Search found 98 matches

by fuz_mind
Fri Aug 09, 2019 12:37 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Rate of Ferritin Decline
Replies: 50
Views: 6192

Re: Rate of Ferritin Decline

This is the reply from my doc "My understanding of the guideline is different. The decision to give IV Iron initially is still ferritin 100 mg or below as there is insufficient data for 100-300 mg of ferritin. However, if you show improvement with IV Iron initially, and later deteriorate, desp...
by fuz_mind
Thu Aug 08, 2019 4:17 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Rate of Ferritin Decline
Replies: 50
Views: 6192

Re: Rate of Ferritin Decline

'' my doc was concerned that 1000mg was too much and he had told me that he wouldn't give me 500mg on 2 occasions. I'm not sure how much of it is guided by the concern that my ferritin levels is > 100. is there a paper that you would recommend that i can show him? Figure 5 on page 39 of the IRLSSG C...
by fuz_mind
Thu Aug 08, 2019 12:05 am
Forum: Prescription Medications
Topic: worsening symptoms after IV iron
Replies: 2
Views: 80

worsening symptoms after IV iron

hi all just wondering if people have experienced any worsening of symptoms after IV iron? after 1 week of iv iron, the pain in my legs have increased. sleep is not great - i'm consistently up by 3-4am. having said that I wasn't in a gd shape before the IV iron but now im worried about speaking to my...
by fuz_mind
Mon Aug 05, 2019 11:21 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Rate of Ferritin Decline
Replies: 50
Views: 6192

Re: Rate of Ferritin Decline

do u see any difference when u have 1 vs 2 infusions?
by fuz_mind
Mon Aug 05, 2019 2:47 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Rate of Ferritin Decline
Replies: 50
Views: 6192

Re: Rate of Ferritin Decline

my doc was concerned that 1000mg was too much and he had told me that he wouldn't give me 500mg on 2 occasions. I'm not sure how much of it is guided by the concern that my ferritin levels is > 100. is there a paper that you would recommend that i can show him? Figure 5 on page 39 of the IRLSSG Con...
by fuz_mind
Sun Aug 04, 2019 4:20 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Rate of Ferritin Decline
Replies: 50
Views: 6192

Re: Rate of Ferritin Decline

Hmmm, your recent IV was lower dose than recommended. Any chance you can get another 500mg IV asap? You have a better chance of responding. my doc was concerned that 1000mg was too much and he had told me that he wouldn't give me 500mg on 2 occasions. I'm not sure how much of it is guided by the co...
by fuz_mind
Sat Aug 03, 2019 2:24 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Rate of Ferritin Decline
Replies: 50
Views: 6192

Re: Rate of Ferritin Decline

... im apparently the first person to ever receive iv iron for rls......and the sleep specialist in my country ... i give up... Any possibility of going to another country to get treated? i considered going to the States for treatment in 2017/2018, but legs were too bad to make the flight i might c...
by fuz_mind
Sat Aug 03, 2019 2:18 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Rate of Ferritin Decline
Replies: 50
Views: 6192

Re: Rate of Ferritin Decline

some gd news to share i got my iv iron eventually. but it took another fall for it to happen (i'm particularly clumsy when sleep deprived) im hoping that my symptoms get better soon.... Can you give details? ferric carboxymaltose (Injectafer) or some other type of IV Iron? How many mg dose? How man...
by fuz_mind
Sat Aug 03, 2019 2:13 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Rate of Ferritin Decline
Replies: 50
Views: 6192

Re: Rate of Ferritin Decline

some gd news to share i got my iv iron eventually. but it took another fall for it to happen (i'm particularly clumsy when sleep deprived) im hoping that my symptoms get better soon.... So sorry about the fall! But, glad they did it! the fall was ok, not the first time or most serious. i'm glad tha...
by fuz_mind
Sat Aug 03, 2019 2:11 pm
Forum: Prescription Medications
Topic: myoclonus
Replies: 16
Views: 232

Re: myoclonus

That is good. i'm wondering if this is a sign of augmentation? if it improves with reduction of medication? because my neurologist and his learned colleagues r of the opinion that the leg and hand jerking are a sign that i need more ropinirole In my experience and that of people here (anecdotal, bu...
by fuz_mind
Fri Aug 02, 2019 6:27 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Rate of Ferritin Decline
Replies: 50
Views: 6192

Re: Rate of Ferritin Decline

some gd news to share

i got my iv iron eventually. but it took another fall for it to happen (i'm particularly clumsy when sleep deprived)

im hoping that my symptoms get better soon....
by fuz_mind
Fri Aug 02, 2019 5:54 pm
Forum: Prescription Medications
Topic: myoclonus
Replies: 16
Views: 232

Re: myoclonus

it seems better now that my ropinirole has been cut to 1.25mg.......... That is good. i'm wondering if this is a sign of augmentation? if it improves with reduction of medication? because my neurologist and his learned colleagues r of the opinion that the leg and hand jerking are a sign that i need...
by fuz_mind
Tue Jul 30, 2019 7:43 pm
Forum: Prescription Medications
Topic: myoclonus
Replies: 16
Views: 232

Re: myoclonus

it seems better now that my ropinirole has been cut to 1.25mg..........
by fuz_mind
Tue Jul 30, 2019 7:28 pm
Forum: General Topics: RLS/WED
Topic: Access to medical care
Replies: 16
Views: 172

Re: Access to medical care

I am now officially between a rock and a hard place when it comes to medical care. In addition to my RLS, I also suffer from occasional migraines. I think that I may also be starting to develop Essential Tremor in my right hand but need to consult with a neurologist on that because I don't want to ...
by fuz_mind
Fri Jul 19, 2019 2:09 pm
Forum: Prescription Medications
Topic: myoclonus
Replies: 16
Views: 232

Re: myoclonus

I find that when I am augmented, I get many more PLMW - periodic limb movements during wakefulness. My legs - and arms - would jerk a lot. thanks for sharing. did you get it in the day as well? i noticed increased frequency on my legs initially at night, now i get them in the day from time to time;...

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