Search found 15 matches

by 2restless
Fri Jul 12, 2019 1:48 am
Forum: Prescription Medications
Topic: RLS from 12mn to 7AM on Methadone
Replies: 9
Views: 153

Re: RLS from 12mn to 7AM on Methadone

I think you may be on onto something. It has been about year since he had his iron infusions. I can't remember what type he had, but will find out when we see his doc next week. I do remember that they researched what was best with RLS. One that they wanted to do was not available. I mentioned anoth...
by 2restless
Wed Jul 10, 2019 2:46 pm
Forum: Prescription Medications
Topic: RLS from 12mn to 7AM on Methadone
Replies: 9
Views: 153

Re: RLS from 12mn to 7AM on Methadone

He has stopped it for a total of 3 weeks in the past. When he restarted the pramipexole he restarted at 0.125 mg, and sometimes will take 0.25 mg Takes it maybe 3-4xweek,but it doesn't seem to be helping much. We don't know if it is making things worse or better. The last 3 days he has had a total o...
by 2restless
Sun Jun 30, 2019 9:07 pm
Forum: Prescription Medications
Topic: RLS from 12mn to 7AM on Methadone
Replies: 9
Views: 153

Re: RLS from 12mn to 7AM on Methadone

No, its not a urinary problem. His restless legs are waking him.
by 2restless
Sun Jun 30, 2019 3:04 pm
Forum: Prescription Medications
Topic: RLS from 12mn to 7AM on Methadone
Replies: 9
Views: 153

RLS from 12mn to 7AM on Methadone

My husband is on Methadone, which has worked wonders. His RLS during the day is so much better, he can read again, sit and watch movies. He is on 20 mg/day, also takes 150mg Lyrica twice a day, and on some nights 0.125 to 0.25 mg pramipexole. (he was on 3 mg at one time, augmented terribly). The pro...
by 2restless
Sun Nov 11, 2018 3:08 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Kratom and insomnia
Replies: 8
Views: 431

Re: Kratom and insomnia

Thank you all for your responses. He's had a terrible week - an hour of sleep here and there, no more than 3 hours/night. Mostly due to RLS symptoms, but several nights due to insomnia. I will try the Methadone earlier in the day, and perhaps increase the dose. He's been taking 20 mg, but his dr has...
by 2restless
Sat Nov 10, 2018 5:27 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Kratom and insomnia
Replies: 8
Views: 431

Kratom and insomnia

My husband is on methadone, which has helped the severity of his symptoms, but the RLS still causes a fair amount of sleeplessness, and on nights when he doesn't have the restlessness, he has insomnia from the Methadone. Would kratom help him to sleep on those nights? Where do you get it?
by 2restless
Sat Nov 10, 2018 5:05 pm
Forum: Prescription Medications
Topic: methadone not working
Replies: 18
Views: 887

Re: methadone not working

QyX, My husband has had RLS for 40 years. He is 70 in a few weeks. We have tried sinemet, clonazepam, pergolide, requip, pramipexole, Horizant, gabapentin, Lyrica, tramadol, oxycodone. Additionally we have tried vitamins, magnesium, calcium, gluten free diets, dry needling by physical therapy, refle...
by 2restless
Mon Oct 15, 2018 1:37 pm
Forum: Prescription Medications
Topic: methadone not working
Replies: 18
Views: 887

Re: methadone not working

This sounds like a plan. Let me see if I understand you correctly. You cut your Methadone dose down by half, and then take the pramipexole with it, for about 5 days (which can vary,depending on the person), then stop the pramipexole and go back to Methadone alone again for a time. When you go back t...
by 2restless
Mon Oct 15, 2018 12:01 am
Forum: Prescription Medications
Topic: methadone not working
Replies: 18
Views: 887

methadone not working

My husband has severe refractory RLS, like many of you. We've been thru everything. In June we started methadone - he initially needed 10 mg tid, but was able to cut down to 10 mg twice a day within a month. However, now the RLS is back. The pattern at night is 1-2 hours of sleep, awake for 1/2 - 2 ...
by 2restless
Wed May 16, 2018 2:14 pm
Forum: General Topics: RLS/WED
Topic: IV iron infusion
Replies: 2
Views: 782

IV iron infusion

My husband is starting iron infusions. His ferriton was 93, we are trying to raise it to 125. A literature search by the doctor revealed that low molecular weight iron (iron gluconate) gets into the CNS system best, so he is having 8 infusions (1/day) 125 mg each. I have been told that Medicare will...
by 2restless
Wed May 16, 2018 2:11 pm
Forum: General Topics: RLS/WED
Topic: Refractory RLS
Replies: 10
Views: 969

Re: Refractory RLS

Thank you all for your comments. This is very helpful. He is starting IV iron today. A literature search by the doctor revealed that low molecular weight iron (iron gluconate) gets into the CNS system best, so he is having 8 infusions (1/day) 125 mg each. I have been told that medicare will not pay ...
by 2restless
Sat May 12, 2018 11:14 pm
Forum: General Topics: RLS/WED
Topic: Refractory RLS
Replies: 10
Views: 969

Refractory RLS

We have been weaning my husbands pramipexole - starting at 3 mg, now at 0.75. He is taking 600 mg Horizant before dinner, with 0.5 mg of pramipexole, and then the last 0.25 mg before bed. We got a script for oxycodone to help with the withdrawal as we wean. The first few times he used it, it helped,...
by 2restless
Sat Feb 03, 2018 3:57 pm
Forum: Just Joined?
Topic: Just joined
Replies: 51
Views: 6592

Re: Just joined

stjohnh Thanks for your reply. I am interested in kratom. My sister-in-law mentioned it to me and I did some reading, but am pretty unfamiliar with it. Is it addictive? Where do you get it - Amazon? How well does it work? Are there side effects or drug interactions with it? What does the medical com...
by 2restless
Sat Feb 03, 2018 3:46 pm
Forum: Just Joined?
Topic: Just joined
Replies: 51
Views: 6592

Re: Just joined

Rustsmith, thank you for the information. I had not heard of DAWS and have been reading about it. Sounds awful. I've spoken with Mayo twice this week, we will hold my husband's dose at 3 mg for 2 weeks, and then attempt a wean again. They do not recommend an abrupt withdrawal. I let them know that I...
by 2restless
Thu Feb 01, 2018 3:03 am
Forum: Just Joined?
Topic: Just joined
Replies: 51
Views: 6592

Just joined

Hello, my husband has had RLS for 40 years. Symptoms have gotten so severe we went to Mayo in early January to seek help. He is on 3 mg Mirapex, and was taking 900 mg Gabapentin with no relief. Options from Mayo included Neupro, Horizant, Lyrica ( at 150 mg bid- we previously had tried 75 mg bid wit...

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