Search found 79 matches

by fuz_mind
Tue Jul 16, 2019 3:49 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Rate of Ferritin Decline
Replies: 31
Views: 5711

Re: Rate of Ferritin Decline

back to square 1 with symptoms flaring ferritin down to 114; iron saturation 20% same conversation with my neuro about my ferritin >100 even though i pointed out that I couldnt have predicted my blood test results no Iv iron again; ropinirole is at the highest of 1.5mg dose i give up on iron treatme...
by fuz_mind
Tue Jul 16, 2019 3:22 pm
Forum: General Topics: RLS/WED
Topic: BID theory and ferritin levels
Replies: 7
Views: 102

Re: BID theory and ferritin levels

... It wouldn't surprise me at all if there was a fairly large subgroup of patients with high ferritin but generally low iron... I think we need to get away from the idea of "generally low iron" and realize that, except in very limited circumstances, that for proper functioning different ...
by fuz_mind
Tue Jul 16, 2019 3:07 pm
Forum: General Topics: RLS/WED
Topic: sleep deprivation
Replies: 16
Views: 331

Re: sleep deprivation

i have trialed magnesium which helped a little but not significantly with sleep i did a cheeky thing - i copy and pasted stjohnh reply and sent it to my doc who has been suggested that me not sleeping is all psychological; he consulted his sleep specialist colleague who had no idea what stjohnh was ...
by fuz_mind
Tue Jul 16, 2019 2:41 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Poll: Oral iron and ferritin levels
Replies: 8
Views: 90

Re: Poll: Oral iron and ferritin levels

i trialed sagobion 2x/day for 3 months. my ferritin went up from 33 to 54.....

my rls got worse in the 3 months from pain and not sleeping. went straight for IV iron afterwards
by fuz_mind
Mon Jul 01, 2019 5:03 am
Forum: General Topics: RLS/WED
Topic: Open question #1: Exercise and WED
Replies: 15
Views: 1439

Re: Open question #1: Exercise and WED

my idea of exercise and RLS is very simplistic. overdoing (depending on the state of your body) it causes depletion of iron --> triggers symptoms


certainly not as sophisticated as the above discussion which I'm enjoying (and trying to follow)
by fuz_mind
Mon Jul 01, 2019 4:47 am
Forum: General Topics: RLS/WED
Topic: sleep deprivation
Replies: 16
Views: 331

Re: sleep deprivation

thanks for all the explaination and sharing!

sorry that I have been off the boards for a while again hence delayed response
by fuz_mind
Fri May 17, 2019 1:32 pm
Forum: General Topics: RLS/WED
Topic: scary night time experience
Replies: 3
Views: 75

scary night time experience

Hi all I'm wondering if anyone of you has had such an experience at night with your RLS. I'm quite spooked because I have no idea what is going on or if this is normal? Basically, my legs were trashing around uncontrollably in bed but I was very sedated and groggy. According to my husband, he had to...
by fuz_mind
Tue May 14, 2019 5:19 pm
Forum: General Topics: RLS/WED
Topic: sleep deprivation
Replies: 16
Views: 331

Re: sleep deprivation

I suspect that the answer to that is yes, but I don't know for sure. However, there are other things that can disturb sleep, such as sleep apnea. When I first saw a sleep doctor and went through a sleep study, the results showed that I had two separate conditions. I have a form of sleep apenea spec...
by fuz_mind
Sun May 05, 2019 7:48 pm
Forum: General Topics: RLS/WED
Topic: The RLS/WED market
Replies: 5
Views: 219

Re: The RLS/WED market

A somewhat chilling reminder that people hate Big Pharma for a reason... http://www.digitaljournal.com/pr/4215443. To these people, we're just a market. "Despite its increasing prevalence, the precise cause of RLS is not yet known. Nevertheless, with extensive investigations being conducted in...
by fuz_mind
Fri Apr 26, 2019 12:22 pm
Forum: General Topics: RLS/WED
Topic: sleep deprivation
Replies: 16
Views: 331

Re: sleep deprivation

thanks so much for the replies. the information is really helpful for me to understand and normalise things a bit! from my doc's reaction, i was starting to wonder if this was (i.e. am I) even normal or possible.....given how much medication I'm taking. i'm so exhausted that it's really not funny at...
by fuz_mind
Thu Apr 25, 2019 3:52 pm
Forum: General Topics: RLS/WED
Topic: Very Tired
Replies: 90
Views: 1497

Re: Very Tired

My normal has changed again. I'm up now most nights. Before this I was able to go to sleep around 11 pm, but only sleeping 2 hrs, up, then 2 more hrs, up then 2 more hrs. The up time was about 30 min to an hr. Now my sleep Is still only for 2 hours. Then I'm up for a bit then another 2 hours. So my...
by fuz_mind
Thu Apr 25, 2019 3:10 pm
Forum: General Topics: RLS/WED
Topic: sleep deprivation
Replies: 16
Views: 331

sleep deprivation

For RLS - is it possible for the legs to be better i.e. no twitching, pain etc but the sleep problems persist?
by fuz_mind
Thu Apr 25, 2019 2:52 pm
Forum: General Topics: RLS/WED
Topic: Very Tired
Replies: 90
Views: 1497

Re: Very Tired

Polar Bear wrote:
--- give yourself permission to not sleep, permission to be awake ----
.



thank you for this quote
by fuz_mind
Sat Mar 17, 2018 12:49 pm
Forum: General Topics: RLS/WED
Topic: work and sleep
Replies: 7
Views: 2296

Re: work and sleep

I tried it briefly - I thought I was going to die. OK, a bit of hyperbole, but still. It. Was. So. Hard. And, no way I should have been driving. It wasn't as bad when I was a professor - I only had to be on campus 8 hours (over two days) a week, so could work at home whenever. That gig ended, so I ...
by fuz_mind
Thu Mar 15, 2018 4:25 pm
Forum: Help for Relationships
Topic: Sleeping Arrangements
Replies: 24
Views: 5865

Re: Sleeping Arrangements

legsbestill wrote:My husband also reports finding it difficult to sleep when I'm not in the bed. I wonder is it an age thing as he wasn't always like that.


i wonder about the age too....

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