Search found 58 matches

by Oozz
Wed Apr 17, 2019 1:38 pm
Forum: Prescription Medications
Topic: Opiate (Methadone) & Sleep Quality
Replies: 3
Views: 43

Opiate (Methadone) & Sleep Quality

Hello - Recently started taking 2.5mg of methadone every night. It seems to be very effective for my RLS; however, my sleep quality is not very good. Has anyone else experience this? There is some literature saying that opiates (methadone specifically) reduces deep sleep. Contrastingly, I’ve seen so...
by Oozz
Fri Mar 29, 2019 12:48 pm
Forum: Prescription Medications
Topic: Opiate Flu Like Symptoms
Replies: 3
Views: 47

Opiate Flu Like Symptoms

Hello All, I was prescribed methadone 2-3 months ago. Initially, I was reluctant to take it since my lyrica and mirapex combo ha| been working well, but I started to notice my sleep quality was declining. After 2-3 days of taking 2.5mg at night, I got extremely bad flu like symptoms. Severe headache...
by Oozz
Thu Jan 24, 2019 10:59 pm
Forum: Physical Treatments
Topic: Using Trail Camera to observe RLS
Replies: 8
Views: 349

Re: Using Trail Camera to observe RLS

Depends on which Fitbit you are using. The Fitbit charge seems to do the best for the Fitbit brand; however, Oura products are seem to be much more accurate. Just read the reviews, it’s hands-down the best for sleep tracking. I’ve been tracking my sleep meticulously for almost 7 mos. now. These devi...
by Oozz
Mon Jan 14, 2019 3:00 am
Forum: Physical Treatments
Topic: Using Trail Camera to observe RLS
Replies: 8
Views: 349

Re: Using Trail Camera to observe RLS

I’m currently using the Oura Ring to track my sleep. It’s incredible, tracking all stages of sleep very accurately. You can learn about it at https://ouraring.com.
by Oozz
Thu Oct 18, 2018 2:35 am
Forum: Prescription Medications
Topic: My pharma diary
Replies: 147
Views: 21285

Re: My pharma diary

I’m sorry to hear that you are having a hard time right, please know that I am rooting that you will get through this. I envision you writing a book about your life to give inspiration to others going through these tough times. Being stuck in the house sleepless and unmotivated is the worst, hopeful...
by Oozz
Wed Oct 03, 2018 3:22 pm
Forum: General Topics: RLS/WED
Topic: RLS Patient Symposium
Replies: 20
Views: 788

Re: RLS Patient Symposium

Thank you for posting this.
by Oozz
Tue Oct 02, 2018 5:41 pm
Forum: General Topics: RLS/WED
Topic: RLS Foundation hosting a Patient Symposium
Replies: 32
Views: 2071

Re: RLS Foundation hosting a Patient Symposium

Thanks. I look forward to hearing what they have to say.
by Oozz
Mon Oct 01, 2018 11:36 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Nicotine Mints - Personal Success
Replies: 7
Views: 2918

Re: Nicotine Mints - Personal Success

This is weird ... always when I have traveled home over christmas or some round birthday I kinda relapse and start smoking again. For some weird reasons ... these are always the days of the year where I have no trouble sleeping at all. So this might be worth investigating. I will order one of those...
by Oozz
Mon Oct 01, 2018 11:32 pm
Forum: General Topics: RLS/WED
Topic: RLS Foundation hosting a Patient Symposium
Replies: 32
Views: 2071

Re: RLS Foundation hosting a Patient Symposium

So, who is gonna debrief us on all the cool stuff that was discussed at the symposium? :D
by Oozz
Thu Sep 06, 2018 5:29 pm
Forum: General Topics: RLS/WED
Topic: RLS Foundation hosting a Patient Symposium
Replies: 32
Views: 2071

Re: RLS Foundation hosting a Patient Symposium

Is this the first symposium? I’m wondering what will be covered that isn’t readily available online...
by Oozz
Thu Sep 06, 2018 5:20 pm
Forum: General Topics: RLS/WED
Topic: Published Research - General Sleep and RLS (WED)
Replies: 455
Views: 108620

Re: Published Research - General Sleep and RLS (WED)

Interesting. I don’t get RLS/wed in my legs tho, only my upper left arm. I’m wondering if its the same mechanism.

Edit - seems like they addres this.
by Oozz
Thu Sep 06, 2018 5:16 pm
Forum: General Topics: RLS/WED
Topic: How long have you had RLS/WED
Replies: 9
Views: 570

How long have you had RLS/WED

I’m 32 and it seems like I’m one of the younger people on the forum. Given that I may have to deal with this for the rest of my life, I’m wondering how long other people have been dealing with RLS/WED. For me, it’s been about 4 years - night only. It’s really amped up in the past two from maybe 2-4 ...
by Oozz
Sat Jun 30, 2018 5:28 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Kratom berry compote
Replies: 30
Views: 4527

Re: Kratom berry compote

Its interesting though because, although I feel like my sleep is refreshing and my HRV is high, this scientific article would indicate that opioid have a negative affect on sleep cycles. http://jcsm.aasm.org/Articles/030106.pdf
by Oozz
Thu Jun 28, 2018 5:53 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Kratom berry compote
Replies: 30
Views: 4527

Re: Kratom berry compote

Just want to continue sharing my experience. I have been taking Kratom for several days and I also monitor my sleep quality every morning via a Heart Rate Variability monitor. Kratom provides the best sleep quality of any drug combination I’ve used. This includes variations of the following: Mirapex...
by Oozz
Thu May 31, 2018 4:08 am
Forum: General Topics: RLS/WED
Topic: Does altitude have anything to do with RLS?
Replies: 9
Views: 1381

Re: Does altitude have anything to do with RLS?

Was this trip a vacation? And, looking back since you have had RLS, has this happened on a previous vacation? Did you diet change at all? Were you exercising more than usual or getting extra sun? These are also factors to consider. I’m really interested in unpacking this because my RLS completely al...

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