Restless Legs Syndrome (RLS) Discussion Board

I realize this is an old thread, but I hope to get some new responses. We bought a tempurpedic a couple of months ago. For a solid month, every night I had terrible RLS. It drove me into the guest room, where we have a very old coil mattress. My RLS was better - milder and not every night. I conclud...

I'm so grateful for the information, Holland. We're out here alone with this bizarre ailment. To have access to the knowledge and experience here is a great gift.

Thank you also for relieving my worry about the non-fasting test. My heart sank at first! I will pursue treatment and keep my hopes up.

Thank you, Beth! Lyrica is definitely helping the symptoms, but my poor brain... I got some new IRON TESTING results, and I think they warrant consideration for iron infusion treatment. I'd be grateful for some feedback. EDITED just now, though: I realize these numbers may not be relevant. I was not...

So grateful for that, Holland. It's all so slow and frustrating, but information cures fear, if not RLS! I would really hate to get the blood test and have to repeat it.

By the way, my attempt to get off Lyrica has been a failed experiment. My brain is definitely working better, but I've had one night of sleep in five nights, and that only because of medication. While I wait to see a doctor, I'll go back to Lyrica at 50 mg. I can't cope and need some kind of treatme...

Beth, thank you for the information. About Neupro: I was put on the patch. I can't remember the dosage, but it wasn't high. Before long I realized I felt heavily drugged. Couldn't finish sentences, couldn't think. I stopped taking it fairly quickly, but it took a while for me to return to normal. Fi...

A couple of questions! I admit I don't really understand the Elsevier article on iron. Which iron blood test specifically should I request from my GP? I found past lab work and found these results. Are these the right tests? Iron Bind/Cap 368 Iron, Serum 70 Iron Saturation 19 Ferritin, Serum 112 I'm...

Steve and Betty - I really appreciate that feedback. I could live with that treatment (combining codeine and pregabalin) IF I can keep the Lyrica at a low enough dose not to feel brain-impaired. I'm going to take information about iron testing with me to my appointment and be very specific about the...

Thank you all so much for these replies! In the absence of a good specialist, I've been trying to find my own way. It's good to hear from people who know and understand. Steve - I've had some iron blood testing (normal), but not recently. I'm not even sure it included ferritin. I'll pursue this with...

Hi. I've been a member of the RLS Foundation a few years, reading materials regularly, but haven't been to the forum. Things have changed, and I could really use input. I have three overlapping issues: insomnia; foot neuropathy; and RLS. I've had RLS for many years, but it has become worse in these ...