Search found 113 matches

by Oozz
Sat Sep 26, 2020 2:38 am
Forum: General Topics: RLS
Topic: When Do Symptoms Occur? And, For How Long?
Replies: 2
Views: 18

Re: When Do Symptoms Occur? And, For How Long?

We can probably close this thread because the most recent survey addresses my questions.
by Oozz
Fri Sep 25, 2020 5:34 pm
Forum: General Topics: RLS
Topic: Has Anyone with Hereditary RLS Ever Found Full Relief?
Replies: 0
Views: 12

Has Anyone with Hereditary RLS Ever Found Full Relief?

8) There are a number of people that have indicated they have completely cured or treated their RLS, either by diet, supplements, or other means. However, I’d like to know if any of these people have a family history of RLS? This may give some of us with familial RLS hope that we too may be able to ...
by Oozz
Fri Sep 25, 2020 5:30 pm
Forum: General Topics: RLS
Topic: When Do Symptoms Occur? And, For How Long?
Replies: 2
Views: 18

When Do Symptoms Occur? And, For How Long?

Hi,

I’m just trying to get a better understanding of my symptoms relative to others. I’m 34, I only seem to have symptoms for 2-3 hours a day, usually from 2-4AM.

When do your symptoms occur? And, how long does it go on for? Was this always the case? If not, how has it progressed?
by Oozz
Fri Sep 25, 2020 5:27 pm
Forum: General Topics: RLS
Topic: Location of RLS Symptoms Changing
Replies: 27
Views: 940

Re: Location of RLS Symptoms Changing

I have been off medication for several days and my RLS continues to change locations, from my right scapular, to my right shoulder and, now, to my left shoulder. I’m not currently on any diets either. Stress is low, as I’m on vacation.

I’m wondering if this has any meaning.
by Oozz
Sat Aug 29, 2020 8:51 pm
Forum: General Topics: RLS
Topic: Is this how everyone with RLS ends up?
Replies: 28
Views: 604

Re: Is this how everyone with RLS ends up?

I just turned 34 and I have quite severe RLS. It’s been up and down, but humans are adaptive and find ways to live and enjoy life. My way of life has changed and the version of my life I thought I would have is much different because of RLS, but that isn’t a bad thing. I’m 100% sure my situation is ...
by Oozz
Mon Jul 13, 2020 2:58 am
Forum: Prescription Medications
Topic: Pentazocine (Talwin)
Replies: 1
Views: 76

Pentazocine (Talwin)

Has anyone used this medication? If so, what was your experience? It’s not widely discussed on the board. I developed stomach issues from methadone so this was recently prescribed to me because it’s a kappa opioid receptor and does not impact the GI system the same way. I’m finding that it is very h...
by Oozz
Wed Jul 08, 2020 7:57 pm
Forum: General Topics: RLS
Topic: Location of RLS Symptoms Changing
Replies: 27
Views: 940

Re: Location of RLS Symptoms Changing

Well, I had to come off Mirapex because it was becoming inconsistent and symptoms were bleeding through. Now that I’m washing out, it’s clear to see that my symptoms have gotten worse as a result of the medication. I was only on it for 3 months so I’m hoping it goes back to normal.
by Oozz
Tue Jun 23, 2020 11:30 pm
Forum: General Topics: RLS
Topic: Inconsistent Sleep Quality
Replies: 9
Views: 395

Inconsistent Sleep Quality

It seems like my sleep quality is always inconsistent. The medications are handling my urge to move pretty well; however, no matter how consistent my life is (stress, diet, exercise), it seems like every night I’m rolling the dice on how restful the sleep will be. Does anyone else have this problem?...
by Oozz
Sat Jun 20, 2020 3:53 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Is it worth scrapping ever tiny bit of caffiene?
Replies: 14
Views: 845

Re: Is it worth scrapping ever tiny bit of caffiene?

I do believe chronic caffeine consumption causes issues. It’s something I need to move away from. However, I’ve read that the tanin’s in tea inhibit iron absorption. I skimmed these articles just for reference so don’t shoot me if there are some holes; however, the research is out there. https://www...
by Oozz
Tue Jun 16, 2020 12:48 am
Forum: General Topics: RLS
Topic: Location of RLS Symptoms Changing
Replies: 27
Views: 940

Re: Location of RLS Symptoms Changing

Several of us augmented and it never returned to baseline. The docs usually try to say it is progression...but I think some of us are a bit skeptical. My baseline was very severe PLMS and very minor RLS. After augmentation, it was 24/7 RLS and severe PLMS. After treatment for augmentation, it was a...
by Oozz
Mon Jun 15, 2020 2:26 am
Forum: General Topics: RLS
Topic: Location of RLS Symptoms Changing
Replies: 27
Views: 940

Re: Location of RLS Symptoms Changing

Rustsmith wrote:
Sun Jun 14, 2020 11:29 pm
Since that time, I have been through augmentation from two DAs and my RLS has progressed to the point where it is now rated as very severe.
Are you saying you augmented and it never returned to baseline? Or, are you stating two separate experiences?
by Oozz
Sun Jun 14, 2020 10:17 pm
Forum: General Topics: RLS
Topic: Location of RLS Symptoms Changing
Replies: 27
Views: 940

Re: Location of RLS Symptoms Changing

My RLS started in my legs, 90% in my right leg. 35 years sgo. Then travelled to my arms. Moving to my arms was nothing to do with augmentation as it was way before I started taking medication. Both legs at the start. Arms after starting with Gabapentin. Whole body when I was augmenting. Did gabapen...
by Oozz
Sat Jun 13, 2020 4:57 pm
Forum: General Topics: RLS
Topic: Location of RLS Symptoms Changing
Replies: 27
Views: 940

Re: Location of RLS Symptoms Changing

Legs for years; Later, also but only rarely in arms. Then medication and augmentation, and legs and arms bad. Since I've been off dopaminergic meds, I rarely have it outright in my arms, but it's always there ... hovering, sort of; I feel the wrongness. I have no boundaries to the upper side of my ...
by Oozz
Thu Jun 04, 2020 12:33 pm
Forum: General Topics: RLS
Topic: Location of RLS Symptoms Changing
Replies: 27
Views: 940

Location of RLS Symptoms Changing

My RLS seems to change places. It started off in my legs 3 years go. About 1.5 years ago it moved to the right wing of my scapula. Now it seems to be on the left wing of my scapula.

Wondering if anyone else has experienced changed in their RLS symptoms.
by Oozz
Wed Jun 03, 2020 8:55 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Treating Central Nervous System Inflammation
Replies: 20
Views: 1024

Re: Treating Central Nervous System Inflammation

I would do 1x1. It seems to me you are very excited about what you are reading and are eager to resolve this. Everyone on this board has felt the same way and I empathize with you. My recommendation would be to only change one variable at a time. It I a very slow process, but it’s the only way to kn...