterday. So far I've only got a headache. I did actually dream last night, which I think is a g...
by cfkid
Thu Apr 20, 2017 3:39 pm
Forum: Prescription Medications
Topic: RLS, Fatigue, and Klonopin
Replies: 37
Views: 5194

Re: RLS, Fatigue, and Klonopin

Mark, I'm curious whether your CF docs think that there could possibly be a relationship between your CF and your RLS. My interest isn't just academic. I am also a former marathoner (I keep saying I have run my last but then relent and do one more). After a number of cases of hyponatremia combined ...
by cfkid
Wed Apr 19, 2017 10:49 am
Forum: Prescription Medications
Topic: RLS, Fatigue, and Klonopin
Replies: 37
Views: 5194

Re: RLS, Fatigue, and Klonopin

My doc did say that she's ok with an opiate, if needed, but wants to make sure we try the other DA's first. I was on mirapex for quite some time, but ended up with significant insomnia. But that was after several years. The requip and horizant were horrible for me. Lots of insomnia and augmentation...
by cfkid
Tue Apr 18, 2017 10:53 am
Forum: Prescription Medications
Topic: RLS, Fatigue, and Klonopin
Replies: 37
Views: 5194

Re: RLS, Fatigue, and Klonopin

Iron interferes with the uptake of thyroid meds - you probably already know that. It's important for RLSers because we often have low ferritin levels, and need to take oral or IV iron to raise them. Raising ferritin can reduce the severity of symptoms, and reduce the risk of augmentation on DAs. Ac...
by cfkid
Tue Apr 18, 2017 9:46 am
Forum: Prescription Medications
Topic: RLS, Fatigue, and Klonopin
Replies: 37
Views: 5194

Re: RLS, Fatigue, and Klonopin

Hi Mark Welcome to the board. What you might be experiencing is the lingering effect of the clonazepam/Klonopin. It has a very long half-life, uas long as 40 hours in some people. Given that you take it every 24 hours, it is not much more than a quarter gone, and the dose from two days ago is only ...
by cfkid
Tue Apr 18, 2017 9:36 am
Forum: Prescription Medications
Topic: RLS, Fatigue, and Klonopin
Replies: 37
Views: 5194

Re: RLS, Fatigue, and Klonopin

leggo_my_legs wrote:Welcome, this board is a great place! I just wanted to say hi, I also have OSA and I have PMLS. You're not alone.


Thanks for the welcome and the support!
by cfkid
Tue Apr 18, 2017 9:36 am
Forum: Prescription Medications
Topic: RLS, Fatigue, and Klonopin
Replies: 37
Views: 5194

Re: RLS, Fatigue, and Klonopin

Hi CFKid Wow, you have a wicked group of issues. I am not at all familiar with the kind of meds used for CF, but I do think that regular opioids suppress breathing, don't they? And I'm assuming that with CF that is the last thing you would want. I have asthma, and try to stay clear of anything that...