Search found 18 matches

by timphillips
Fri Mar 26, 2021 6:51 pm
Forum: Augmentation
Topic: What To Do?
Replies: 53
Views: 8797

Re: What To Do?

Hello All - A quick update. It is has been nearly seven months since I started my second attempt of getting off a daily 1.0 mg dose of Miramex (dopamine agonist). I was taking 900 mg of gabapentin along with the Mirapex. I believe the journey thus far has been successful due to an understanding neur...
by timphillips
Sat Nov 07, 2020 9:35 pm
Forum: Augmentation
Topic: What To Do?
Replies: 53
Views: 8797

Re: What To Do?

Component Your Value Standard Range
FERRITIN 242.0 ng/mL 18.0 - 464.0 ng/mL
by timphillips
Sat Nov 07, 2020 6:06 pm
Forum: Augmentation
Topic: What To Do?
Replies: 53
Views: 8797

Re: What To Do?

Thanks for the information! I got blood test results yesterday. Here are the levels: Component Your Value Standard Range IRON 115 ug/dL 49 - 181 ug/dL TIBC 274 ug/dL 261 - 462 ug/dL IRON SATURATION 42 % 11 - 46 % Here's an update on the progress of getting off pramipexole. I have been completely off...
by timphillips
Wed Oct 21, 2020 4:04 pm
Forum: Augmentation
Topic: What To Do?
Replies: 53
Views: 8797

Re: What To Do?

Badnights - Thanks for the response and your help. After I spoke with the assistant, I sent the IV Iron article to my doctor. I was informed that IV iron infusions are very rarely used in clinical practice because insurance does not pay for it. That patients can have very significant side effects fr...
by timphillips
Mon Oct 19, 2020 6:29 pm
Forum: Augmentation
Topic: What To Do?
Replies: 53
Views: 8797

Re: What To Do?

I was not able to follow up with 7 hours of sleep. I've been getting 3-5 even though I have been doing everything the same. Sleep and the symptoms have been inconsistent. I will say that when I do get the symptoms, the intensity is much less. I did get answers to some of badnights' and other questio...
by timphillips
Thu Oct 15, 2020 4:00 am
Forum: Augmentation
Topic: What To Do?
Replies: 53
Views: 8797

Re: What To Do?

Yesterday and last night I did everything perfect and I got 7 hours (3 hrs then 4 hrs) of sleep. The most I have since I started. So you may ask what is perfect. Here's perfect: To start 3 weeks ago I went completely off caffeine (although I only drank 1 cup in the morning) No alcohol - I never drin...
by timphillips
Wed Oct 14, 2020 1:33 am
Forum: Augmentation
Topic: What To Do?
Replies: 53
Views: 8797

Re: What To Do?

I forgot to mention, as soon as possible I plan on asking about the IV Iron treatment and what the long range treatment plan is. I tried to schedule an appointment to do so but she is not available until Nov 12th. I am hoping I can simply send an email.
by timphillips
Wed Oct 14, 2020 1:11 am
Forum: Augmentation
Topic: What To Do?
Replies: 53
Views: 8797

Re: What To Do?

Since you all have provided great advice, I thought I should provide an update. Also to let you know your comments have been heard. I started dropping from 1 mg of pramipexol on Sept 2, 2020. The plan was to take 5-10 mg of Hydrocodone (Norco) at night to put me to sleep. Week 1 I dropped from to 0....
by timphillips
Fri Sep 04, 2020 5:11 am
Forum: Augmentation
Topic: What To Do?
Replies: 53
Views: 8797

Re: What To Do?

The appointment went well. She agreed its time to get off Mirapex. The plan is to be off in 3 weeks with the help of an opioid at bedtime. I will take the opioid for 3 months at which time I will need to get off of it.
by timphillips
Thu Sep 03, 2020 3:46 am
Forum: Augmentation
Topic: What To Do?
Replies: 53
Views: 8797

Re: What To Do?

Thanks for the quick response. You all are great!!
by timphillips
Thu Sep 03, 2020 2:06 am
Forum: Augmentation
Topic: What To Do?
Replies: 53
Views: 8797

Re: What To Do?

Its been three years since I posted on this Board. I have good and bad news to report. The good news is I have been able to live a normal life and maintain a 1.0 mg Pramipexole (Mirapex, dopamine agonist, DA) dosage combined with 600 mg of gabapentin. The bad news is I think I am at the end of my ro...
by timphillips
Wed Aug 16, 2017 8:44 pm
Forum: Augmentation
Topic: What To Do?
Replies: 53
Views: 8797

Re: What To Do?

After deciding Sunday (August 13, 2017) night to go back to the DA (pramipexole) I took 900 mg of gabapentin and 0.25 mg of the pramipexole. I slept great that night, no symptoms at all. Monday night I tried the same but it did not go as well. I had difficulty falling asleep because of RLS symptoms....
by timphillips
Tue Aug 15, 2017 8:34 pm
Forum: Augmentation
Topic: What To Do?
Replies: 53
Views: 8797

Re: What To Do?

UPDATE: I am posting this hoping to provide others with information about my experience in an attempt to come off 1.5 mg of a dopamine agonist (pramipexole). Below is a summary of my 21 day journey. Two months prior, I reduced to 1.0 mg of pramipexole, increased my gabapentin to 600 mg and took a da...
by timphillips
Mon Jul 24, 2017 5:27 pm
Forum: Augmentation
Topic: What To Do?
Replies: 53
Views: 8797

Re: What To Do?

UPDATE: Since many of you responded with comments and advice, I thought I would post an update to my situation. Based on what I heard it became apparent I needed to do the following: 1) find a new doc and 2) get off the Pramipexole. The first objective seems easy but its not. Where I live, if a Neur...
by timphillips
Tue Apr 25, 2017 8:39 pm
Forum: Augmentation
Topic: What To Do?
Replies: 53
Views: 8797

Re: What To Do?

Thanks Badnights. I just had my appointment with my doctor this morning. Although I did not read your post until this afternoon, oddly enough I would say I followed your advice almost exactly. I brought with me the article by the IRLSSG "White Paper Summary of Recommendations..." 2015, sev...