Restless Legs Syndrome (RLS) Discussion Board

The VA is a system that has long been broken and even though some have tried there is just no fix in sight. You should read some of the comments posted in the several veteran Facebook groups I'm in. For instance when I came back from my failed appointment at the Baylor College of Medicine in Houston...

Good idea, I'll have my scans with me but hold off at the VA in giving them. At least the VA doctor will have all my records ahead of time since they're all electronic now. The neurologist at my UTMB appointment is a different matter. I'll make sure to have everything with me for when she asks but w...

Hi Ann, I didn't know about not providing prior tests. So I shouldn't take my MRI/CT scan results to UTMB with me or should I? I can see not taking prior diagnosis to a doctor, let them make their own decision. I also can see leaving a doctor who gives up, I tried that at the VA I go to and they ref...

I always take a DVD with my dancing videos and a DVD with my MRI/CT scans that were done at the VA with me. I make it a point to tell all doctors at the very beginning that I don't have vertigo or dizziness. Each time they would say something about vertigo or dizziness I correct them. I'll be going ...

That's what I thought to when I looked at the min-max levels. I'm hoping I can find something out next month when I go to the Houston VA PADRECC (Parkinson’s Disease Research, Education and Clinical Centers) they also are involved in Movement Disorders.

Thanks for the reply. I had my Ferritin level tested last year in Feb - FERRITIN 217 , here's what it was 13 Nov 2015 - FERRITIN 301 High ng/mL (30-300) so I'll have to assume that's pretty good? I've also had these done: IRON +TIBC VITAMIN B12 COPPER, SERUM CERULOPLASMIN VITAMIN E TSH (3RD GENERATI...

At the time this started I was only taking AMLODIPINE, ALBUTEROL and BUDESONIDE 80/FORMOTER. I would have hoped that if any of these would be causing this that my VA Neurologist or any of the other specialists I've seen would have alerted to it. As far as blood tests I get a complete workup every 6 ...

I agree Steve, it's more than likely not RLS. I'm hoping also that I can get a correct diagnosis as I'm about at my wits end with this.

Steve, thanks for the quick reply. At the first site you linked I can positively now say that by reading the criteria I do not have RLS. 1. An urge to move the legs usually but not always accompanied by or felt to be caused by uncomfortable and unpleasant sensations in the legs.1, 2 I have no unplea...

First of all thanks for the add to the forums. A bit of history, since Feb of last year I have had a problem with involuntary foot stomping - https://youtu.be/Q8kQLcymZhc (hopefully I'm not in trouble for posting this link to a video my wife took). My VA neurologist has literally given up on diagnos...