Search found 8 matches

by 2restless
Mon Oct 15, 2018 1:37 pm
Forum: Prescription Medications
Topic: methadone not working
Replies: 6
Views: 90

Re: methadone not working

This sounds like a plan. Let me see if I understand you correctly. You cut your Methadone dose down by half, and then take the pramipexole with it, for about 5 days (which can vary,depending on the person), then stop the pramipexole and go back to Methadone alone again for a time. When you go back t...
by 2restless
Mon Oct 15, 2018 12:01 am
Forum: Prescription Medications
Topic: methadone not working
Replies: 6
Views: 90

methadone not working

My husband has severe refractory RLS, like many of you. We've been thru everything. In June we started methadone - he initially needed 10 mg tid, but was able to cut down to 10 mg twice a day within a month. However, now the RLS is back. The pattern at night is 1-2 hours of sleep, awake for 1/2 - 2 ...
by 2restless
Wed May 16, 2018 2:14 pm
Forum: General Topics: RLS/WED
Topic: IV iron infusion
Replies: 2
Views: 540

IV iron infusion

My husband is starting iron infusions. His ferriton was 93, we are trying to raise it to 125. A literature search by the doctor revealed that low molecular weight iron (iron gluconate) gets into the CNS system best, so he is having 8 infusions (1/day) 125 mg each. I have been told that Medicare will...
by 2restless
Wed May 16, 2018 2:11 pm
Forum: General Topics: RLS/WED
Topic: Refractory RLS
Replies: 10
Views: 728

Re: Refractory RLS

Thank you all for your comments. This is very helpful. He is starting IV iron today. A literature search by the doctor revealed that low molecular weight iron (iron gluconate) gets into the CNS system best, so he is having 8 infusions (1/day) 125 mg each. I have been told that medicare will not pay ...
by 2restless
Sat May 12, 2018 11:14 pm
Forum: General Topics: RLS/WED
Topic: Refractory RLS
Replies: 10
Views: 728

Refractory RLS

We have been weaning my husbands pramipexole - starting at 3 mg, now at 0.75. He is taking 600 mg Horizant before dinner, with 0.5 mg of pramipexole, and then the last 0.25 mg before bed. We got a script for oxycodone to help with the withdrawal as we wean. The first few times he used it, it helped,...
by 2restless
Sat Feb 03, 2018 3:57 pm
Forum: Just Joined?
Topic: Just joined
Replies: 51
Views: 5436

Re: Just joined

stjohnh Thanks for your reply. I am interested in kratom. My sister-in-law mentioned it to me and I did some reading, but am pretty unfamiliar with it. Is it addictive? Where do you get it - Amazon? How well does it work? Are there side effects or drug interactions with it? What does the medical com...
by 2restless
Sat Feb 03, 2018 3:46 pm
Forum: Just Joined?
Topic: Just joined
Replies: 51
Views: 5436

Re: Just joined

Rustsmith, thank you for the information. I had not heard of DAWS and have been reading about it. Sounds awful. I've spoken with Mayo twice this week, we will hold my husband's dose at 3 mg for 2 weeks, and then attempt a wean again. They do not recommend an abrupt withdrawal. I let them know that I...
by 2restless
Thu Feb 01, 2018 3:03 am
Forum: Just Joined?
Topic: Just joined
Replies: 51
Views: 5436

Just joined

Hello, my husband has had RLS for 40 years. Symptoms have gotten so severe we went to Mayo in early January to seek help. He is on 3 mg Mirapex, and was taking 900 mg Gabapentin with no relief. Options from Mayo included Neupro, Horizant, Lyrica ( at 150 mg bid- we previously had tried 75 mg bid wit...

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