Search found 78 matches

by Oozz
Wed Oct 09, 2019 8:10 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Fasting, keto and lectin free diet
Replies: 7
Views: 697

Re: Fasting, keto and lectin free diet

Great post. I’ve been away from the forums for some times now as my RLS has been under control. To get here I went on a low fodmap diet. It was brutal, but it was well worth it. Not only did my RLS get better, but my sleep quality improved dramatically. I went from 5mg methadone to 2.5mg. My average...
by Oozz
Sat Jun 29, 2019 11:38 pm
Forum: Prescription Medications
Topic: Experience with Injectafer?
Replies: 78
Views: 3660

Re: Experience with Injectafer?

I am also surprised that they are willing to to give you IV iron at such high ferritin levels. What guidelines are you referring to? I brought it up with my current doctor, well renown RLS doctor who I trust very much, and was told that I do not meet the criteria because I was over 100. Looking at m...
by Oozz
Thu Jun 27, 2019 4:45 pm
Forum: General Topics: RLS/WED
Topic: Foundation Webinar on Co-morbid conditions
Replies: 17
Views: 522

Re: Foundation Webinar on Co-morbid conditions

Is there a way we can view this webinar? I wasn’t able to find a link to it on the foundation website. Are you a member of the Foundation (separate from the Discussion Board)? All of these are in a members only section. That said, not sure this one is captured - they usually are, though. I am, just...
by Oozz
Wed Jun 26, 2019 4:27 pm
Forum: General Topics: RLS/WED
Topic: Foundation Webinar on Co-morbid conditions
Replies: 17
Views: 522

Re: Foundation Webinar on Co-morbid conditions

Is there a way we can view this webinar? I wasn’t able to find a link to it on the foundation website.
by Oozz
Mon Jun 24, 2019 4:21 pm
Forum: General Topics: RLS/WED
Topic: The Battle
Replies: 19
Views: 639

Re: The Battle

It has been almost a month since I made my initial post. Unfortunately, I have not made much progress in terms of sleep or rehabilitation. To be honest, it has been frustrating. I can deal w/the sleep deprivation pretty well, but its really the physical restrictions that is hard to bear. There are s...
by Oozz
Mon Jun 24, 2019 2:02 pm
Forum: General Topics: RLS/WED
Topic: The Battle
Replies: 19
Views: 639

Re: The Battle

As much as I hate to say it, WED has made me a stronger and better person. It broke me and may break me again, but it will never defeat me. If it is alright with you, I’d like to continue sharing my thoughts here. I stay away from the forums as there are too many 'drugs are the only answer' people....
by Oozz
Sun Jun 16, 2019 10:43 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: SIBO - 4 facts from a dietician
Replies: 3
Views: 393

Re: SIBO - 4 facts from a dietician

Seems a sensible article, for once. She says no diet will control symptoms but can help manage them while the SIBO is being treated, and the low-FODMAP one is the best "bang for your buck" (highest ratio of effectiveness to restrictiveness). I mocked it at the time. but the naturopathic t...
by Oozz
Sun Jun 16, 2019 7:10 pm
Forum: Prescription Medications
Topic: New Drugs In Development
Replies: 2
Views: 211

New Drugs In Development

Hello - In the most recent California RLS support group, the following information was discussed: “At 2:40 PM, Dr. Mark Buchfuhrer, the group’s medical advisor, shared information regarding a new drug protocol for treating RLS, as well as two new nonpharmaceutical devices that are currently in clini...
by Oozz
Thu Jun 13, 2019 4:41 pm
Forum: Prescription Medications
Topic: Methadone adjustment; changing to oxycodone
Replies: 17
Views: 388

Re: Methadone adjustment; changing to oxycodone

QYX - how is the quality of your sleep on opioids? This study http://jcsm.aasm.org/articles/030106.pdf pretty clearly demonstrates they reduce slow wave sleep. I’m so fascinated that a lot of other people here get great sleep on opioids. I’m wondering if it is just good sleep as compared to RLS slee...
by Oozz
Thu Jun 13, 2019 1:05 am
Forum: Prescription Medications
Topic: Weaning off medications
Replies: 25
Views: 556

Re: Weaning off medications

This is saying that’d the iron injection is safe I’d like you are under 300? Am I correct in reading this?
by Oozz
Wed Jun 12, 2019 6:16 pm
Forum: General Topics: RLS/WED
Topic: The Battle
Replies: 19
Views: 639

Re: The Battle

In my case my legs lost strength, were prone to injury, and never seemed to improve. For those of us who have periodic limb movements with our RLS, our legs work all night. There is chronic depletion with no restoration. At some point the well runs dry. I declined to the point I could no longer go ...
by Oozz
Tue Jun 04, 2019 2:41 am
Forum: General Topics: RLS/WED
Topic: The Battle
Replies: 19
Views: 639

Re: The Battle

Steve There are mouse models but not naturally occurring ones - I think that's what Oozz meant?


Yes, that is what I meant. Although, that may be bro science as I’m sure there are quite a number of human pathologies that aren’t found in other animals.
by Oozz
Fri May 31, 2019 2:08 am
Forum: Prescription Medications
Topic: Opiate (Methadone) & Sleep Quality
Replies: 20
Views: 759

Re: Opiate (Methadone) & Sleep Quality

While I was using methadone for breakthroughs, along with a DA, my sleep was poor and made worse by the methadone. When I switched to methadone alone my sleep improved immediately and dramatically. I was gobsmacked. It was the DAs, as I had always suspected. From my reading, both can cause issues w...
by Oozz
Fri May 31, 2019 1:13 am
Forum: General Topics: RLS/WED
Topic: The Battle
Replies: 19
Views: 639

Re: The Battle

Oozz, share away! So often our sharing is of the "need immediate help" kind that we don't get as much of the life story or thoughtful introspection. Nice to have more in the latter categories. I wish, oh I wish, that I would adjust to one of the gaba drugs. They definitely improve my slee...
by Oozz
Fri May 31, 2019 1:09 am
Forum: General Topics: RLS/WED
Topic: The Battle
Replies: 19
Views: 639

Re: The Battle

Hey Oozz—thanks for sharing your story. I just want to let you know after I read it, I felt inspired, especially what you wrote about WED making you a stronger and better person. I regularly feel discouraged by its effects on me, but your sharing has caused me to reflect more positively on the impa...

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