Search found 13 matches

by JoLyn
Sun Feb 04, 2018 1:07 am
Forum: Just Joined?
Topic: Thanks for the add Rustsmith
Replies: 35
Views: 6801

Re: Thanks for the add Rustsmith

Can I ask if you mean 0.1 mg or 1 mg? Okay, I don't seem to get the dosage right, lol ... I am taking two 0.5 mg pills. So isn't that 1 mg? I am hoping that my doctor will prescribe something for pain management now that I have my CPAP and he won't need to be concerned that I will stop breathing du...
by JoLyn
Sat Feb 03, 2018 5:36 pm
Forum: Just Joined?
Topic: Thanks for the add Rustsmith
Replies: 35
Views: 6801

Re: Thanks for the add Rustsmith

Your doctor may not even know about augmentation. You can tell him/her that you've learned two things that you need to ask him about before raising your dose, and that it's critical. First, you learned from the RLS Foundation that ferritin levels below 75 are associated with a higher risk of augmen...
by JoLyn
Sat Feb 03, 2018 5:26 pm
Forum: Just Joined?
Topic: Thanks for the add Rustsmith
Replies: 35
Views: 6801

Re: Thanks for the add Rustsmith

JoLyn, I can relate to your frustration. I have a good primary doctor who isn't up on RLS at all. I guess I just want to encourage you to keep on looking for solutions to your struggle with sleep apnea and RLS. I have an appointment at a RLS quality care center on Feb. 20 in San Diego. I live in no...
by JoLyn
Thu Feb 01, 2018 12:04 pm
Forum: Just Joined?
Topic: Thanks for the add Rustsmith
Replies: 35
Views: 6801

Re: Thanks for the add Rustsmith

[quote="badnights"]Your letter is good, since it raises the questions you want answered. Watch the decimal point - - you mean 0.5 not 0.05 mg Mirapex. If you leave the leading zero off, you would say .5 mg not .05 mg. This is worth sending a correction to him, so he doesn't discount everyt...
by JoLyn
Tue Jan 30, 2018 2:24 pm
Forum: Just Joined?
Topic: Thanks for the add Rustsmith
Replies: 35
Views: 6801

Re: Thanks for the add Rustsmith

I really am kind of a wreck. This situation with RLS and Sleep Apnea is really difficult. I am still awaiting my CPAP machine and really don't look forward to the struggle trying to use it. When I was doing my 8 day trial I only slept about 16 hours during the whole thing. I emailed my doctor on Fri...
by JoLyn
Sun Jan 28, 2018 2:21 pm
Forum: Just Joined?
Topic: Thanks for the add Rustsmith
Replies: 35
Views: 6801

Re: Thanks for the add Rustsmith

JoLyn, although Dr B has his offices in the LA area, he is also on the faculty of the Stanford Sleep Medicine Center, which is one of the RLS Foundation's Quality Care Clinics. I realize that Stanford is not part of the Kaiser network and that it is somewhat far from Sacramento, but many of us trav...
by JoLyn
Fri Jan 26, 2018 5:21 pm
Forum: Just Joined?
Topic: Thanks for the add Rustsmith
Replies: 35
Views: 6801

Re: Thanks for the add Rustsmith

JoLyn - Dr Mark Buchfuhrer is in Southern California and he is most definitely a wonderful man to see if at all possible. He is a Sleep and RLS Specialist and is heavily involved in the treatment of this condition. I am in a rush just now and don't have the contact details just at the moment but I'...
by JoLyn
Fri Jan 26, 2018 4:37 am
Forum: Just Joined?
Topic: Thanks for the add Rustsmith
Replies: 35
Views: 6801

Re: Thanks for the add Rustsmith

Thank you Holland & Steve! I am with Kaiser Permanente here in California so I don't know what my options may be at this point. I will find out though. I was encouraged when I talked to my PCP because he seems to be willing to check out options. As I said earlier he wants me to double my Mirapex...
by JoLyn
Thu Jan 25, 2018 9:57 pm
Forum: Just Joined?
Topic: Thanks for the add Rustsmith
Replies: 35
Views: 6801

Re: Thanks for the add Rustsmith

I'm kind of shocked at what I am learning here ... I thought the requip/mirapex, etc., was the standard treatment for RLS. Now having my PCP wanting to increase the mirapex dose, wow. I just looked it up and I started with requip about 6 months ago. So only 6 months on the dopamine type meds. Hollan...
by JoLyn
Thu Jan 25, 2018 2:14 am
Forum: Just Joined?
Topic: Thanks for the add Rustsmith
Replies: 35
Views: 6801

Re: Thanks for the add Rustsmith

Blessings to you as well Holland. You have clarified my situation beautifully. This is all new and a steep learning curve for me. I am so grateful I found this forum because I was all on my own trying to figure this all out. I appreciate the help and advise so very much! My PCP was interested in the...
by JoLyn
Thu Jan 25, 2018 2:02 am
Forum: Just Joined?
Topic: Thanks for the add Rustsmith
Replies: 35
Views: 6801

Re: Thanks for the add Rustsmith

Thank you Steve. I will read the info on Augmentation. I am very concerned about the increased Mirapex dose The link you have posted is what I sent to my doctor this morning. That info was what made me aware of my increased symptoms when I went off or changed my pain meds. I had previously only been...
by JoLyn
Thu Jan 25, 2018 1:44 am
Forum: Just Joined?
Topic: Thanks for the add Rustsmith
Replies: 35
Views: 6801

Re: Thanks for the add Rustsmith

Hmmm ... I just had a phone appointment with my doctor and he wants me to increase the Mirapex to 0.1 mg at night. Holland, you say that 0.5 is a high dose but now I am to increase. This is alarming to me. My doctor also said the frequent urge to pee is a symptom of my sleep apnea and not related to...
by JoLyn
Thu Jan 25, 2018 12:58 am
Forum: Just Joined?
Topic: Thanks for the add Rustsmith
Replies: 35
Views: 6801

Thanks for the add Rustsmith

Hi All ... I am a 68 yo female and have had RLS for about 15 years. I was only diagnosed about a year ago because I didn't realize this was what I have. I'm not sure if anyone else suffers from this but my symptoms include a bladder component. I can be dead exhausted and just begin to fall asleep wh...