Search found 217 matches

by Oozz
Tue Feb 20, 2024 6:09 am
Forum: Physical Treatments
Topic: Using tDCS Alternating Current to Stop Symptoms
Replies: 5
Views: 8700

Re: Using tDCS Alternating Current to Stop Symptoms

Unfortunately, I’m having to use similar techniques because the medications don’t work for me anymore. After putting in the effort, it is more effective than I expected. I primarily get RLS in either my left or right scapula. The tens unit can eliminate these symptoms 100% consistently, and I think ...
by Oozz
Fri Jan 19, 2024 6:23 pm
Forum: General Topics: RLS
Topic: Published Research - General Sleep and RLS (WED)
Replies: 534
Views: 375306

Re: Published Research - General Sleep and RLS (WED)

https://www.forbes.com/sites/williamhaseltine/2024/01/19/combating-alzheimers-with-focused-ultrasound-drug-delivery/amp/ I saw this on 60 minutes as well. They are using ultrasound to temporarily increase the porosity of the BBb to deliver medicine to certain areas of the brain. I’m sure there is a ...
by Oozz
Sat Jan 13, 2024 11:54 pm
Forum: Prescription Medications
Topic: Has Anyone Tried Dipiridyamole During Augmentation?
Replies: 3
Views: 2973

Has Anyone Tried Dipiridyamole During Augmentation?

As the title says, has anyone tried dipiridyamole while augmenting? Theoretically speaking, it could work to reverse augmentation…. Dipiridyamole is an adenosine uptake inhibitor. It stimulates the A1 receptor. The A1 receptor forms an heteromer with the D1 receptor. That basically means they modula...
by Oozz
Fri Oct 13, 2023 3:02 pm
Forum: General Topics: RLS
Topic: Published Research - General Sleep and RLS (WED)
Replies: 534
Views: 375306

Re: Published Research - General Sleep and RLS (WED)

Interesting case report study for treating augmentation. Any thoughts? Article title: Aripiprazole, a Novel Option in the Management of Restless Legs Syndrome (RLS) Patients with Augmentation and/or Severe RLS Symptoms: A Report of 4 Cases https://www.researchgate.net/publication/374476354_Article_t...
by Oozz
Thu Oct 12, 2023 4:00 am
Forum: Physical Treatments
Topic: Spinal Cord & DRG Stimulator Trial
Replies: 21
Views: 15543

Re: Spinal Cord & DRG Stimulator Trial

Thank you so much for responding. That helps me a lot in understanding what to expect. I was not aware that your RLS was caused by pinched nerves/back issues. Your RLS has been somewhat harder to treat, correct? Do you think that is because the pathology is different - not neurological. Mine is defi...
by Oozz
Thu Oct 05, 2023 3:46 pm
Forum: Prescription Medications
Topic: Does oxycodone cause GABA receptors to down-regulate?
Replies: 7
Views: 3066

Re: Does oxycodone cause GABA receptors to down-regulate?

After augmenting on Mirapex, my doctor tried many meds (gabapentin, pregabalin, horizon, tramadol, Tylenol #3) and clonazepam. Then I was given oxycodone, which worked. However, it took me six months to get off of clonazepam and it's taken another year to climb out of that hell. For some reason, I ...
by Oozz
Tue Oct 03, 2023 9:32 pm
Forum: Physical Treatments
Topic: Spinal Cord & DRG Stimulator Trial
Replies: 21
Views: 15543

Re: Spinal Cord & DRG Stimulator Trial

Got it. So, it was put in primarily for the RLS. I am looking to get this done right now and am meeting with doctors. I do feel like some of the doctors just want my $$. Could you tell me what the process was? Did they try a nerve blocker first before doing anything invasive? Do you know where in th...
by Oozz
Sat Sep 23, 2023 12:53 am
Forum: Physical Treatments
Topic: Spinal Cord & DRG Stimulator Trial
Replies: 21
Views: 15543

Re: Spinal Cord & DRG Stimulator Trial

I have it set for my RLS. I noticed that there is a line. If I have it set too high, then my RLS starts up. With the help of my Rep, we fined tuned the amount of stimulation. In addition, I take meds too. That being said, if I didn't have RLS, then I would focus more on my back pain. I was referrin...
by Oozz
Thu Sep 21, 2023 1:16 am
Forum: Physical Treatments
Topic: Spinal Cord & DRG Stimulator Trial
Replies: 21
Views: 15543

Re: Spinal Cord & DRG Stimulator Trial

I have had a spinal stimulator for 2 years. I think it helps. After it's put in, you will have movement restrictions for 2 months, until the areas heal. Good luck Debbie, Thank you for your response, it is nice to know that this is helpful and to hear from someone who has it. Are you still on any m...
by Oozz
Thu Aug 10, 2023 9:23 pm
Forum: Prescription Medications
Topic: Iron bloodwork
Replies: 4
Views: 5132

Re: Iron bloodwork

I think that you should fast. From my understanding, ferritin is incredibly sensitive; even coffee can raise your readings. I’m a patient ofd he recommends that I eat nothing and drink only water for at least 12 hours prior to the test. He also told me not to eat a meat heavy meal for dinner the ni...
by Oozz
Thu Aug 10, 2023 4:51 pm
Forum: General Topics: RLS
Topic: I think the doctors broke my brain
Replies: 3
Views: 6736

I think the doctors broke my brain

It’s been 7 years since I first started posting here. It has been a wild ride with ups and downs. I hate to say it but I am much worse off now then when I started this journey. I’m working with a top RLS doctor and he fails to treat me or work in my behalf. He’s basically said there is nothing left ...
by Oozz
Mon Jul 17, 2023 2:34 am
Forum: General Topics: RLS
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 850
Views: 231325

Re: Riding the Big One (RLS 24/7, Hanging Ten)

My breakthroughs symptoms occur differently. I don’t get an urge to move, i just wake up. It’s very unusual and I was trying the determine if you also may have experienced this, but I think not. Did you escalate your dose of methadone prior to going on buprenorphine? Although both are opioids, bupre...
by Oozz
Mon Jul 03, 2023 11:52 am
Forum: General Topics: RLS
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 850
Views: 231325

Re: Riding the Big One (RLS 24/7, Hanging Ten)

EEfall - When you wake up from “breakthrough” symptoms, what is it like? Do you get the urge to move or does it just suddenly wake you up from sleep?
by Oozz
Thu Jun 29, 2023 5:33 pm
Forum: Prescription Medications
Topic: Why RLS Patients Do Not Become Opioid Tolerant
Replies: 1
Views: 3927

Why RLS Patients Do Not Become Opioid Tolerant

This question goes out to my fellow RLS experts. What would be your best guess as to why most RLS patients do not incur tolerance to opioids? Based on my understanding, opioids act on the dopamine system via inhibition of gaba. This causes an in increase in dopamine production. There is also no rece...
by Oozz
Wed May 17, 2023 5:39 pm
Forum: Prescription Medications
Topic: What Comes After Methadone?
Replies: 23
Views: 12452

Re: What Comes After Methadone?

I had the same issue with methadone (after about a decade of highly effective use of oxycodone, it's efficacy diminished quickly, and subsequently went to methadone.) Knocked out my severe RLS, but I felt absolutely awful...sluggish, nauseous, cranky and mildly depressed 24/7. Went to buprenorphine...