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by fuz_mind
Fri May 17, 2019 1:32 pm
Forum: General Topics: RLS/WED
Topic: scary night time experience
Replies: 3
Views: 61

scary night time experience

Hi all I'm wondering if anyone of you has had such an experience at night with your RLS. I'm quite spooked because I have no idea what is going on or if this is normal? Basically, my legs were trashing around uncontrollably in bed but I was very sedated and groggy. According to my husband, he had to...
by fuz_mind
Tue May 14, 2019 5:19 pm
Forum: General Topics: RLS/WED
Topic: sleep deprivation
Replies: 12
Views: 261

Re: sleep deprivation

I suspect that the answer to that is yes, but I don't know for sure. However, there are other things that can disturb sleep, such as sleep apnea. When I first saw a sleep doctor and went through a sleep study, the results showed that I had two separate conditions. I have a form of sleep apenea spec...
by fuz_mind
Sun May 05, 2019 7:48 pm
Forum: General Topics: RLS/WED
Topic: The RLS/WED market
Replies: 5
Views: 147

Re: The RLS/WED market

A somewhat chilling reminder that people hate Big Pharma for a reason... http://www.digitaljournal.com/pr/4215443. To these people, we're just a market. "Despite its increasing prevalence, the precise cause of RLS is not yet known. Nevertheless, with extensive investigations being conducted in...
by fuz_mind
Fri Apr 26, 2019 12:22 pm
Forum: General Topics: RLS/WED
Topic: sleep deprivation
Replies: 12
Views: 261

Re: sleep deprivation

thanks so much for the replies. the information is really helpful for me to understand and normalise things a bit! from my doc's reaction, i was starting to wonder if this was (i.e. am I) even normal or possible.....given how much medication I'm taking. i'm so exhausted that it's really not funny at...
by fuz_mind
Thu Apr 25, 2019 3:52 pm
Forum: General Topics: RLS/WED
Topic: Very Tired
Replies: 88
Views: 1316

Re: Very Tired

My normal has changed again. I'm up now most nights. Before this I was able to go to sleep around 11 pm, but only sleeping 2 hrs, up, then 2 more hrs, up then 2 more hrs. The up time was about 30 min to an hr. Now my sleep Is still only for 2 hours. Then I'm up for a bit then another 2 hours. So my...
by fuz_mind
Thu Apr 25, 2019 3:10 pm
Forum: General Topics: RLS/WED
Topic: sleep deprivation
Replies: 12
Views: 261

sleep deprivation

For RLS - is it possible for the legs to be better i.e. no twitching, pain etc but the sleep problems persist?
by fuz_mind
Thu Apr 25, 2019 2:52 pm
Forum: General Topics: RLS/WED
Topic: Very Tired
Replies: 88
Views: 1316

Re: Very Tired

Polar Bear wrote:
--- give yourself permission to not sleep, permission to be awake ----
.



thank you for this quote
by fuz_mind
Sat Mar 17, 2018 12:49 pm
Forum: General Topics: RLS/WED
Topic: work and sleep
Replies: 7
Views: 2186

Re: work and sleep

I tried it briefly - I thought I was going to die. OK, a bit of hyperbole, but still. It. Was. So. Hard. And, no way I should have been driving. It wasn't as bad when I was a professor - I only had to be on campus 8 hours (over two days) a week, so could work at home whenever. That gig ended, so I ...
by fuz_mind
Thu Mar 15, 2018 4:25 pm
Forum: Help for Relationships
Topic: Sleeping Arrangements
Replies: 24
Views: 5838

Re: Sleeping Arrangements

legsbestill wrote:My husband also reports finding it difficult to sleep when I'm not in the bed. I wonder is it an age thing as he wasn't always like that.


i wonder about the age too....
by fuz_mind
Thu Mar 15, 2018 3:08 pm
Forum: Help for Relationships
Topic: Sleeping Arrangements
Replies: 24
Views: 5838

Re: Sleeping Arrangements

My husband also insists I do not disturb him but it is sometimes easier to be on my own when the legs are bad. I do find his constant assurances reassuring and am more likely to stay in the bed with him because of them so I would second the others who said to keep telling him you like to have him t...
by fuz_mind
Thu Mar 15, 2018 2:45 pm
Forum: General Topics: RLS/WED
Topic: work and sleep
Replies: 7
Views: 2186

Re: work and sleep

im really thankful for all the sharing :) i now have a pedal cycle under my desk that i can use IF i am at my desk. most of the time i am stuck elsewhere and the sitting down can be up to 5 hours a stretch..... the pedal cycle does help though although i have gotten a lot of odd looks from my collea...
by fuz_mind
Thu Mar 15, 2018 7:24 am
Forum: General Topics: RLS/WED
Topic: work and sleep
Replies: 7
Views: 2186

work and sleep

just wondering if there are people out there who are able to manage on a full time job (and a very sedentary one) with bad rls

by bad i mean, there are days I go to work with only 2 hrs of sleep

how do you guys manage?
by fuz_mind
Thu Mar 15, 2018 7:10 am
Forum: Prescription Medications
Topic: Requip Withdrawal Time and Tramadol effective time?
Replies: 7
Views: 1043

Re: Requip Withdrawal Time and Tramadol effective time?

Hello , I was recently prescribed 100 mg of Tramadol by my doctor for RLS, this is after years of Augmentation issues on both Mirapex and Requip. ( I have also tried Gabapentin, Horizant, Lyrica, Cardopa, etc.) I am currently trying to wean myself off of 2MG of Requip. I am having a horrible time w...
by fuz_mind
Tue Feb 20, 2018 2:34 pm
Forum: Prescription Medications
Topic: Is your DA causing augmentation?
Replies: 127
Views: 35822

Re: Is your DA causing augmentation?

@rjdishon A note of encouragement: the withdrawal is worse than what you're experiencing now, but when it's all over with, your symptoms will be much better than they are now. You will be able to sit through meals again, and sit down to read and work. There is a chance that they'll be worse than th...
by fuz_mind
Fri Nov 17, 2017 1:24 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Rate of Ferritin Decline
Replies: 29
Views: 5667

Re: Rate of Ferritin Decline

Indeed! I need mine closer to 200. And some people get to 300 and still have no relief. One reason may be a missing protein - Steve has written about that - he does not have it. But even with that, there is still a lot of variability. Thanks Ann! I just saw my neurologist who saw the improvement af...

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