Search found 66 matches

by fuz_mind
Sat Mar 17, 2018 12:49 pm
Forum: General Topics: RLS/WED
Topic: work and sleep
Replies: 7
Views: 616

Re: work and sleep

I tried it briefly - I thought I was going to die. OK, a bit of hyperbole, but still. It. Was. So. Hard. And, no way I should have been driving. It wasn't as bad when I was a professor - I only had to be on campus 8 hours (over two days) a week, so could work at home whenever. That gig ended, so I ...
by fuz_mind
Thu Mar 15, 2018 4:25 pm
Forum: Help for Relationships
Topic: Sleeping Arrangements
Replies: 15
Views: 2051

Re: Sleeping Arrangements

legsbestill wrote:My husband also reports finding it difficult to sleep when I'm not in the bed. I wonder is it an age thing as he wasn't always like that.


i wonder about the age too....
by fuz_mind
Thu Mar 15, 2018 3:08 pm
Forum: Help for Relationships
Topic: Sleeping Arrangements
Replies: 15
Views: 2051

Re: Sleeping Arrangements

My husband also insists I do not disturb him but it is sometimes easier to be on my own when the legs are bad. I do find his constant assurances reassuring and am more likely to stay in the bed with him because of them so I would second the others who said to keep telling him you like to have him t...
by fuz_mind
Thu Mar 15, 2018 2:45 pm
Forum: General Topics: RLS/WED
Topic: work and sleep
Replies: 7
Views: 616

Re: work and sleep

im really thankful for all the sharing :) i now have a pedal cycle under my desk that i can use IF i am at my desk. most of the time i am stuck elsewhere and the sitting down can be up to 5 hours a stretch..... the pedal cycle does help though although i have gotten a lot of odd looks from my collea...
by fuz_mind
Thu Mar 15, 2018 7:24 am
Forum: General Topics: RLS/WED
Topic: work and sleep
Replies: 7
Views: 616

work and sleep

just wondering if there are people out there who are able to manage on a full time job (and a very sedentary one) with bad rls

by bad i mean, there are days I go to work with only 2 hrs of sleep

how do you guys manage?
by fuz_mind
Thu Mar 15, 2018 7:10 am
Forum: Prescription Medications
Topic: Requip Withdrawal Time and Tramadol effective time?
Replies: 7
Views: 909

Re: Requip Withdrawal Time and Tramadol effective time?

Hello , I was recently prescribed 100 mg of Tramadol by my doctor for RLS, this is after years of Augmentation issues on both Mirapex and Requip. ( I have also tried Gabapentin, Horizant, Lyrica, Cardopa, etc.) I am currently trying to wean myself off of 2MG of Requip. I am having a horrible time w...
by fuz_mind
Tue Feb 20, 2018 2:34 pm
Forum: Prescription Medications
Topic: Is your DA causing augmentation?
Replies: 121
Views: 24663

Re: Is your DA causing augmentation?

@rjdishon A note of encouragement: the withdrawal is worse than what you're experiencing now, but when it's all over with, your symptoms will be much better than they are now. You will be able to sit through meals again, and sit down to read and work. There is a chance that they'll be worse than th...
by fuz_mind
Fri Nov 17, 2017 1:24 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Rate of Ferritin Decline
Replies: 29
Views: 4449

Re: Rate of Ferritin Decline

Indeed! I need mine closer to 200. And some people get to 300 and still have no relief. One reason may be a missing protein - Steve has written about that - he does not have it. But even with that, there is still a lot of variability. Thanks Ann! I just saw my neurologist who saw the improvement af...
by fuz_mind
Tue Nov 14, 2017 12:41 pm
Forum: General Topics: RLS/WED
Topic: random rant about a doctor
Replies: 19
Views: 1587

Re: random rant about a doctor

I'll explain that the name was changed because the disease is systemic; it affects more than just legs, it involves imbalances of iron in the brain, the circadian system is out of whack, we have a heightened auditory startle reflex (sudden noises are more likely to make us jump) and slowed blink re...
by fuz_mind
Tue Nov 14, 2017 12:32 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Rate of Ferritin Decline
Replies: 29
Views: 4449

Re: Rate of Ferritin Decline

Indeed! I need mine closer to 200. And some people get to 300 and still have no relief. One reason may be a missing protein - Steve has written about that - he does not have it. But even with that, there is still a lot of variability. Thanks Ann! I just saw my neurologist who saw the improvement af...
by fuz_mind
Sun Nov 12, 2017 6:07 am
Forum: General Topics: RLS/WED
Topic: Painful RLS
Replies: 15
Views: 1755

Re: Painful RLS

as long as pain disrupts sleep, it needs to be dealt with - rls or not!

strangely after my recent IV iron, it's no longer painful, but has transformed into an inability to sit still

Ann: do you think it's worth checking out possibly some minerals that your body might be lacking?
by fuz_mind
Sat Nov 11, 2017 1:46 pm
Forum: Help for Relationships
Topic: exhaustion provides no reserve to deal with stress
Replies: 13
Views: 5476

Re: exhaustion provides no reserve to deal with stress

badnights - what a really good explanatory post on the effects of lack of sleep. This is why 6 years ago I was happy to retire from work - when just a few years previous I could not contemplate the possibility of full time retirement. Betty - how did you get to the point of being ok to retire from ...
by fuz_mind
Sat Nov 11, 2017 12:52 pm
Forum: General Topics: RLS/WED
Topic: random rant about a doctor
Replies: 19
Views: 1587

random rant about a doctor

I'm sure all of us have had bad experiences with doctors; bad bedside manners, lack of knowledge etc that we are probably quite numb - or rather I am. Still, I was really momentarily stunned by a doctor who had really poor bedside manners - and subsequently just a great sense of outrage with how she...
by fuz_mind
Sat Nov 11, 2017 12:31 pm
Forum: General Topics: RLS/WED
Topic: Painful RLS
Replies: 15
Views: 1755

Re: Painful RLS

I have always had the creepy crawly RLS with a STRONG urge to move - so strong that if you try to avoid it, I swear I move involuntarily. When people talk of painful RLS, I had not idea what that felt like. Maybe I do, now. In the last few weeks, I wake up in the night and my legs feel tight and th...
by fuz_mind
Sat Nov 11, 2017 12:22 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Rate of Ferritin Decline
Replies: 29
Views: 4449

Re: Rate of Ferritin Decline

Hmmm... by usual measures your iron saturation is low. This indicates that while your ferritin ordinarily would be considered okay, it is likely artificially elevated. Likely that means that your ferritin is definitely on the low side for somebody with RLS. If you haven't had any iron infusions, pe...

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