Search found 7 matches

by TiredGrammy
Sat Jun 09, 2018 12:27 am
Forum: Prescription Medications
Topic: Uh-oh... methadone hassles?
Replies: 26
Views: 917

Re: Uh-oh... methadone hassles?

debbluebird...I am a 42 year veteran of RLS, new to this really awesome and helpful discussion board, and new to Methadone, which is not working great any more, (I've been on it since the beginning of March.) You mention a low dose of Methadone. May I ask - what is considered a low dose? When in the...
by TiredGrammy
Fri Jun 08, 2018 11:42 pm
Forum: Prescription Medications
Topic: Methadone was working, now it's not
Replies: 5
Views: 333

Methadone was working, now it's not

Thank you in advance for any input. My local sleep doc had me on 6 different meds for RLS, including more than 9 mg of Dopamine Agonists. I was averaging 0-3 hours of sleep/night, the remaining hours were spent pacing, jogging, and riding my exercise bike. I ended up at Johns Hopkins, that doctor to...
by TiredGrammy
Tue May 01, 2018 8:11 pm
Forum: Prescription Medications
Topic: Broken ankle second night on methadone
Replies: 10
Views: 852

Re: Broken ankle second night on methadone

Hi All - I am the mom discussed in the conversation thread above. I can't thank you enough for your support - through my amazing daughter - as I struggled to make it through each day of recovery. At first it felt as though my leg was having frequent seizures. But I was in too much pain or on too muc...
by TiredGrammy
Thu Feb 01, 2018 10:59 pm
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 331
Views: 24273

Re: What Severe RLS is Like

What a heartbreakingly accurate vivid description. You have a real gift for words. That gift really made a difference for me as I imagine it will for others, as it helps us to know we are not in this alone and we are fighting this battle with others who get it. Even if so many doctors don't. I hope ...
by TiredGrammy
Tue Jan 30, 2018 2:51 pm
Forum: Just Joined?
Topic: RLS 41 years, weaning off Neupro, going through hell
Replies: 6
Views: 804

Re: RLS 41 years, weaning off Neupro, going through hell

Yes - I have been taking the Norco 10/325. Seems to have about the same effect as eating M&Ms. Last night I tried 2mg Neupro. About 1/2 hour after trying to go to sleep, the jerking started so I too 1 mg Alprazolam, fell asleep about 12. Slept until 8 or so. I just feel tired now....a bit like a...
by TiredGrammy
Tue Jan 30, 2018 2:43 am
Forum: Prescription Medications
Topic: Is your DA causing augmentation?
Replies: 121
Views: 24622

Re: Is your DA causing augmentation?

Oh wow! I sure wish I'd seen this a few years ago...before my neurologist had me on 3 mg Pramipexole. Along with Gabapentin. Before another doc had me on 6 mg Neupro, .75 Pramipexole, Sinemet, Clonazepam, Norco, all at the same time. Went to Johns Hopkins, He took me off Sinemet and Clonazepam immed...
by TiredGrammy
Tue Jan 30, 2018 2:23 am
Forum: Just Joined?
Topic: RLS 41 years, weaning off Neupro, going through hell
Replies: 6
Views: 804

RLS 41 years, weaning off Neupro, going through hell

Hi - I just found this amazing site and wish I'd known about it for years. But...I do now. I've been to so many doctors, one excellent, some ok, some....not. I was at Johns Hopkins RLS center in November where a doctor said I am on too many meds. Can't argue with that - 7 does seem a bit extreme. He...

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