Search found 123 matches

by Oozz
Mon Jan 11, 2021 6:33 pm
Forum: Prescription Medications
Topic: Tinnitus from Mirapex/DA’s
Replies: 3
Views: 176

Re: Tinnitus from Mirapex/DA’s

I have had tinnitis for as long as I can remember, so I cannot comment about it being caused by Mirapex. However, tinnitis is listed as a side effect that occurred in a study of Parkinson's patients that was performed during FDA approval. There is a long list of side effects that occurred less than...
by Oozz
Mon Jan 11, 2021 3:15 pm
Forum: Prescription Medications
Topic: Tinnitus from Mirapex/DA’s
Replies: 3
Views: 176

Tinnitus from Mirapex/DA’s

Hello, Has anyone experienced tinnitus after taking a dopamine agonist? I’ve taken mirapex on and off over the past three years and never had any issues; however, I’ve recently developed tinnitus after taking it for a few days. I stopped the medication for 5 days and the tinnitus subsided, but came ...
by Oozz
Thu Dec 31, 2020 2:01 am
Forum: Prescription Medications
Topic: RLS and New Drug Development
Replies: 5
Views: 174

Re: RLS and New Drug Development

Thank you both for the quick responses.

@rustsmith @stjohn - how do you stay on top of this information? If one wanted to look deeper into this topic, would you have any recommendations on where to start?
by Oozz
Tue Dec 29, 2020 10:00 pm
Forum: Prescription Medications
Topic: RLS and New Drug Development
Replies: 5
Views: 174

RLS and New Drug Development

Hello - It seems like there has been a lot of research over the past few years regarding RLS and potential pathways that new drugs could target. However, it doesn’t seem like there is anything in the pipeline. Does anyone know what the biggest constraints are right now for developing new drugs for R...
by Oozz
Tue Oct 20, 2020 1:12 am
Forum: Prescription Medications
Topic: New Consensus Treatment Document
Replies: 6
Views: 397

Re: New Consensus Treatment Document

If I recall the conversation correctly, there were a number of optimistic remarks regarding IV iron. Dr. Earley indicated that he’s a short way away from giving infusions at ferritin of 200 as long as TIBC is below 45%. Another doctor indicated they are comfortable going even higher than that. It se...
by Oozz
Tue Oct 13, 2020 9:44 pm
Forum: Physical Treatments
Topic: Massager
Replies: 16
Views: 2829

Re: Massager

Getting 6 hours - is that good for you? It’s about average, as it’s broken into two chunks. I still have to wake up due to RLS, but the initial onset is delayed . 1-4, up to about 5-6, then 5/6-??. The quality is much strong than with Medications. I’m all of medications right now, but I get about 7...
by Oozz
Fri Oct 09, 2020 4:20 pm
Forum: Physical Treatments
Topic: Massager
Replies: 16
Views: 2829

Re: Massager

I’m currently using a massage gun, Theragun, every night. It does work for RLS, but’s it’s a bit odd. I can feel my brain sending signals, but my arm (where I get RLS) does not get the tingly sensation. It sound a crazy and it’s very hard to explain. If you get the RLS sensations but don’t move, you...
by Oozz
Sun Oct 04, 2020 5:08 pm
Forum: Physical Treatments
Topic: research on use of TENS for PLMs and query
Replies: 11
Views: 1352

Re: research on use of TENS for PLMs and query

I have had success with TENS therapy, and use it now. I have bad RLS. I first learned of it when a Physical Therapist used it for relief of some broken bones. I made a passing comment about my RLS and he suggest we try it on my calfs before leaving. It was heaven! I subsequently bought a simple ine...
by Oozz
Sat Oct 03, 2020 5:01 am
Forum: General Topics: RLS
Topic: Published Research - General Sleep and RLS (WED)
Replies: 492
Views: 139159

Re: Published Research - General Sleep and RLS (WED)

This was recently posted in the blog. A new drug to help stop augmentation. I’m not a fan of drugs to prevent side effects of other drugs, but at least it is something. https://rlsfoundation.blogspot.com/2020/10/novel-treatment-method-for-rls.html?bblinkid=243700182&bbemailid=24694135&bbejrid=166979...
by Oozz
Fri Oct 02, 2020 12:08 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Another year of relief (Low-oxalate diet)
Replies: 107
Views: 25298

Re: Another year of relief (Low-oxalate diet)

I use Go Healthy Go Garcinia Slim Gold, 12 g and 600mg HCA. I usually take one capsule and 1gm Calcium Citrate first thing in the morning after an oxalate dump, which is around 2 times per week currently. Prevously during heavy constant dumping I took up to 4 per day with potasium bicarbonate, or I...
by Oozz
Sat Sep 26, 2020 2:38 am
Forum: General Topics: RLS
Topic: When Do Symptoms Occur? And, For How Long?
Replies: 4
Views: 471

Re: When Do Symptoms Occur? And, For How Long?

We can probably close this thread because the most recent survey addresses my questions.
by Oozz
Fri Sep 25, 2020 5:34 pm
Forum: General Topics: RLS
Topic: Has Anyone with Hereditary RLS Ever Found Full Relief?
Replies: 0
Views: 917

Has Anyone with Hereditary RLS Ever Found Full Relief?

8) There are a number of people that have indicated they have completely cured or treated their RLS, either by diet, supplements, or other means. However, I’d like to know if any of these people have a family history of RLS? This may give some of us with familial RLS hope that we too may be able to ...
by Oozz
Fri Sep 25, 2020 5:30 pm
Forum: General Topics: RLS
Topic: When Do Symptoms Occur? And, For How Long?
Replies: 4
Views: 471

When Do Symptoms Occur? And, For How Long?

Hi,

I’m just trying to get a better understanding of my symptoms relative to others. I’m 34, I only seem to have symptoms for 2-3 hours a day, usually from 2-4AM.

When do your symptoms occur? And, how long does it go on for? Was this always the case? If not, how has it progressed?
by Oozz
Fri Sep 25, 2020 5:27 pm
Forum: General Topics: RLS
Topic: Location of RLS Symptoms Changing
Replies: 33
Views: 1864

Re: Location of RLS Symptoms Changing

I have been off medication for several days and my RLS continues to change locations, from my right scapular, to my right shoulder and, now, to my left shoulder. I’m not currently on any diets either. Stress is low, as I’m on vacation.

I’m wondering if this has any meaning.
by Oozz
Sat Aug 29, 2020 8:51 pm
Forum: General Topics: RLS
Topic: Is this how everyone with RLS ends up?
Replies: 29
Views: 1338

Re: Is this how everyone with RLS ends up?

I just turned 34 and I have quite severe RLS. It’s been up and down, but humans are adaptive and find ways to live and enjoy life. My way of life has changed and the version of my life I thought I would have is much different because of RLS, but that isn’t a bad thing. I’m 100% sure my situation is ...