Search found 20 matches

by fuz_mind
Fri Jun 16, 2017 5:40 pm
Forum: Prescription Medications
Topic: Infusion Update
Replies: 64
Views: 2959

Re: Infusion Update

ViewsAskew wrote:I love this place.



love it too!
by fuz_mind
Fri Jun 16, 2017 5:16 pm
Forum: Prescription Medications
Topic: tapering off ropinirole
Replies: 27
Views: 445

Re: tapering off ropinirole

your current neuro has potential, then. I guess he's worth hanging on to unless one with lots of RLS/WED experience suddenly appears. It would be impossible to work with him if he didn't listen. It's not in itself a bad thing that he takes some time to mull it over and read up on it, except that yo...
by fuz_mind
Fri Jun 16, 2017 5:06 pm
Forum: Prescription Medications
Topic: tapering off ropinirole
Replies: 27
Views: 445

Re: tapering off ropinirole

fuz_mind ...... fighting one battle at a time Sometimes I feel like a Ninja with super martial art powers - constantly fighting off 'whatever' with arms and legs flying.... boom - wham - gotcha !! Well, on reflection, perhaps I'm more of a virtual/emotional Ninja .... I tried to visualize my arms a...
by fuz_mind
Fri Jun 16, 2017 4:55 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Rate of Ferritin Decline
Replies: 14
Views: 377

Re: Rate of Ferritin Decline

I'm hoping to get my first transfusion this year. Have an appointment schedule (on the books) with William Ondo in September. It would be interesting to see if people were semi cured with the transfusions coupled with a good diet. With that said, I realize there are some here where diet does not im...
by fuz_mind
Sun Jun 11, 2017 3:55 pm
Forum: Prescription Medications
Topic: tapering off ropinirole
Replies: 27
Views: 445

Re: tapering off ropinirole

ViewsAskew wrote:So many tough decisions, fuz_mind. I am sure other people are in similar shoes, but when I read all the stories here of what we go through, I feel so sad and angry that we have to do all this.



i totaly agree viewskew....we just have to fight one battle at a time.....
by fuz_mind
Fri Jun 09, 2017 11:03 am
Forum: Prescription Medications
Topic: Is anyone else still on clonazepam?
Replies: 17
Views: 539

Re: Is anyone else still on clonazepam?

badnights:

i was very surprised too :)
by fuz_mind
Fri Jun 09, 2017 10:29 am
Forum: Prescription Medications
Topic: tapering off ropinirole
Replies: 27
Views: 445

Re: tapering off ropinirole

hi all i have stayed off the board for a while because i haven't been doing too well on the 1.25mg ropinirole and just needing some time to stew on options --> just to maintain my sanity i have increased my clonzapam and tramadol to get through the night neuro reluctantly agreed to let me stay on 1....
by fuz_mind
Wed May 31, 2017 6:19 am
Forum: Prescription Medications
Topic: tapering off ropinirole
Replies: 27
Views: 445

Re: tapering off ropinirole

an update following everyone's response my neuro consult didn't go too well yesterday, even when I brought the book into the appointment. maybe i should buy a copy of the book as an early Christmas gift :) my ferritin levels have dropped further and he was still cheerfully saying that the numbers ar...
by fuz_mind
Wed May 31, 2017 6:07 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Rate of Ferritin Decline
Replies: 14
Views: 377

Re: Rate of Ferritin Decline

When I contacted Dr. Buchfuhrer last year, he volunteered to let me have the protocol he uses for infusions if I was going for one. My iron levels rose with oral iron so I never asked him for it but it might be worth getting in touch with him. does anyone have Dr Buchfuhrer's protocol for infusions?
by fuz_mind
Wed May 24, 2017 11:08 am
Forum: Prescription Medications
Topic: tapering off ropinirole
Replies: 27
Views: 445

Re: tapering off ropinirole

thanks viewsaskew!
by fuz_mind
Wed May 24, 2017 11:00 am
Forum: Prescription Medications
Topic: Is anyone else still on clonazepam?
Replies: 17
Views: 539

Re: Is anyone else still on clonazepam?

this is a very late response.... but my neurologist is of the opinion that clonazepam helps with both sleep and pain, whereas he is less comfortable putting me on a sleeping tablet, like zopiclone, which helps with sleep but not pain i was on it for a year plus and still on it; I know I have definit...
by fuz_mind
Tue May 23, 2017 8:49 am
Forum: Prescription Medications
Topic: tapering off ropinirole
Replies: 27
Views: 445

Re: tapering off ropinirole

Hi all! thanks for all the responses. i'm on 5th day of 1.25mg and honestly I can see my symptoms gradually worsening over the last 5 days; by yesterday i was having problems with sitting still in the afternoon and have gone back on my tramadol because the pain was unbearable; last night i was wakin...
by fuz_mind
Fri May 19, 2017 4:20 pm
Forum: Prescription Medications
Topic: tapering off ropinirole
Replies: 27
Views: 445

Re: tapering off ropinirole

Rustsmith: my copy just arrived from amazon today!

i saw the recommendation for the book in another thread and i'm reading it now with my post-it stickers beside me :)
by fuz_mind
Fri May 19, 2017 3:41 pm
Forum: Prescription Medications
Topic: Hellish night due to not taking my ropinerol
Replies: 42
Views: 2662

Re: Hellish night due to not taking my ropinerol

viewsakew : do you have the reference from dr buchfuhrer re: DAs cold turkey?
by fuz_mind
Fri May 19, 2017 3:31 pm
Forum: Prescription Medications
Topic: tapering off ropinirole
Replies: 27
Views: 445

Re: tapering off ropinirole

hi badnights thanks for the information! i do think i was augmenting which was why the dose went up from 1.25 to 1.5 to get some relief (this was before i found this forum and realise that we should try to keep to 1mg), hence me trying to reduce the dose i have some tramadol and clonzapam that has b...

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