Search found 119 matches

by Oozz
Tue Oct 20, 2020 1:12 am
Forum: Prescription Medications
Topic: New Consensus Treatment Document
Replies: 6
Views: 281

Re: New Consensus Treatment Document

If I recall the conversation correctly, there were a number of optimistic remarks regarding IV iron. Dr. Earley indicated that he’s a short way away from giving infusions at ferritin of 200 as long as TIBC is below 45%. Another doctor indicated they are comfortable going even higher than that. It se...
by Oozz
Tue Oct 13, 2020 9:44 pm
Forum: Physical Treatments
Topic: Massager
Replies: 16
Views: 2600

Re: Massager

Getting 6 hours - is that good for you? It’s about average, as it’s broken into two chunks. I still have to wake up due to RLS, but the initial onset is delayed . 1-4, up to about 5-6, then 5/6-??. The quality is much strong than with Medications. I’m all of medications right now, but I get about 7...
by Oozz
Fri Oct 09, 2020 4:20 pm
Forum: Physical Treatments
Topic: Massager
Replies: 16
Views: 2600

Re: Massager

I’m currently using a massage gun, Theragun, every night. It does work for RLS, but’s it’s a bit odd. I can feel my brain sending signals, but my arm (where I get RLS) does not get the tingly sensation. It sound a crazy and it’s very hard to explain. If you get the RLS sensations but don’t move, you...
by Oozz
Sun Oct 04, 2020 5:08 pm
Forum: Physical Treatments
Topic: research on use of TENS for PLMs and query
Replies: 11
Views: 1209

Re: research on use of TENS for PLMs and query

I have had success with TENS therapy, and use it now. I have bad RLS. I first learned of it when a Physical Therapist used it for relief of some broken bones. I made a passing comment about my RLS and he suggest we try it on my calfs before leaving. It was heaven! I subsequently bought a simple ine...
by Oozz
Sat Oct 03, 2020 5:01 am
Forum: General Topics: RLS
Topic: Published Research - General Sleep and RLS (WED)
Replies: 491
Views: 133398

Re: Published Research - General Sleep and RLS (WED)

This was recently posted in the blog. A new drug to help stop augmentation. I’m not a fan of drugs to prevent side effects of other drugs, but at least it is something. https://rlsfoundation.blogspot.com/2020/10/novel-treatment-method-for-rls.html?bblinkid=243700182&bbemailid=24694135&bbejrid=166979...
by Oozz
Fri Oct 02, 2020 12:08 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Another year of relief (Low-oxalate diet)
Replies: 107
Views: 24328

Re: Another year of relief (Low-oxalate diet)

I use Go Healthy Go Garcinia Slim Gold, 12 g and 600mg HCA. I usually take one capsule and 1gm Calcium Citrate first thing in the morning after an oxalate dump, which is around 2 times per week currently. Prevously during heavy constant dumping I took up to 4 per day with potasium bicarbonate, or I...
by Oozz
Sat Sep 26, 2020 2:38 am
Forum: General Topics: RLS
Topic: When Do Symptoms Occur? And, For How Long?
Replies: 4
Views: 279

Re: When Do Symptoms Occur? And, For How Long?

We can probably close this thread because the most recent survey addresses my questions.
by Oozz
Fri Sep 25, 2020 5:34 pm
Forum: General Topics: RLS
Topic: Has Anyone with Hereditary RLS Ever Found Full Relief?
Replies: 0
Views: 415

Has Anyone with Hereditary RLS Ever Found Full Relief?

8) There are a number of people that have indicated they have completely cured or treated their RLS, either by diet, supplements, or other means. However, I’d like to know if any of these people have a family history of RLS? This may give some of us with familial RLS hope that we too may be able to ...
by Oozz
Fri Sep 25, 2020 5:30 pm
Forum: General Topics: RLS
Topic: When Do Symptoms Occur? And, For How Long?
Replies: 4
Views: 279

When Do Symptoms Occur? And, For How Long?

Hi,

I’m just trying to get a better understanding of my symptoms relative to others. I’m 34, I only seem to have symptoms for 2-3 hours a day, usually from 2-4AM.

When do your symptoms occur? And, how long does it go on for? Was this always the case? If not, how has it progressed?
by Oozz
Fri Sep 25, 2020 5:27 pm
Forum: General Topics: RLS
Topic: Location of RLS Symptoms Changing
Replies: 33
Views: 1503

Re: Location of RLS Symptoms Changing

I have been off medication for several days and my RLS continues to change locations, from my right scapular, to my right shoulder and, now, to my left shoulder. I’m not currently on any diets either. Stress is low, as I’m on vacation.

I’m wondering if this has any meaning.
by Oozz
Sat Aug 29, 2020 8:51 pm
Forum: General Topics: RLS
Topic: Is this how everyone with RLS ends up?
Replies: 28
Views: 1020

Re: Is this how everyone with RLS ends up?

I just turned 34 and I have quite severe RLS. It’s been up and down, but humans are adaptive and find ways to live and enjoy life. My way of life has changed and the version of my life I thought I would have is much different because of RLS, but that isn’t a bad thing. I’m 100% sure my situation is ...
by Oozz
Mon Jul 13, 2020 2:58 am
Forum: Prescription Medications
Topic: Pentazocine (Talwin)
Replies: 1
Views: 212

Pentazocine (Talwin)

Has anyone used this medication? If so, what was your experience? It’s not widely discussed on the board. I developed stomach issues from methadone so this was recently prescribed to me because it’s a kappa opioid receptor and does not impact the GI system the same way. I’m finding that it is very h...
by Oozz
Wed Jul 08, 2020 7:57 pm
Forum: General Topics: RLS
Topic: Location of RLS Symptoms Changing
Replies: 33
Views: 1503

Re: Location of RLS Symptoms Changing

Well, I had to come off Mirapex because it was becoming inconsistent and symptoms were bleeding through. Now that I’m washing out, it’s clear to see that my symptoms have gotten worse as a result of the medication. I was only on it for 3 months so I’m hoping it goes back to normal.
by Oozz
Tue Jun 23, 2020 11:30 pm
Forum: General Topics: RLS
Topic: Inconsistent Sleep Quality
Replies: 9
Views: 565

Inconsistent Sleep Quality

It seems like my sleep quality is always inconsistent. The medications are handling my urge to move pretty well; however, no matter how consistent my life is (stress, diet, exercise), it seems like every night I’m rolling the dice on how restful the sleep will be. Does anyone else have this problem?...
by Oozz
Sat Jun 20, 2020 3:53 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Is it worth scrapping ever tiny bit of caffiene?
Replies: 14
Views: 1054

Re: Is it worth scrapping ever tiny bit of caffiene?

I do believe chronic caffeine consumption causes issues. It’s something I need to move away from. However, I’ve read that the tanin’s in tea inhibit iron absorption. I skimmed these articles just for reference so don’t shoot me if there are some holes; however, the research is out there. https://www...