Restless Legs Syndrome (RLS) Discussion Board

Thanks for response. Only problem with contacting Vanderbilt is after 3 years I am new patient and you Can not talk to anyone other than appointments. I talked to Karla and she was also not sure. Thought surely someone else has done this. I’ll try Dr Ondos office. I’ll check this every so often. Thx.

I had seen Dr Walters at Vanderbilt just prior to opioid war. Due to augmentation and inability to take alpha ll drugs he prescribed an opioid. But because of state lines he could not be my physician. My VA doctor was able to use this paper trail to continue opioids under that authority. My med ...

Thx for all suggestions . Im working on them one by one. My wife is in chemo for cancer so I have many things going. Thanks for the RLS community. You are caring and awesome!

After 15 years on all other meds then augmenting on mirapex and trying many opioids that did not work was prescribed Buphrenorphen 1mg for RLS by my physician after Dr Walters at Vanderbilt conferred with her to get it done. I switched to the VA after I retired for healthcare. I never really got the ...

Will my physician allow me to try medical marijuana while taking buphrenorphine 1mg? I am changing over to the V. A. after I retire and will be free of DOT urine testing and want to try medical marijuana. The VA Doctor I interviewed said he can not prescribe an opioid if THC is detected in my urine ...

My RLS is so bad even the opioids It just takes the edge off the torture. All I don't need is one more thing to make me irritable at night especially a mask and blowing air. I have had agreement from many many ,many in the RLS community that's it's not apnea that's going to kill me! I know apnea is ...

Does anyone have a recommendation or not for the implanted device supposedly takes the place of cpap. It's called Inspire. Because of refractory RLS I cannot use cpap. I have an appointment with the only Dr. In Tulsa area in 3 months. Any advice appreciated.

Thanks for your prompt responses. I have a feeling this is or will soon be a huge issue in the RLS community. I'm soon to be an Advocate for RLS with our elected representatives so I will use this feedback for the good of RLS sufferers. I'm still working on Vanderbilt to put me in touch with ...

Can't believe no one can answer my question. I live in Oklahoma and have been through 10 Physicians over a number of years taking all protocol meds for RLS with no results. In Oklahoma the word opiates is forsaken. I made an appt with a Dr. In Dallas, TX that was on RLS. ORG list. He actually called ...